Abstract
The authors of this article are cousins from a Deafhearing family. Andrew is profoundly Deaf while Sara is Hearing. Both authors have Waardenburg Syndrome and are experiencing tinnitus, which appears to change in nature over time. This article, which is a reflection on their shared experiences of tinnitus, began as a conversation via Facebook. Through performance autoethnography, presented as poetry, they examine the Deafhearing phenomenon of tinnitus. They explore its impact on their everyday lives and together attempt to understand their stories through reflecting, writing, and performing as inquiry.
Keywords
The Original Post and Subsequent Conversation
I’m experiencing more
and more
ringing in my ears . . .
It’s very distracting . . .
Lifetime of that for me
you get used to it.
Your brain gets retrained
to ignore it.
Funny you should say that cuz
because I think that’s what’s happened
in reverse.
When I was little I had ringing
and we went to a specialist.
But he told me it was only
when I had a cold and things
and I agreed, because
he seemed to know more about it than me!
I’ve noticed it over the years
But I tried to ignore it, scared of what it means;
strangely ashamed.
But recently, when making the documentary for S4C 1
I talked about it, and thought about it, and now I hear it
more and more—and it’s loud!
Not just ringing—fizzing, popping, then a high pitch sound
changing, higher, then jumps higher still;
like someone is cranking up a lever.
Hard to tell if the sound is really there,
or just in my ears.
One night, so loud, and seemed so near,
I couldn’t sleep!
Yeah, it’s only noticeable when
you are sitting down relaxing
or watching TV.
Once in a while my vision goes funny
like the room spins round in one quick bang
and my balance goes and then there’s a
loud wheeeeee in my ears.
My balance is bad in general.
Yeah it changes doesn’t it.
There’s currently a very light wheee
in my right ear—constantly for the last few minutes.
Oh! Your balance is bad too?
Why have we never discussed this before?!
Sometimes I actually fall over and
walk into sides of doors and things.
Coping Mechanisms
Have you got an MP3 player?
Get some soft, soothing music and listen to it.
Apparently it works to offset the tinnitus . . .
but it won’t work in my case heh heh!
Well that makes sense because
I notice it more when there’s silence
I’ll try some soothing music, thanks!
More Than Just Ringing
I’ve noticed a strange, different version
Cuz do you ever get tinnitus where
It feels like shock waves?
Like someone has hit a gong or there has been an explosion
and the reverberations, from the blast
are quite quiet themselves but
seem to eclipse or dampen
all other sounds around you?
Yeah loads of times!
Sometimes it’s like a bomb—boom!
Then my eyes swirl round
as if I have spun round the room
but I haven’t and it has happened
in a split second.
Then a long wheeee whistle, winding down.
then to a ringing ring, noise.
I prefer the boom type because
it slows down the tinnitus
rather than the ringing one which
goes on forever.
A Deafhearing Phenomenon
I had never thought, before you said,
that Deaf people can have tinnitus too
but of course they can because,
the sound is inside their heads, not outside.
Yeah lots of Deaf people
Experience tinnitus.
Footnotes
Declaration of Conflicting Interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The author(s) received no financial support for the research, authorship, and/or publication of this article.
