Parent and Family Processes Related to ADHD Management in Ethnically Diverse Youth

Abstract

BACKGROUND: Previous research has shown major disparities in attention deficit hyperactivity disorder (ADHD) for diverse youth across America. We do not fully understand, however, how parent and family processes are related to the identification, care-seeking approaches, treatment preferences, and engagement with care systems and services for youth with ADHD. OBJECTIVES: The present study aimed to explore parent and family processes related to the management of ADHD in racially and ethnically diverse youth. DESIGN: This integrative review was structured with the methodology proposed by Whittemore and Knafl. RESULTS: Three major electronic databases yielded a final sample of 32 articles (24 quantitative, 6 qualitative, and 2 mixed methods). Nine themes emerged within three overarching meta-themes. CONCLUSIONS: Understanding the unique perspectives of families from diverse backgrounds is essential for clinicians, researchers, and policymakers, who are dedicated to understanding racial and ethnic perspectives and developing ecologically appropriate and family-based interventions for youth with ADHD.

Keywords

ADHD integrative review disparities youth families

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References

American Academy of Child and Adolescent Psychiatry. (2007). Practice parameter for the assessment and treatment of children and adolescents with attention-deficit/hyperactivity disorder. Journal of American Academy of Child and Adolescent Psychiatry, 46, 894-921. doi:10.1097/chi.0b013e318054e724

American Academy of Pediatrics. (2011). ADHD: Clinical practice guideline for the diagnosis, evaluation, and treatment of attention-deficit/hyperactivity disorder in children and adolescents. Pediatrics, 128, 1007-1022. doi:10.1542/peds.2011-2654

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Association.

Antshel

K. M.

Barkley

(2008). Psychosocial interventions in attention deficit hyperactivity disorder. Child and Adolescent Psychiatric Clinics of North America, 17, 421-437. doi:10.1016/j.chc.2007.11.005

Antshel

K. M.

Hargrave

T. M.

Simonescu

Kaul

Hendricks

Faraone

S. V.

(2011). Advances in understanding and treating ADHD. BMC Medicine, 9, 7. doi:10.1186/1741-7015-9-7

Arnsten

A. F.

(2006). Stimulants: Therapeutic actions in ADHD. Neuropsychopharmacology, 31, 2376-2383. doi:10.1038/sj.npp.1301164

Bailey

R. K.

Owens

D. L.

(2005). Overcoming challenges in the diagnosis and treatment of attention-deficit/hyperactivity disorder in African Americans. Journal of the National Medical Association, 97(10 Suppl.), 5S-10S.

Barnard-Brak

(2009). Examining parental nonresponse to stimulant treatment questions according to ethnicity. Journal of Child and Adolescent Psychopharmacology, 19, 301-304. doi:10.1089/cap.2008.0150

Berger-Jenkins

McKay

Newcorn

Bannon

Laraque

(2012). Parent medication concerns predict underutilization of mental health services for minority children with ADHD. Clinical Pediatrics, 51, 65-76. doi:10.1177/0009922811417286

10.

Blendon

R. J.

Buhr

Cassidy

E. F.

Perez

D. J.

Hunt

K. A.

Fleischfresser

. . . Herrmann

M. J.

(2007). Disparities in health: Perspectives of a multi-ethnic, multi-racial America. Health Affairs, 26, 1437-1447. doi:10.1377/hlthaff.26.5.1437

11.

Brinkman

W. B.

Hartl

Rawe

L. M.

Sucharew

Britto

M. T.

Epstein

J. N.

(2011). Physicians’ shared decision-making behaviors in attention-deficit/hyperactivity disorder care. Archives of Pediatrics and Adolescent Medicine, 165, 1013-1019. doi:10.1001/archpediatrics.2011.154

12.

Bronfenbrenner

(1999). Environments in developmental perspective: Theoretical and operational models. In Friedman

S. L.

Wachs

T. D.

(Eds.), Measuring environment across the life span: Emerging methods and concepts (pp. 3-28). Washington, DC: American Psychological Association.

