Abstract
The care of people with Graves' orbitopathy can be vastly improved by making centers of excellence more accessible to them.
In October 2009, international experts on Graves' orbitopathy, representatives of professional organizations and patient representatives met in Amsterdam and unanimously agreed on the following:
Health care providers and professional organizations should recognize the need to improve the care of people with Graves' orbitopathy and support plans for implementing better care and prevention.
The general objectives are To minimize the morbidity associated with Graves' orbitopathy and improve the patients' experience and quality of life To prevent the development of Graves' orbitopathy in people at high risk
The 5-year targets are Raise awareness of this condition among health care professionals and managers Establish pathways of referral and care Support existing centers of excellence in management of this condition Create new centers of excellence in localities where they are lacking Establish audit and monitoring mechanisms of quality assurance of provision of care to people with Graves' orbitopathy Implement measures to reduce the incidence and morbidity of the disease by Halving the time from presentation to diagnosis Halving the time from diagnosis to referral to a center of excellence Appropriate management of thyroid dysfunction including use of radioiodine Vigorous antismoking measures in patients at risk of or with Graves' orbitopathy Improve the existing research networks and develop further international collaborative research
Cosignatories of the Amsterdam Declaration
International professional organizations
Academia Ophthalmologica Europea
Academia Ophthalmologica Internationalis
American Thyroid Association
Asia-Oceania Thyroid Association
Asia Pacific Society of Ophthalmic Plastic and Reconstructive Surgery
Endocrine Society
European Association for Vision and Eye Research (EVER)
European Group on Graves' Orbitopathy
European Society of Endocrinology
European Society of Orbital Plastic Reconstructive Surgery
European Thyroid Association
Iberico-American Society of Ophthalmic Plastic and Orbital Surgery
International Thyroid Eye Disease Study Group
Latin-American Thyroid Society
World Society of Pediatric Ophthalmology and Strabismus (WSPOS)
International thyroid patient association
Thyroid Federation International
National professional organizations
All India Ophthalmological Society
American Association of Clinical Endocrinologists
Argentina Council of Ophthalmology (Consejo Argentino de Oftalmologia)
Argentina Society of Ophthalmology (SAO)
Belgian Endocrine Society
Belgian Thyroid Club
Bielschowsky-Gesellschaft für Schielforschung und Neuroophthalmologie
British Oculoplastic Surgery Society
British Thyroid Association
Chinese Society of Ophthalmology
Cyprus Endocrine Society
Danish Thyroid Association
Dutch Endocrine Society
Finnish Endocrine Society
French Endocrine Society
French Society of Ophthalmic Plastic Reconstructive and Aesthetic Surgery
German Endocrine Society
German Thyroid Board
German Society of Ophthalmology (Deutsche Ophthalmologische Gesellschaft)
Hellenic Endocrine Society
Hellenic Society of Ophthalmic Plastic and Reconstructive Surgery
Irish Endocrine Society
Italian Association of Medical Endocrinologists (Associazione Medici Endocrinologi)
Italian Society of Endocrinology
Italian Society of Ophthalmic Plastic Surgery (Società Italiana di Chirurgia Oftalmoplastica, SICOP)
Italian Thyroid Association
Japan Thyroid Association
Japanese Society of Ophthalmology
Macedonian Endocrine Association
Oculoplastic Association of India
Ophthalmological Society of Portorico (Sociedad Puertorriqueña de Oftalmología)
Philippine Society of Ophthalmic Plastic and Reconstructive Surgery (PSOPRS)
Philippine Academy of Ophthalmology (PAO)
Polish Thyroid Society
Romanian Society for Endocrinology
Royal College of Ophthalmologists (UK)
Serbian Endocrine Society
Slovak Endocrine Society
Società Oftalmologica Italiana
Society for Endocrinology (UK)
South African Society of Oculoplastic Surgeons
Spanish Society of Ophthalmic Plastic and Orbital Surgery (Sociedad Espanola de Cirurgia Plastica Ocular y Orbitaria, SECPOO)
Swiss Endocrine and Diabetes Society (SGED/SSED)
Turkish Society for Endocrinology and Metabolism
National thyroid patient organizations
Association “Vivre sans Thyroïde”
British Thyroid Foundation
Finnish Thyroid Foundation
Georgian Union of Diabetes and Endocrine Associations (GUDEAS)
Italian Thyroid Patient Association
La Asociación Mexicana de Tiroides
Nederlandse Vereniging van Graves' patienten
Norsk Thyreoideaforbund
Ohne Schilddrüse leben e.V.
Schilddrüsen-Liga Deutschland e.V.
Schildklierstichting Nederland (Thyroid Patients Organization of the Netherlands)
Svenska Sköldkörtel Föreningen.
The Australian Thyroid Foundation Ltd.
Thyroid Australia
Thyroid Eye Disease charitable trust (UK)
Thyreoidea Landsforeningen
Instituto da Tiroide
Japan Thyroid Foundation
Thyroid Foundation of Canada/La Fondation canadienne de la Thyroïde
Thyroid Foundation of St. Petersburg
United States of America Graves' Disease Foundation
Verein Schilddrüsengruppe Schweiz
Footnotes
The Amsterdam Declaration was signed at the Royal Netherlands Academy of Sciences in Amsterdam on October 30, 2009, during the 10th International Symposium on Graves' Orbitopathy, sponsored by the Academic Medical Centre, University of Amsterdam. This notice was submitted by Petros Perros and Wilmar M. Wiersinga.