Evidence-Based Medicine in Otolaryngology Part 7: Introduction to Shared Decision Making

Abstract

Shared decision making (SDM) is a collaborative process in which patients, families, and clinicians develop a mutually agreed upon treatment plan when more than one reasonable treatment option exists. This cooperative engagement fosters improvements in patient satisfaction, disease management, and outcomes and also has the capacity to promote evidence-based care. Thus, this seventh installment of our Evidence-Based Medicine in Otolaryngology series focuses on SDM. We introduce SDM, including its potential to reduce decisional conflict and decisional regret, when it should be used, its potential benefits, barriers to implementation, and its role in the management of chronic disease and otolaryngological conditions.

Keywords

shared decision making decisional conflict decisional regret option grids decision aids evidence-based medicine otolaryngology pediatric otolaryngology patient expectations patient-centered care health care utilization

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References

Legare

Stacey

Turcotte

et al . Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database Syst Rev. 2014;(9):CD006732.

Stewart

Brown

Donner

et al . The impact of patient-centered care on outcomes. J Fam Pract. Sep 2000;49:796-804.

Greenfield

Kaplan

Ware

Jr et al . Patients’ participation in medical care: effects on blood sugar control and quality of life in diabetes. J Gen Intern Med. 1988;3:448-457.

Institute of Medicine Committee on Quality of Health Care in A. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academies Press; 2001.

Harter

van der Weijden

Elwyn

Policy and practice developments in the implementation of shared decision making: an international perspective. Z Evid Fortbild Qual Gesundhwes. 2011;105:229-233.

Frosch

Moulton

Wexler

et al . Shared decision making in the United States: policy and implementation activity on multiple fronts. Z Evid Fortbild Qual Gesundhwes. 2011;105:305-312.

Hong

Gorodzinsky

Taylor

et al . Parental decision making in pediatric otoplasty: the role of shared decision making in parental decisional conflict and decisional regret. Laryngoscope. 2016;126(suppl 5):S5-S13.

Hong

Maguire

Purcell

et al . Decision-making quality in parents considering adenotonsillectomy or tympanostomy tube insertion for their children. JAMA Otolaryngol Head Neck Surg. 2017;143:260-266.

Chorney

Haworth

Graham

et al . Understanding shared decision making in pediatric otolaryngology. Otolaryngol Head Neck Surg. 2015;152:941-947.

10.

LeBlanc

Kenny

O’Connor

et al . Decisional conflict in patients and their physicians: a dyadic approach to shared decision making. Med Decis Making. 2009;29:61-68.

11.

Wilson

Ronnekleiv-Kelly

Pawlik

TM.

Regret in surgical decision making: a systematic review of patient and physician perspectives. World J Surg. 2017;41:1454-1465.

12.

Shin

Stinnett

Page

et al . Evidence-based medicine in otolaryngology, part 3: everyday probabilities: diagnostic tests with binary results. Otolaryngol Head Neck Surg. 2012;147:185-192.

13.

Alberts

Schoots

Roobol

MJ.

Prostate-specific antigen-based prostate cancer screening: past and future. Int J Urol. 2015;22:524-532.

14.

Pynnonen

Randolph

Shin

JJ.

Evidence-based medicine in otolaryngology, part 5: patient decision aids. Otolaryngol Head Neck Surg. 2015;153:357-363.

15.

Calkins

Cosway

Cochran

et al . Fluid in middle ear. 2014. http://www.optiongrid.org/resources/fluidinear_grid.pdf. Accessed May 5, 2015.

16.

Mathur

Napoli

Padden

et al . Language options for deaf infants and children. 2014. http://www.optiongrid.org/resources/languageoptions_evidence.pdf. Accessed March 19, 2015.

17.

John

Francis

Carson-Stevens

et al . Antibiotics for a sore throat. 2014. http://www.optiongrid.org/resources/sorethroat_evidence.pdf. Accessed March 19, 2015.

18.

Owens

Fox

Lloyd

et al . Tonsillectomy or watchful waiting for children under 16 years old. 2014. http://www.optiongrid.org/resources/tonsillectomy_evidence.pdf. Accessed March 18, 2015.

19.

Rosenfeld

Shin

Schwartz

et al . Clinical practice guideline: otitis media with effusion. Otolaryngol Head Neck Surg. 2016;154(1)(suppl):S1-S41.

20.

Rosenfeld

Shin

Schwartz

et al . Clinical practice guideline: otitis media with effusion executive summary (update). Otolaryngol Head Neck Surg. 2016;154:201-214.

21.

Maguire

Hong

Ritchie

et al . Decision aid prototype development for parents considering adenotonsillectomy for their children with sleep disordered breathing. J Otolaryngol Head Neck Surg. 2016;45:57.

22.

Owings

Kozak

LJ.

Ambulatory and inpatient procedures in the United States, 1996. Vital Health Stat 13. 1998;(139):1-119.

23.

Stacey

Legare

Col

et al . Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2014;(1):CD001431.

24.

Shin

Randolph

Rauch

SD.

Evidence-based medicine in otolaryngology, part 1: the multiple faces of evidence-based medicine. Otolaryngol Head Neck Surg. 2010;142:637-646.

25.

Eddy

DM.

Clinical decision making: from theory to practice. Connecting value and costs. Whom do we ask, and what do we ask them?

JAMA. 1990;264:1737-1739.

26.

Richardson

PE.

