Abstract
This essay traces a co-exploration into understanding aging, memory, and purpose through the analysis of elders stories told during varying stages of memory loss. Responding to the prompt, “What are the memories you don’t want to forget?” participants told stories of “culturally uncomfortable” identities they worried no one else prioritized remembering. As the researchers, we were faced with the struggle to continue human connection beyond vulnerable, inescapably mortal bodies. We analyze our reactions within our analysis of their stories to offer a dynamic means to make sense of data, ourselves, and shared cultural responsibility through telling and listening to personal narratives.
Keywords
If you could’ve known her BACK then I tell you I hope those are my last memories
WE MADE A GREAT LIFE
I’ll tell you about it after dinner
I’m too much of a factual person I guess to think that’s really going to happen
but he stays with me for some reason
I wonder if anyone remembers him
The above lines are from audio-recordings of elders’ open-ended narratives in the midst of memory loss. Some disclosed undiagnosed struggles that were undetectable during the interviews. Others lived with advanced Alzheimer’s disease that required a spouse present to co-tell their stories, bridging the gaps they could no longer access. 1 Each responded to the prompt, “What are the memories you don’t want to forget?” Throughout the 22 interviews, answers moved in many different directions—some focused on their journeys to success, others on why they made decisions that may seem to lack foresight but were necessities at the time. Still others focused on describing their feelings about their loved ones to ensure that others were aware of their affections. For each interview, I 2 enacted the role of a present audience for stories that were not meant for me, but for those the tellers loved. My research evolved into a means to continue identities beyond the bodies that currently facilitated them. I was honored to listen to every story, but there were some that stayed with me long after the interviews. At these moments, participants described people no other living person had personally known or they believed anyone else would deem worth remembering. They told stories of their parents, children, spouses, and one a childhood acquaintance. Most had passed away decades before, but some were still living (even physically present during the interview), although changed from the character in story, revealing the vulnerability of identity and embodiment over time. The role of creating and analyzing narrative data as a means to continue identity beyond the bodies that told the stories and resist cultural marginalization became the primary focus of the study.
The storytellers remained conscious of the recorders throughout the interviews, conjecturing whether or not others would listen to the memories they desired to preserve. Contemplating their future audiences, I was reminded that identities are something we do rather than something we are—only real to the extent that they are reiterated across embodied interactions (Butler, 1993). The audio-recorder, capturing the unique sounds of vocal cords, shifting feet, coughing lungs, or scrapes of cups against coffee tables, offered reminders of the bodies that allowed sound waves to be captured for future digital reiterations of self. In their tales of others, the narrators focused on the stories of bodies they felt others were unjustly (even if perhaps unconsciously) forgetting. Technology provided a means to reiterate these bodies to future listeners; their identities could continue through their retellings. The recordings potentially offer resistance against the collective forgetting of “culturally uncomfortable” bodies that leave others uneasy through their arguably resistant actions and identities.
The participants repeatedly revealed that they were not narrating their stories for my study. Instead, my research provided a vehicle to resist the disappearance of those they loved. They compelled me to enter into a struggle to extend existences beyond their mortal bodies, surfacing the vulnerability of our bodies both forgetting and being forgotten. I began to question my role, to ask and attempt to answer how my research of their stories impacts my understandings of mortality, human connection, and embracing of identities that seem easier to forget. I enlisted the assistance of an undergraduate student, a gifted researcher and storyteller to bear witness with me, to trace how listening to stories can combat the disappearance of marginalized bodies. I did it to offer her an experience. Also, as the focus of the study widened to include my mortality and vulnerability, it was not a study I wanted to do alone.
A Co-Journey of Methodology of Aging, Memory, and Loss
In this analysis, we examine the cultural production and reproduction of identities and experience in personal narrative as a shared struggle between the storyteller and audience, research participant, and researcher (Langellier, 2001). We assert that forgetting identities can serve as a form of cultural discipline that the recording, listening, transcriptions, and reading of open-ended narratives allow an opportunity to resist. We seek to illuminate this cultural discomfort and explore how narrative research resists it. Foucault’s (1977) spectacle of disciplining the unruly, deviant body to compel docile compliance of the masses inspires our work. The characters in these stories are not unruly enough to be separated from society through the penal system, but are each arguably socially deviant to varying degrees and, therefore, “culturally uncomfortable,” complicating indulgent nostalgic reminiscing or voyeuristic scandals. Each narrator, aware of the cultural discomfort surrounding the coming story, struggles with expectations to forget the unpleasant and/or unimportant, creating a space to tell the stories of identities entangled in love, honor, sorrow, and shame. Through audio-recordings and transcriptions, the characters can remain “real” through others’ reiterations.
We record our reactions to their narratives to explore the researchers’ role in their stories and cultural understandings of mortality and memory. Autoethnography provides us a means to write of our lived experiences and their relationship to culture within our research (Ellis, 2004). Denzin (1997) tells us that autoethnography calls for the “turning of the ethnographic gaze inward on the self (auto) while maintaining the outward gaze of ethnography, looking at the larger context wherein self-experiences occur.” We find our “outward” beginning with us as researchers in relation to our participants and extending into the complexities of being cultural members frightened of mortality, seeking comfort and distance from its inevitability. We are scared, too, grieving with our participants, desiring to bear witness to their struggles, entering into the reiteration of identities they wish us not to forget even when enacting this role leaves us uneasy. We resist the comfort of being docile bodies and the luxuries of avoiding stories of the culturally uncomfortable. As researchers of personal narrative, we see an opportunity to move toward an embracing of culturally uncomfortable identities, beginning with our research and extending to our daily interactions with others.
