Partners in Pediatric Palliative Care: A Program to Enhance Collaboration Between Hospital and Community Palliative Care Services

Abstract

The provision of high-quality palliative care services to dying children and their families often requires extensive collaboration between hospital-based and community-based care teams. This article describes the origins and development of the Partners in Pediatric Palliative Care program, which has provided pediatric-specific educational offerings and fostered joint endeavors between a palliative care service located in a tertiary care children's hospital and a wide range of hospice and home care agencies in 5 states. The Partners in Pediatric Palliative Care program is evaluated in terms of the favorable ratings that attendees have given the educational components, the relatively modest direct costs of mounting the regional meetings, and the expanded capacity to provide home-based palliative services to children and families who desire them. The Partners in Pediatric Palliative Care program provides another feasible means for hospitals and community agencies to work together to improve pediatric palliative care.

Keywords

palliative care pediatric children home hospital community hospice

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References

Beresford L. Hospital-hospice partnerships in palliative care: creating a continuum of service. Alexandria, VA and New York, NY: National Hospice and Palliative Care Organization and the Center to Advance Palliative Care ; 2001:2.

Feudtner C. , DiGiuseppe DL , Neff JM Hospital care for children and young adults in the last year of life: a population-based study . BMC Med. 2003;1: 3 .

Feudtner C. , Silveira MJ , Christakis DA Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998 . Pediatrics. 2002;109: 656-660 .

Field MJ , Behrman RE , Institute of Medicine (US). Committee on Palliative and End-of-Life Care for Children and Their Families. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families . Washington, DC: National Academy Press; 2003:187.

Sumner LH Pediatric care: the hospice perspective. In: Ferrell B , Coyle N , eds. Textbook of Palliative Nursing. 2nd ed. Oxford , UK, New York, NY: Oxford University Press; 2004:556-569.

Hilden JM , Tobin DR , Lindsey K. Shelter from the Storm: Caring for a Child With a Life-Threatening Condition . Cambridge, MA: Perseus; 2003:160.