Abstract
The present study investigated posttraumatic stress disorder and psychological distress among Rwandan refugees living in the townships of Lusaka, Zambia. Refugees are often exposed to trauma and violence which leads to a wide range of psychological distress and mental disorders. Two hundred and sixty-seven refugees participated in the study. The sample consisted of older and younger adult refugees, 128 (47.9%) males and 139 (52.1%) females, from Lusaka. The Impact of Event Scale–Revised and the General Health Questionnaire-28 were administered to all participants. The study found that a significant number of participants reported posttraumatic stress disorder and psychological distress. About 76.8% endorsed posttraumatic stress disorder symptoms. In addition, 31.8% reported somatic symptoms, 36.7% anxiety or insomnia, 27.3% social dysfunction, and 22.8% severe depression. Lower education (p < .01), larger family size (p < .001), lack of financial support (p < .05), and being unemployed (p < .001) were positively associated with posttraumatic stress disorder and psychological distress. Intervention strategies aimed at improving the lives of refugees should be ongoing and must encompass a well-articulated, structured refugee policy that emphasizes mental health and psychological needs.
Keywords
It is estimated that there are about 25.4 million refugees and 3.1 million asylum-seekers globally (United Nations High Commissioner for Refugees [UNHCR], 2017). While the Holocaust is most reported, three lesser known genocides have also taken place in recent history: the Cambodian (Zahar & Sluiter, 2008), Rwandan (Hatzfeld, 2006), and the Bosnian (Kiernan, 2008) genocides. The 1994 Rwandan genocide led to about one million people being violently killed within 100 days, with more than two million people fleeing to different countries for refuge (Rieder & Elbert, 2013; Rutagengwa, 2012). In the context of the Southern African Development Community (SADC) region, during the years 1994–2010, Zambia hosted close to 11,000 Rwandan refugees (Simuchoba, 2014); they settled mainly in the urban areas, with the highest concentration in Lusaka, the capital city of Zambia (Commissioner for Refugees in Zambia, personal communication, June 14, 2018; Darwin, 2005).
Refugees are considered a vulnerable group; this is because they experience major disruptions in their social and economic networks resulting from fleeing their home countries (Molsa et al., 2017; Motti-Stefanidi & Salmela-Aro, 2018). When fleeing, the refugees’ entire social systems are lost or destroyed, including their family systems that provided livelihood and support (Jacobsen & Fratzke, 2016). These losses affect refugees’ mental health, resulting in many psychosocial problems, which are exacerbated by the extreme brutality many refugees may witness, or to which they are exposed (Turrini et al., 2017). The traumatic experiences of refugees lead to posttraumatic stress disorder (PTSD), which has a high comorbidity with other mental disorders, especially depression (Ullmann et al., 2015) and various psychiatric symptoms (Schwitzer et al., 2011). Compared to the general populace, studies show that asylum-seekers and refugees have higher prevalence rates of depression, somatoform disorders, psychosis and disorders, resulting from the stress they experience (Schwitzer et al., 2011; Turrini et al., 2017). PTSD remains the pre-eminent mental-health outcome studied among refugees; acculturation stress emerges among the factors that generate symptoms of PTSD, depression, and anxiety when refugees struggle with culture and identity (Hameed et al., 2018). It becomes difficult for refugees to integrate into their host country’s culture, thus creating mental stress.
Priebe et al. (2016) and Ullmann et al. (2015) report that trauma experienced by displaced people, refugees, and asylum-seekers has a different shape and span to that of other populations. Despite war-related traumatic events being the initial cause of their challenges, daily difficulties, such as acquiring material goods, account for further psychological distress (Rasmussen et al., 2010). In addition, many refugee populations encounter the effects of economic deprivation (Hynie, 2018; Jacobsen & Fratzke, 2016). The economic challenges also give rise to elevated levels of psychiatric sequelae, such as depression and PTSD symptoms (Rubanzana et al., 2015), and a high proportion of refugees are subjected to potentially traumatic and depressive experiences after arriving in their host country (Rieder & Elbert, 2013).