Transcriptions as a Means of Storytelling to/With Our Reading Audience
Our participants joined our study to get high-quality digital recordings of their stories to share with their loved ones. We promised them confidentiality, and we do not share our recordings of their voices to preserve their privacy. Still, we desire to have our readers experience the interviews with us. Choices for narrative transcription are part of the analysis, allowing the researcher to choose how readers access and interpret the voices of the participations (Peterson & Langellier, 1997; Riessman, 2008). For this reason, our transcriptions offer our impressions of the participants’ emotions attached to their phrases so that readers are reminded of the bodies engaged in interpretation throughout the narrative process. In addition, we have removed traditional punctuation. Instead, we separate phrases with space, moving to new lines to draw attention to hesitations, pauses, changes in thought, and struggles to tell difficult stories. Through defying the clean linear ease of traditional reading, these transcriptions remind readers to bear witness to the gaps in memory and the discomfort of being the audience to narrators struggling against their own fragile embodiments and the inevitable fading of the stories and identities they value. Now, before we begin, we wish to disclose what brought us to this culturally uncomfortable project.
So, together, worried and unresolved, we write and interpret their stories of others, now more aware of our own vulnerabilities and mortality, even if they are perhaps not imminent. We will include small excerpts of four narratives from five participants from interviews that ranged from 1 to 3 hr to illuminate the concept of bearing witness to the stories of culturally uncomfortable bodies to resist cultural marginalization. It was difficult to choose who to include in the short space of an article. This theme occurred in nine interviews. We decided on four stories that illustrate the range of closeness of relationships and the duration of the narrators’ and characters’ relationships. We begin with Edna’s story of her daughter, a close familial relationship, followed by Samuel who chose to narrate the story of a classmate who was a peripheral acquaintance. We then move to Rosa, who narrates the loss of her stillborn daughter, gone moments before she was born, followed by Dave who tells the story of the wife he has lost with her still sitting next to him. Together, these storytellers surface the struggle to resist the loss of “culturally uncomfortable” bodies through passive forgetting. Their stories call attention to the disciplining of deviant bodies through forgetting their uncomfortable identities that remind us of the inescapable vulnerability and mortality of humanness. Questions of how and why the bodies that lived stories with others should or even can be remembered emerges as complicated, for the narrators, for us the researchers, and the potential future audiences. Our identities’ dependence on the reiteration of our stories by others beyond death is not guaranteed. As narrative researchers who focus on the act of telling a story to an audience, we understand and respond to stories both through understanding how a story is told and our reactions to it throughout our analysis. The two processes are not separate, and we seek to model how they exist together, mapping how a story emerges and evokes a response. In the midst of our analysis, we face how our own stories are as vulnerable as theirs and struggle with how embracing this inevitability influences our lives within and beyond our research.
Edna: The “Culturally Uncomfortable” Finality of Mortality
Edna, with her close-cut gray hair, slim blue pants, and crisp white blouse, with impeccable posture and a deep voice, seemed precise and purposeful at the start of her narrative. She explained that she had a story to tell, the story of her journey from an evangelical to an atheist that centered on her memories of her deceased daughter and her desire for her legacy to continue. She noted that all of her other stories had been preserved in other ways. Her final message asks her audience to realize the importance of “remembering the stories of others because that’s all we have of that relationship.”
Our granddaughter has just come out
she’s been a tomboy since she was little
I mean it was no surprise to me that she was lesbian because she cuts Well of course I had my hair cut short
but she kinda has a boyishcut? Well it used to be down here but it got shorter
and shorter and shorter and she’s a great athlete
she plays on her university basketball team and
where was I going with all this? (mumbling)
Oh
about Regina
With Regina I never had any inkling
because she was very well-rounded and very loving and caring and I always thought she would be a great mother
And she dated regularly in high school and college
she had a boyfriend
It was after she was working (sigh)
She worked for the County health department as the HIV/AIDS educator and one time we went to visit her and she had a woman with her and we kinda began to think at that time that they had a special relationship?
but of course we didn’t know And then when she came home one weekend and just said she was living with her partner and that was just who she was (sigh)
It was interesting I think in our reactions (deep breath)
I was more disappointed because this was how many years ago? the first thing that came to my mind was that she wouldn’t be a mother
Of course now a lot of lesbian couples have babies but at that time “Oh Regina’s never going to have a family or children and she’d make a WONDERFUL mother”
Hank’s reaction was “How much prejudice is she run into?” “What are people going to think about her?”
I don’t think it ever stood in the way of who she was
And the thing was she passed away She had a brain aneurysm which was just such a shock She had been to work and she was going to a covered-dish supper and had made her thing But she and what was her partner’s name?
