A literature review was conducted to identify and compare the clinical utility of client-centred, individualised outcome measures for paediatric rehabilitation. Five measures were identified: the Canadian Occupational Performance Measure (COPM) (28 studies); Goal Attainment Scaling (GAS) (34 studies); Perceived Efficacy and Goal Setting System (PEGS) (2 studies); Target Complaints (TC) (1 study); and the Paediatric Activity Card Sort (PACS) (instruction manual only). The COPM and GAS have been used with children across a wide age range and variety of clinical settings. The PEGS and PACS provided young children direct involvement in the goal-setting process. Little evidence supports the use of TC in paediatrics.
Clinicians need to use individualised measures in a way that facilitates the maximal participation of children and families in goal setting and outcome evaluation. Clinicians should document their own role in goal setting. The use of individualised and client-centred measures can motivate children and families and focus their attention on therapy goals.
BanduraA (1993) Perceived self-efficacy in cognitive development and functioning. Educational Psychologist, 1, 101–105.
2.
BattleCImberSHoehn-SarioANashEFrankJ (1966) Target complaints as criteria of improvement. American Journal of Psychotherapy, 20, 184–92.
3.
BaumC (2001) Activity Card Sort (ACS). St Louis, MO: Program in Occupational Therapy, Washington University School of Medicine.
4.
BonaguroJAMcLaughlinMSussmanK (1984) An exploration of health counseling and goal attainment scaling in health education programs. Journal of School Health, 54, 403–406.
5.
BottosMBolcatiCSciutoLRuggeriCFeliciangeliA (2001) Powered wheelchairs and independence in young children with tetraplegia. Developmental Medicine and Child Neurology, 43, 769–77.
6.
BrownDAEffgenSKPalisanoRJ (1998) Performance following ability-focused physical therapy intervention in individuals with severely limited physical and cognitive abilities. Physical Therapy, 78, 934–47.
7.
CandlerC (2003) Sensory integration and therapeutic riding at summer camp: occupational performance outcomes. Physical and Occupational Therapy in Pediatrics, 23 (3), 51–64.
8.
CarswellAMcCollMABaptisteSLawMPolatajkoHPollockN (2004) The Canadian Occupational Performance Measure: a research and clinical literature review. Canadian Journal of Occupational Therapy, 71, 210–22.
9.
ChardG (2000) The AMPS and clinical practice: response. (Letter.)British Journal of Occupational Therapy, 63 (11), 561.
10.
ClarkMSCaudreyDJ (1983) Evaluation of rehabilitation services: the use of goal attainment scaling. International Rehabilitation Medicine, 5, 41–45.
11.
CookAMBentzBHarbottleNLynchCMillerB (2005) School-based use of a robotic arm system by children with disabilities. IEEE Transactions on Neural System and Rehabilitation Engineering, 13 (4), 452–60.
12.
CookfairDLZevonMAMirandEA (1986) The use of goal attainment scaling to evaluate a cancer research training program for high school and college students. Journal of Cancer Education, 1 (4), 255–63.
13.
CusickAMcIntyreSNovalILanninNLoweK (2006) A comparison of goal attainment scaling and the Canadian Occupational Performance Measure for pediatric rehabilitation research. Pediatric Rehabilitation, 9 (2), 149–57.
14.
CusickALanninNALoweK (2007) Adapting the Canadian Occupational Performance Measure for use in a paediatric clinical trial. Disability and Rehabilitation, 29 (10), 761–66.
DavisSEMulcaheyMJSmithBTBetzRR (1999) Outcome of functional electrical stimulation in the rehabilitation of a child with C-5 tetraplegia. Journal of Spinal Cord Medicine, 22, 107–13.
17.
DonnellyCCarswellA (2002) Individualized outcome measures: a review of the literature. Canadian Journal of Occupational Therapy, 69, 84–94.
18.
