Abstract
Introduction
Fifty-one percent of Switzerland's Internet users search for medical information. 1 Individuals consulting the Internet for health questions use a search engine rather than a specific site to get information. 2 The quality of online health information is mixed, and depending on the degree to which individuals interpret and trust this information, it can lead to confusion and anxiety, instead of creating clarity for the information seeker. 3 Nevertheless, the Internet also has a huge potential for healthcare and medical education. Online consultation services make advances toward the development of a new role of the patient being more self-empowered and offer the possibility to become informed about health issues independently from the doctor. 4
Individuals use the Internet as an information source for medical decisions.
5
This indicates the importance and need to provide reliable, informative Web sites for patients. The Online Consultation Service of the University Hospital Zurich, Zurich, Switzerland, has offered professional advice in response to health questions since 1999. The service is posted on the Web site of the University Hospital Zurich (
Psychological problems and mental illness are very common diseases and cause a high global burden. 8 Not much is known yet about what individuals are looking for when they turn to the Internet with regard to mental health issues, and what the reasons are for consulting the Web instead of going to see a doctor. 4
There are different possible forms of the Internet being used for mental health questions: to get information (e.g., to find a psychotherapist, information about mental health, or treatment options) or to communicate with other users (e.g., mailing, discussion boards, or newsgroups). 9 The consultation by e-mail as a medium for asynchronous communication is very popular. 10 Many resources of e-mental health applications and systems exist, ranging from basic information on mental health and psycho-education to self-help therapy and e-counseling, 11 as well as chat rooms and online support groups and communities, where concerned individuals may share their experience.
The current study evaluated requests concerning psychological questions made to the online consulting service of the University Hospital Zurich from January 2008 to November 2010. The aim was to characterize user profile, question content specific to psychiatry, answers of the online doctor, and the rating of the service.
Materials and Methods
Medical Online Consultation Service
To make a request to the online consulting service of the University Hospital Zurich, the user filled out a Hypertext Transfer Protocol Secure form directly on the platform (
The requests were answered within 48 h and, since July 2010, within 24 h. The user got an e-mail from the answering physician with a link that led to the server of the University Hospital, where the answer was securely stored. In 2008, a service fee of 75 Swiss Francs was established, which had to be paid by credit card. To guarantee the anonymity of the requestor, the inquiry and the information about the invoice were separated. 6 After getting the answer, the inquirer was invited to voluntarily evaluate the clarity of the answer, the satisfaction about the proposed medical advice, and whether the expectations have been met or not.
Data Analysis
Qualitative analyses of the content of 209 questions and answers from January 2008 to November 2010 were part of this retrospective study. The online service received 3,148 questions during this period. A code was assigned to the question by the answering physician by either or both of the classification systems of International Classification of Diseases (ICD)-10 or International Classification of Primary Care-2. To get the data of requests concerning psychological topics, the above-referenced classification system was used to search for a code F of ICD-10 or code P of International Classification of Primary Care-2, either of which classifies psychological diseases or symptoms and mental disorders. Two hundred seventy-four questions were found. Of those, 14 have been excluded because patients had declined consent for scientific evaluation. An additional 35 have been excluded because they were incomplete, and 16 were duplicates in the system or requests by the same person regarding the same topic. All e-mails were written in German. The study was approved by the cantonal ethics committee.
To analyze the content of the remaining 209 questions and answers, the procedure of inductive category development described by Mayring 12 was used. The professional text analysis program MAXQDA version 10 (VERBI Software, Berlin, Germany), 13 a tool that is used in the social sciences to provide systematic analysis and interpretation of texts, supported the development of theoretical conclusions. To describe similarities of the codes, the data were exported to Microsoft (Redmond, WA) Excel® to evaluate relative frequencies. Each request has been read and manually categorized by the following subjects of interest (Table 1). Multiple coding of categories was possible.
Categories of Analysis
ICD, International Classification of Diseases.
Results
Of all the questions (n=3,148) asked through the online consulting service in the observed interval, 8.7% (n=274) of the requests were of a psychological content, and 6.7% (n=209) were included in the qualitative content analysis.