Isn’t that terrible? (slow delivery)
That relationship had ended which I was very sad about So
she was living by herself
and so there was no one there so they found her
Well she was still friends with Rachel I think that was that but they had moved apart they’d bought a house together but Rachel was going to this same party as she was and they were going together and
Rachel called because she didn’t show up and when she went over she found Regina had died
It was called a Berry aneurysm in the back of the brain that just burst
Of course that was such a shock to us And I was very very proud of her
She would go everywhere from junior high to the State Senate to talk about HIV and AIDS trying to get a clean needle program so people wouldn’t get infections from the needles (fast delivery)
In fact one time they interviewed her on CNN because she came up with the idea of putting condoms in the barbershops and I’VE HEARD of other places doing that since
Make it so people would have safe sex and not contract or spread HIV
And she was also active in getting a gay and lesbian group of high school kids so they could have a club
or organization anyway So she was very community active and so forth
She did a great job (softer delivery—cracked voice)
She was a very loving caring person
She was artistic too My sister was artistic I never was very much artistic But I think Regina got those genes
But she could draw and do things like that (long pause – searching)
So anyway she was multi-talented and she was an inspiration to me
We started this program at church to include gay members
not only include but embrace them when she was still alive (sigh – searching)
Of course she died somewhere along the line there but she was my inspiration for starting this at church
And I guess the other thing is (deep breath) thinking about death and mortality (fast delivery
And I’ve strayed a long way from the basic tenets of Christianity but I don’t believe in Heaven (flat delivery)
I don’t believe there’s somewhere (trail off)
I’d LOVE to see
We lost our daughter who was lesbian and my mother and dad and my sister
And I’d love to think I’d see Hank again
I’d LOVE to think that I would see them again But to me that’s not realistic (sigh)
I’m too much of a factual person I guess to think that’s really going to happen
Somebody that talked at our church talked about a room in your heart
And I thought that was WONDERFUL because you can keep a room in your heart to think about these people you’ve lost in your life
but once my mind is gone I guess my heart is too
That’s it
That’s not comforting but it is what it is
You got that?
We decided that for us, as narrative researchers and her listeners, they indicate any and all of these things. With her slow delivery, Edna seems hesitant and careful not to say anything that could offend or presume sexuality is automatically revealed by style choices. She does not say anything offensive, but she keeps qualifying statements, like pointing out that her own hair is short before emphasizing the distinction of her granddaughter’s “boyish” cut. Her granddaughter provides a contrast to explain her surprise when her daughter revealed she was a lesbian several decades before: “With Regina I never had an inkling.”
Edna emphasizes that she most grieved the loss of her daughter’s chance to be a mother when she found out that what she tentatively describes as a “special relationship” Regina had with a woman was romantic love. “Regina’s never going to have a family or children, and she’d make a WONDERFUL mother.” As two straight cisgender women, one a mother, and the other intending to have children someday, we find it easy to grieve with Edna. We also continually remind ourselves that as feminists who embrace our childfree friends’ choices to not be parents, that perhaps there is no need to grieve for Regina’s loss of opportunity. We do not know if that was a sacrifice for Regina or if it was not. She may have never wanted children. Still, we are Edna’s audience, and Edna’s grief resonates with us. We feel her longing and desire to tell her daughter’s story that she worries no one will remember. Regina does not have children to continue her genetic legacy. She does have audiences to bear witness to her story and tell it to others. We are honored to fill this role. We hope you are, too.
Edna skillfully weaves her daughter’s social legacy in place of her biological one. We move with her as she connects the lasting societal effects to the body that enabled them. Regina protected others physically (providing a condom program) and connected them socially (starting a gay and lesbian student group). She was “community active” in addition to being individually talented, inheriting “artistic” “genes” that Edna did not. Her presence was positive and soothing, her breakup with her partner was not one of bitter isolation, but amicable. It is the loss of Regina, without descendants to guarantee a legacy, that is painful, not her, not her lesbian identity. She was on the way to meet her and others when she dies alone. Edna includes that the aneurysm is “in the back of the brain,” conjuring an image of it sneaking up from behind, taking her life, and leaving her loved ones “in shock.” We grieve with Edna and find ourselves touching the back of our own heads as we listen to the story of her hidden aneurysm. We sit with the culturally uncomfortable reality of our embodied fragility as we commit to retelling Regina’s story, beginning with you, our thoughtful readers.
The warmth and positivity surrounding Regina provides an “inspiration” for Edna to urge her church to not only “include” but “embrace” gay and lesbian members. Living in the South, we imagine the struggle Edna underwent long before the gay marriage gained momentum as a national civil rights cause. Docile bodies in the dominant Christian faith were not forced to wrestle with the “sin” of homosexuality like they are now. The story of that victorious struggle in a southern church would have been an easier story for us to listen to, but it is not the story she wished to capture. Edna’s story is challenging to our beliefs, asking us to grapple with the possibility of this life being all there is. She explains that she stopped believing the Christian idea of an afterlife long ago but reconciled that people live on through occupying a “room in her heart.” Now, as her memory fades and mortality is near, she accepts that her heart is dependent on her mind, both exist, fleshed and vulnerable, until they do not. She admits flatly in closing, “That’s not comforting but it is what it is.” She sighs before ending with, “You got that?”
The recorder got it, we think we got it, and we think others will, too. Regina is part of our stories of living through mortal bodies, and we will tell of her legacy. We tell it here and acknowledge that this story may be all that is left of her. Her soul may be gone with her body, as ours may be as well one day (despite our faith/hope that there is something after this). As a mother and potential future mother, both raised in the Christian faith, the legacy of offspring or promise of an afterlife offer a salve for the itchy understanding that we will die. Perhaps it is this salve that allows us to remain culturally uncomfortable rather than terrified of our own embodied vulnerability. Compelled by Edna’s story, we squirm with, rather than alleviating, the discomfort of our mortality.
