Are Palliative Care Volunteers Special People? A Comparative Observational Study Exploring Their Sociodemographic Profile and Psychological Resources

Abstract

Background

Faced with rising needs for patient support, palliative care is shifting towards a more community-based approach. Yet the profile of volunteers in this field is poorly known.

Aim

To explore psychosocial characteristics of palliative care volunteers, by comparing them to two groups, volunteers from the health and social sector without contact with palliative patients, and people from the general population without volunteer activity.

Design

Observational comparative study. Data were analyzed using descriptive statistics and logistic regression analysis.

Participants

The 3 groups of participants were recruited in France between September 2020 and June 2021. They completed an online survey assessing sociodemographic characteristics and psychological resources (self-efficacy, hope, optimism, resilience, mindfulness, self-compassion, empathy, forgivingness, and gratitude).

Results

Data from 559 participants were analyzed. Palliative care volunteers had overall significantly higher levels of psychological resources than control groups. Multivariate analysis revealed, among sociodemographic and psychological characteristics that showed differences between groups at the univariate level, the most efficient predictors of group status. The best criteria to distinguish palliative care volunteers from health and social sector volunteers were older age, having received training, and lower levels of self-compassion. To distinguish palliative care volunteers from people with no volunteer activity, older age and non-active professional status were the best criteria.

Conclusions

Palliative care volunteers displayed more psychological resources than controls. However, older age and being trained for volunteering, emerged as stronger factors for distinguishing palliative care volunteers from controls. Pursuing research about these volunteers should facilitate recruitment, training, and retention.

Keywords

palliative care hospice care volunteers sociodemographic factors psychology observational study comparative study

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References

World Health Organization . The Top 10 Causes of Death. Geneva: WHO; 2020. https://www.who.int/news-room/fact-sheets/detail/the-top-10-causes-of-death accessed September 8, 2022.

Clark

. From margins to centre: a review of the history of palliative care in cancer. Lancet Oncol. 2007;8:430-438.

World Health Organization . Palliative Care. Geneva: WHO; 2020. https://www.who.int/news-room/fact-sheets/detail/palliative-care accessed September 8, 2022.

Brighton

Koffman

Robinson

, et al. ‘End of life could be on any ward really’: a qualitative study of hospital volunteers’ end-of-life care training needs and learning preferences. Palliat Med. 2017;31:842-852.

Candy

France

Low

Sampson

. Does involving volunteers in the provision of palliative care make a difference to patient and family wellbeing? A systematic review of quantitative and qualitative evidence. Int J Nurs Stud. 2015;52:756-768.

Claxton-Oldfield

. Hospice palliative care volunteers: the benefits for patients, family caregivers, and the volunteers. Palliat Support Care. 2015;13:809-813.

Vanderstichelen

Houttekier

Cohen

Van Wesemael

Deliens

Chambaere

. Palliative care volunteerism across the healthcare system: a survey study. Palliat Med. 2018;32:1233-1245.

Walshe

Dodd

Hill

, et al. How effective are volunteers at supporting people in their last year of life? a pragmatic randomised wait-list trial in palliative care (ELSA). BMC Med. 2016;14:203.

Vanderstichelen

. Palliative care volunteering: pressing challenges in research. Palliat Med. 2022;36:564-566.

10.

Pesut

Hooper

Lehbauer

Dalhuisen

. Promoting volunteer capacity in hospice palliative care: a narrative review. Am J Hosp Palliat Care. 2014;31:69-78.

11.

Varay

Lareyre

Baeza-Velasco

. Revue narrative sur le bénévolat en soins palliatifs en Europe et en Amérique du Nord: aspects organisationnels, psychosociaux, et enjeux pour l’avenir. Med Palliat. 2022;21:105-113.

12.

Laperle

Ummel

. Soutenir l’intégration et l’engagement des bénévoles en soins palliatifs. Med Palliat. 2019;18:77-81.

13.

Morris

Wilmot

Hill

Ockenden

Payne

. A narrative literature review of the contribution of volunteers in end-of-life care services. Palliat Med. 2013;27:428-436.

14.

Woitha

Hasselaar

van Beek

, et al. Volunteers in palliative care - a comparison of seven European countries: a descriptive study. Pain Pract. 2015;15:572-579.

15.

Claxton-Oldfield

Banzen

. Personality characteristics of hospice palliative care volunteers: the ‘“big five”’ and empathy. Am J Hosp Palliat Care. 2010;27:407-412.

16.

Egbert

Parrott

. Empathy and social support for the terminally ill: implications for recruiting and retaining hospice and hospital volunteers. Commun Stud. 2003;54:18-34.

17.

Garbay

Gay

M-C

Claxton-Oldfield

. Motivations, death anxiety, and empathy in hospice volunteers in France. Am J Hosp Palliat Care. 2015;32:521-527.

18.

Mitchell

Shuff

. Personality characteristics of hospice volunteers as measured by Myers-Briggs type indicator. J Pers Assess. 1995;65:521-532.

19.

Coleman

Walshe

. What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis. J Pain Symptom Manag. 2021;62:e232-e247.

20.

Coleman

Sanderson-Thomas

Walshe

. The impact on emotional well-being of being a palliative care volunteer: an interpretative phenomenological analysis. Palliat Med. 2022;36:671-679.

21.

Csillik

. Les Resources Psychologiques: Apports de la Psychologie Positive. Paris: Dunod; 2017.