DreilingDSBundyAC (2003) A comparison of consultative model and direct-indirect intervention with preschoolers. American Journal of Occupational Therapy, 57 (5), 566–69.
19.
DunfordC (2005) Children and young people's occupations. British Journal of Occupational Therapy, 68 (1), 1.
20.
DunfordCMissiunaCStreetESibertJ (2005) Children's perceptions of the impact of developmental coordination disorder on activities of daily living. British Journal of Occupational Thearapy, 68 (5), 207–14.
FragalaMAO'NeilMERussoKJDumasHM (2002) Impairment, disability, and satisfaction outcomes after lower-extremity botulinum toxin a injections for children with cerebral palsy. Pediatric Physical Therapy, 14 (3), 132–44.
23.
GagneDEHoppesS (2003) The effects of collaborative goal-focused occupational therapy on self-care skills: a pilot study. American Journal of Occupational Therapy, 57, 215–19.
24.
GainesBRGabouryI (2004) Toddler talk: outcomes from a parent-focused intervention for children with speech/language problems. Journal of Speech-Language Pathology and Audiology, 28, 173–83.
25.
GarthBAroniR (2003) ‘I value what you have to say’. Seeking the perspective of children with a disability, not just their parents. Disability and Society, 18, 561–76.
26.
GerrardJHeinsT (1981) Evaluating summer camps 1979: problems of measuring behaviour change in children. Australian and New Zealand Journal of Psychiatry, 15, 131–37.
27.
HarterS (1990) Issues in the assessment of the self-concept of children and adolescents. In: La GrecaAM, ed. Through the eyes of the child: obtaining self-reports from children and adolescents. Newton, MA: Allyn and Bacon.
28.
HealyHRigbyP (1999) Promoting independence for teens and young adults with physical disabilities. Canadian Journal of Occupational Therapy, 66, 240–49.
29.
HolroydJGoldenbergI (1978) The use of goal attainment scaling to evaluate a ward treatment program for disturbed children. Journal of Clinical Psychology, 34, 732–39.
30.
JollesBMBuchbinderRBeatonDE (2005) A study comparing nine patient-specific indices for musculoskeletal disorders. Journal of Clinical Epidemiology, 58, 791–801.
31.
KingGTuckerMAAlambetsPGritzanJMcDougallJOgilvieAHustedKO'GradySBrineMMalloy-MillerT (1998) The evaluation of functional, school-based therapy services for children with special needs: a feasibility study. Physical and Occupational Therapy in Pediatrics, 18, 1–27.
32.
KingGAMcDougallJPalisanoRJGritzanJTuckerMA (1999a) Goal attainment scaling: its use in evaluating pediatric therapy programs. Physical and Occupational Therapy in Pediatrics, 19, 31–52.
33.
KingGAMcDougallJTuckerMAGritzanJMalloy-MillerTAlambetsPCunningDThomasKGregoryK (1999b) An evaluation of functional, school-based therapy services for children with special needs. Physical and Occupational Therapy in Pediatrics, 19, 5–29.
34.
KingGAMcDougallJPalisanoRJGritzanJTuckerMA (2002) Goal attainment scaling: its use in evaluating pediatric therapy programs. Physical and Occupational Therapy in Pediatrics, 19 (2), 31–52.
35.
KingH (2000) The AMPS and clinical practice. (Letter.)British Journal of Occupational Therapy, 63 (11), 561.
36.
KiresukTShermanR (1968) Goal attainment scaling: a general method for evaluating comprehensive community mental health programs. Community Mental Health Journal, 4, 441–53.
37.
LammiBMLawM (2003) The effects of family-centred functional therapy on the occupational performance of children with cerebral palsy. Canadian Journal of Occupational Therapy, 70 (5), 285–97.
38.
LawLSHDaiMSSiuA (2004) Applicability of goal attainment scaling in the evaluation of gross motor changes in children with cerebral palsy. Hong Kong Physiotherapy Journal, 22, 22–28.
