The purpose of this metasynthesis was to describe the hope experience of family caregivers of persons with chronic illness. Fourteen studies were included in the metasynthesis. All studies described the importance of hope to the family caregivers of relatives with chronic illness regardless of age, relationship, or setting. Several derived themes arose from the metasynthesis, including (a) transitional refocusing from a difficult present to a positive future, (b) dynamic possibilities within uncertainty, (c) pathways of hope, and (d) hope outcomes. Hope was defined as transitional dynamic possibilities within uncertainty. A new conceptual model of hope was developed that provides a foundation for future research and practice. The metasynthesis findings indicate factors influencing hope have a role in assessing hope and differing pathways of hope provide a foundation for future hope interventions.
Bland, R., & Darlington, Y. (2002). The nature and sources of hope: Perspectives of family caregivers of people with serious mental illness . Perspectives in Psychiatric Care, 38(2), 61-68.
2.
Borneman, T., Stahl, C., Ferrell, B., & Smith, D. ( 2002). The concept of hope in family caregivers of patients at home. Journal of Hospice and Palliative Nursing, 4(1), 21-33.
3.
Christman, N., McCornell, E.A., Pfeiffer, C., Webster, K., Schmitt, M., & Ries, J. ( 1988). Uncertainty, coping and distress following myocardial infraction: Transition from hospital to home. Research in Nursing and Health, 11, 71-82.
4.
Cochrane, B.B., & Lewis, F.M. ( 2005). Partner’s adjustment to breast cancer: A critical analysis of intervention studies. Health Psychology, 24(3), 327-332.
5.
Dufault, K., & Martocchio, B.C. (1985). Hope: Its spheres and dimensions . Nursing Clinics of North America, 20(2), 379-391.
6.
Duggleby, W. ( 2001). Hope at the end of life. Journal of Hospice and Palliative Nursing, 3(2), 51-57, 64.
7.
Duggleby, W., Williams, A., Wright, K., & Bollinger, J. ( 2009). Renewing everyday hope: Family caregivers of persons with dementia. Issues in Mental Health Nursing, 30(8), 514-521.
8.
Duggleby, W., & Wright, K. ( 2005). Transforming hope: How elderly palliative patients’ live with hope. Canadian Journal of Nursing Research, 37(2), 70-84.
9.
Eliott, J., & Olver, I.N. ( 2007). Hope and hoping in the talk of dying cancer patients . Social Science and Medicine, 64, 138-149.
10.
Eliott, J.A., & Olver, I.N. ( 2002). The discursive properties of "hope": A qualitative analysis of cancer patients’ speech. Qualitative Health Research , 12, 173-193.
Feder, G.S., Hudson, M., Ramsay, J., & Taket, A. ( 2006). Women exposed to intimate partner violence. Expectations and experiences when they encounter health care professionals: A meta-analysis of qualitative studies. Archives in Internal Medicine, 166, 22-37.
13.
Forte, L. ( 1997). The meaning of hope to family caregivers of children with sickle cell anemia. Unpublished doctoral dissertation, University of Alabama, Birmingham, AL.
14.
French, T.M. ( 1952). The integration of behavior: Vol 1. Basic postulates . Chicago: University of Chicago Press.
15.
Gelling, L. ( 1999). The experience of hope for the relatives of head injured patients admitted to a neurosciences critical care unit: A phenomenological study. Nursing in Critical Care, 4(5), 214-221.
16.
Herth, K. ( 1992). Abbreviated instrument to measure hope: Development and psychometric evaluation. Journal of Advanced Nursing, 17, 12951-12959.
17.
Herth, K. ( 1993). Hope in the family caregiver of terminally ill people . Journal of Advanced Nursing, 18, 538-548.
18.
Herth, K. ( 1996). Hope from the perspective of homeless families. Journal of Advanced Nursing, 24(4), 743-753.
19.
Hilton, B. ( 1989). The relationship of uncertainty, control, commitment and threat of recurrence to coping strategies used by women diagnosed with breast cancer. Journal of Behavioral Medicine, 12, 39-54.
20.
Holtslander, L., & Duggleby, W. ( 2009). The hope experience of older bereaved women who cared for a spouse with terminal cancer. Qualitative Health Research , 19, 388-400.
21.
