This article consists of a qualitative analysis of discussion forums in online mental health communities whose members routinely write about diagnosis. The analysis concerns the function of diagnosis from the perspective of personal identity, with particular focus on the status of official diagnosis, as well as community members’ discussions of symptoms and psychiatric syndromes that amount to informal diagnosis or consultation. Self-diagnosis sometimes takes the form of recommended “quizzes” and other online quasi-diagnostic tools. Other-diagnosis, in which a third party is discussed by community members, is also considered. We discuss the implications of such online discourse for Internet users themselves as well the challenges for the health and medical professions.
American Psychiatric Association. (1980). Diagnostic and statistical manual of mental disorders (3rd ed.). Washington, DC: Author .
2.
American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author .
3.
American Psychiatric Association. (2010). DSM-5 development. Retrieved from http://www.dsm5.org/Pages/Default.aspx
4.
Bell, V. ( 2007). Online information, extreme communities and Internet therapy: Is the Internet good for our mental health? Journal of Mental Health, 16, 445-457.
5.
Bradfield, B.C. ( 2007). Examining the lived world: The place of phenomenology in psychiatry and clinical psychology. Indo-Pacific Journal of Phenomenology, 7, 1-8.
6.
Brotsky, S.R., & Giles, D.C. ( 2007). Inside the "pro-ana" community: A covert online participant observation. Eating Disorders: The Journal of Treatment and Prevention, 19, 93-109. doi:10.1080/10640260701190600
7.
Brownlow, C., & O’Dell, L. (2006). Constructing an autistic identity: AS voices online. Mental Retardation, 44, 315-321.
8.
Charland, L.C. ( 2004). A madness for identity: Psychiatric labels, consumer autonomy, and the perils of the Internet. Philosophy, Psychiatry & Psychology, 11, 335-349.
9.
Csipke, E., & Horene, O. ( 2007). Pro-eating disorder websites: Users’ opinions. European Eating Disorders Review, 15, 196-206. doi:10.1002/erv.789
10.
Day, K., & Keys, T. ( 2008). Starving in cyberspace: A discourse analysis of pro-eating-disorder websites. Journal of Gender Studies, 17, 1-15.
11.
de Swaan, A. ( 1990). The management of normality: Critical essays in health and welfare. London: Routledge.
12.
Dias, K. ( 2004). The Ana sanctuary: Women’s pro-anorexia narratives in cyberspace. International Journal of Women’s Studies , 4, 31-45.
13.
Duchan, J. F., & Kovarsky, D. (Eds.). (2005). Diagnosis as cultural practice. New York: Mouton de Gruyter .
14.
Durkin, K., Forsyth, C., & Quinn, J. ( 2006). Pathological Internet communities: A new direction for sexual deviance research in a post-modern era. Sociological Spectrum, 26, 595-606.
15.
Eysenbach, G., & Till, J.E. ( 2001). Ethical issues in qualitative research on Internet communities . British Medical Journal, 323, 1103-1105.
16.
Flicker, S., Haans, D., & Skinner, H. ( 2004). Ethical dilemmas in research on Internet communities . Qualitative Health Research, 14, 124-134. doi:10.1177/1049732303259842
17.
Fox, N., Ward, K., & O’Rourke, A. (2005a). Pro-anorexia, weight-loss drugs and the Internet: An "anti-recovery" explanatory model of anorexia. Sociology of Health & Illness, 27, 944-971. doi:10.1111/j.1467-9566.2005.00465.x
18.
Fox, N., Ward, K., & O’Rourke, A. (2005b). The "expert patient": Empowerment or medical dominance?Social Science & Medicine , 60, 1299-1309. doi:10.1016/j.socscimed.2004.07.005
19.
Gavin, J., Rodham, K., & Poyer, H. ( 2008). The presentation of "pro-anorexia" in online group interactions . Qualitative Health Research, 18, 325-333. doi:10.1177/ 1049732307311640
20.
Giles, D.C. ( 2006). Constructing identities in cyberspace: The case of eating disorders. British Journal of Social Psychology, 45, 463-477.
21.
Giles, D.C. ( 2007). The Internet, information seeking, and identity. Psychologist, 20, 432-434.
22.