Reporting on the Rwandan refugees who settled in Lusaka, Bbaala and Mate (2016) highlight the challenges faced by refugees arising from the trauma experienced in their home country, as well as challenges faced in their hosting county, which are compounded by social and economic exclusion. The refugees from Rwanda who live in the compounds or townships of Lusaka have been the target of many xenophobic attacks, which have contributed to the heightened insecurity of the refugees. In their report on xenophobic attacks on refugees in South Africa, Misago et al. (2015) cited increasing urbanization of refugee populations as a factor that increases refugees’ vulnerability and exposes them to intolerant attitudes and practices among the hosting members of the country; these hostilities prevent refugees from securing their livelihoods and accessing the social welfare systems in an amicable manner. Similarly, the xenophobic attacks on refugees in Zambia have been a blatant intimidation which impacts negatively on refugees’ security and ability to freely access general public services (Bbaala & Mate, 2016). Often, there is a level of psychological distress in many refugees that is heightened by the harsh manner in which host citizens deal with them (Nickerson et al., 2011).
Nose et al. (2017) note that traumatic events, such as perceived stigma, discrimination, and resettlement stress encountered in the post-displacement era of refugees, are of paramount importance for understanding refugee stress and psychological distress. In addition, Roth et al. (2014) state that, at the family level, existing parental psychopathology emanating from the past traumatic experiences and current socioeconomic challenges have substantial psychological repercussions that affect the mental health of younger generations of refugees.
The recent cessation declaration clause by the UNHCR (2013), that Rwandan refugees should return home, has its own implications that have left many refugees stateless. The Refugee Convention of 1951 states that refugees can only return to their home countries on the return of peace. This clause leaves Rwandan refugees with two options, either to embrace repatriation or be naturalized as citizens in Zambia (Kagire, 2018). However, most of the Rwandan refugees have decided to remain in Zambia for fear of losing their already-established businesses and of being persecuted if they return to their home country. In addition, issues such as legal residency status have exacerbated uncertainty around security for the refugee communities, who live in fear and cannot freely attain or access public services, a situation that further increases their stress.
This study is guided by Bronfenbrenner’s (1977) ecological systems theory that recognizes the fact that multiple levels (individual, family, community and society) influence an individual’s development. Drawing on the insights of the ecological systems theory, this research emphasizes that PTSD and psychological distress among refugees emanate not only from past exposure to traumatic experiences but also from ongoing displacement-related stressors being encountered in their social ecology (Miller & Rasmussen, 2016). Therefore, the aim of this article was to determine the prevalence of PTSD and psychological distress in a sample of older and younger Rwandan refugees living in Lusaka and identify demographic factors associated with PTSD and psychological distress.
Method
Participants
Two hundred and sixty-seven participants were recruited to investigate PTSD and psychological distress among two generations of the Rwandan refugee population in Lusaka, Zambia. A quantitative cross-sectional design was utilized for this study. The data were collected over a 5-month period in Matero, Mutendere, Mandevu, Chipata, Bauleni, Chawama, Kanyama, Makeni, Garden, Zingalume, Garden House, Chelston, George, Chilenje, and Kabanana townships. The sample included those refugees who had fled Rwanda and had experienced the genocide (the direct trauma exposure group—DE), and those who were children of those who had fled Rwanda and experienced the indirect consequences of the genocide and living as refugees (the indirect trauma exposure group—IE).
An estimated number of 900 refugees reside in the townships of Lusaka (Commissioner for Refugees in Zambia, personal communication, February 6, 2018). Based on our statistical sampling determination, using a 5% significant level (α = .05) and 80% statistical power (β = .20), a minimum sample size of 270 was determined to be sufficient. In this study, 267 participants were recruited. To obtain the sample, and given the nature of refugee research, purposive sampling was used to access participants, followed by snowball sampling. To avoid selection bias, the Commissioner for Refugees in Zambia was contacted several times to provide demographic data, thus increasing the possibility of representativeness. The focus for this study was on adult refugees whose primary residence was within the townships of Lusaka.
Instruments
A battery of questionnaires comprising a demographic questionnaire, the Impact of Event Scale–Revised (IES-R) and the General Health Questionnaire-28 (GHQ-28) was administered to each participant. The demographic section elicited personal information such as age, gender and area of residence, education, employment, religious affiliation, number of children, income, and marital status.
IES-R
The IES-R is a 22-item self-report measure that assesses subjective distress arising from traumatic events and experiences. The IES-R (Weiss & Marmar, 1997) was developed to parallel the Diagnostic and Statistical Manual of Mental Disorders (4th Edition; DSM-IV) criteria for PTSD. The 22 items are rated on a 5-point scale, ranging from 0 to 4. A higher score implies more and more severe problems. The 22 items are clustered into three subscales: intrusion, avoidance, and hyper-arousal. A cut-off score of ⩾33 was used to identify PTSD (Creamer et al., 2003; Hussain et al., 2013; Morina et al., 2013). This scale has been shown to possess adequate psychometric properties as an assessment of exposure to trauma (Acarturk et al., 2018). The Cronbach alpha of the instrument in this study was .96.