22.

Schwarzer

. Measurement of Perceived Self-Efficacy: Psychometric Scales for Cross-Cultural Research. Berlin: Freien Universitat; 1993. https://trove.nla.gov.au/version/29634505. accessed January 9, 2020.

23.

Snyder

Rand

Sigmon

. Hope theory: A member of the positive psychology family. Handbook of Positive Psychology. Oxford University Press; 2002:257-276.

24.

Carver

Scheier

. Optimism. In: Handbook of Positive Psychology. New York, US: Oxford University Press; 2002:231-243.

25.

Herrman

Stewart

Diaz-Granados

Berger

Jackson

Yuen

. What is resilience? Can J Psychiatr. 2011;56:258-265.

26.

Brown

Ryan

. The benefits of being present: mindfulness and its role in psychological well-being. J Pers Soc Psychol. 2003;84:822-848.

27.

Neff

. Self-compassion: an alternative conceptualization of a healthy attitude toward oneself. Self Ident. 2003;2:85-101.

28.

Davis

. A multidimensional approach to individual differences in empathy. JSAS Cat Sel Doc Psychol. 1980;10:85.

29.

Rye

Pargament

. Forgiveness and romantic relationships in college: can it heal the wounded heart? J Clin Psychol. 2002;58:419-441.

30.

McCullough

Emmons

Tsang

J-A

. The grateful disposition: a conceptual and empirical topography. J Pers Soc Psychol. 2002;82:112-127.

31.

Schwarzer

Jerusalem

. Generalized self-efficacy sale. In: Measures in Health Psychology: A User’s Portfolio. Causal and Control Beliefs. Windsor, UK: NFER-NEKSON; 1995:35-37.

32.

Dumont

Schwarzer

Jerusalem

. French Adaptation of the General Self-Efficacy Scale. Berlin, Germany: Leibniz-Institute for the Social Science; 2000. http://userpage.fu-berlin.de/∼health/french.htm accessed January 13, 2020.

33.

Snyder

Harris

Anderson

, et al. The will and the ways: development and validation of an individual-differences measure of hope. J Pers Soc Psychol. 1991;60:570-585.

34.

Gana

Daigre

Ledrich

. Psychometric properties of the French version of the Adult dispositional hope scale. Assessment. 2013;20:114-118.

35.

Scheier

Carver

Bridges

. Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self-esteem): a reevaluation of the life orientation test. J Pers Soc Psychol. 1994;67:1063-1078.

36.

Trottier

Mageau

Trudel

Halliwell

. Validation de la version canadienne-française du life orientation test-revised. Can J Behav Sci Can Sci Comport. 2008;40:238-243.

37.

Connor

Davidson

JRT

. Development of a new resilience scale: the connor-davidson resilience scale (CD-RISC). Depress Anxiety. 2003;18:76-82.

38.

Guihard

Deumier

Alliot-Licht

Bouton-Kelly

Michaut

Quilliot

. Psychometric validation of the French version of the connor-davidson resilience scale. Encephale. 2018;44:40-45.

39.

Jermann

Billieux

Larøi

, et al. Mindful attention awareness scale (MAAS): psychometric properties of the French translation and exploration of its relations with emotion regulation strategies. Psychol Assess. 2009;21:506-514.

40.

Neff

. The development and validation of a scale to measure self-compassion. Self Ident. 2003;2:223-250.

41.

Kotsou

Leys

. Self-compassion scale (SCS): psychometric properties of the French translation and its relations with psychological well-being, affect and depression. PLoS One. 2016;11:Article e0152880.

42.

Davis

. A multidimensional approach to individual differences in empathy. JSAS Cat Sel Doc Psychol. 1980;10:85.

43.

Davis

. Measuring individual differences in empathy: evidence for a multidimensional approach. J Pers Soc Psychol. 1983;44:113-126.

44.

Gilet

A-L

Mella

Studer

Grühn

Labouvie-Vief

. Assessing dispositional empathy in adults: a French validation of the interpersonal reactivity index (IRI). Can J Behav Sci Can Sci Comport. 2013;45:42-48.

45.

Mullet

Barros

Frongia

Usaï

Neto

Shafighi

. Religious involvement and the forgiving personality. J Pers. 2003;71:1-19.

46.

Shankland

Martin-Krumm

. Évaluer le fonctionnement optimal: Échelles de psychologie positive validées en langue française. [Assessing optimal functioning: Positive psychology scales validated in French.]. Prat Psychol 2012;18(2):171-187. doi:10.1016/j.prps.2012.02.004.

47.

Starnes

Wymer

. Demographics, personality traits, roles, motivations, and attrition rates of hospice volunteers. J Nonprofit & Public Sect Mark. 2000;7:61-76.

48.

Homan

. Self-compassion and psychological well-being in older adults. J Adult Dev. 2016;23:111-119.

49.

Tóth-Király

Neff

. Is self-compassion universal? support for the measurement invariance of the self-compassion scale across populations. Assessment. 2021;28:169-185.

50.

Andreeva

Salanave

Castetbon

, et al. Comparison of the sociodemographic characteristics of the large NutriNet-Santé e-cohort with French census data: the issue of volunteer bias revisited. J Epidemiol Community Health. 2015;69:893-898.

51.

Wilson

. Volunteering. Annu Rev Sociol. 2000;23:215-228.