Personal Qualities of the User
Gender and age
Of the users, 45.9% (n=96) were female, 46.9% (n=98) were male, and 7.2% (n=15) gave no information about the gender. The mean age was 37.4 years (standard deviation=16.1). The distribution of age is shown in Table 2. The youngest person was 2 years old (the parents were asking for their child), and the oldest was 85 years. A total of five users did not indicate their age.
Age Distribution
Concerned person
Of the users, 73.2% (n=153) asked a question for themselves. In 21.1% of cases (n=44) the question was asked for somebody else like family members, friends, partners, care staff, teachers, and others. In 5.7% (n=12) of the cases it was not clear for whom the question was asked.
Medical history
Of the users, 55.5% (n=116) gave information about their medical history. Of these, 6.2% (n=42) reported having had a certain psychological disease, 37.9% (n=44) to having had psychiatric treatment, and 4.3% (n=5) indicated a psychosomatic disease. Three users talked about previous suicide attempts. Of the users, 49.1% (n=57) mentioned a somatic illness, and 27.6% (n=32) mentioned having had treatment for a somatic problem or surgeries. Of all users, 25.4% (n=53) had not had diseases or previous treatment, and 19.1% (n=40) did not give any information about their medical history.
Past physician contact
Of the users, 39.7% (n=83) reported having already seen a doctor because of their problem. Of these 83 people, 36.1% (n=30) went to the family doctor, 30.1% (n=25) had seen a psychiatrist, 28.9% (n=24) went to see a specialist other than psychiatrist, 12.0% (n=10) went to several specialists, and 8.4% (n=7) went to the hospital.
Content of Question
Topic based on ICD-10
In the 209 requests, we categorized 234 topics in total; in 24 questions, users gave more than one topic. Most questions were about somatoform, somatization, and hypochondriac disorders (18.4%, n=43 [ICD-10 F44–F45]), followed by behavioral syndromes associated with physiological disturbances and physical factors (n=42, 17.9%] [ICD-10 F50–F59]) and mood disorders (n=36, 15.4% [ICD-10 F30–F39]) (Table 3).
Topics by International Classification of Diseases-10
ICD, International Classification of Diseases.
Symptoms
Of the users, 83.7% (n=175) gave information about the personal problem by describing symptoms, and 21.1% (n=44) did so by naming a diagnosis. Table 4 shows details about the most frequently mentioned symptoms (n=320).
Symptoms Most Frequently Mentioned (n=320)
Duration of the symptoms
Of the symptoms, 45.7% (n=80) were chronic (more than 6 months), 8.6% (n=15) were subacute (1–6 months), 13.7% (n=24) were acute (less than 1 month), and 32.0% (n=56) did not provide clear information about the duration of their symptoms.
Content of Request
The vast majority of users made more than one request for information in one question. Most users (68.9%, n=144) wanted to know about treatment, 22.0% (n=46) asked the online doctor for a statement and opinion about their symptoms, 14.8% (n=31) of all inquirers wanted to know about a certain type of diagnostic investigation, 11.5% (n=24) asked a question about a disease, 5.7% (n=12) sought help and advice, 3.3% (n=7) wanted to know more about general health issues, and in 1.4% (n=3) of cases, it was not clear what information the person requested.
One hundred forty-four questions were asked about the therapy of a disease. Of those, the greatest proportion of questions was about treatment in general (37.5%, n=54). The second most common question topic (35.4%, n=51) was about medication, followed by 18.8% (n=27) who were looking for a psychiatrist. Of other concerned users, 11.1% (n=16) wanted to know about remedies against impotence, 6.9% (n=10) about surgical intervention such as sympathectomy or sexual reassignment surgery, and 6.3% (n=9) about measures against substance dependence. Requests about diagnostics (14.8%, n=31) were mostly about general examinations, and a few questions were about diagnostics.
Purpose of Request
Reasons for using the online service
In 71 questions (34.0%) this code could be evaluated. The named reasons are shown in Table 5.
