Closing the Home Care Case: Home Health Aides’ Perspectives on Family Caregiving

Abstract

A series of focus groups with home health aides experienced in caring for patients with stroke or brain injury provided insight into how they experience their work and their relationship to family caregivers. Two issues merit more attention. First, aides reported that they do not always have all of the information, including diagnosis or previous history, which they need to provide appropriate care. Second, aides said they often receive little advance notice about when the case would close. Abrupt transitions are hard for aides, families, and patients who have often built up a good relationship. Agencies should establish better lines of communication for relevant information, correct misunderstandings about privacy rules, provide additional guidance about how to respond to caregivers’ questions, and provide adequate time for closure.

Keywords

home health aides family caregivers care clinicians workforce

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References

AARP Public Policy Institute . (2005). Direct care workers in long-term care. Data digest. Retrieved May 2005, from http://www.aarp.org/research/longtermcare/nursinghomes/dd117_workers.html

Albert, S. M. , & Levine, C. (2005). Family caregiver research and the HIPAA factor. The Gerontologist, 45, 432-437.

Barry, T. , Brannon, D. , & Mor, V. (2005). Nurse aide empowerment strategies and staff stability: Effects on nursing home resident outcomes. The Gerontologist, 45, 309-317.

Boockvar, K. , Bordie, D. , & Lachs, M. (2000). Nursing assistants detect behavioral changes in nursing home residents that precede acute illness: Development and validation of an illness warning instrument. Journal of the American Geriatrics Society, 48, 1086-1091.

Bureau of Labor Statistics . (2004). Occupational outlook handbook, 2004- 2005 edition. Retrieved August 10, 2005, from http://stats.bls.gov/oco/ocos165.htm

Hokenstad, A. , Hart, A. Y. , Gould, D. A. , Halper, D. , & Levine, C. (2005). Closing the home care case: Clinicians’ perspectives on family caregiving. Home Health Care Management and Practice, 17, 388-397.

Montgomery, R. J. V. , Holley, L. , Deichert, J. , & Kosloski, K. (2005). A profile of home care workers from the 2000 census: How it changes what we know. The Gerontologist, 45, 593-600.

Paraprofessional Healthcare Institute . (2002). Long-term care financing and the long-term care workforce crisis: Causes and solutions. Washington, DC: Citizens for Long Term Care.

Paraprofessional Healthcare Institute and the Institute for Aging Services . (2003). State wage pass-through legislation: An analysis.

10.

Stone, R. (2004). The direct care worker: The third rail of home care policy. Annual Review of Public Health, 25, 521-537.

11.

Stone, R. , & Weiner, J. (2001). Who will care for us? Addressing the long-term care workforce crisis. Washington, DC: Urban Institute and the American Association of Homes and Services for the Aging.

12.

Surpin, R. , Haslanger, K. , & Dawson, S. (1994). Quality paraprofessional home care. Caring Magazine, 13(4), 14-16.

13.

Vetter, M. J. , Bristow, L. , & Ahrens, J. (2004). A model for home care clinician and home health aide collaboration. Home Healthcare Nurse, 22, 645-648.

14.

Yamada, Y. (2002). Profile of home care aides, nursing home aides, and hospital aides: Historical changes and data recommendations. The Gerontologist, 42, 199-206.