As researchers of personal narrative and illness, we are thankful to tell Edna’s story, reiterate Regina’s legacy, while embracing the cultural discomfort of our own mortalities, valuing the stories around us while we have fleshed ears to listen to them instead of comforting ourselves that their stories live on in an afterlife we cannot guarantee. In contrast, our next narrator and character’s relationship left us startled. We realize we cannot predict with any certainty who will remember us or what our roles in their stories will be. In response, we hope to inspire others to reach out and resist marginalizing the deviant bodies we encounter.
Samuel: The “Culturally Uncomfortable” Characters on the Margins
Samuel, with his large frame and soft, almost inaudible, voice, weaved vivid tales of life as boy in the 1930s. At one point, he shifted away from his family’s story to a boy whose time on earth was pseudo-legendary through his marginalized, yet captivating, presence in a small rural town. Samuel’s story of Chandler materializes the potential importance of cultural characters marked as deviant—spectacles to watch but not get too close to—and the hauntings of the tragedy that follows them. The realness of bodies that lived these stories, among us but not with us, emerges with uncertainty and questions a peripheral story of another we bear witness to without resolution. Samuel’s story surfaces the fate of marginalized, resistant bodies in our culture, their roles in our stories, and our roles in theirs.
His name was I won’t tell you his last name His first name was Chandler
And there was a big boy sitting back in the corner
And he had a BIG desk
And he had a hawkbill knife about that long And you could sling it open you know?
But he carved on his desk all the time Paid
no attention to the teacher apparently(soft laugh)
And my curiosity got the best of me And I asked my father “What about Chandler Wentmore?” And he said “Well, Chandler’s a good size boy I know.” He said “He’s got the meanest mother or woman for a mother that I’ve ever known” Said she decided early on that her children were not going to school
Well
she got by with it for several years and they elected a new sheriff and he wasn’t going to put up with that sort of thing So he went over there
She kept him home Kept him home
The principal reported to the sheriff and the sheriff came over there to talk to his mother
And she said (intensified southern accent—higher pitch) “I’m not going to let him go to school He’ll LEARN and get into all sorts of mischief And you’ve noticed he likes to carve and people regard that as sort of strange you know
He’s bigger than they are and if they get in a fight he’ll just beat them up I know how that goes She says “My family’s had enough trouble and I’m not going to let him go” And the sheriff says (slower – deeper delivery with emphasis)
“I’ll give you a few days to think about it and if you decide that your son is not going to school then we’ll come down and get you and take you up to the jail in Marshall City and leave you in the jail until you decide that your son can go to school THAT’S THE LAW”
(deep breath)
So come the day she suffered the violence of the jail for about two or three days
Then she asked to speak to the sheriff then
she said
“Well Chandler can go to school if we meet certain terms and conditions”
He said “No There’s no terms and conditions as far as I’m concerned”
She said “I don’t think you’ll mind these They’re for keeping Chandler happy and satisfied while he’s in school”
She said “Number one
at the beginning of every year you’ll furnish him a new desk to carve on”
Sheriff said “that’s doubtful but go on”
She said “He’ll come to class He will not get any of his homework He will not answer ANY questions If you call on him he will NOT answer ANY questions
He’ll not engage in any plays or anything else you do because he LIKES to carve”
Well other principals had had difficulties with the fellow obviously
And the sheriff said “Well (sigh)
if that’s the best we can do But now I’m telling you if he misses ONE day of school unless there’s a good medical reason he’d better be IN HIS CHAIR when classes come open (sigh) Now as far as participating in class (sigh)
The law doesn’t say he has to participate (deep breath) It says he HAS to GO to SCHOOL”
(sigh) So the sheriff cut a few fine lines (laugh)
So Chandler was enrolled in a VERY strange curriculum
He didn’t have to do anything And DIDN’T
And he did that way until we were about to move out from our house because the water was beginning to rise a few towns over
and it would take about a year and a half for the water to fill up the entire reservoir And Chandler liked to drive his mother’s old Packard
She had an old worn out Packard that he would drive around and work on part of the time
But he disappeared with it
And they were about to have to move out And they were WORRIED to death about it
Well he never did come home
Never did come home (soft delivery)
And the fall of the year the leaves fell off the trees
And going across the town the road climbed up high on the mountain and swung around curves and points
Very steep and precipitous road (mumbling almost dreamy delivery)
And somebody passing saw what appeared to be a car in the river
And they called the sheriff The sheriff came down
It was Chandler’s car
and Chandler (sigh)
was in the car
And he had intentionally steered the car off of the highest point above the river and knocked down every tree in front of him until he hit the river and turned upside down (long sigh)
So it was an intentional thing no question about it
I think about him a lot
Don’t know why he’s so on my mind
But really
it was just him and his mother
and a brother and sister who died years ago with no children
No one ever speaks of him
but he stays with me for some reason
I wonder if anyone remembers him
So many tortured souls that we talk so much about at the time
They make good stories (flat delivery)
Throughout Samuel’s narrative, Chandler is a body of excess that is difficult to contain: He is larger than other boys, quieter than other boys, more resistant to expectations than other boys, and more fixated on his own desires than other boys.