Reasons for Using the Online Service
Responses of the Online Service
Kind of information
In 68.4% (n=143) of all the answers, the responders gave information about refuges, shelters, and places where people can get further help. In 58.9% of the answers (n=123), the doctors explained a disease, its pathophysiology, and its symptoms, and 52.6% (n=110) explained a certain therapy. In 27.3% (n=57) the physicians gave advice for coping strategies and general life measures. In 15.3% (n=32) of the answers, a Web site or a book with further information was indicated, and 14.4% (n=30) informed about diagnostics.
Recommendation of consultation
In 70.8% (n=148) the online doctors recommended visiting and consulting a physician. Of the suggested specialists, 62.2% (n=92) of recommendations were to see a psychiatrist, 32.4% (n=48) to see a somatic specialist, 4.1% (n=6) to go to the hospital, and 1.4% (n=2) to see other physicians. Reasons for these recommendations were that the online doctors wished for more clarification or that somatic reasons had to be excluded in many cases.
Differential diagnosis
Of the answers, in 23.4% (n=49) the doctors answered that they could not make a diagnosis from afar, in 23.0% (n=48) the doctor assumed a possible diagnosis, and in 28.2% (n=59) they made a differential diagnosis where they listed several possible reasons for the mentioned problem.
Rating of the Answer
After getting the answer the inquirer was invited to evaluate the service. The user could rate the clarity of the answer, the satisfaction about the medical advice, and if the expectations were met. Of the responses, 97.8% rated the clarity, 73.7% the medical advice, and 80.6% the fulfilled expectation as “very good” and “good” (Table 6).
Satisfaction with the Answer
Discussion
The current retrospective study aimed at disentangling the question content of psychiatry-related questions of the online consultation service of the University Hospital Zurich. Furthermore, reasons for using the online service and satisfaction with the answers were analyzed, and gender ratios were assessed. Most questions were asked about somatoform diseases (ICD-10 F44–F45), behavioral syndromes associated with physiological disturbances and physical factors (ICD-10 F50-59), and mood disorders (ICD-10 F30–F39). Overall satisfaction with the answers was good. It is interesting that about half of the users were male.
The number of people with psychological diseases is increasing, but the majority of mentally ill individuals do not have access to medical help, 14 are treated inappropriately, or do not receive professional treatment at all. 15 According to a report by the Swiss health observation institute OBSAN, only around 3% of men and 5% of women are treated by a specialist because of their psychological problem. 16 Online services with their anonymous character could allow individuals to feel easier to talk about psychological items and might improve the willingness to seek medical help.
The gender ratio in the currently observed population is almost equal between women and men. This is an interesting finding because the majority of users using the online service of the University Hospital Zurich are women (59.7% were female and 40.3% were male in 2008 with regard to all question topics 7 ), and the prevalence of psychological diseases in the general population is higher in women than in men (48.9% females, 36.8% males 17 ). Furthermore, the OBSAN report says that men are looking for psychological professional help less often than women. 16 The relatively high number of men using the service for psychological questions could signify its attractiveness to men. Our findings do not confirm those of a previous online study showing female predominance in people with chronic anxiety. 18 However, this could be caused by the different psychological topics asked in the current study. Nevertheless, previous studies of the University Hospital Zurich Online Consultation Service have shown a clear focus on intimate and sensitive issues. Especially in men, questions about sexual transmitted diseases were of particular interest. 4,7 The current results suggest that online consultation services 7 could diminish treatment barriers, especially for men with psychological problems, because questions can be asked anonymously and a face-to-face setting can be avoided.