LawMRussellDPollockNRosenbaumPWalterSKingG (1997) A comparison of intensive neurodevelopmental therapy plus casting and a regular occupational therapy program for children with cerebral palsy. Developmental Medicine and Child Neurology, 39, 664–70.
41.
LawMDarrahJPollockNKingGRosenbaumPRussellDPalisanoRHarrisSArmstrongRWattJ (1998) Family-centred functional therapy for children with cerebral palsy: an emerging practice model. Physical and Occupational Therapy in Pediatrics, 18, 83–102.
42.
LawMBaptisteSCarswellAMcCollMPolatajkoHPollockN (2005a) Canadian Occupational Performance Measure. 4th ed.Ottawa, ON: CAOT Publications ACE.
43.
LawMMajnemerAMcCollMABoschJHannaSWilkinsSBirchSTelfordJStewartD (2005b) Home and community occupational therapy for children and youth: a before and after study. Canadian Journal of Occupational Therapy, 72 (5), 289–97.
44.
LockeEALathamGP (1990) A theory of goal setting and task performance. Englewood Cliffs, NJ: Prentice-Hall.
45.
LoweKNovakLCusickA (2006) Low-dose/high concentration localized botulinum toxin A improves limb movement and function in children with hemiplegic cerebral palsy. Developmental Medicine and Child Neurology, 48 (3), 170–75.
46.
MacKayGMcCoolSCheseldineSMcCartneyE (1993) Goal attainment scaling: a technique for evaluating conductive education. British Journal of Special Education, 20, 143–47.
47.
MāenpääHJaakkolaRSandstromMAiriTvon WendtL (2004) Electrostimulation at sensory level improves function of the upper extremities in children with cerebral palsy: a pilot study. Developmental Medicine and Child Neurology, 46, 84–90.
48.
MaherCA (1983) Goal attainment scaling: a method for evaluating special education services. Exceptional Children, 49, 529–36.
49.
MallVHeinenFSiebelABertramCHafkemeyerUWisselJBerweekSHaverkampFNassGDöderleinLBreitbach-FallerNSchulte-MattlerWKorinthenbergR (2006) Treatment of adductor spasticity with BTX-A in children with CP: a randomized, double-blind, placebo-controlled study. Developmental Medicine and Child Neurology, 48, 10–13.
50.
MaloneyFPMirrettPBrooksCJohannesK (1978) Use of goal attainment scaling in the treatment and ongoing evaluation of neurologically handicapped children. American Journal of Occupational Therapy, 32, 505–10.
MartiniRPolatajkoH (1998) Verbal self-guidance as a treatment approach for children with developmental coordination disorder: a systematic replication study. Occupational Therapy Journal of Research, 18, 157–81.
53.
McCollMACarswellALawMPollockNBaptisteSPolatajkoH (2006) Research on the Canadian Occupational Performance Measure: an annotated resource. Ottawa, ON: CAOT Publications ACE.
54.
McGavinH (1998) Planning rehabilitation: a comparison of issues for parents and adolescents. Physical and Occupational Therapy in Pediatrics, 18, 69–82.
55.
McLarenCRodgerS (2003) Goal attainment scaling: clinical implications for paediatric occupational therapy practice. Australian Occupational Therapy Journal, 50, 216–24.
56.
MillerLTPolatajkoHJMissiunaCMandichADMacnabJJ (2001) A pilot trial of a cognitive treatment for children with developmental coordination disorder. Human Movement Science, 20 (1–2), 183–210.
57.
MillerLJCollJRSchoenSA (2007) A randomized controlled pilot study of the effectiveness of occupational therapy for children with sensory modulation disorder. American Journal of Occupational Therapy, 61 (2), 228–38.
58.
MissiunaC (1998) Development of ‘All About Me’, a scale that measures children's perceived motor competence. Occupational Therapy Journal of Research, 18, 85–108.
59.
MissiunaCPollockNLawM (2004) The Perceived Efficacy and Goal Setting System. San Antonio, TX: Harcourt.
