Family caregiving tends to involve strong and often competing emotional experiences. Most of our knowledge of caregiving stems from interview research, much of it cross-sectional in nature. In this article we explore the implications of interviews as a research method for understanding caregiving. Specifically, we address difficulties in interpreting participants' talk about caregiving when this talk is simultaneously an articulation of experience and an attempt to cope with that experience. Either uncritically accepting accounts as reflective of experience, without considering the role of coping, or making assumptions about the success of caregiver coping in this context, might be erroneous. Our own experiences of interviewing family caregivers in different research projects will be drawn upon as examples. We conclude by questioning the ability to draw conclusions about caregiving and/or caregiver coping based solely on interview research, and call for greater integration of observational and longitudinal methods in family caregiving research.
Affleck, G., & Tennen, H. (1996). Construing benefits from adversity: Adaptational significance and dispositional underpinnings. Journal of Personality , 64, 899-923.
2.
Aronson, J. (1992). Women's sense of responsibility for the care of old people: "But who else is going to do it?" Gender and Society , 6, 8-29.
3.
Atkinson, P., Coffey, C., & Delamont, S. (2003). Key themes in qualitative research: Continuities and change. Walnut Creek, CA: Alta Mira Press.
4.
Bernard, R. (1994). Research methods in anthropology. Newbury Park, CA: Sage.
5.
Brody, E.M. (1990). Role reversal: An inaccurate and destructive concept . Journal of Gerontological Social Work, 15, 15-22.
6.
Clarke, A. (2006). Qualitative interviewing: Encountering ethical issues and challenges. Nurse Researcher, 13, 19-29.
7.
Corbin, J., & Morse, J.M. (2003). The unstructured interactive interview: Issues of reciprocity and risks when dealing with sensitive topics. Qualitative Inquiry, 9, 335-354.
8.
Creswell, J.W. (2003). Advanced mixed methods research designs. In A. Tashakkori & C. Teddlie (Eds.), Handbook of mixed methods in social and behavioral research (pp. 209-240). Thousand Oaks, CA: Sage.
9.
Denzin, N. (1978). Sociological methods: A sourcebook. New York: McGraw-Hill.
10.
Funk, L.M. (2008). Responsibility for aging parents: Independence and obligation within filial relationships. Unpublished doctoral dissertation, University of Victoria, Victoria, British Columbia, Canada.
11.
Funk, L.M. (in press). Prioritizing parental autonomy: Adult children's accounts of feeling responsible and supporting aging parents. Journal of Aging Studies.
12.
George, L.K. (1986). Caregiver burden: Conflict between norms of reciprocity and solidarity. In K. A. Pillemer & R. S. Wolf (Eds.), Elder abuse: Conflict in the family (pp. 67-92). Dover, MA: Auburn House.
13.
Gottlieb, B.H., & Wolfe, J. (2002). Coping with family caregiving to persons with dementia: A critical review. Aging and Mental Health, 6, 325-342.
14.
Groger, L., & Mayberry, P.S. (2001). Caring too much? Cultural lag in African Americans' perceptions of filial responsibilities. Journal of Cross-Cultural Gerontology, 16, 21-39.
15.
Hewitt, J. (2007). Ethical components of researcher-researched relationships in qualitative interviewing. Qualitative Health Research, 17, 1149-1159.
16.
Hiller, H.H., & DiLuzio, L. (2004). The interviewee and the research interview: Analyzing a neglected dimension in research. Canadian Review of Sociology and Anthropology, 41, 1-26.
17.
Holstein, J.A., & Gubrium, J.F. (1997). Active interviewing. In D. Silverman (Ed.), Qualitative research: Theory, method and practice (pp. 113-129). London: Sage.
18.
Hong, Y., & Liu, W. (2000). The social psychological perspective of elderly care. In W. Liu & H. Kendig (Eds.), Who should care for the elderly? (pp. 165-182). Singapore: Singapore University Press.
19.
Hooyman, N.R., & Gonyea, J. (1995). Feminist perspectives on family care: Policies for gender justice. Thousand Oaks, CA: Sage.
20.
Hutchinson, S.A., Wilson, M.E., & Skodol Wilson, H. (1994). Benefits of participating in research interviews. IMAGE: Journal of Nursing Scholarship , 26, 161-164.
21.
Kneebone, I.I., & Martin, P.R. (2003). Coping and caregivers of people with dementia . British Journal of Health Psychology, 8, 1-17.
22.
Kvale, S. (1996). InterViews: An introduction to qualitative research interviewing. Thousand Oaks, CA: Sage.
23.
Lowes, L., & Gill, P. (2006). Participants' experiences of being interviewed about an emotive topic. Journal of Advanced Nursing, 55, 587-595.
24.
Macrae, H. (1998). Managing feelings: Caregiving as emotion work . Research on Aging, 20, 137-160.
25.
Nunkoosing, K. (2005). The problems with interviews. Qualitative Health Research, 15, 698-706.
26.
Patton, M.Q. (1999). Enhancing the quality and credibility of qualitative analysis. Health Services Research, 34, 1189-1208.
27.
Pearlin, L., Mullan, J., Semple, S., & Skaff, M. (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583-594.
28.
Pillemer, K.A., & Luscher, K. (2004). Intergenerational ambivalences: New perspectives on parent-child relations in later life. Oxford: Elsevier.
29.
Proot, I.M., Abu-Saad, H.H., Crebolder, H. F. J. M, Goldsteen, M., Luker, K.A., & Widdershoven, G.A.M. (2003). Vulnerability of family caregivers in terminal palliative care at home: Balancing between burden and capacity. Scandinavian Journal of Caring Sciences, 17, 113-121.
30.
Robson, E. (2001). Interviews worth the tears? Exploring dilemmas of research with young carers in Zimbabwe. Ethics, Place and Environment, 4, 135-142.
31.
Sandelowski, M. (2003). Tables or tableaux? The challenges of writing and reading mixed methods studies. In A. Tashakkori & C. Teddlie (Eds.), Handbook of mixed methods in social and behavioral research (pp. 321-350). Thousand Oaks, CA: Sage.
32.
Sinding, C., & Aronson, J. (2003). Exposing failures, unsettling accommodations: Tensions in interview practice. Qualitative Research, 3, 95-117.
33.
Stajduhar, K.I. (2003). Examining the perspectives of family members involved in the delivery of palliative care at home. Journal of Palliative Care, 19, 27-35.
34.
Stajduhar, K.I., & Davies, B. (2005). Variations in and factors influencing family members' decisions for palliative home care. Palliative Medicine, 19, 21-32.
35.
Stajduhar, K.I., Martin, W., Barwich, D., & Fyles, G. (2007). Factors influencing family caregivers' ability to cope with providing end of life cancer care at home. Cancer Nursing, 31, 77-85.
36.
Tashakkori, A., & Teddlie, C. (2003). Preface. In A. Tashakkori & C. Teddlie (Eds.), Handbook of mixed methods in social and behavioral research (pp. ix-xv). Thousand Oaks, CA: Sage.
37.
Tennen, H., & Affleck, G. (1997). Social comparison as a coping process: A critical review and application to chronic pain disorders. In B. Buunk & F. Gibbons (Eds.), Health, coping and well-being (pp. 263-298). Mahwah, NJ: Lawrence Erlbaum.
