In this article we aim to sculpt a possible methodology for studying how a good everyday life comes about when living with chronic rheumatic conditions (CRC). Our “how” focus acknowledges a woman with CRC as one member of a diverse population, whereby we question the biomedically based view that she differs from the population. The more frequently asked “what” question colors study designs and results in categories and characteristics regarding what she is able to do and what adaptations she has made in everyday life as a consequence of her disease. Adopting a narrative approach, we ask how a good everyday life comes about, and illustrate this with ethnographic material of the everyday activities of women living with CRC. We conceptualize narrative as embedded in the process of enacting activities. Furthermore, we highlight hermeneutical interpretative processes of how meaning works in the stream of everyday action.
Alsaker, S., Jakobsen, K., Magnus, E., Bendixen, H.J., Kroksmark, U., & Nordell, K. (2006). Everyday occupations of occupational therapy and physiotherapy students in Scandinavia. Journal of Occupational Science, 13(1), 17-26.
2.
Alsaker, S., & Josephsson, S. (2004). Negotiating occupational identities while living with chronic rheumatic disease. Scandinavian Journal of Occupational Therapy, 10, 167-176.
3.
Alsaker, S., & Josephsson, S. (2008). Occupation and meaning: Narrative in everyday activities of women affected by chronic rheumatic diseases . Manuscript submitted for publication.
4.
Aristotle. (1920). Aristotle on the art of poetry. New York: Oxford University Press.
5.
Badley, E.M. (2008). Rheumatic diseases: The unnoticed elephant in the room. Journal of Rheumatology, 35(1), 6-6.
6.
Carter, S.M., & Little, M. (2007). Justifying method, taking action: Epistemologies, methodologies, and methods in qualitative research. Qualitative Health Research, 17, 1316-1328.
7.
Charmaz, K. (1999). Stories of suffering: Subjective tales and research narratives. Qualitative Health Research, 9, 362-382.
8.
Charmaz, K. (2002). Stories and silences: Disclosures and self in chronic illness. Qualitative Inquiry, 8(3), 302-332.
9.
Clandinin, D.J. (2007). Handbook of narrative inquiry. Mapping a methodology . Thousand Oaks, CA: Sage.
10.
Clark, F. (1993). Occupation embedded in a real life: Interweaving occupational science and occupational therapy. American Journal of Occupational Therapy, 47(12), 1067-1078.
11.
Clark, F., Carson, M., & Polkinghorne, D. (1987). The legitimacy of life history and narrative approaches in the study of occupation. American Journal of Occupational Therapy, 51(4), 313-317.
12.
Csikzentmihaly, M. (1997). The psychology of everyday life. London: Phoenix.
13.
David, T., & Michael, B. (2007). Chronic illness, expert patients and care transition . Sociology of Health and Illness, 29(1), 27-45.
14.
Dubouloz, C.J., Laporte, D., Hall, M., Ashe, B., & Smith, C.D. (2004). Transformation of meaning perspectives in clients with rheumatoid arthritis. American Journal of Occupational Therapy, 58(4), 398-407.
15.
Goodacre, L. (2006). Women's perceptions on managing chronic arthritis . British Journal of Occupational Therapy, 69(1), 7-14.
16.
Gubrium, J., & Holstein, J. (1997). The new language of qualitative method. New York: Oxford University Press.
17.
Gullestad, M. (1984). Kitchen-table society. Oslo : Scandinavian University Press.
18.
Gullestad, M. (1996). Everyday life philosophers. Oslo: Scandinavian University Press.
19.
Hammersley, M., & Atkinson, P. (2007). Ethnography: Principles in practice (3rd ed.). London: Routledge .
20.
Hastrup, K. (2003). Ind i verden. En grundbok i antropologisk metode. [Into the world. Method in anthropology]. Copenhagen: Hans Reitzlers Forlag.
21.
Hydèn, L.C. (1997). Illness and narrative. Sociology of Health and Illness, 19(1), 48-69.
22.
Josephsson, S., Asaba, E., Jonsson, H., & Alsaker, S. (2006). Creativity and order in communication: Implications from philosophy to narrative research concerning human occupation. Scandinavian Journal of Occupational Therapy, 13(2), 125-132.