Throughout Samuel’s story, the two boys move parallel to one another in the same town and classroom. Chandler surpasses boundaries others cannot. Even Chandler’s hawkbill knife is impressive, worthy of describing. Samuel tells of patterns he noticed from a distance, recalling Chandler’s marginalized body attracting his gaze. The mystery that surrounded the boy in childhood persists after his passing, always ostracized and on the periphery. He is unreachable yet remains fascinating, too far away to truly know, yet close enough to gaze at in curiosity.
Samuel sees Chandler’s strangeness as a product of his lineage. He describes his mother as just as unruly, distrustful of the society that ostracizes her and her son. Chandler is not a docile body. He will be punished unless he remains ostracized. He is dangerous if provoked. His mother is familiar with the consequences of a deviant body’s actions and prefers not to reiterate them: “I know how that goes.”
In the end, after being strong-armed by law enforcement, she relents, and Chandler goes to school but remains in a liminal space—present, but not engaging. He sits where he is expected to sit. His body complies, but he remains an unreformed spectacle for others. His rules are different than theirs. His body is accepted in the class landscape, yet his identity is never fully known to those sharing his space. Samuel does not offer insight into Chandler’s motivations for ending his life. His delivery remains soft and unwavering, creating the scene of his classmate’s death as he remembers it: a “deep and precipitous road” leading down to a tragedy in the river. Pauses surround the realization that Chandler’s accident was undoubtedly suicide. There is a finality. No telling of a funeral. The body kept marginalized in life died alone. For us, his story is sad, unfulfilling, a tragedy without a lesson or inspiration to ease our discomfort over his marginalized existence and to give his life purpose.
Like Regina, Chandler is without a biological legacy. Unlike her, memories of his cultural impact are not admirable. As a pseudo-legend, he is vulnerable to fade away, not remarkable enough to be reiterated: “No one ever speaks of him.” There seemed to be a sadness in Samuel’s gentle delivery, a faint regret or maybe just pity for a peripheral, deviant body that drew cultural attention without connection. It is difficult for us to discern his motivations. Chandler’s spectacle is preserved by Samuel, perhaps simply because we (Samuel, us, and potentially his listeners and our readers) like “good stories.” Chandler’s story is less culturally comfortable than Regina’s. He isn’t inspiring. His life was not taken from him. He took it himself.
Like Samuel, I was a docile body of the education system. I had a limp that made some of the meaner girls consider me a potential target, though largely left me alone since teachers were protective of the one physically disabled child in the school. I never defended or reached out to Ryanne. I didn’t want to draw attention to my vulnerable position. After confessing my regrets to Hunter over not reaching out to Ryanne, I found her on Facebook that evening. Ryanne is still struggling emotionally and financially, with a lined face that looks older than her years but the same gummy smile and wild locks. She was excited to talk to me, her Facebook message filled with emojis, the shorthand of texting, and urban vernacular. She readily forgave me for not defending her. She pointed out that I didn’t have the popularity to make much of a difference anyway, and she was so happy that I seemed to be “killin’ it” as a professor. She said that I was nice and deserved a good life. I told her that I thought she deserved the same. I wish life could be easier for Ryanne.
Rosa: The “Culturally Uncomfortable” Stories That End as They Begin and Never Will Be
When Rosa called to request an interview, she explained the recording was for her sons. While they knew their father’s story, no one knew hers. Rosa, with her small frame and soft curls, seemed almost overtaken by the wingback chair from which she delivered her story. Her voice was low and steady, emotion surfaced often, but usually with stronger enunciation rather than increased volume. She began with descriptions of her parents and moved through her life. Only one story was taken out of chronological order: the story of her daughter.
She’s just gone
You know I have four beautiful boys I talked to you about all of them right? Right in the middle I had a girl
She was stillborn (flat delivery)
Aw she was a BEAUTIFUL baby
Bright red hair and beautiful white skin (softer delivery)
She took after the Scottish side
All my boys are dark like me
My Spanish father had strong genes
but my girl was white like her daddy
A little porcelain doll without freckles yet since she’d never see the sun I remember that I held her a long time before I let my aunt take her from me
She was born at home like the others I didn’t want to forget her face so I stared and
stared (softer delivery) She had chubby cheeks very chubby cheeks (soft laugh)
I think she would’ve had a round face like Roger
and she had my nose small and thin and the thinnest lips
That’s from the Scottish side those thin lips
I think they’re nice though
maybe others wouldn’t?
They went well with her features They were so small
Her brow wasn’t very pronounced
She was a round faced angel with long slender fingers and toes I cried and cried
She was my GIRL You know? My ONE GIRL
I love the boys and two out the four didn’t marry badly The other two
WHO KNOWS what they were thinking (sarcastic delivery)
They know how I feel so don’t feel like you have to cut that out They AGREE with me
(playful delivery)
But I always missed my girl
I used to write her letters and end with I missed her
and had to get back to taking care of my boys
The ones God left here
needed me At each of my boys’ weddings I’d imagine hers
I was never the mother of the bride I was never
the mother of the woman who had the baby when my grandchildren came (sigh) and they always wanted their own mothers to move in to help those first weeks (cracked voice)
I visited a lot of course I ALWAYS called first
I always wondered what it would be like to have her here
I don’t want her to be gone with me My husband never wanted to speak of her It just made him too sad (sigh)
When I’d bring her up to my mother or sisters they’d say that I needed to focus on all the sons I had that needed me and I did and I ADORE THEM
I’m going to give this to them to my sons so they have SOMETHING of her
They never saw her I’m the last one alive who saw her but SHE WAS HERE
I hope I’ll see her again
And I’ll know her There’s got to be SOMETHING after this
Don’t you think?