GHQ-28
The GHQ-28 is a psychological scale used to measure general functional psychiatric morbidity (Goldberg & Hillier, 1979) and recent psychological distress. The GHQ-28 version categorizes psychological symptoms into four domains: somatization; anxiety and insomnia; social dysfunction; and severe depression. Each of the four subscales consists of seven items. The items are endorsed on a 4-point Likert-type scale. The GHQ-28 is scored by assigning 0 for response choices 1 and 2, and 1 for response choices 3 and 4, for each item. A cut-off point of ⩾5 is used to detect psychological distress. Higher scores on the GHQ-28 subscales reflect poorer functioning (Goldberg & Williams, 1988). Cronbach’s alpha for the complete scale in the current study was .95. In addition, the Cronbach alphas for the GHQ-28 subscales were somatic (0.87), anxiety and insomnia (0.89), social dysfunction (0.88), and severe depression (0.89).
Procedure
Comprehensive training sessions were held for 2 weeks with the research team, covering the research procedures, administration of the questionnaires, and conducting of interviews. To ensure fairness, four trained research assistants, who were fluent in English, Nyanja, Kinyarwanda, and French, administered the questionnaire to each participant. Participation in this study was voluntary and refugees from Rwanda or their family, aged 18–65 years, living in the townships of Lusaka, were invited to participate. Those who agreed to participate were asked to complete consent forms before participating in the study. The response rate was 98.9%. The average time taken to complete the battery was 45–60 min.
Ethical considerations
Ethical clearance was obtained from the Human Sciences Research Ethics Committee, University of KwaZulu-Natal (HSS/0119/018D). Permission was also sought from the Commissioner of Refugees to conduct research in Zambia among the Rwandan people. The consent form was available in English and translated into Kinyarwanda by an expert, to ensure that the participants understood the study and what they were consenting to.
Data analysis
The data were collected and captured using the Statistical Product and Service Solutions, version 25 (IBM SPSS 25). The data were checked for skewness and collinearity and found to be within the accepted range. Normality tests were used to assess potential skewness. Absence of collinearity was confirmed by assessing the pairwise correlations of the explanatory variables. Descriptive statistics were used to report on the demographic variables. The items in each of the scales and subscales were averaged and utilized as composite scores. To determine associations between demographic characteristics and PTSD (using the IES-R scale), as well as psychological distress (using the GHQ-28 subscales), we utilized the Pearson Chi-square test for association. Binary logistic regression was used to assess PTSD as well as the different components of psychological distress, which includes somatic symptoms, anxiety/insomnia, social dysfunction, and severe depression. Assumptions of binary logistic regression were evaluated, and there was no evidence of violation. The statistics were tested at the 5% significance level.
Results
The age of participants (N = 267) ranged from 18 to 65 years (M = 33.99; Table 1). Over half of the participants (52.1%) were female. Almost half of the participants (49.8%) were single. Just over half of the study participants (51.7%) had children and a majority (61.7%) had undergone some formal education. Over half (51.7%) were unemployed, and around 69.7% reported that they had no financial support. Just under half of the participants earned less than K300 (49.4%) for their monthly income (Table 1).
Sociodemographics of the study sample (N = 267).
IE: indirect exposure; DE: direct exposure; NGO: non-governmental organization; K: Kwacha (1USD = ±K20 as of June 2020). Note: values for financial support do not correspond because of missing values.
As shown in Table 2, high levels of PTSD (76.8%; cut-off score of ⩾33) were reported by the participants on the IES-R. These were significantly associated with trauma exposure (p < .001), marital status (p < .001), number of children (p < .001), education (p = .005), and employment status (p < .004). There were no significant differences for gender.
Participants’ responses on the IES-R and GHQ-28.
IE: indirect exposure group; DE: direct exposure group. PTSD cut-off score = ⩾33. GHQ-28 cut-off score = ⩾ 5.
p < .05; **p < .01; ***p < .001.