13.

Bussing

Gary

F. A.

(2001). Practice guidelines and parental ADHD treatment evaluations: Friends or foes? Harvard Review of Psychiatry, 9(5), 223-233. doi:10.1080/10673220127905

14.

Bussing

Gary

F. A.

Mills

T. L.

Garvan

C. W.

(2003). Parental explanatory models of ADHD: Gender and cultural variations. Social Psychiatry and Psychiatric Epidemiology, 38, 563-575. doi:10.1007/s00127-003-0674-8

15.

Bussing

Gary

F. A.

Mills

T. L.

Garvan

C. W.

(2007). Cultural variations in parental health beliefs, knowledge, and information sources related to attention-deficit/hyperactivity disorder. Journal of Family Issues, 28, 291-318. doi:10.1177/0192513X06296117

16.

Bussing

Schoenberg

N. E.

Perwien

A. R.

(1998). Knowledge and information about ADHD: Evidence of cultural differences among African-American and white parents. Social Science & Medicine, 46(7), 919-928. doi:10.1016/S0277-9536(97)00219-0

17.

Bussing

Zima

B. T.

Gary

F. A.

Mason

D. M.

Leon

C. E.

Sinha

Garvan

C. W.

(2003). Social networks, caregiver strain, and utilization of mental health services among elementary school students at high risk for ADHD. Journal of the American Academy of Child and Adolescent Psychiatry, 42, 842-850. doi:10.1097/01.CHI.0000046876.27264.BF

18.

Bussing

Zima

B. T.

Mason

D. M.

Meyer

J. M.

White

Garvan

C. W.

(2012). ADHD knowledge, perceptions, and information sources: Perspectives from a community sample of adolescents and their parents. Journal of Adolescent Health, 51, 593-600. doi:10.1016/j.jadohealth.2012.03.004

19.

Carpenter-Song

(2009). Caught in the psychiatric net: Meanings and experiences of ADHD, pediatric bipolar disorder and mental health treatment among a diverse group of families in the United States. Culture, Medicine and Psychiatry, 33(1), 61-85. doi:10.1007/s11013-008-9120-4

20.

Carson

N. J.

Stewart

Lin

J. Y.

Alegria

(2011). Use and quality of mental health services for Haitian youth. Ethnicity & Health, 16, 567-582. doi:10.1080/13557858.2011.586024

21.

Centers for Disease Control and Prevention. (2016). Attention deficit hyperactivity disorder. Retrieved from http://www.cdc.gov/ncbddd/adhd/

22.

Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care, Board on Health Sciences Policy, Institute of Medicine. (2002). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: National Academies Press.

23.

Conlon

K. E.

Strassle

C. G.

Vinh

Trout

(2008). Family management styles and ADHD: Utility and treatment implications. Journal of Family Nursing, 14, 181-200. doi:10.1177/1074840708315673

24.

Cunningham

C. E.

(2007). A family-centered approach to planning and measuring the outcome of interventions for children with attention-deficit/hyperactivity disorder. Journal of Pediatric Psychology, 32, 676-694. doi:10.1093/jpepsy/jsm021

25.

Davis

C. C.

Claudiu

Palinkas

L. A.

Wong

J. B.

Leslie

L. K.

(2012). Putting families in the center: Family perspectives on decision making and ADHD and implications for ADHD care. Journal of Attention Disorders, 16, 675-684. doi:10.1177/1087054711413077

26.

Dennis

Davis

Johnson

Brooks

Humbi

(2008). Attention deficit hyperactivity disorder: Parents’ and professionals’ perceptions. Community Practitioner, 81, 24-28.

27.

Dishion

T. J.

Stormshak

E. A.

(2007). Intervening in children’s lives: An ecological, family centered approach to mental health care. Washington, DC: American Psychological Association. doi:10.1037/11485-000

28.