60.
MissiunaCPollockNLawMWalterSCaveyN (2006) Examination of the Perceived Efficacy and Goal Setting System (PEGS) with children with disabilities, their parents, and teachers. American Journal of Occupational Therapy, 60 (2), 204–14.
61.
MitchellTCusickA (1998) Evaluation of a client-centred paediatric rehabilitation programme using goal attainment scaling. Australian Occupational Therapy Journal, 45, 7–17.
62.
ÖdmanPEÖbergBE (2006) Effectiveness and expectations of intensive training: a comparison between child and youth rehabilitation and conductive education. Disability and Rehabilitation, 28 (9), 561–70.
63.
PalisanoRJ (1993) Validity of goal attainment scaling in infants with motor delays. Physical Therapy, 73, 651–60.
64.
PalisanoRJ (2006) A collaborative model of service delivery for children with movement disorders: a framework for evidence-based decision making. Physical Therapy, 86 (9), 1295–305.
65.
PalisanoRJHaleySMBrownDA (1992) Goal attainment scaling as a measure of change in infants with motor delays. Physical Therapy, 72, 432–37.
66.
PaolicelliPBFerrariALodesaniMMuzziniSSassiSMaoretABianchiniECioniG (2001) Use of botulinum toxin type A in walking disorders of children with cerebral palsy. Europa Medicophysica, 37, 83–92.
67.
ParkerDMSykesCH (2006) A systematic review of the Canadian Occupational Performance Measure: a clinical practice perspective. British Journal of Occupational Therapy, 69 (4), 150–60.
68.
PerronMDreismanDSmithEBrownABradleyCKoseckK (2001) Juvenile arthritis summer camp improves knowledge, satisfaction and health status. Association of Rheumatology Health Professionals Annual Meeting, Nov. 11–15, San Francisco, CA, 45 (6), S276.
69.
PollockN (1993) Client-centered assessment. American Journal of Occupational Therapy, 47 (4), 298–301.
70.
PollockNStewartD (1998) Occupational performance needs of school-aged children with physical disabilities in the community. Physical and Occupational Therapy in Pediatrics, 18, 55–68.
71.
ReidDT (2002) Benefits of a virtual play rehabilitation environment for children with cerebral palsy on perceptions of self-efficacy: a pilot study. Pediatric Rehabilitation, 5 (3), 141–48.
72.
ReidDRigbyPRyanS (1999) Functional impact of a rigid pelvic stabilizer on children with cerebral palsy who use wheelchairs: users' and caregivers' perceptions. Pediatric Rehabilitation, 3, 101–18.
73.
SchaafRCNightlingerKM (2007) Occupational therapy using a sensory integrative approach: a case study of effectiveness. American Journal of Occupational Therapy, 61 (2), 239–46.
SchlosserRW (2004) Goal attainment scaling as a clinical measurement technique in communication disorders: a critical review. Journal of Communication Disorders, 37, 217–39.
76.
SchreiberJ (2004) Increased intensity of physical therapy for a child with gross motor developmental delay: a case report. Physical and Occupational Therapy in Pediatrics, 24, 63–78.
77.
SimeonssonRJHuntingtonGSShortRJ (1982) Individual differences and goals: an approach to the evaluation of child progress. Topics in Early Childhood Special Education, 1, 71–80.
78.
SimeonssonRJBaileyDBJHuntingtonGSBrandonL (1991) Scaling and attainment of goals in family-focused early intervention. Community Mental Health Journal, 27, 77–83.
79.
SteenbeekDMeester-DelverABecherJGLankhorstGJ (2005) The effect of botulinum toxin type A treatment of the lower extremity on the level of functional abilities in children with cerebral palsy: evaluation with goal attainment scaling. Clinical Rehabilitation, 19, 274–82.
80.