Rosa’s story is beautifully narrated, yet difficult to hear. Her baby girl, whom she never named, is painted carefully for the listener, her features connected to her family, positioning her body with theirs, as one of them: her Scottish skin, hair, and lips, and her mother’s nose. Her daughter’s face will be potentially recognizable in her sons’ relatives, allowing her to materialize through familial associations. Rosa carefully narrates the potential relationship of mother and daughter that never happened, from the freckles that never surfaced in the sunshine she never felt, to the wedding that could never be planned and grandchildren that never came. She notes that her mother, sisters, and husband resisted her desire to reiterate her daughter’s memory. Throughout life, she acquiesces to their resistance, restricting her reiterations of her daughter to private, silent, written letters that she never mentions sharing with others. Her daughter’s absence takes shape through her distance from her daughters-in-law. She positions herself as dutifully honoring the boundaries they place at their weddings and births of their children while privately mourning the missing role in her own life. Only now, as Rosa realizes these private reiterations of her daughter will disappear with her memory, does she attempt to compel her sons, through the recording, to enter into a potentially “culturally uncomfortable” remembrance of a birth that was simultaneously a death.
Della Pollock (1999) reminds us that in stories of pregnancy, “the oohing and cooing over a new arrival shames death into hiding.” Yet, as the picture of her daughter’s face only she can remember becomes vulnerable, Rosa resists social expectations, emphasizing that “SHE WAS HERE” despite no other living body being in contact with her. The audio-recording, created through the body that created and knew her, offers her brothers a chance to continue her, connecting her physical body to their father’s, their mother’s, and their own.
Unlike Rosa, neither of us ever looked into the face of a relationship that we could never experience. Her loss surfaces our fears and questions, not just our sympathies. We see that it is our knowledge of its possibility or inevitability that makes a human experience “culturally uncomfortable.” We commit to bearing witness to Rosa’s stillbirth daughter rather than avoiding her pain. We also acknowledge the culturally uncomfortable reality of perhaps not getting experiences we desire and vow to be open to telling and listening to stories that we and others desired to live, but did not. Up until now, our discussion of cultural discomfort has centered on society’s willingness to forget the stories of bodies that leave us uneasy with our own vulnerability. Our final narrator’s desire to capture the past through his audio-recording reminds us that even once-celebrated identities can become uncomfortable.
Dave: The “Culturally Uncomfortable” Stories of Who We Were But No Longer Can Be
Dave’s story went on for three hours in his small apartment. As a storyteller, he seemed jovial, yet urgent. He explained his desire for his story to be preserved in the midst of his changing identity: his recent experiencing of memory loss while caring for his wife with Alzheimer’s disease.
Millie grew up
We’ve been together in a marriage sixty-two years
So
we’ve been together practically all our life So you’re getting a duet here
We met I’ll backtrack to my life a little bit We lived in Detroit Michigan which is a suburb of Detroit And her mother and her stepfather had moved from Kentucky had migrated down from Kentucky And they were working she was working in the tank plants The Second World War Detroit was the hub of it all
So they decided they wanted to get their daughter out of downtown Detroit
And my parents were in the suburbs
And they came and they were looking for a house
they came out and looked at the house And they said “We like the house and all but we’re not going to buy the house unless our DAUGHTER likes it”
Well a week or ten days later
they came and there she is
She came in and what can I say? (sigh)
From there all out we got married two years later
We graduated from high school we hadn’t graduated from high school yet (fast delivery) And here we are It’s been a partnership all our lives
And so it’s taken us on a very good journey
A very interesting life’s journey We’re happy with it and content with it at this point
I wish you could meet her
Meet her like she was
SHE WAS SOMETHING
She’s still my Millie My memory isn’t like it was but (hesitation voice crack)
Hers is nearly gone (deep breath)
A lot of who you are is in your memories That’s why we moved to this floor so she could get more care
I could still be in the apartment but
I want to be with her I CAN’T be without her
We did a lot of entertaining you know
Important people (slight laugh) Millie took care of ALL of it
Hosting parties SHE WAS SOMETHIN’
No matter where I worked people would come up to visit you know Whenever someone came in on business I would host them at my house
And so I would ask them out to the house for dinner They would come up and Millie would cook for them
Have them out for dinner and entertain them
And it got to be where when I’d go into the plant they’d
I’d be introduced as “This is Millie Holland’s husband” And she was known for the greatest lasagna THIS SIDE OF MAMA LEONE’S (deep laugh)
We came back to Otis Air Force Base on Cape Cod We piled in our car and drove up through Yellowstone We drove through oh an interesting place on the way back was
the Presidents what was that
stone?