DosReis

Butz

Lipkin

P. H.

Anixt

J. S.

Weiner

C. L.

Chernoff

(2006). Attitudes about stimulant medication for attention-deficit/hyperactivity disorder among African American families in an inner city community. Journal of Behavioral Health Services and Research, 33, 423-430. doi:10.1007/s11414-006-9038-y

29.

DosReis

Mychailyszyn

M. P.

Myers

Riley

A. W.

(2007). Coming to terms with ADHD: How urban African-American families come to seek care for their children. Psychiatric Services, 58, 636-641. doi:10.1176/appi.ps.58.5.636

30.

Efron

Bryson

Lycett

Sciberras

(2016). Children referred for evaluation for ADHD: comorbidity profiles and characteristics associated with a positive diagnosis. Child: Care, Health and Development, 42, 718-214. doi:10.1111/cch.12364

31.

Eiraldi

R. B.

Mazzuca

L. B.

Clarke

A. T.

Power

T. J.

(2006). Service utilization among ethnic minority children with ADHD: A model of help-seeking behavior. Administration and Policy in Mental Health and Mental Health Services Research, 33, 607-622. doi:10.1007/s10488-006-0063-1

32.

Fabiano

G. A.

Pelham

W. E.

Waschbusch

Gnagy

E. M.

Lahey

B. B.

Chronis

A. M.

. . . Burrows-MacLean

(2006). A practical impairment measure: Psychometric properties of the Impairment Rating Scale in samples of children with attention deficit/hyperactivity disorder and two school-based samples. Journal of Clinical Child and Adolescent Psychology, 35, 369-385. doi:10.1207/s15374424jccp3503_3

33.

Flannagan

Pillow

D. R.

Wise

J. C.

(2002). Perceptions and communications about ADHD and ODD behaviors in children with combined type attention deficit hyperactivity disorder. Children’s Health Care, 31, 223-236. doi:10.1207/S15326888CHC3103_4

34.

Fletcher

Wolfe

(2009). Long-term consequences of childhood ADHD on criminal activities. Journal of Mental Health Policy and Economics, 12, 119-138.

35.

Flowers

McDougle

(2010). In search of an ADHD screening tool for African American children. Journal of the National Medical Association, 102, 372-374.

36.

Foley

(2011). A comparison of family adversity and family dysfunction in families of children with attention deficit hyperactivity disorder (ADHD) and families of children without ADHD. Journal for Specialists in Pediatric Nursing, 16, 39-49. doi:10.1111/j.1744-6155.2010.00269.x

37.

Frazier

S. L.

Bearman

S. K.

Garland

Atkins

M. S.

(2014). Dissemination and implementation in children’s mental health. In Beidas

R. S.

Kendall

P. C.

(Eds.), Dissemination and implementation of evidence-based practices in child and adolescent mental health (pp. 98-123). New York, NY: Oxford University Press.

38.

Guevara

J. P.

Feudtner

Romer

Power

Eiraldi

Nihtianova

. . . Schwarz

D. F.

(2005). Fragmented care for inner-city minority children with attention deficit/hyperactivity disorder. Pediatrics, 116, e512-e517. doi:10.1542/peds.2005-0243

39.

Hillemeier

M. M.

Foster

E. M.

Heinrichs

Heier

(2007). Racial differences in parental reports of attention-deficit/hyperactivity disorder behaviors. Journal of Developmental and Behavioral Pediatrics, 28, 353-361. doi:10.1097/DBP.0b013e31811ff8b8

40.

Hinojosa

M. S.

Hinojosa

Fernandez-Baca

Knapp

Thompson

L. A.

Christou

(2012). Racial and ethnic variation in ADHD, comorbid illnesses, and parental strain. Journal of Health Care for the Poor and Underserved, 23, 273-289. doi:10.1353/hpu.2012.0001

41.

Hogue

Dauber

Lichvar

Spiewak

(2014). Adolescent and caregiver reports of ADHD symptoms among inner-city youth: Agreement, perceived need for treatment, and behavioral correlates. Journal of Attention Disorders, 18, 212-225. doi:10.1177/1087054712443160

42.

