This paper is aimed at focusing on the writings and the experience of the Hospice movement Founder, Dame Cicely Saunders. The in-depth analysis carried out had the objective of verifying if “the way” of Cicely to understand, live and propose palliative care was still current and “beautiful”, so that we can nowadays refer to her fascinating “Original Palliative Care”. With “beauty” we mean, on the one hand, a way able to allow a personal path of research of the meaning of the disease and of the care, both for those who care and for those who are cared for. On the other hand, it seems to us that Cicely strongly suggests how this path can not be carried out alone, but is only possible within the context of a network of relationships and support, in a so called “relational autonomy”, for the patient, included in a “care ethics”. The authors believe that the work extensively documents as the overall approach of Cicely, traditional but always to be rediscovered, is still today the most convincing way of conception and action of palliative care.
ClarkD.Foreword, inSaundersC. Watch With Me: Inspiration for a Life in Hospice Care. Lancaster, United Kingdom: Observatory Publications2005: VII-XII.
2.
SaundersC. A personal therapeutic journey. BMJ. 1996;313(7072):1599–601.
3.
SaundersC. Selected Writings 1958-2004. Oxford, United Kingdom: Oxford University Press2006.
4.
ClarkD. ‘Total pain’, disciplinary power and the body in the work of Cicely Saunders, 1958-1967. Soc Sci Med. 1999;49(6):727–736.
5.
PuchalskiCFerrellBViraniR, et al.Improving the quality of spiritual care as a dimension of palliative care: the report of the Consensus Conference. J Palliat Med. 2009;12(10):885–904.
6.
NolanSSaltmarshPLegetC. Spiritual care in palliative care: working towards an EAPC Task Force. Eur J Pall Care. 2011;18(2):86–89.
7.
EmanuelLHandzoGGrantG, et al.Workings of the human spirit in palliative care situations: a consensus model from the Chaplaincy Research Consortium. BMC Palliat Care. 2015;14:29.
8.
SaundersC. Watch With Me: Inspiration For A Life In Hospice Care. Lancaster, United Kingdom: Observatory Publications. 2005:39–50.
9.
MaltoniMScarpiERosatiM, et al.Palliative sedation in end-of-life care and survival: a systematic review. J Clin Oncol. 2012;30(12):1378–1383.
10.
Raccomandazioni della SICP (Società Italiana di Cure Palliative) sulla sedazione terminale/sedazione palliativa. 2006. https://www.sicp.it/. Accessed February 20, 2019.
11.
ChernyNIRadbruchL; Board of the European Association for Palliative Care. European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care. Palliat Med. 2009;23(7):581–593.
12.
SaundersC. Current views on pain relief and terminal care. In: SwerlowM, ed. The Therapy of Pain. Lancaster, United Kingdom. Lancaster MTP Press. 1981:215–241.
13.
CaraceniA. Palliative sedation: more data and fewer opinions. Lancet Oncol. 2016;17(1):15–17.
14.
LipumaSH. Continuous sedation until death as physician-assisted suicide/euthanasia: a conceptual analysis. J Med Philos. 2013;38(2):190–204.
15.
MeldrumM. The ladder and the clock: cancer pain and public policy at the end of the twentieth century. J Pain Symptom Manage. 2005;29(1):41–54.
16.
Raccomandazioni SICP (Società Italiana di Cure Palliative) su informazione e consenso progressivo in Cure Palliative: un processo evolutivo condiviso. 2015. https://www.sicp.it/. Accessed February 20, 2019.
Comitato Scientifico Fondazione Cortile dei Gentili. Linee propositive per un diritto della relazione di cura e delle decisioni di fine vita. Recenti Prog Med. 2015;106(11):548–550.
20.
ClarkD, ed. Cicely Saunders Founder of the Hospice Movement. Selected Letters, Oxford, United Kingdom: Oxford University Press. 2002:21–2.
21.
BernheimJLDistelmansWMullieAAshbyMA. Questions and answers on the Belgian model of integral end-of-life care: experiment? Prototype?: “Eu-euthanasia”: the close historical, and evidently synergistic, relationship between palliative care and euthanasia in Belgium: an interview with a doctor involved in the early development of both and two of his successors. J Bioeth Inq. 2014;11(4):507–529.
22.
European Association for Palliative Care. Definition and Aims. https://www.eapcnet.eu/. Accessed February 20, 2019.
23.
RadbruchLLegetCBahrP, et al.Euthanasia and physician-assisted suicide: a white paper from the European Association for Palliative Care. Palliat Med. 2016;30(2):104–116.