Participants reported high levels (cut-off score of ⩾ 5) of somatic symptoms (31.8%), anxiety and insomnia (48.3%), social dysfunction (27.3%), and severe depression symptoms (22.8%) (Table 2). Somatic symptoms were significantly associated with exposure to trauma, especially in the DE group (p < .001), marital status (p < .001), number of children (p < .001), education (p = .030), financial support (p = .026), and employment status (p = .001). Anxiety and insomnia were significantly associated with age (p < .001), marital status (p < .003), number of children (p < .001), and employment status (p < .003). Social dysfunction was significantly associated with age (p < .001), marital status (p < .001), number of children (p < .001), education (p = .004), and employment status (p < .001). Severe depression was significantly associated with respondents’ generation (p < .001), marital status (p < .001), number of children (p < .001), education (p < .030), and employment status (p < .001) (Table 2).
Table 3 shows the factors significantly associated with psychological distress (as measured by the four GHQ subscales). Those in the IE group were significantly less likely (odds ratio [OR] = 0.268; 95% confidence interval [CI] = [0.088, 0.817]) to have social dysfunction than were the DE group. Educational attainment was significantly associated with social dysfunction. Compared to those with a university education, those who had primary school (OR = 3.845; 95% CI = [1.186, 12.459]), secondary school (OR = 4.643; 95% CI = [1.519, 14.190]), or college education (OR = 6.189; 95% CI = [1.841, 20.810]) were more likely to have social dysfunction. IE group and college qualification were significantly associated with severe depression. Those in the IE group were significantly less likely (OR = 0.158; 95% CI = [0.049, 0.517]) to have severe depression than those in the DE group. Those with a college qualification, rather than a university qualification, were more likely to have severe depression (OR = 4.107; 95% CI = [1.278, 13.204]).
Binary logistic regression of somatic symptoms, anxiety, social dysfunction, and severe depression.
OR: odds ratio; IE: indirect exposure.
p < .05; **p < .01; CI = 95%.
The explained variation (using the Nagelkerke R2) in psychological distress based on the four models ranged from 17.4% to 31.0%. The Nagelkerke R2 was used because of its familiarity of usage in the literature. R2 values range from 0 to 1. For acceptable range of good model fit, R2 values closer to 1 indicate a better model fit. Table 4 shows the binary logistic regression of PTSD (as measured by the IES-R scale). The model explained 24.9% (Nagelkerke R2) of the variation in PTSD. IE group, as well as primary and secondary school levels, was significantly associated with PTSD. Those in the IE group were significantly less likely (OR = 0.387; 95% CI = [0.159, 0.945]) to have PTSD than those in the DE group. Compared to having a university qualification, those with primary school education (OR = 4.842; 95% CI = [0.409, 16.632]), or secondary school education (OR = 2.976; 95% CI = [1.291, 6.861]) were more likely to have PTSD.
Binary logistic regression of IES-R scale.
OR: odds ratio; IE: indirect exposure; Nagelkerke R2 = 0.249.
p < .05.
Discussion
This study is, most likely, the first of its kind conducted in Zambia. Although other studies have been done among refugees in Zambia, most concentrate on refugees’ integration and livelihoods (Kambela, 2016), with emphasis on refugees living in the camps (Masuwa, 2017). This study focussed on refugees living in the townships of Lusaka. It investigated PTSD and psychological distress in two groups of Rwandese refugees: those who had direct experience of the genocide and those born to refugee parents.
The study investigated the prevalence of PTSD and psychological distress in Rwandans living in Lusaka, 24 years after the 1994 genocide. High rates of depression, PTSD, and psychological distress were found among the Rwandan refugees, especially among participants who had direct experience of the traumatic events. Furthermore, refugees with lower education and many children reported higher levels of GHQ-28-assessed somatic presentations, anxiety or insomnia, social dysfunction, and depression. This finding supports other research that depression and PTSD are common psychological distresses among refugee populations (Im et al., 2017; Miller & Rasmussen, 2010). In addition, other studies show that refugee trauma experiences remain salient long after resettlement (Bogic et al., 2015; Nose et al., 2017). Both past traumatic experiences and current day-to-day stressors contribute to refugees’ psychological distress (Rasmussen et al., 2010).
Most studies report that PTSD is more prevalent in female than male refugees (Ainamani et al., 2020). Mhlongo et al. (2018) state that exposure to sexual violence and trauma are factors that contribute to the higher rates of PTSD and depression among female refugees. However, in our study, no significant differences in PTSD by gender were found (Table 2). Studies by Schwitzer et al. (2011) and Steel et al. (2009) also found no association between PTSD and gender. In studies that show no association between gender and PTSD, there is no clear justification given for such a conclusion. However, Christiansen and Hansen (2015) and Farhood et al. (2018) advocate for further research to evaluate and explore the differences in PTSD between males and females.