Hammersley, M., & Treseder, P. ( 2007). Identity as an analytic problem: Who’s who in "pro-ana" websites?Qualitative Research, 7, 283-300. doi:10.1177/1468794107078509
23.
Horne, J., & Wiggins, S. ( 2009). Doing being "on the edge": Managing the dilemma of being authentically suicidal in an online forum. Sociology of Health & Illness, 31, 170-184. doi:10.1111/j.1467-9566.2008.01130.x
24.
Kraepelin, E. ( 1893). Psychiatrie: Ein kurzes lehrbuch für studierende und ärzte [Psychiatry: A primer for students and doctors]. Leipzig, Germany: Abel Verlag.
25.
LaFrance, M.N. ( 2007). A bitter pill: A discursive analysis of women’s medicalized accounts of depression. Journal of Health Psychology , 12, 127-140. doi:10.1177/135910530 7071746
26.
Lamerich, J., & te Molder, H.F.M. (2003). Computer-mediated communication: From a cognitive to a discursive model. New Media & Society , 15, 451-473.
27.
Miah, A., & Rich, E. ( 2008). The medicalisation of cyberspace. London: Routledge.
28.
Nagourney, E. ( 2005, June 17). Websites celebrate a deadly thinness. New York Times. Retrieved from http://www.nytimes.com/2005/06/07/health/nutrition/07eat.html
29.
Nettleton, S., Burrows, R., & O’Malley, L. (2005). The mundane realities of the everyday lay use of the Internet for health, and their consequences for media convergence. Sociology of Health and Illness, 27, 972-992. doi:10.1111/j.1467-9566 .2005.00466.x
30.
Paquette, M. ( 2002). Bad company: Internet sites with dangerous information . Perspectives in Psychiatric Care, 38, 39-40.
31.
Pilgrim, D. ( 2007). The survival of psychiatric diagnosis. Social Science & Medicine, 65, 536-547. doi:10.1016/ j.socscimed.2007.03.054
32.
Quayle, E., & Taylor, M. ( 2003). Model of problematic Internet use in people with a sexual interest in children. CyberPsychology and Behavior, 6, 93-106.
33.
Rajagopal, S. ( 2004). Suicide pacts and the Internet. British Medical Journal, 329, 1298-1299.
34.
Sacks, H. ( 1992). Lectures on conversation (Vol. 1). Oxford, UK: Blackwell.
35.
Salem, D.A., Bogar, G.A., & Reid, C. ( 1997). Mutual help goes online. Journal of Community Psychology, 25, 198-207.
36.
Shaw, J., & Baker, M. ( 2004). Expert patient: Dream or nightmare? British Medical Journal, 328, 723-724.
37.
Tam, J., Tang, W.S., & Fernando, D.J.S. (2007). The Internet and suicide: A double-edged tool. European Journal of Internal Medicine , 18, 453-455. doi:10.1016/j.ejim.2007 .04.009
38.
Thornborrow, J. ( 2001). Authenticating talk: Building public identities in audience participation broadcasting. Discourse Studies, 3, 459-479.
39.
Turkle, S. ( 1995). Life on the screen: Identity in the age of the Internet . New York: Simon & Schuster .
40.
Vayreda, A., & Antaki, C. ( 2009). Social support and unsolicited advice in a bipolar disorder online forum. Qualitative Health Research, 19, 931-942. doi:10.1177/1049732309338952
41.
Wallace, P. ( 1999). The psychology of the Internet. Cambridge, MA: Cambridge University Press.
42.
White, R.W., & Horvitz, E. ( 2008). Cyberchondria: Studies of the escalation of medical concerns in Web search. Retrieved from http://research.microsoft.com/pub/tr/TR-2008-178.pdf
43.
Whitlock, J.L., Powers, J.L., & Eckenrode, J. ( 2006). The virtual cutting edge: The Internet and adolescent self-injury. Developmental Psychology, 42, 407-417. doi:10.1037/ 0012-1649.42.3.407
44.
Williams, S., & Reid, M. ( 2009). Understanding the experience of ambivalence in anorexia nervosa: The maintainer’s perspective. Psychology and Health. Advance online publication. doi:10.1080/08870440802617629