It escapes me My memory is It USUALLY doesn’t drop many things forty
fifty years back
It’s getting worse (soft flat delivery)
our little girl was out there looking up at the mountain and the college kids worked there and they were great So they got her up on the table Sang “Baby Face” to her
DELIGHTFUL
How are you feeling? Do you want to go to Vespers hon? (warm delivery)
We’ll finish this after dinner She’s hungry
Come to dinner with us I’ll finish after dinner
If you could’ve known her
If you could’ve KNOWN her BACK then I tell you I hope those are my last memories
WE MADE A GREAT LIFE
I’ll tell you about it after dinner
Dave’s narrative is largely a solo, although he situates it as a “duet,” positioning their stories as intertwined despite Millie’s lack of co-narration. The story is of a partnership, even if her present role is diminished. Dave interlaces their childhood stories, switching back and forth between Millie’s and his. Their youths are bound together, emerging intertwined before they ever meet. We wonder if this narrative choice stems from his inability to remember specifics. Regardless of the motive, he reiterates that the story is also hers throughout the interview, and it is a celebration of success, emphasizing that the two were “happy” and “content” along their journey. His voice is loud and animated. However, he narrates his happiness in the past tense, suggesting that the joy that is communicated throughout his narration stems from sentimentality rather than their current daily life. The recording provides an opportunity to resurface the dynamic their current embodiments hinder repeating.
The tense of the story becomes more noticeable when Dave expresses, “I wish you could meet her.” Dave’s preferred identity with Millie has passed, shifted to a culturally uncomfortable manifestation of fleshed vulnerability. The idea of a mind being separate—impervious to aging that claims the outward appearance—is exposed as fraudulent. The cliché “it’s what’s on the inside that counts” is revealed as fragile as outward vanity; the brain that facilitates identity ages, and like the outward body, can become unrecognizable and incapable of reiterating what has always been.
Dave resists the inability for Millie to continue the identity he fell in love with through narrating her as her past self, even with her physical body located in the same room. He wishes for his audience to “meet her like she was,” which is only possible through his narrative.
As we bear witness to Dave, we are also drawn to honoring meeting Millie as she is. She is a body with an identity and expedience that is worth knowing despite the visceral reminder of our inescapable vulnerability her presence brings. We also do not want to forget about Dave’s struggles. For Dave, there is an urgency to tell their story because, “a lot of who you are is in your memories,” and his own is “not like it was.” The audio-recording is the only way to continue their duet despite their changing memories. He moves to assisted living even though he is still independent enough to remain in a larger apartment without full-time staff because he “can’t be without her,” even when the identity that once enraptured him is now revised by illness, and he narrates her in the past.
Dave’s narrative resists Millie’s disappearance, he positions her as a star, upstaging him among his colleagues. He is “Millie Holland’s husband” and is delighted by it. Still, we cannot get lost in a love story of the past. Millie’s audio presence during the narrative reminds listeners of the present. Her interjections are short and repetitive. She requests for the story to “stop,” offering Julie-Ann an excuse to leave. “Are you getting tired?” could simply be a comforting phrase she can recall to show care for a guest, or it could be a signal that a female stranger’s presence in her husband’s room is disconcerting, and she would prefer the interaction to “stop,” but will settle for staying present despite Dave suggesting that she leave.
Dave tries to co-tell a story with Millie at one point. It is a moment that involves their children, the potential future listeners of his story. This is when Dave reveals his own memory loss on tape. His diagnosis surfaces for his audience. He positions his hesitation as unfamiliar, “it normally doesn’t drop things 40, 50 years back.” His concern foreshadows a future, more tangible by Millie’s presence.
The struggle of memory loss and the reality of mortality cannot be ignored here. It is really uncomfortable. Bearing witness to their present struggle while trying to narrate when they were our ages (newly married in their 20s and then parents in their 30s) reminds us that we are perhaps living the time Dave longs for.
Our bodies’ mortalities are visceral as we bear witness. With Dave and Millie, we face our fleshed vulnerability. We agree with Thornton (2015) that we “cannot set aside [our] own ontological orientation[s] to this world and enter into [their] reality.” Still, their mortality reminds us of ours, and the urgency to tell and listen to the stories of bodies that will not always be able to tell them. After Millie’s repeated requests, Dave relents and decides to conclude the interview after Millie has eaten, offering an explanation for her repeated requests to stop his story. Dave expresses that he desires for Julie-Ann to have “known her back then.” Millie’s present, culturally uncomfortable identity of advanced Alzheimer’s is resisted, directing audiences to focus on a past that cannot be recalled in the present. We ask our readers, with us, to see the value of Dave and Millie, not only their past celebratory existence, but also their present, vulnerable bodies that show love, fear, and perseverance through the unfamiliar changes to the brain tissues that facilitate who they are. Narrative research focuses us on valuing the bodies that tell these stories to us in the present, not only the experiences of characters in the past. We bear witness to the stories they wish to tell and have retold. As they narrate their awareness of their mortality, we also become aware of our own.
Conclusion: Reiterating Identity, Resisting Forgetting, and Embracing Mortality
The sharing of a personal narrative is not simply a transferring of experience but the narrator and audience’s shared struggle to co-constitute meaning and identity, enabled and constrained by cultural discourses. The elders primarily recorded their stories for a potential audience, the future listeners of the audio-recording, creating an opportunity to interact and continue meaning-making with others beyond their bodies’ abilities to perform. Memory loss calls attention to the vulnerability of our identities, the core of what we know to be our inner selves’ dependence on cells that grow sick and die, disappearing. When age and illness force the inescapable vulnerability of our identities to the forefront of our consciousness, the desire to ask others to bear witness to co-constitute what matters to us and what we desire to matter beyond us can intensify. The social gaze that disciplines our docile bodies into avoiding the ‘culturally uncomfortable’ is less compelling when we are faced with the risk of those we love being forever forgotten.
