Abstract
Abstract
Skype™, an Internet-based communication tool, has enhanced communication under numerous circumstances. As telemedicine continues to be an increasing part of medical practice, there will be more opportunities to use Skype and similar tools. Numerous scenarios in the lay literature have helped to highlight the potential uses. Although most commonly used to enhance physician-to-patient communication, there has been limited reported use of Skype for patient-to-family communication, especially in end of life and palliative care. Our inpatient Palliative Medicine Consultation Service has offered and used this technology to enhance our patients' quality of life.
The objective was to provide another tool for our patients to use to communicate with family and/or friends, especially under circumstances in which clinical symptoms, functional status, financial concerns, or geographic limitations preclude in-person face-to face communication.
Introduction
We provide four clinical examples in which patients seen on our inpatient Palliative Medicine Consultation Service were able to enhance the quality of their lives or achieve personal goals via the use of Skype.
Case Descriptions
Case 1
A 46-year-old male was admitted with newly diagnosed acute lymphocytic leukemia. He lived in a rural area where the local community hospital was unable to provide the medical support he needed. His wife, who worked full time, and his two children, ages 14 and 12, were having a difficult time driving the 55 minutes to see him. The family was interested in transferring the patient to a hospital closer to home; however, his neutropenic status placed him in isolation and precluded a safe transfer. Additionally, the patient had a strong relationship with his primary oncologist, who did not have privileges at the closer hospital. The Palliative Medicine Consultation Service was consulted to help clarify the goals of care and “hear the patient's voice.” During a family conference, ways of communicating with the patient's children were suggested. Skype was employed to help provide strong family support and to ease the emotional burden, especially for the children. Using technology resources at our hospital and Skype software, the patient was able to talk with and see his children and participate in their school and personal lives.
Case 2
A 78-year-old male with duodenal malignancy was admitted for intractable nausea and vomiting. His only nephew, with whom he had a very close relationship, was scheduled to be married the same week, and the patient was to have served as best man. Although the patient hoped he would be discharged prior to the ceremony, his clinical condition worsened and attendance at the wedding was impossible. He did not want the wedding cancelled, which was a consideration the family entertained. Our Palliative Medicine Consultation Service arranged for him to be “present” at the wedding via Skype. This was significant as the patient was also suffering from spiritual pain, and we were able to contribute to relief of both his physical and spiritual suffering. His “attendance” at the wedding had great meaning to him and his family, and allowed this happy event to proceed.
Case 3
A 26-year-old Filipino female was admitted with a closed head injury following a horrific motor vehicle accident. Her condition deteriorated and the Palliative Medicine Consultation Service was involved with her family in discussions regarding compassionate withdrawal of life support. Local family members were in agreement, but they felt strongly that input from family in the Philippines was critical. Skype was used so family members in the Philippines could better understand the serious nature of the patient's condition, be helped to appreciate the lack of clinical improvement during the hospitalization, and have enhanced nonverbal communication. Although the clinical outcome did not change, use of the technology facilitated closure for the family and supported their cultural beliefs.
Case 4
An 82-year-old male with metastatic colon cancer was admitted with anorexia and weakness. The Palliative Medicine Consultation Service was asked to help with symptom management and family support. As it appeared that the patient was imminently dying, we inquired as to what was most important to this patient. Besides his local family, he most wanted to visit with a beloved cousin who lived in Tennessee. As this was not financially possible for the cousin, Skype was employed to allow the patient and cousin to visually communicate with each other. The patient died peacefully 48 hours later.
Equipment Needed
Skype is a communication tool allowing its users to make computer-to-computer calls with audio and video capability. Fortunately, the equipment needed is basic and relatively inexpensive, consisting of a PC or MAC computer with broadband Internet connection, speakers, a microphone (often built in), and a webcam (usually built in but can be added). Additionally, Skype is now available on many personal communication devices, which will allow more people to avail themselves of it.4–6
Legal Issues
Discussion
These cases highlight the important role telemedicine, and Skype specifically, can play in palliative care. A PubMed search of the literature using MeSH keywords “palliative care,” “video-conferencing,” “social isolation,” and “communication” did not reveal any literature specific to Skype being used in an inpatient hospital setting as a means for palliative care patients to communicate with their families. However, there is literature addressing the use of this type of technology for physician-to-patient communication in various settings,8–11 as well as for patient-to-family communication in long-term care facilities and rural health settings.12–15 There are also studies validating the use of a variety of modalities in relieving social isolation, such as the use of poetry, pet therapy, and music therapy.16–18
Before Skype, advocation for alternative communication systems in medical diagnosis, patient and family communication and decision making had been present in the literature. These systems have been used to help patients and families in multiple medical situations,19,20 including the use of telemedicine in hospice care, as well as in long-term care.21,22 Additionally, values of telemedicine have been demonstrated in psychiatry and oncology, and in rural areas with limited physical access to specialized medical care.23,24 The key benefits of the use of telemedicine in these situations were a sense of closeness, reduced feelings of guilt, and minimized social isolation.
The majority of inpatient palliative medicine consults seen in the community hospital setting are to help “establish goals of care.” Relief of physical, psychological, and social suffering are the other reasons for consultation. Although symptom management is important to them, patients and their families often consider enhancing patient-family communication to be of critical importance. Many of our patients are so weak or debilitated by their disease that providing them with a resource with which they can see and speak with distant family members and/or friends enhances the quality of their lives. The emphasis on relief of physical symptoms, a common request of our referral providers, often overlooks the emotional support our palliative care patients need. Skyping between patient and family can help relieve burdens and strengthen relationships with loved ones. In a qualitative study regarding a patient's perspective on quality end-of-life care, Singer and colleagues 25 state that “although most commentators focus on end-of-life relationships between physicians and patients, these results suggest that communication between dying people and their loved ones is crucial.” The study describes five domains that are important from a patient perspective, with two of them being relieving burden on loved ones and strengthening relationships with loved ones. 25 Our experience with Skype reveals that technology can facilitate this aspect of quality of life for our palliative care patients, especially for those at the end of life. We have found, as previous studies have, that for the dying experience to be most meaningful, participants desired involvement of family and loved ones, regardless of their physical presence. Additionally, our team chaplain and social worker have reported less symptom burden in spiritual pain and social isolation.
Most hospitals today have the ability to facilitate the use of Skype between patients and their families. More often than not, the family or the hospital is able to provide the communication equipment (laptop, tablet, mobile phone, or other WiFi enabled portable device), and the actual cost to use the Skype service is free. Facilitating communication using Skype for patients at the end of life, or for those whose functional status precludes an opportunity for direct communication, is a valuable tool, which can be employed with relative ease. It also allows family members, who for many reasons may not be able to be physically present, to interact with their loved ones. As telemedicine continues to play an ever-increasing role in palliative medicine, it is our hope that recognition of the value of Skype in direct patient-to-family communication will grow and its use will expand.
Footnotes
Acknowledgments
The support of John VanBuskirk, D.O., Lori Olson, R.N., and Betsy Bartholomew, MILS, is greatly appreciated.
Author Disclosure Statement
No competing financial interests exist.
