Background: Patients’ relatives are considered crucial for treatment and recovery in psychosis but family intervention studies have shown contradictory results in firstepisode psychosis. The aims of this study were to survey caregivers’ satisfaction with the multi-family intervention delivered by our programme and to verify if knowledge acquisition about illness and treatment provided by the family intervention was considered enough and understandable.
Methods: Sixty five family members of 46 first-episode patients were invited to answer a satisfaction questionnaire about the intervention.
Results: Forty individuals returned the questionnaire: 31 women (77.5%) and nine men (22.5%). Most (82.5%) had daily contact with the patient and 19 (47.5%) were mothers. Regarding knowledge acquisition, approximately one third did not improve their understanding of the illness. Nonetheless, 90% of the participants believed the meetings helped them to cope with their ill relative and 95% approved the multi-family format.
Conclusions: Non-specific aspects of the intervention were seen as the most useful part of the programme. An important target of treatment would be to improve the way in which the specific psychoeducational components are delivered to individuals with low formal education.
Anderson, C.M., Reiss, J.D. & Hogarty G.E. ( 1986) Schizophrenia and the Family. A Practitioner’s Guide to Psychoeducation and Management. New York: The Guilford Press.
2.
Addington, J., Coldham, E.L., Jones, B., Ko, T. & Addington, D. ( 2003) The first episode of psychosis: The experience of the relatives. Acta Psychiatrica Scandinavica, 108, 285-289.
3.
Addington, J., Collins, A., Mccleery, A. & Addington, D. ( 2005) The role of family work in early psychosis. Schizophrenia Research, 77, 77-83.
4.
Bertolote, J. & Mcgorry P. ( 2005) Early intervention and recovery for young people with early psychosis: Consensus statement. British Journal of Psychiatry (Supplement), 48, s116-s119.
5.
Birchwood, M., Todd, P. & Jackson, C. ( 1998) Early intervention in psychosis. British Journal of Psychiatry, 172, 53-59.
6.
Pharoah, F., Mari, J., Rathbone, J. & Wong, W. ( 2006) Family intervention for schizophrenia. Cochrane Database of Systematic Reviews (online), 18(4), CD000088.
7.
Jenkins, J.H. & Schumacher, J.G. ( 1999) Family burden of schizophrenia and depressive illness. Specifying the effects of ethnicity, gender and social ecology. British Journal of Psychiatry, 174, 31-38.
8.
Keshavan, M.S. & Schooler, N.R. ( 1992) First-episode studies in schizophrenia: Criteria and characterization . Schizophrenia Bulletin, 18, 491-513.
9.
Kuipers, E. & Raune, D. ( 2000) The early development of expressed emotion and burden in the families of firstonset psychosis. In Early Intervention in Psychosis (eds. M. Birchwood, D. Fowler & C. Jackson ). Chichester: Wiley.
10.
Leavey, G., Gulamhussein, S., Papadopoulos, C., Johnson-Sabine, E., Blizard, B. & King, M. ( 2004) A randomized controlled trial of a brief intervention for families of patients with a first episode of psychosis. Psychological Medicine, 34, 423-431.
11.
Linszen, D.H. & Birchwood M. ( 2000) The early phase of psychosis and schizophrenia: A critical period for patients, families and profession. In Early Intervention in Psychosis (eds. M. Birchwood , D. Fowler & C. Jackson ). Chichester: Wiley.
12.
McGorry, P.D. ( 1995) Psychoeducation in first-episode psychosis: A therapeutic process. Psychiatry, 58, 313-328.
13.
Monteiro, V.B., Dos Santos, J.Q. & Martin, D. ( 2006) Patients’ relatives delayed help seeking after a first psychotic episode. Revista Brasileira de Psiquiatria , 28, 104-110.
14.
Ostman, M., Wallsten, T. & Kjellin, L. ( 2005) Family burden and relatives’ participation in psychiatric care: Are the patient’s diagnosis and the relation to the patient of importance? International Journal of Social Psychiatry, 51, 291-301.
15.
Pekkala, E. & Merinder, L. ( 2002) Psychoeducation for schizophrenia. Cochrane Database Systematic Reviews (online), 2, CD002831.
16.
Raune, D., Kuipers, E. & Bebbington, P.E. ( 2004) Expressed emotion at first-episode psychosis: Investigating a carer appraisal model. British Journal of Psychiatry, 184, 321-326.
17.
Redko, C. ( 2003) Religious constructions of a first episode of psychoses in urban Brazil. Transcultural Psychiatry, 40, 507-530.
18.
Tennakoon, L., Fannon, D., Doku, V., O’ceallaigh, S., Soni, W., Santamaria, M., Kuipers, E. & Sharma T. ( 2000) Experience of caregiving: Relatives of people experiencing a first episode of psychosis. British Journal of Psychiatry , 177, 529-533.