SteenbeekDKetalaarMGalamaKGorterJW (2007) Goal attainment scaling in paediatric rehabilitation: a critical review of the literature. Developmental Medicine and Child Neurology, 49, 550–56.
81.
StephensTEHaleySM (1991) Comparison of two methods for determining change in motorically handicapped children. Physical and Occupational Therapy in Pediatrics, 11, 1–17.
82.
StewartDLawMRussellDHannaS (2004) Evaluating children's rehabilitation services: an application of a programme logic model. Child: Care, Health and Development, 30 (5), 453–62.
83.
StewartSNeyerlin-BealeJ (1999) Enhancing independence in children with cerebral palsy. Symposium on cerebral palsy. British Journal of Therapy and Rehabilitation, 6, 574–79.
84.
StewartSNeyerlin-BealeJ (2000) The impact of community paediatric occupational therapy on children with disabilities and their carers. British Journal of Occupational Therapy, 63, 373–79.
85.
StratfordPSpadoniGF (2005) Assessing improvements in patients who report small limitations in functional status on condition-specific measures. Physiotherapy Canada, 57, 234–39.
86.
StuckiG (2005) International Classification of Functioning, Disability, and Health (ICF): a promising framework and classification for rehabilitation medicine. American Journal of Physical Medicine and Rehabilitation, 84 (10), 733–40.
87.
SumsionT (2005) Facilitating client-centred practice: insights from clients. Canadian Journal of Occupational Therapy, 72, 13–20.
88.
TamCReidDNaumannSO'KeefeB (2002) Perceived benefits of word prediction intervention on written productivity in children with spina bifida and hydrocephalus. Occupational Therapy International, 9 (3), 237–55.
89.
TamCArcherJMaysJSkidmoreG (2005) Measuring the outcomes of word cueing technology. Canadian Journal of Occupational Therapy, 72 (5), 301–308.
90.
TugwellPBombardierCBuchananWWGoldsmithCHGraceEHannaB (1987) The MACTAR Patient Preference Disability Questionnaire — an individualized functional priority approach for assessing improvement in physical disability in clinical trials in rheumatoid arthritis. Journal of Rheumatology, 14 (3), 446–51.
VerkerkGJQWolfMJMAGLouwersAMeester-DelverANolletF (2006) The reproducibility and validity of the Canadian Occupational Performance Measure in parents of children with disabilities. Clinical Rehabilitation, 20 (11), 980–89.
93.
VeneriA (2002) Occupational performance: perceptions of children with developmental coordination disorder. British Journal of Occupational Therapy, 65 (8), 380.
94.
WallenMAO'FlahertySJWaughMC (2004) Functional outcomes of intramuscular botulinum toxin type A in the upper limbs of children with cerebral palsy: a phase II trial. Archives of Physical Medicine and Rehabilitation, 85 (2), 192–200.
95.
WallenMO'FlahertySJWaughMC (2007) Functional outcomes of intramuscular botulinum toxin type A and occupational therapy in the upper limbs of children with cerebral palsy: a randomized controlled trial. Archives of Physical Medicine and Rehabilitation, 88 (1), 1–10.
96.
WallinPKochM (1977) The use of goal attainment scaling as a method of evaluating clinical outcome in an inpatient child psychiatry service. Journal of the American Academy of Child Psychiatry, 16, 439–45.
97.
WilkinsSPollockNRochonSLawM (2001) Implementing client-centred practice: why is it so difficult to do?Canadian Journal of Occupational Therapy, 68 (2), 70–79.
98.
World Health Organisation (2001) International Classification of Functioning, Disability and Health. Geneva: WHO.
99.
WrightFVBoschenKJutaiJ (2005) Exploring the comparative responsiveness of a core set of outcome measures in a school-based conductive education programme. Child: Care, Health and Development, 31 (3), 291–302.
100.
YoungAChessonR (1997) Goal attainment scaling as a method of measuring clinical outcome for children with learning disabilities. British Journal of Occupational Therapy, 60 (3), 111–14.
