Quality of Life for Families in the Management of Home Care Patients with Advanced Cancer

Family is loosely defined to include those individuals whom the patient reports as having an enduring commitment to one another. It is not necessary for these individuals to live together. They can be blood relatives, marital partners, lovers, neighbors, or friends.

Lewis FM . Strengthening family support: Cancer and the family. Cancer 1990; Feb 65(3): 752–759.

Ferrell BR , Ferrell BA , Rhiner M , Grant M. Family factors influencing cancer pain management. J Postgrad Med 1991; 67 (2):564–569.

Rait D , Lederberg MS . The family of the cancer patient. In Holland JC , Rowland JH (eds). Handbook of Psycho-Oncology. New York: Oxford University Press, 1990, pp 585–597.

Rosen EJ . Families Facing Death: Family Dynamics of Terminal Illness. Lexington, Massachusetts: Lexington Books, 1990.

Hileman JW , Lackey NR , Hassanein RS . Identifying the needs of home caregivers of patients with cancer. Oncol Nurs Forum 1992; 19 (5):771–777.

Siegel K , Raveis VH , Houts P , Mor V. Caregiver burden and unmet patient needs. Cancer 1991; Sept 68:1131–1140.

Sankar A. Dying at Home: A Family Guide for Caregiving. Baltimore: Johns Hopkins University Press, 1991.

Blank JJ , Clark L , Longman AJ , Arwood JR . Perceived home care needs of cancer patients and their caregivers. Cancer Nurs 1989; 12 (2):78–84.

Rosenbaum EH , Rosenbaum IR . Principles of home care for the patient with advanced cancer. JAMA 1980; Sept 244(13): 1484–1487.

Farkas C. Management of special psychiatric problems interminal care: Role for a psychiatric nurse-clinician. In Holland JC , Rowland JH (eds). Handbook of Psycho-oncology. New York: Oxford University Press, 1990, pp 607–611.

Coyle N , Loscalzo M , Bailey L. Supportive home care for the advanced cancer patient and family. In Holland JC , Rowland JH (eds). Handbook of Psycho-oncology. New York: Oxford University Press, 1990, pp 598–606.

Holland JC . Stress and Coping: Families and Terminal Illness. Stress and Coping Unit III: The Family. Philadelphia: Smith Kline Corporation, 1981.

Woods NF , Lewis FM , Ellison ES . Living with cancer: Family experiences. Cancer Nurs 1989; 12 (1):28–33.

Gonda TA , Ruark JE . Dying Dignified. Menlo Park, California: Addison-Wesley, 1984.

Jassak PF . Families: An essential element in the care of the patient with cancer. Oncol Nurs Forum 1992; 19 (6):871–876.

Rando TA . Grief, Dying and Death: Clinical Interventions for Caregivers. Champaign, Illinois: Research Press, 1984.

Strong M. Mainstay: For the Well Spouse of the Chronically Ill. Boston: Little, Brown, 1988.

Grobe ME , Ilstrup DM , Ahmann DL . Skills needed by family members to maintain the care of an advanced cancer patient. Cancer Nurs 1981; Oct 371–375.

Strauss AL , Glaser BG . Chronic Illness and the Quality of Life. St. Louis: C.V. Mosby, 1975.

Wallace RW , Noelker LS . Conceptualizing family caregiving: An application of role theory. Presented to the 37th Annual Scientific Meeting of the Gerontological Society of America, San Antonio, Texas, Nov 1984.

Wingate AL , Lackey NR . A description of the needs of noninstitutionalized cancer patients and their primary care givers. Cancer Nurs 1989; 12 (4):216–225.

Young RF , Kahane E. Conceptualizing stress, coping, and illness management in heart discase caregiving. In Paradis LF (ed). Stress and burnout among providers caring for the terminally ill and their Families. Hospice J 1987; 3(2)53–73.

Jensen S , Given BA . Fatigue affecting family caregivers of cancer patients, Cancer Nurs 1991; 14 (4):181–187.

Kalish RA . Death, Grief, and Caring Relationships. 2nd ed. Monterrey, California: Brooks/Cole, 1985.