David Sackett and the birth of evidence based medicine: how to practice and teach EBM. BMJ. 2015;350:h3089.

27.

Rosenfeld

Shin

Schwartz

et al . Clinical practice guideline: otitis media with effusion (update). Otolaryngol Head Neck Surg. 2016;154(1)(suppl):S1-S41.

28.

O’Connor

Coggins

Gagnon

et al . Plain language summary: otitis media with effusion. Otolaryngol Head Neck Surg. 2016;154:215-225.

29.

Gorodzinsky

Hong

Chorney

JM.

Parental knowledge in pediatric otolaryngology surgical consultations: a qualitative content analysis. Int J Pediatr Otorhinolaryngol. 2015;79:1135-1139.

30.

Graham

Haworth

Chorney

et al . Decisional conflict in parents considering bone-anchored hearing devices in children with unilateral aural atresia. Ann Otol Rhinol Laryngol. 2015;124:925-930.

31.

Hong

Maguire

Gorodzinsky

et al . Shared decision-making in pediatric otolaryngology: parent, physician and observational perspectives. Int J Pediatr Otorhinolaryngol. 2016;87:39-43.

32.

Barry

Edgman-Levitan

Shared decision making—pinnacle of patient-centered care. N Engl J Med. 2012;366:780-781.

33.

Joosten

DeFuentes-Merillas

de Weert

et al . Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychother Psychosom. 2008;77:219-226.

34.

Lorenzo

Pippi Salle

Zlateska

et al . Decisional regret after distal hypospadias repair: single institution prospective analysis of factors associated with subsequent parental remorse or distress. J Urol. 2014;191(5)(suppl):1558-1563.

35.

Knops

Goossens

Ubbink

et al . Interpreting patient decisional conflict scores: behavior and emotions in decisions about treatment. Med Decis Making. 2013;33:78-84.

36.

Hussain

Allen

Halbert

et al . Provider perspectives on essential functions for care management in the collaborative treatment of hypertension: the P.A.R.T.N.E.R. framework. J Gen Intern Med. 2015;30:454-461.

37.

Varming

Hansen

Andresdottir

et al . Empowerment, motivation, and medical adherence (EMMA): the feasibility of a program for patient-centered consultations to support medication adherence and blood glucose control in adults with type 2 diabetes. Patient Prefer Adherence. 2015;9:1243-1253.

38.

Lee

Shin

Wang

et al . Pathways of empowerment perceptions, health literacy, self-efficacy, and self-care behaviors to glycemic control in patients with type 2 diabetes mellitus. Patient Educ Couns. 2016;99:287-294.

39.

Aarthun

Akerjordet

Parent participation in decision-making in health-care services for children: an integrative review. J Nurs Manag. 2014;22:177-191.

40.

Deen

Weintraub

et al . The impact of different modalities for activating patients in a community health center setting. Patient Educ Couns. 2012;89:178-183.

41.

Elwyn

Frosch

Kobrin

Implementing shared decision-making: consider all the consequences. Implement Sci. 2016;11:114.

42.

Legare

Ratte

Gravel

et al . Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals’ perceptions. Patient Educ Couns. 2008;73:526-535.

43.

Pollard

Bansback

Bryan

Physician attitudes toward shared decision making: a systematic review. Patient Educ Couns. 2015;98:1046-1057.

44.

Lipstein

Dodds

Britto

MT.

Real life clinic visits do not match the ideals of shared decision making. J Pediatr. 2014;165:178-183.e171.

45.

Legare

Thompson-Leduc

Twelve myths about shared decision making. Patient Educ Couns. 2014;96:281-286.

46.

Stacey

O’Connor

Graham

et al . Randomized controlled trial of the effectiveness of an intervention to implement evidence-based patient decision support in a nursing call centre. J Telemed Telecare. 2006;12:410-415.

47.

Whelan

Sawka

Levine

et al . Helping patients make informed choices: a randomized trial of a decision aid for adjuvant chemotherapy in lymph node–negative breast cancer. J Natl Cancer Inst. 2003;95:581-587.

48.

Peek

Wilson

Gorawara-Bhat

et al . Barriers and facilitators to shared decision-making among African-Americans with diabetes. J Gen Intern Med. 2009;24:1135-1139.

49.

Katz

Jacobson

Veledar

et al . Patient literacy and question-asking behavior during the medical encounter: a mixed-methods analysis. J Gen Intern Med. 2007;22:782-786.

50.

Fagerlin

Sepucha

Couper

et al . Patients’ knowledge about 9 common health conditions: the Decisions Survey. Med Decis Making. 2010;30(5)(suppl):35s-52s.

51.

Mathew

Azariah

George

et al . Do they hear what we speak? Assessing the effectiveness of communication to families of critically ill neurosurgical patients. J Anaesthesiol Clin Pharmacol. 2015;31:49-53.

52.

Azoulay

Chevret

Leleu

et al . Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med. 2000;28:3044-3049.

53.

Rodriguez

Navarrete

Schwaber

et al . A prospective study of primary surrogate decision makers’ knowledge of intensive care. Crit Care Med. 2008;36:1633-1636.

54.

Ong

de Haes

Hoos

et al . Doctor-patient communication: a review of the literature. Soc Sci Med. 1995;40:903-918.

55.

Bergeron

Duggins

Cohen

et al . A shared decision-making tool for obstructive sleep apnea without tonsillar hypertrophy: a randomized controlled trial [published online November 8, 2017]. Laryngoscope.