The Importance of Assessing Quality of Life in Patients with Neuromuscular Disorders

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World Health Organization. Available at: http://www.who.int/en/. Accessed Sept 18, 2006.

Abresch RT , Carter GT , Jensen MP , Kilmer DD . Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease. Am J Hosp Palliat Care. 2002;19:39-48.

Abresch RT , Jensen MP , Carter GT . Health quality of life in peripheral neuropathy. Phys Med Rehabil Clin N Am. 2001;12:461-472.

Krivickas LS , Shockley L , Mitsumoto H . Home care of patients with amyotrophic lateral sclerosis (ALS). J Neurol Sci. 1997;1:S82-S89.

Krivickas LS , Carter GT . Amyotrophic lateral sclerosis: clinical commentary. J Spinal Cord Med. 2002;25:274-276.

Krivickas LS , Carter GT . Motor neuron disease. In: DeLisa JA , Gans BM , Walsh NE , Bockeneck WL , Frontera WR , eds. Physical Medicine and Rehabilitation: Principles and Practice. 4th ed. Philadelphia, Penn: Lippincott, Williams, & Wilkins; 2005:931-956.

Jensen MP , Abresch RT , Carter GT , McDonald CM . Chronic pain in persons with neuromuscular disorders. Arch Phys Med Rehabil. 2005;86:1155-1163.

Carter GT , Jensen MP , Galer BS , et al. Neuropathic pain in Charcot Marie Tooth disease. Arch Phys Med Rehabil. 1998;79:1560-1564.

Fowler WM Jr , Abresch RT , Aitkens SA , et al. Impairment and disability profiles of neuromuscular diseases. Am J Phys Med Rehabil. 1995;74:S62-S69.

10.

Carter GT , Abresch RT , Fowler WM Jr , et al. Profiles of neuromuscular disease: hereditary motor and sensory neuropathy, types I and II. Am J Phys Med Rehabil. 1995;74:S140-S149.

11.

Carter GT , Abresch RT , Fowler WM , Johnson ER , Kilmer DD , McDonald CM . Profiles of neuromuscular disease: spinal muscular atrophy. Am J Phys Med Rehabil. 1995;74:S150-S159.

12.

Jensen MP , Abresch RT , Carter GT . The reliability and validity of a self-reported version of the functional independence measure in persons with neuromuscular diesase and chronic pain. Arch Phys Med Rehabil. 2005;86: 116-122.

13.

Han JJ , Carter GT , Hecht TW , Schuman NE , Weiss MD , Krivickas LS . The amyotrophic lateral sclerosis center: a model of multidisciplinary management. In: Grabois M , Henely EJ , eds. Critical Reviews in Physical Medicine and Rehabilitation. Vol 15. New York, NY: Begell House, Inc; 2003:21-40.

14.

Carter GT . Discontinuing life support: whose call? A physician's perspective. Am J Hosp Palliat Care. 2004;21: 61-65.

15.

Bach JR , Campagnolo DI , Hoeman S . Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. Am J Phys Med Rehabil. 1991;70:129-135.