Corey (1996) asserts that personal narrative offers opportunities “to construct identity and examine questions of value from an insider’s point of view.” Within open-ended narrative research, taking on the role of the audience offers an opportunity to offer the agency to the teller, to allow them the authority over how the story is told, and what is emphasized to an engaged, interested audience. As their audience, first as the listeners and then as analyzers, the characters they created within these narrative excerpts are recorded and then interpreted within cultural constructs as meaningful. It is an active rather than docile act. We value Regina’s memory and social legacy with Edna. We take in Chandler’s tragic marginalization with Samuel. We speak of the loss of a life and grieve a relationship that never could be with Rosa and her unnamed daughter. With Dave, we value Millie for who she is and who she was. Their stories are now part of ours, compelling us to analyze ourselves, bear witness to the stories of those around us, and remain perpetually aware of the fragility of our own embodiments and relationships. With them, we embrace the “culturally uncomfortable” we could choose to avoid. We willingly risk being with the terrifying reality that we are as susceptible to pain, grief, and disappearing as the culturally uncomfortable bodies our storytellers resist forgetting.
Through the narrators’ recordings, the value of these bodies in spite of and at times because of their deviance surfaces to be struggled over with others in the future. The cultural discomfort they cause through existing in a liminal space—nonconforming enough to experience rejection from society, yet not so abhorrent that they are removed completely as an example and caution to others—allows their identities to fade rather than be reiterated. The narrators resist the collective forgetting of these “culturally uncomfortable” bodies. Their urgency reveals the harshness of forgetting an identity as a potential final social disciplining, those who make us uncomfortable, forcing us to face a vulnerability we would rather forget, we can make disappear. The central characters matter to the narrators who create spaces for future reiterations as they remember them. As a past in-person audience to each character’s story, the narrators desire to continue to co-constitute the characters’ identities and their relationships to them beyond the duration offered by their mortal bodies. These possible future exchanges depend upon others acting as an audience to their digital recordings.
The desire to remain real, to extend our stories, and the stories of those we value beyond the bodies they depend on for reiteration is pervasive. We resist our mortality through reproducing our DNA, nurturing the next generations, capturing our understandings in written words, creating artifacts, and/or sharing moments to be reiterated by others. The idea of an afterlife in which identities (embodied, disembodied, or otherwise) can continue brings comfort to some. As researchers of stories, we value the personal narratives of others as culturally significant and seek to re-create the experience of them on the page for others. Our steps to resist forgetting the characters across the narratives and the cultural discomforts they surface are not guaranteed. Like the bodies that facilitate them, their stories are inescapably vulnerable. That said, the discursive struggle of meaning-making through human interaction is forever unfinished, always moving, open to reinterpretation in the future. While our individual stories end, they are part of a collective understanding, and the resurfacing of cultural meaning and identity continues. Perhaps, through embracing our bodies as inevitably mortal and the identities and meanings they live as inevitably unfinished, we can take comfort in that bearing witness to one another’s stories—even, or rather especially, when they resist dominant expectations of value—surfaces understandings and meanings with the potential to resurface in future interactions beyond our bodies, even if they do not reiterate our personal identities.
Narrative research allows us to resist avoiding and silencing the “culturally uncomfortable” to avoid the terrifying. Human beings organize and make meaning of our lives through the stories we tell. Our narratives connect us to one another. Researching how and why we tell stories forces us to confront our shared humanity, even when we do not want to. Our stories reveal our collective humanness making sense of ourselves, others, and the cultural spaces we share, and offer hope to know, understand, and love one another better than we have before. Through our resistive work of not only capturing, but offering interpretation of our participants’ stories, we open spaces to tell the stories of identities the dominant culture is collectively comfortable forgetting. We acknowledge that this discomfort potentially stems from our shared understandings of human experience that the dominant culture grants us permission to ignore. We know why this permission to ignore is appealing: Being with the culturally uncomfortable reminds us of our inescapable mortality and the forever present risk of being rejected and forgotten. Still, we urge you to resist the temptation to avoid it. We found through our time analyzing and responding to our participants’ stories, we are able to move with that terror rather than being immobilized by it. Through our resistive acts of telling and listening, we participate in the struggle to move toward a culture that is more inclusive and valuing of all bodies, even if our own bodies and those of our participants remain vulnerable to forgetting and being forgotten. For this reason, we keep listening to, carefully sharing in detail, and interpreting stories as meaningful across our research. Thanks for being our audience. We hope these meanings resurface in your lived experience, that you will embrace the inescapably vulnerable mortality of your body, bear witness to others’ stories, and seek out the “culturally uncomfortable” in hopes of connection and a deeper understanding of how to be human with one another.
Footnotes
Acknowledgements
The authors would like to thank Vernon Cronen, Norman Denzin, and the anonymous reviewers for their feedback on earlier versions of this article.
Declaration of Conflicting Interests
The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Hunter was able to join the project as a UNCW Summer Undergraduate Research and Creative Achievement Assistant. Narratives were Collected through a UNCW Faculty Summer Research Initiative Grant.