Hsieh

H.-F.

Shannon

(2005). Three approaches to qualitative content analysis. Qualitative Heath Research, 15, 1277-1288.

43.

Hudson

J. L.

Miller

G. E.

Kirby

J. B.

(2007). Explaining racial and ethnic differences in children’s use of stimulant medications. Medical Care, 45, 1068-1075. doi:10.1097/MLR.0b013e31806728fa

44.

Kendall

Leo

M. C.

Perrin

Hatton

(2005). Service needs of families with children with ADHD. Journal of Family Nursing, 11, 264-288.

45.

Knafl

K. A.

Deatrick

J. A.

Havill

N. L.

(2012). Continued development of the family management style framework. Journal of Family Nursing, 18, 11-34. doi:10.1177/1074840705278629

46.

Krain

A. L.

Kendall

P. C.

Power

T. J.

(2005). The role of treatment acceptability in the initiation of treatment for ADHD. Journal of Attention Disorders, 9, 425-434. doi:10.1177/1087054705279996

47.

Larson

J. J.

Yoon

Stewart

DosReis

(2011). Influence of caregivers’ experiences on service use among children with attention-deficit hyperactivity disorder. Psychiatric Services, 62, 734-739. doi:10.1176/appi.ps.62.7.734

48.

Lawton

K. E.

Gerdes

A. C.

Haack

L. M.

Schneider

(2014). Acculturation, cultural values, and Latino parental beliefs about the etiology of ADHD. Administration and Policy in Mental Health and Mental Health Services Research, 41, 189-204. doi:10.1007/s10488-012-0447-3

49.

Leslie

L. K.

Plemmons

Monn

A. R.

Palinkas

L. A.

(2007). Investigating ADHD treatment trajectories: Listening to families’ stories about medication use. Journal of Developmental and Behavioral Pediatrics, 28, 179-188. doi:10.1097/DBP.0b013e3180324d9a

50.

Long

A. F.

Godfrey

Randall

Brettle

Grant

M. J.

(2002). Developing evidence based social care policy and practice. Part 3: Feasibility of undertaking systematic reviews in social care. Leeds, England: Nuffield Institute for Health.

51.

Martini

Hilt

Marx

Chenven

Naylor

Sarvet

Ptakowski

K. K.

(2012, June). Best principles for integration of child psychiatry into the pediatric health home. Retrieved from https://www.aacap.org/App_Themes/AACAP/docs/clinical_practice_center/systems_of_care/best_principles_for_integration_of_child_psychiatry_into_the_pediatric_health_home_2012.pdf

52.

McLeod

J. D.

Fettes

D. L.

Jensen

P. S.

Pescosolido

B. A.

Martin

J. K.

(2007). Public knowledge, beliefs, and treatment preferences concerning attention-deficit hyperactivity. Psychiatric Services, 58, 626-631. doi:10.1176/ps.2007.58.5.626

53.

Morgan

P. L.

Hillemeier

M. M.

Farkas

Maczuga

(2014). Racial/ethnic disparities in ADHD diagnosis by kindergarten entry. Journal of Child Psychology and Psychiatry, 55, 905-913. doi:10.1111/jcpp.12204

54.

Morgan

P. L.

Staff

Hillemeier

M. M.

Farkas

Maczuga

(2013). Racial and ethnic disparities in ADHD diagnosis from kindergarten to eighth grade. Pediatrics, 132, 85-93. doi:10.1542/peds.2012-2390

55.

Morley

C. P.

(2010). Disparities in ADHD assessment, diagnosis, and treatment. International Journal of Psychiatry in Medicine, 40, 383-389. doi:10.2190/PM.40.4.b

56.

Mychailyszyn

M. P.

Dosreis

Myers

(2008). African American caretakers’ views of ADHD and use of outpatient mental health care services for children. Families, Systems, & Health, 26, 447-458. doi:10.1037/1091-7527.26.4.447

57.