Holtslander, L., Duggleby, W., Williams, A., & Wright, K. ( 2005). The experience of hope for informal caregivers of palliative patients. Journal of Palliative Care, 21(4), 285-291.
22.
Irvin, B.L., & Acton, G.J. ( 1997). Stress, hope, and well-being of women caring for family members with Alzheimer’s disease. Holistic Nursing Practice , 11(2), 69-79.
23.
Kylma, J. ( 2005). Despair and hopelessness in the context of HIV: A metasynthesis on qualitative research findings. Journal of Clinical Nursing , 14, 813-821.
24.
Kylma, J., Vehvilainen-Julkunen, K., & Lahdevirta, J. (2001a). Dynamically fluctuating hope, despair and hopelessness along the HIV/AIDS continuum as described by caregivers in voluntary organizations in Finland. Issues in Mental Health Nursing, 22, 353-377.
25.
Kylma, J., Vehvilainen-Julkunen, K., & Lahdevirta, J. (2001b). Voluntary caregivers’ observations on the dynamics of hope across the continuum of HIV/AIDS: A focus group study. Journal of the Association of Nurses in AIDS Care, 12(2), 88-100.
26.
Kylma, J., Vehvilainen-Julkunen, K., & Lahdevirta, J. (2003). Dynamics of hope in HIV/AIDS affected people: An exploration of significant others’ experiences. Research and Theory for Nursing Practice: An International Journal, 17(3), 191-205.
27.
Miller, J., & Powers, M. ( 1988). Development of an instrument to measure hope. Nursing Research, 37, 6-10.
28.
Mishel, M. ( 1990). Reconceptualization of the uncertainty in illness theory . Image: Journal of Nursing Scholarship, 22, 256-262.
29.
Morse, J., & Doberneck, B. ( 1995). Delineating the concept of hope. Image: Journal of Nursing Scholarship, 27(4), 227-285.
30.
Mowrer, O.H. ( 1960). The psychology of hope. San Francisco : Jossey-Bass.
31.
Nekolaichuk, C.L., & Bruera, E. ( 1998). On the nature of hope in palliative care. Journal of Palliative Care, 14(1), 36-42.
32.
Parse, R. ( 1999). The lived experience of hope for family members of persons living in a Canadian chronic care facility. In R. Parse (Ed.), Hope: An international human becoming perspective (pp. 63-77). Toronto: Jones & Bartlett.
33.
Patel, C. ( 1996). Hope-inspiring strategies of spouses of critically ill adults. Journal of Holistic Nursing, 14(1), 44-65.
34.
Sandelowski, M., & Barroso, J. ( 2007). Handbook for synthesizing qualitative research. New York: Springer.
35.
Stotland, P. ( 1969). The psychology of hope: An integration of experimental, clinical and social approaches. San Francisco: Jossey-Bass.
36.
Synder, C.R. ( 1994). The psychology of hope: You can get there from here. New York: Simon & Schuster.
37.
Synder, C.R., Sympson, S.C., Ybasco, F.C., Borders, T.F., Babyak, M.A., & Higgins, R.L. ( 1996). Development and validation of the state hope scale. Journal of Personality and Social Psychology, 70, 321-355.
38.
Verhaeghe, S., van Zuuren, F., Defloor, T., Duijnstee, M., & Grypdonck, M. ( 2007). The process and the meaning of hope for family members of traumatic coma patients in intensive care. Qualitative Health Research, 17, 730-743.
39.
Wennman-Larsen, A., & Tishleman, C. ( 2002). Advanced home care for cancer patients at the end of life: A qualitative study of hopes and expectations of family caregivers. Scandinavian Journal of Caring, 16, 240-247.
40.
Wiles, R., Cott, C., & Gibson, B.E. ( 2008). Hope, expectations and recovery from illness: A narrative synthesis of qualitative research. Journal of Advanced Nursing , 64(6), 564-573.
41.
Wonghongkul, T., Moore, S.M., Musil, C., Schneider, S., & Deimling, G. ( 2000). The influence of uncertainty in illness, stress appraisal and hope on coping in survivors of breast cancer. Cancer Nursing , 23(6), 422-429.
42.
Zimmer, L. ( 2006). Qualitative metasynthesis: A question of dialoguing texts . Journal of Advanced Nursing, 53(3), 311-318.
