Palliative day care – a study of well-being and health-related quality of life

Abstract

Aim

The aim of the study was to study the outcomes of palliative day care, in terms of health-related quality of life and the emotional well-being of cancer patients participating in a palliative day care programme for a period of five weeks, compared with a group of palliative cancer patients not participating in day-care.

Methods

The day care sample comprised of patients in a palliative day care programme delivered in two different day care facilities. Participants in the comparison group were recruited from a palliative home care service facility. All patients had a cancer diagnosis. The participants were invited to respond to two questionnaires once a week for a period of five weeks; the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-30) and the Mood Adjective List (MACL).

Results

The participants in the day care group and the comparison group reported similar levels of perceived functioning and symptoms, as measured by the EORTC QLQ-30, with no significant differences between the groups. However, the day care group reported higher levels of emotional well-being as measured by the MACL than the comparison group reported, although these differences were not statistically significant.

Keywords

comparative study health-related quality of life longitudinal palliative day care

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References

1 Higginson IJ Hearn J Myers K Naysmith A . Palliative day care: what do services do. Palliat Med 2000; 14: 277–286.

2 Davies E Higginson IJ . Systematic review of specialist palliative day-care for adults with cancer. Support Care Cancer 2005; 13: 607–627.

3 Payne M . Social objectives in cancer care: the example of palliative day care. Eur J Cancer Care (Engl) 2006; 15: 440–447.

4 Goodwin DM Higginson IJ Myers K Douglas HR Normand CE . Effectiveness of palliative day care in improving pain, symptom control, and quality of life. J Pain Symptom Manage 2003; 25: 202–212.

5 Andersson Svidén G Tham K Borell L . Involvement in everyday life for people with a life threatening illness. Palliat Support Care (in press).

6 la Cour K Josephsson S Luborsky M . Creating connections to life during life-threatening illness: creative activity experienced by elderly people and occupational therapists. Scand J of Occup Ther 2005; 12: 98–109.

7 Goodwin DM Higginson IJ Myers K Douglas HR Normand CE . What is palliative day care? A patient perspective of five UK services. Support Care Cancer 2002; 10: 556–562.

8 Hopkinson JB Hallett CE . Patients' perceptions of hospice day care: a phenomenological study. Int J Nurs Stud 2001; 38: 117–125.

9 Kennett C Payne M . Understanding why palliative care patients 'like day care' and 'getting out'. J Palliat Care 2005; 21: 292–298.

10.

10 Kernohan WG Hasson F Hutchinson P Cochrane B . Patient satisfaction with hospice day care. Support Care Cancer 2006; 14: 462–468.

11.

11 Douglas HR Higginson IJ Myers K Normand C . Assessing structure, process and outcome in palliative day care: a pilot study for a multicentre trial. Health Soc Care Community 2000; 8: 336–344.

12.

12 Schag CC Heinrick RL Ganz PA . Karnofsky performance status revisited. Reliability, validity, and guidelines. J Clin Oncol 1984; 2: 187–193.

13.

13 Aaronson NK Ahmedzai S Bergman B Bullinger M Cull A Duez NJ . The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 1993; 85: 365–376.

14.

14 Sjöberg L Svensson E Persson LO . The measurements of mood. Scand J Psychol 1979; 20: 1–18.

15.

15 Fayers P Aaronson N Bjordal K Sullivan M . ; On behalf of EORTC Quality of Life Study Group. EORTC QLQC30 scoring manual. Brussels, Belgium: EORTC Study Group on Quality of Life; 1995.

16.

16 Kaasa S Bjordal K Aaronson N Moum T Wist E Hagen S . The EORTC Core Quality of Life Questionnaire (QLQ-C30): validity and reliability when analysed with patients treated with palliative radiotherapy. Eur J Cancer 1995; 31A: 2260–2263.

17.

17 Osoba D Rodrigues G Myles J Zee B Pater J . Interpreting the significance of changes in health-related quality-of-life scores. J Clin Oncol 1998; 16: 139–144.

18.

18 Hjermstad MJ Fayers PM Bjordal K Kaasa S . Health related quality of life in the general Norwegian population assessed by the European Organization for Research and Treatment of Cancer Core Quality-of-Life Questionnaire: the QLQ = C30 (» / 3). J Clin Oncol 1998; 16: 1188–1196.

19.

19 Lundqvist C Sjösten A Blomstrand C Lind B Sullivan M . Spinal cord injuries. Clinical, functional and emotional status. Spine 1991; 16: 78–83.

20.

20 Persson LO Sjöberg L . Mood and somatic symptoms. J Psychosom Res 1987; 31: 499–511.

21.

21 Sahlberg-Blom E Ternestedt BM Johansson JE . Is good ‘quality of life’ possible at the end of life? An explorative study of the experiences of a group of cancer patients in two different care cultures. J Clin Nurs 2001; 10: 550–562.

22.

22 Johansson CM Axelsson B Danielson E . Living with incurable cancer at the end of life–patients' perceptions on quality of life. Cancer Nurs 2006; 29: 391–399.

23.

23 Kaasa S Loge JH . Quality-of-life assessment in palliative care. Lancet Oncol 2002; 3: 175–182.

24.

24 Waldron D O'Boyle CA Kearney M Moriarty M Carney D . Quality-of-life measurement in advanced cancer: assessing the individual. J Clin Oncol 1999; 17: 3603–3611.

25.

25 Engström CP Persson LO Larsson S Sullivan M . Health-related quality of life in COPD: why both disease-specific and generic measures should be used. Eur Respir J 2001; 18: 69–76.

26.

26 Douglas HR Normand CE Higginson IJ Goodwin DM . A new approach to eliciting patients' preferences for palliative day care: the choice experiment method. J Pain Symptom Manage 2005; 29: 435–445.