The purpose of this grounded theory study is to develop a beginning substantive theory that explains the communication process between parents of children receiving center-based services for developmental delays and disabilities and the professional providers of those services. Communication is defined broadly as including both content and relationship dimensions. Twenty parents and 14 providers described their experience of communication with one another. The core phenomenon constructed from the data was striving for therapeutic relationships within a context of uncertainty. Both parents and providers operated in a context of uncertainty regarding the child and his or her development and prospects for the future as well as their expectations of each other. Both parents and providers used strategies of balancing, reading the cues, questioning, managing uncertainty, and managing the sessions. The outcomes were relationships that were valued by the extent to which they were perceived as therapeutic to parents and child.
Bailey, D. B., Jr., Blasco, P. M., & Simeonsson, R. J. (1992). Needs expressed by mothers and fathers of young children with disabilities. American Journal on Mental Retardation, 97(1), 1-10.
2.
Blumer, H. (1969). Symbolic interaction: Perspective and method. Englewood Cliffs, NJ: Prentice Hall.
3.
Brady, S. J., Peters, D. L., Gamel-McCormick, M.,& Venuto, N. (2004). Types and patterns of professionalfamily talk in home-based early intervention. Journal of Early Intervention, 26(2), 146-159.
4.
Charmaz, K. (1990). “Discovering” chronic illness: Using grounded theory. Social Science & Medicine, 30(11), 1161-1172.
5.
Davis, F. (1972). Deviance disavowal: The management of strained interaction by the visibly handicapped. In F. Davis (Ed.), Illness, interaction and the self(pp. 388-397). Belmont, CA: Wadsworth.
6.
Davis, F. (1991). Passage through crisis: Polio victims and their families. New Brunswick, NJ: Transaction.
7.
Dinnebeil, L. A., Hale, L. M.,& Rule, S. (1996). Aqualitative analysis of parents’ and service coordinators’ descriptions of variables that influence collaborative relationships. Topics in Early Childhood Special Education, 16(3), 322-347.
8.
Dinnebeil, L. A., Hale, L. M.,& Rule, S. (1999). Early intervention program practices that support collaboration. Topics in Early Childhood Special Education, 19(4), 225-225.
9.
Dunst, C., Trivette, C.,& Deal, A. (1988). Enabling and empowering families: Principles and guidelines for practice. Cambridge, MA: Brookline.
10.
Finlay, L. (2002). “Outing” the researcher: The provenance, process, and practice of reflexivity. Qualitative Health Research, 12, 531-545.
11.
Glaser, B. G. (1992). Emergence vs. forcing: Basics of grounded theory analysis. Mill Valley, CA: Mill Valley Press.
12.
Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Chicago: Aldine.
13.
Kahn, D. L. (1993). Ways of discussing validity in qualitative nursing research. Western Journal of Nursing, 15(1), 122-126.
14.
Kalmanson, B., & Seligman, S. (1992). Family-provider relationships: The basis of all interventions. Infants and Young Children, 4(4), 46-52.
15.
Knafl, K., Breitmayer, B., Gallo, A.,& Zoeller, L. (1992). Parents’ views of health care providers: Anexploration of the components of a positive working relationship. Children's Health Care: Journal of the Association for the Care of Children's Health, 21(2), 90-95.
16.
Knafl, K. A.,& Deatrick, J. A. (1986). Howfamilies manage chronic conditions: Ananalysis of the concept of normalization. Research in Nursing and Health, 9, 215-222.
17.
Lamb, G. S., & Huttlinger, K. (1989). Reflexivity in nursing research. Western Journal of Nursing Research, 11(6), 765-772.
18.
Lipson, J. G. (1991). The use of self in ethnographic research. In J. M. Morse (Ed.), Qualitative nursing research: A contemporary dialogue(pp. 73-89). Newbury Park, CA: Sage.
19.
McGonigel, M. J.,& Garland, C. W. (1988). The individualized family service plan and the early intervention team: Team and family issues and recommended practices. Infants and Young Children, 1(1), 10-21.
20.
McWilliam, R. A., Tocci, L.,& Harbin, G. L. (1998). Family-centered services: Service providers’ discourse and behavior. Topics in Early Childhood Special Education, 18(4), 206-221.
21.
Meeropol, E. (1991). Parental needs assessment: A design for clinical nurse specialist practice. Pediatric Nursing, 17(5), 456-458.
22.
Minke, K. M.,& Scott, M. M. (1995). Parent-professional relationships in early intervention: Aqualitative investigation. Topics in Early Childhood Special Education, 15(3), 335-352.
23.
Morse, J. M., Wilson, S.,& Penrod, J. (2000). Mothers and their disabled children: Refining the concept of normalization. Health Care for Women International, 21, 659-676.
24.
Northouse, P. G., & Northouse, L. L. (1992). Health communication: Strategies for health professionals (2nd ed.). Norwalk, CT: Appleton and Lange.
25.
Pope, A. M., & Tarlov, A. R. (1991). Disability in America: Toward a national agenda for prevention. Washington, DC: National Academy Press.
26.
Sabbeth, B. F., & Leventhal, J. M. (1988). Trial balloons: When families of ill children express needs in veiled ways. Children's Health Care, 17(2), 87-92.
27.
Schatzman, L. (1992). Dimensional analysis: Notes on an alternative approach to the grounding of theory in qualitative research. In D. R. Maines (Ed.), Social organization and social process: Essays in honor of Anselm Strauss(pp. 305-314). New York: Aldine de Gruyter.
28.
Sloper, P., & Turner, S. (1992). Service needs of families of children with severe physical disability. Child: Care, Health and Development, 18, 259-282.
29.
Strauss, A. (1987). Qualitative analysis for social scientists. New York: Cambridge University Press.
30.
Strauss, S. S., & Munton, M. (1985). Common concerns of parents with disabled children. Pediatric Nursing, 11, 371-375.
31.
Summers, J. A., Dell'Oliver, C., Turnbull, A. P., Benson, H. A., Santelli, E., Campbell, M., et al. (1990). Examining the individualized family service plan process: What are family and practitioner preferences?Topics in Early Childhood Special Education, 10(1), 78-99.
32.
Walker, D. K., Epstein, S. G., Taylor, A. B., Crocker, A. C.,& Tuttle, G. A. (1989). Perceived needs of families with children who have chronic health conditions. Children's Health Care, 18(4), 196-201.