Nigg

J. T.

(2012). Future directions in ADHD etiology research. Journal of Clinical Child and Adolescent Psychology, 41, 524-533. doi:10.1080/15374416.2012.686870

58.

Olaniyan

DosReis

Garriett

Mychailyszyn

M. P.

Anixt

Rowe

P. C.

Cheng

T. L.

(2007). Community perspectives of childhood behavioral problems and ADHD among African American parents. Ambulatory Pediatrics, 7, 226-231. doi:10.1016/j.ambp.2007.02.002

59.

Paidipati

C. P.

Deatrick

J. A.

(2015). The role of family phenomena in children and adolescents with ADHD. Journal of Child and Adolescent Psychiatric Nursing, 28(1), 3-13. doi:10.1111/jcap.12097

60.

Palcic

J. L.

Jurbergs

Kelley

M. L.

(2009). A comparison of teacher and parent delivered consequences: Improving classroom behavior in low-income children with ADHD. Child & Family Behavior Therapy, 31, 117-133. doi:10.1080/07317100902910513

61.

Pastor

P. N.

Reuben

C. A.

(2005). Racial and ethnic differences in ADHD and LD in young school-age children: Parental reports in the national health interview survey. Public Health Reports, 120, 383-392.

62.

Pham

A. V.

Carlson

J. S.

Kosciulek

J. F.

(2010). Ethnic differences in parental beliefs of attention-deficit/hyperactivity disorder and treatment. Journal of Attention Disorders, 13, 584-591. doi:10.1177/1087054709332391

63.

Power

T. J.

Soffer

S. L.

Cassano

M. C.

Tresco

K. E.

Mautone

J. A.

(2011). Integrating pharmacological and psychosocial interventions for ADHD: An evidenced-based, participatory approach. In Evans

Hoza

(Eds.), Treating attention-deficit hyperactivity disorder: Assessment and intervention in developmental context (pp. 13-19). Kingston, NJ: Civic Research Institute.

64.

Pressman

L. J.

Loo

S. K.

Carpenter

E. M.

Asarnow

J. R.

Lynn

McCracken

J. T.

. . . Smalley

S. L.

(2006). Relationship of family environment and parental psychiatric diagnosis to impairment in ADHD. Journal of American Child and Adolescent Psychiatry, 45(3), 346-354. doi:10.1097/01.chi.0000192248.61271.c8

65.

Reed-Knight

Blount

R. L.

Gilleland

(2014). The transition of health care responsibility from parents to youth diagnosed with chronic illness: A developmental systems perspective. Families, Systems, & Health, 32(2), 219-234. doi:10.1037/fsh0000039

66.

Roberts

(2012). Fatal invention: How science, politics, and big business re-create race in the twenty-first century. New York, NY: New Press.

67.

Rowland

A. S.

Lesesne

C. A.

Abramowitz

A. J.

(2002). The epidemiology of attention deficit/hyperactivity disorder (ADHD): A public health view. Mental Retardation and Developmental Disabilities Research Reviews, 8, 162-170. doi:10.1002/mrdd.10036

68.

Rowland

A. S.

Umbach

D. M.

Stallone

Naftel

A. J.

Bohlig

E. M.

Sandler

D. P.

(2002). Prevalence of medication treatment for attention deficit-hyperactivity disorder among elementary school children in Johnston County, North Carolina. American Journal of Public Health, 92, 231-234. doi:10.2105/AJPH.92.2.231

69.

Santiago

C. D.

Wadsworth

M. E.

Stump

(2011). Socioeconomic status, neighborhood disadvantage, and poverty-related stress: Prospective effects on psychological syndromes among diverse low-income families. Journal of Economic Psychology, 32, 218-230. doi:10.1016/j.joep.2009.10.008

70.

Schmitz

M. F.

Velez

(2003). Latino cultural differences in maternal assessments of attention deficit/hyperactivity symptoms in children. Hispanic Journal of Behavioral Sciences, 25, 110-122. doi:10.1177/0739986303251700

71.

