Length of Life and Quality of Life on Home Parenteral Nutrition

1. North American Home Parenteral and Enteral Nutrition Patient Registry: Annual report with outcome profiles 1985-1992. The Oley Foundation, Albany, NY, 1994

2. Messing B , Hebuterne X , Nightingale J : Home enteral and par-enteral nutrition in adults. IN Intestinal Failure, Nightingale JMD (ed). Greenwich Medical Media Limited, London, United Kingdom, 2001, pp 407–430

3. Howard L , Malone M : The usage and clinical outcome of elderly patients in the US receiving home parenteral and enteral nutrition. Am J Clin Nutr 66:1364–1370, 1997

4. Howard L , Hassan N : Home parenteral nutrition-25 year later. IN Gastroenterology Clinics of North America Fleming CR (ed). W.B. Saunders, Philadelphia, PA, 1990, pp 481–512

5. Howard L , Malone M : Current status of home parenteral nutrition in the United States. Transplant Proc 28:2691–2695, 1996

6. Messing B , Lemann M , Landais P , et al: Prognosis of patients with nonmalignant chronic intestinal failure receiving long-term home parenteral nutrition. Gastroenterology 108:1005–1010, 1995

7. Howard L , Ament M , Fleming CR , et al: Current use and clinical outcome of home parenteral and enteral nutrition therapies in the United States. Gastroenterology 109:355–365, 1995

8. Carbonnel F , Cosnes J , Chevret S , et al: The role of anatomic factors in nutritional autonomy after extensive small bowel resection. JPEN 20:275–280, 1996

9. Jeppesen BP , Mortensen PB : Significance of a preserved colon for parenteral energy requirements in patients receiving home parenteral nutrition. Scand J Gastroenterol 33:1175–1179, 1998

10. Abu-Elmagd KM , Reyes J , Todo S , et al: Clinical intestinal transplantation: New perspectives and immunologic considerations. J Am Coll Surg 186:512–527, 1998

11. Sudan DL , Kaufman SS , Byers W , et al: Isolated intestinal transplantation for intestinal failure. Am J Gastro 95:1506–1515, 2000

12. Editorial: Oley Foundation President celebrates 20 years on total parenteral nutrition (TPN). IN Lifeline Letter, Oley Foundation, Albany, NY, 1995

13. Ware J : SF 36 Health Survey, Manual and Interpretation Guide. Medical Outcomes Trust, Boston, MA, 1993

14. EuroQoL Group: EuroQol-a new facility for the measurement of health related quality of life. Health Policy 16:199-208, 1990

15. Richards DM , Carlson GL : Quality of Life Assessment and Cost-Effectiveness, Nightingale JMD (ed). Greenwich Medical Media Limited, London, United Kingdom, 2001, pp 447–457

16. Detsky AS , McLaughlin Jr , Abrams HB , et al: Quality of life of patients on long term TPN at home. J Gen Intern Med 1:26–33, 1986

17. Galandiuk S , O'Neill M , McDonald P , et al: A century of HPN for Crohn's disease. Am J Surg 159:540–545, 1990

18. Herfindal ET , Bernstein LR , Kudzia K , et al: Survey of home nutritional support patients. JPEN 13:255–261, 1989

19. Richards DM , Irving MH : Assessing the quality of life of patients with intestinal failure on home parenteral nutrition. Gut 40:218–222, 1997

20. Smith C : Quality of life in long term TPN patients and their family caregivers. JPEN 17:501–506, 1993

21. Elia M, Russell C, Shaffer J, et al: Report of the British Artificial Nutrition Survey-August 1999. British Association of Parenteral and Enteral Nutrition, Lincoln, United Kingdom

22. Messing B , Landais P , Goldfarb B , et al: Home parenteral nutrition in adults: A multicentre survey in Europe. Clin Nutr 8:3–9, 1989

23. Smith CE , Curtas S , Werkowitch M , et al: Home parenteral nutrition: Does affiliation with a national support and educational organization improve patient outcome? JPEN 26:159–163, 2002

24. Rovera GM , DiMartini A , Schoen RE , et al: Quality of life of patients after intestinal transplantation. Transplantation 66:1141–1145, 1998

25. DiMartini A , Rovera GM , Graham TO , et al: Quality of life after intestinal transplantation and among home parenteral nutrition patients. JPEN 22:357–362, 1999