23.
Kaspersen, L.B. (2000). Anthony Giddens-introduksjon til en samfundsteoretiker [Anthony Giddens-Introduction to social theory] (4th ed.). Copenhagen: Hans Reitzels Forlag A/S.
24.
Keponen, R., & Kielhofner, G. (2006). Occupation and meaning in the lives of women with chronic pain. Scandinavian Journal of Occupational Therapy, 13, 211-220.
25.
Kielhofner, G. (2008). Model of human occupation. Theory and application (4th ed.). Baltimore, MD: Lippincott Williams & Wilkins.
26.
Lawlor, M., & Mattingly, C. (2001). Beyond the unobtrusive observer: Reflections on researcher-informant relationships in urban ethnography. American Journal of Occupational Therapy, 55(2), 147-154.
27.
Lindseth, A., & Norberg, A. (2004). A phenomenological hermeneutical method for researching lived experience. Scandinavian Journal of Caring Sciences , 18(2), 145-153.
28.
Lykkeslet, E., & Gjengedal, E. (2007). Methodological problems associated with practice-close research. Qualitative Health Research, 17, 699-704.
29.
Marks, R.A., & Allegrante, J.P. (2007). Prevalence and impact of arthritis: Opportunities for prevention. Health Education Journal, 66(1), 3-21.
30.
Mattingly, C. (1998). Healing dramas and clinical plots. The narrative structure of experience. Los Angeles: University of California Press.
31.
Mattingly, C., & Fleming, M.H. (1994). Clinical reasoning. Forms of inquiry in a therapeutic practice. Philadelphia: F. A. Davis .
32.
Mendelson, C. (2006). Managing a medically and socially complex life: Women living with lupus. Qualitative Health Research, 16, 982-997.
33.
Nygren, B., Norberg, A., & Lundman, B. (2007). Inner strength as disclosed in narratives of the oldest old. Qualitative Health Research, 17, 1060-1073.
34.
Persson, L.-O., Berglund, K., & Sahlberg, D. (1999). Psychological factors in chronic rheumatic diseases-A review. Scandinavian Journal of Rheumatology, 28, 137-144.
35.
Polkinghorne, D. (2004). Practice and the human sciences. The case for a judgment-based practice of care. New York: State University of New York Press.
36.
Pollard, B., Johnston, M., & Dixon, D. (2007). Theoretical framework and methodological development of common subjective health outcome measures in osteoarthritis: A critical review. Health and Quality of Life Outcomes, 5(14), 1-9.
37.
Pollio, H.R., Henley, T.B., & Thompson, C.J. (1997). The phenomenology of everyday life. Cambridge: Cambridge University Press.
38.
Ricoeur, P. (1984a). Time and Narrative, Vol I-III. Chicago: University of Chicago Press.
39.
Ricoeur, P. (1984b). Time and narrative, Vol I. Chicago: University of Chicago Press.
40.
Ricoeur, P. (1991). From text to action: Essays in hermeneutics. Evanston, IL: Northwestern University Press.
41.
Schön, D. (1987). The reflective practitioner. San Francisco: Jossey Bass.
42.
Stamm, T., Lovelock, L., Stew, G., Nell, V., Smolen, J., Jonsson, H., et al. (2008). I have mastered the challenge of living with a chronic disease: Life stories of people with rheumatoid arthritis. Qualitative Health Research, 18, 658-669.
43.
Strandmark, M. (2007). The concept of health and health promotion. Scandinavian Journal of Caring Sciences, 21(1), 1-2.
44.
Taïeb, O., Révah-Lévy, A., Moro, M.R., & Baubet, T. (2008). Is Ricoeur's notion of narrative identity useful in understanding recovery in drug addicts? Qualitative Health Research, 18, 990-1000.
45.
Ville, I., & Khlat, M. (2007). Meaning and coherence of self and health: An approach based on narratives of life events. Social Science & Medicine , 64(4), 1001-1014.
46.
Werner, A., Isaksen, L.W., & Malterud, K. (2003). "I am not the kind of woman who complains of everything": Illness stories on self and shame in women with chronic pain. Social Science & Medicine, 59, 1035-1045.