Mental disorders are very sensitive issues and still associated with societal stigmatization and discrimination. 19 Furthermore, they are one of the most common diseases among the public. One study 20 estimated that 27% of the European public between the ages of 18 and 65 years has been affected by at least one mental disorder in the past 12 months. The most frequent disorders are somatoform, substance dependence, anxiety, and depressive disorders, 20 which reflect also the questions most frequently asked in this study. Beside those, sleeping and eating disorders are the most frequently asked topics. Somatoform, somatization, and psychosomatic problems (ICD-10 F40–F45) are problems frequently occurring in the general population. They often take a chronic course, and individuals have already been suffering and despairing for a long time, but doctor visits are unsatisfactory because no underlying condition can be found. Online consultation services could provide unprejudiced information. This confirms previous results that suggested that tele-advice might be overused by chronically ill and frustrated patients looking desperately for additional information. 21
Eighty-eight users (42.1%) of the current study recorded in their evaluation that meeting their expectations was very good (38.6%) or good (42%). This might be due to a previous lack of information. Nearly all users (97.8%) were satisfied (67.7% very good and 30.1% good) with the clarity of the information. The online doctors are particularly trained to explain to nonprofessionals the complex medical content, and they were able to meet this requirement; 41.8% rated the medical advice as very good, and 31.9% rated it as good. Not all requests are suitable for an online consultation, and therefore the judgment by the user is not always clear. The open structure of the questionnaire and the fact that in only 55.5% of cases was information about medical history available made it in some cases difficult to provide satisfactory medical advice for the user. In 80.6% (38.6% very good and 42% good) of cases, the expectation of the user could be fulfilled, and therefore the confidence in a medical teleconsultation was improved. 4
The knowledge about the characteristics of the users, their possible reasons for using a telemedical communication tool, and the kind of information they are seeking could contribute to improved services, which meet the needs of the patients and ultimately increase their benefit. The content of the questions asked and the information sought in this study may reflect solution-oriented users. This is indicated by questions about specific treatment strategies asked by users who already have certain knowledge about their disease. Patients are claiming more responsibility and control with regard to their health. 22 The growing availability of information sources such as the Internet leads to more health literacy in individuals. The information provided on health Web sites, as well as advice given through helpdesks, could enable users to develop better self-help tactics. Information about symptoms, diseases, treatment strategies, and diagnostics may increase users' knowledge about health, enlarge their competence at estimating the significance of a symptom, and lead them to knowledge about helpful treatment.
In most of the questions, users asked for an opinion or a statement about a certain symptom. This indicates that users already have distinct information but do not know how to weigh and judge it. The Internet is frequently used for health questions. 2,3 Fifty-one percent of the Swiss population has looked for information about health on the Internet. 1 To classify the large amount of information found on the Internet, the online consultation service could act as a mediator for quality control through professional advice and by providing high-quality reliable information.
In this current study, one-third of the inquirers named reasons for using the Internet service. Most users were looking for a second opinion; 39.7% of users had already seen a physician and still had questions concerning their problem, were dissatisfied with the suggested measures taken by their doctor, or thought that the treatment was insufficient. Therefore, online services as a source for further information about health issues could be a certain form of quality or security control for individuals. Thus, individuals could be strengthened in their health decisions, which could improve compliance with treatment strategies. Of the 39.7% of the users in this study who mentioned previous doctor visits, 30.1% had been seeing a psychiatrist. This shows that not all of the users requiring the online service do it for lack of access to treatment, and it could reflect the reason of using it as a tool for seeking a second opinion. A study conducted in Australia surveyed patients receiving treatment in a private psychiatric practice who used the Internet to get mental health-related information; they found that one-third of the individuals getting information on the Internet discussed this with their psychiatrist, and those who did so were more likely to report an influence on their decision-making process. 23 Therefore, providing online information could be helpful in the decision-making process of patients and thereby increase their health literacy.
The possibility to get advice for a friend or relative could be another advantage of the online consultation service, as in 21.1% of the requests of the current study it was being used for that particular reason. By getting advice on how to help a significant other who might ignore the illness or refuse to visit a doctor, the user might be able to handle the situation in a better way. This could prevent destabilizing psychological processes, which otherwise would set in.
A limitation of the study is that the number of inquiries is small, and the information given by the users might not be complete because of the open structure of the questionnaire. Furthermore, the inability to ask the user further queries might have limited the comprehensiveness of the medical advice.
Conclusions
In conclusion, it is suggested that telemedicine empowers patients by combining health literacy with professional advice. In particular, men who normally tend to avoid professional help were attracted by the online consultation. Thus, consultation services may potentially reach mentally ill individuals who do not have or did not seek professional help yet. Furthermore, online consultation services, often used to get a second opinion, could meet a patient's needs and complement the traditional face-to-face consultation by providing additional information.
Footnotes
Disclosure Statement
No competing financial interests exist.
