The purpose of the study was to explore the prevocational needs of adolescents with juvenile idiopathic arthritis (JIA) from the perspective of occupational therapists and to examine the role of occupational therapy in addressing these. A questionnaire was distributed to members of occupational therapy organisations (n = 494) to assess the perceived importance of addressing prevocational issues for adolescents with JIA and the respondents' knowledge, confidence and perceived role. The questionnaire was completed by 175 (35.4%) individuals.
The results showed that although the occupational therapists felt that they were an appropriate profession to address the vocational needs of adolescents, they reported limited knowledge and confidence to do so. Significant unmet training needs were highlighted. This study echoes previous calls for vocational issues to be addressed within adolescent rheumatology and provides evidence that occupational therapy is well placed to coordinate this area of need.
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References
1.
BurchardtT (2005) The education and employment of disabled young people: frustrated ambition. Oxon: The Policy Press, Marston Book Services.
2.
ColemanJRokerD (1998) Adolescence. The Psychologist, 11, 593–96.
3.
College of Occupational Therapists (2005) Occupational therapy UK manifesto. Available at: http://www.cot.org.uk/ Accessed on 01.05.05.
4.
College of Occupational Therapists (2006) ‘Think, consider and convey…’Occupational Therapy News, 14 (1), 20.
5.
De CroonEMSluiterJKNijssenTFDijkmansBALankhorstGJFrings-DresenMH (2004) Predictive factors of work disability in rheumatoid arthritis: a systematic literature review. Annals of the Rheumatic Diseases, 63 (11), 1362–67.
6.
Department for Education and Skills (2004) Every child matters: change for children. Nottingham: DfES Publications.
FosterHEMarshallNMyersADunkleyPGriffithsID (2003) Outcome in adults with juvenile idiopathic arthritis. A quality of life study. Arthritis and Rheumatism, 48 (3), 767–75.
9.
GodfreyCHuttonSBradshawJColesBCraigGJohnsonJ (2002) Estimating the cost for being ‘not in education, employment or training’ at age 16–18. Heslington: Social Policy Research Unit, University of York.
10.
HeavenPCL (1994) Contemporary adolescence: a social psychological approach. Basingstoke: MacMillan.
11.
HsiehHShannonSE (2005) Three approaches to qualitative content analysis. Qualitative Health Research, 15, 1277–88.
12.
HuntGMOakeshottPKerryS (1999) Link between the CSF shunt and achievement in adults with spina bifida. Journal of Neurology, Neurosurgery and Psychiatry, 67, 591–95.
13.
McCollEJacobyAThomasLSouterrJBamfordCSteenNThomasRHarveyEGarrattABondJ (2001) Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients. Health Technology Assessment, 5 (31), 1–256.
14.
McDonaghJEKellyDE (2003) Transitioning care of the pediatric recipient to adult caregivers. Pediatric Clinics of North America, 50 (6), 1561–83.
15.
McDonaghJEFosterHEHallMAChamberlainMA (2000) Audit of rheumatology services for adolescents and young adults in the UK. Rheumatology, 39 (6), 596–602.
16.
McDonagh JE, Southwood TR, Shaw KL, British Paediatric Rheumatology Group (2004) Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care. Rheumatology, 43 (6), 737–43.
17.
McDonaghJEMinnaarGKellyKMO'ConnorDShawKL (2006) Unmet education and training needs in adolescent health of health professionals in a UK children's hospital. Acta Paediatrica, 95 (6), 715–19.
18.
Mitby PA, Robison LL, Whitton JA, Zevon MA, Gibbs IC, Terask JM, Meadows AT, Stovall M, Zeltzer LK, Mertens AC, Childhood Cancer Survivor Study Steering Committee (2003) Utilisation of special education services and educational attainment among long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Cancer, 97, 1115–26.
19.
OenKMallesonPNCabralDARosenbergAMPettyRECheangM (2002) Disease course and outcome of juvenile rheumatoid arthritis in a multicenter cohort. Journal of Rheumatology, 29 (9), 1989–99.
20.
PackhamJCHallMA (2002) Long-term follow-up of 246 adults with juvenile idiopathic arthritis: education and employment. Rheumatology, 4 (12), 1436–39.
21.
ReynoldsJMMortonMJGarraldaMEPostlethwaiteRJGohD (1993) Psychosocial adjustment of adult survivors of a paediatric dialysis and transplant programme. Archives of Disease in Childhood, 68, 104–10.
22.
Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM, Society for Adolescent Medicine (2003) Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. Journal of Adolescent Health, 33 (4), 309–11.
23.
Royal College of Nursing (2004) Adolescent transition care: guidance for nursing staff. London: RCN, 002313 (publication code). Available at: www.rcn.org.uk Accessed on 30.10.06.
24.
Royal College of Paediatrics and Child Health (2003) Bridging the gap: health care for adolescents. Available at: www.rcpch.ac.uk Accessed on 30.10.06.
25.
ShawKLSouthwoodTRMcDonaghJE, British Paediatric Rheumatology Group (2004a) User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology, 43 (6), 770–78.
26.
Shaw KL, Southwood TR, McDonagh JE, British Paediatric Rheumatology Group (2004b) Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: results of a postal survey. Rheumatology, 43 (2), 211–19.
27.
Shaw KL, Southwood TR, McDonagh JE, on behalf of the British Paediatric Rheumatology Group (2005) Growing up and moving on in rheumatology: a multicentre cohort of adolescents with juvenile idiopathic arthritis. Rheumatology, 44 (6), 806–12.
28.
ShawKLHackettJSouthwoodTRMcDonaghJE (2006) The prevocational and early employment needs of adolescents with juvenile idiopathic arthritis: the adolescent perspective. British Journal of Occupational Therapy, 69 (3), 98–105.
29.
TelfairJMyersJDreznerS (1994) Transfer as a component of the transition of adolescents with sickle cell disease to adult care: adolescent, adult and parent perspectives. Journal of Adolescent Health, 15, 558–65.
30.
WhitePHShearES (1992) Transition/job readiness for adolescents with juvenile arthritis and other diseases. Journal of Rheumatology, 33, S23–27.