We found that older refugees (namely, the DE group) were more likely to report social dysfunction and severe depression. The older refugees were more likely to have been exposed to a greater number of traumatic events compared to the younger participants. Hameed et al. (2018) found that acculturation stress, resulting from conflict between culture and identity among the DE group, creates high rates of depression and social isolation. Through social isolation, older refugees may lose socioeconomic opportunities such as finding employment and engagement in the host culture (Misago et al., 2015).
Our study found that refugees with more children and big families have higher levels of depression. This may result from the financial problems, emanating from the socioeconomic marginalization of refugees, that make it difficult for them to comprehensively satisfy family demands and obligations (Hynie, 2018). Our findings also show that lower education status is associated with depression and PTSD, bearing out the relationship between low education and depression shown in other studies (Hynie, 2018; Im et al., 2017). In other words, lower education is associated with a lower socioeconomic status which, in turn, is associated with many daily difficulties and psychological distress. According to Von Haumeder et al. (2019), access to essential human basic needs, such as education, is an important factor that reduces trauma symptoms as it enhances individuals’ socioeconomic status to cope with adverse challenges. Our study showed that refugees who did not have financial support and were not employed had significantly higher symptoms of PTSD.
Rwandan refugees in Zambia also face daily stressors that emanate from xenophobic attitudes by the locals (Bbaala & Mate, 2016). Refugees often face social isolation, negative criticism, and perceived discrimination (Nickerson et al., 2011). These challenges hinder the capacity of refugees to create socioeconomic integration and secure access to public services that offer financial and social support (Misago et al., 2015). Furthermore, uncertainties that surround refugees’ legal residency status create insecurities. Often, without credible documents, refugees cannot find employment.
Although the IE group of refugees had lower scores on trauma symptomology and depression compared to the DE group, they, nonetheless, had high levels of trauma symptoms and experienced psychological distress. Hameed et al. (2018) also found that older refugees score higher on trauma symptoms than the young. It is clear that past traumatic experiences account for more distress in the DE group. However, the IE group is also affected. Bryant et al. (2018) state that parental psychological distress and challenges arising from past traumatic experiences and socioeconomic challenges exacerbate high levels of PTSD symptoms in their children. Sangalang and Vang (2017), in their systematic review on intergenerational trauma in refugee families, found that parents’ trauma was associated with psychopathology in their children. Parental distress and intergenerational trauma affect contribute to stress in these parents’ children. Psychological distress and depression are associated with the socioeconomic and environmental context that people live in and will affect both the young and old.
Conclusion
Our study shows that past traumatic experiences and current stressors contribute to refugees’ psychological distress. Furthermore, these challenges contribute to socioeconomic deficiencies which also contribute to high levels of distress. Considering this, our study has a number of implications for intervention and practice. First, humanitarian providers should create deliberate policies that will advance and enhance the provision of mental-health care for refugees and asylum-seekers at the time of the crises, long after the traumatic experiences and indeed on an ongoing basis. Second, trauma and psychological distress are chronic and complex conditions. To break this vicious cycle, there is a need to provide regular mental-health care that is well structured and formalized. Third, in order to facilitate a clear and sustainable refugee repatriation and transition, there is a need for stakeholders to provide refugee mental-health programs that will prepare and support refugees. Furthermore, research is needed to develop well-designed interventions and outcome measures.
One of the limitations of this study is the sample size and the restriction of the sample selection to the city of Lusaka. A bigger sample, including other refugee camps in Zambia, will provide more information and clarity on refugees’ psychological distress. Another limitation is related to the fear that refugees have of divulging information and, as a result, personal information such as the participant’s monthly income or employment may not have been accurately obtained. Other sources to estimate income or other personal information should be considered in future research.
The study contributes to the literature gap by underscoring the fact that, apart from past trauma experiences, refugees still undergo day-to-day psychological distress. Furthermore, the study makes a valuable contribution by also highlighting that, among the Rwandese migrant population in Zambia, there exists a group that has had no direct experience of the genocide but is affected by its past imprints. In addition, our study demonstrated that there are long-term consequences of violence and trauma experiences (Rieder & Elbert, 2013).
Footnotes
Declaration of conflicting interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The author(s) received no financial support for the research, authorship, and/or publication of this article.