Schneider

B. W.

Gerdes

A. C.

Haack

L. M.

Lawton

K. E.

(2013). Predicting treatment dropout in parent training interventions for families of school-aged children with ADHD. Child and Family Behavior Therapy, 35, 144-169. doi:10.1080/07317107.2013.789365

72.

Shaw

Hodgkins

Caci

Young

Kahle

Woods

A. G.

Arnold

L. E.

(2012). A systematic review and analysis of long-term outcomes in attention deficit hyperactivity disorder: Effects of treatment and non-treatment. BMC Medicine, 10, 99. doi:10.1186/1741-7015-10-99

73.

Spencer

T. J.

Biederman

Mick

(2007). Attention-deficit/hyperactivity disorder: Diagnosis, lifespan, comorbidities, and neurobiology. Journal of Pediatric Psychology, 32(2), 631-642. doi:10.1002/mrdd.10036

74.

Starr

H. L.

(2007). The impact of culture on ADHD. Contemporary Pediatrics, 24, 39-50.

75.

Swanson

Baler

R. D.

Volkow

N. D.

(2011). Understanding the effects of stimulant medications on cognition in individuals with attention-deficit hyperactivity disorder: A decade of progress. Neuropsychopharmacology, 36, 207-226.

76.

Tong

Sainsbury

Craig

(2007). Consolidated criteria for 741 reporting qualitative research: A 32 item checklist for interviews and 742 focus groups. International Journal for Quality in Health Care, 19, 349-357. doi:10.1093/intqhc/mzm042

77.

Trampush

J. W.

Miller

C. J.

Newcorn

J. H.

Halperin

J. M.

(2009). The impact of childhood on ADHD on dropping out of high school in urban adolescents/young adults. Journal of Attention Disorders, 13, 127-136. doi:10.1177/1087054708323040

78.

Vierhile

Robb

Ryan-Krause

(2009). Attention-deficit hyperactivity disorder in children and adolescents: Closing diagnostic, communication, and treatment gaps. Journal of Pediatric Health Care, 23(1 Suppl.), S5-S21. doi:10.1016/j.pedhc.2008.10.009

79.

Watson

S. M. R.

Richels

Michalek

A. P.

Raymer

(2015). Psychosocial treatments for ADHD: A systematic appraisal of the evidence. Journal of Attention Disorders, 19, 3-10. doi:10.1177/1087054712447857

80.

Weckerly

Aarons

G. A.

Leslie

L. K.

Garland

A. F.

Landsverk

Hough

R. L.

(2005). Attention on inattention: The differential effect of caregiver education on endorsement of ADHD symptoms. Journal of Developmental and Behavioral Pediatrics, 26, 201-208. doi:10.1097/00004703-200506000-00006

81.

Weiss

(2014). Functional impairment in ADHD. In Adler

L. A.

Spencer

T. J.

Wilens

T. E.

(Eds.), Attention-deficit hyperactivity disorder in adults and children (pp. 42-52). Cambridge, England: Cambridge University Press.

82.

White

J. M.

Klein

D. M.

(2008). Family theories (3rd ed.). Thousand Oaks, CA: Sage.

83.

Whittemore

Knafl

(2005). The integrative review: Updated methodology. Journal of Advanced Nursing, 52, 546-553. doi:10.1111/j.1365-2648.2005.03621.x

84.

Wilens

T. E.

Spencer

T. J.

(2010). Understanding attention-deficit/hyperactivity disorder from childhood to adulthood. Postgraduate Medicine, 122, 97-109. doi:10.3810/pgm.2010.09.2206

85.

Zima

B. T.

Bussing

Tang

Zhang

(2013). Do parent perceptions predict continuity of publicly funded care for attention-deficit/hyperactivity disorder? Pediatrics, 131 (Suppl.1), S50-S59. doi:10.1542/peds.2012-1427f

86.

Zuvekas

S. H.

Vitiello

(2012). Stimulant medication use in children: A 12-year perspective. American Journal of Psychiatry, 169, 160-166. doi:10.1176/appi.ajp.2011.11030387