Abstract
Surveys are a common method for assessing patient and clinician perceptions, attitudes and outcomes of telehealth. However, inadequacies in both the conduct and reporting of survey studies are common in telehealth research. This article provides clinicians and researchers with practical guidance on the appropriate selection, use and reporting of survey tools for telehealth research. We identify common survey outcomes and instruments used in telehealth research, and methods to assess the validity and psychometric properties of survey tools. Enhancing the quality and reporting of telehealth research is important to improve our understanding of which telehealth-supported models of care improve outcomes and for which patient groups.
Introduction
Surveys are commonly used in telehealth research to assess patient satisfaction, patient experiences, patient preferences and attitudes, and the technical quality of a teleconsultation. 1 The popularity of the survey as a method of measurement can be understood through three major strengths of this technique. First, confidential survey questions are well suited to capture individuals’ experiences, perceptions and attitudes. The views of patients and of clinicians can be independently and confidentially assessed and compared, without jeopardizing the clinical relationship. Second, pre-existing scales can be used across studies, enabling the comparison and replication of results. As surveys allow data to be collected from large samples for relatively low cost, they can produce generalizable results, which provide an understanding of the views or experiences of a population group. Third, the validity and reliability of survey instruments can be assessed through rigorous, transparent and well-accepted validation methods, providing the researcher with confidence that the measures tap the intended constructs, and provide an accurate measurement.
However, many methodological limitations of survey research in telehealth have been identified.2,3 Inadequate consideration given to the selection of constructs (i.e. the attributes which we measure via survey instruments), the use of novel survey instruments or instruments that lack validity or reliability (note: these will be defined later), and poor adherence to guidelines for the conduct and reporting of research limit the usefulness of the results generated, both to the individual researchers, and to the field of telehealth. The aim of this paper is to provide practical guidance to researchers and clinicians on the selection and use of survey measures for evaluating telehealth interventions. In the next sections, we first identify the various types of outcomes that are commonly assessed using surveys in telehealth research. We then provide guidelines on how to select an appropriate survey instrument, or develop and validate a new survey, followed by a brief overview of considerations in the conduct and reporting of survey research.
Choosing the outcomes of interest in telehealth research
Patient- and clinician-reported constructs commonly reported in telehealth research.
In survey research, patient-level constructs are used to assess the patient’s perspective or experiences resulting from receiving care via telehealth. Patient-level constructs may measure process outcomes, such as how the care was delivered, or outcomes resulting from receiving health care via telehealth, such as increased patient knowledge or empowerment, improved accessibility to health care or changes in health status. When both telehealth and face-to-face consultations are used for an episode of care, it is not possible to attribute outcomes to one particular form of consultation. 6 For this reason, subjective measurements of the perceived value of telehealth are often used.
Selected survey instruments relevant to telehealth.
Free for academic use
ICU: Intensive care unit
Due to the limitations of satisfaction measures, patient experience surveys may be a better option for telehealth research. Patient experience may assess the degree of patient-centred communication such as concordance to the patient’s values, needs and preferences and patient participation in health care decisions. 15 Additional patient-reported experience measures include being treated with compassion, dignity and respect. 16 Patient experience, as well as indicators of effectiveness or perceived effectiveness and effect on interaction, is frequently measured using tools specific to the clinical population or context.
In contrast, some tools are necessarily specific to the telehealth environment. The technical quality of the telehealth consultation (e.g. audio and visual quality of a videoconference) has been shown to influence clinicians’ willingness to practice and the satisfaction of users.17,18 Technical quality is commonly measured using scales developed by the International Telecommunications Union, assessing listening quality, listening effort, image quality and image impairment. 19 Reliability is another outcome measure of technical quality. This may be assessed by whether a video conference call was completed successfully or failed. 20 The usefulness or perceived usefulness of telehealth may be assessed using a variety of indicators such as perceived convenience, time or cost saved. Often a variety of attitudes towards telehealth are captured to assess this construct. For example, the technology acceptance model (TAM)21-23 has been successfully used to capture both patients’ and clinicians’ attitudes towards telehealth. This survey measures the perceived usefulness, perceived ease of use, attitude towards and intention to use telehealth.
Many of the same constructs measured at the patient level apply equally to clinicians (e.g. technical quality). Additional constructs can be used to evaluate clinicians’ perspectives on delivering care via telehealth, such as perceived ability to conduct a telehealth consultation, the appropriateness of the technology,24,25 and the clinician’s diagnostic confidence or confidence in patient management resulting from the use of the telehealth. 26
Selecting survey instruments
Once the patient and/or clinician-level constructs to be measured have been selected, the next step is to select the survey instruments to measure these constructs. Using existing validated instruments where possible, rather than developing new measures, is recommended as it helps establish a set of commonly accepted and well-validated instruments, assists the comparison of results across studies, and ultimately facilitates a more integrated body of telehealth literature. 27 The following questions and guidelines are provided to assist researchers in the choice of an appropriate existing survey measure.
Does the instrument match the chosen definition and conceptualization of the construct? Validity is the extent to which a data collection instrument measures what it is intended to measure. 28 Hence, the first step is to ensure that the chosen survey operationalizes the concept in a way that fits with the commonly accepted definition and conceptualization of the concept. For example, if patient experience is the concept of interest, how well does the survey measure align with and capture the definition and underlying dimensions of ‘patient experience’? The content and dimensions of the concept – and hence its valid survey operationalization – may differ depending on the role of the person completing the survey (i.e. the rater, such as patient vs. clinician). Hence, caution needs to be exercised when adapting or translating survey tools designed and validated with one rater to another.
Psychometric properties of survey instruments.
Is the instrument applicable to the chosen telehealth intervention and context? A key issue here is whether survey items are worded in a manner that is applicable to the chosen research context. Often telehealth survey measures are designed to evaluate a particular clinical service (e.g. diabetes management), for a particular patient population (e.g. children) in a particular location (e.g. rural area). Hence, a judgement needs to be made as to whether the survey instrument is valid and appropriate for use in a different setting. The careful adaptation of survey items may be required to ensure their relevance to the changed setting. Adapting a survey in any way, whether it is changing the wording of individual survey items, using a selection of items rather than the entire survey, changing the order of items in the survey, using different response options, or translating a survey into a different language, may impact the validity and reliability of the instrument. If such adaptation is done, it is best practice to then pilot the revised survey instrument in the novel setting, and examine the validity and reliability of the new instrument.
Developing and validating a novel survey
If an exhaustive search of the literature reveals no suitable survey measure, then the choice is either to adapt an existing survey measure to the specific telehealth context and service, or to develop and validate a new survey. Important steps in developing a new survey include:
Review the existing literature and scales to identify common definitions, conceptualizations and dimensions of the concept.
Conduct qualitative research (e.g. interviews, focus groups, open-ended surveys) with the population of interest (e.g. patients/clinicians) to identify and confirm the ‘domain of content’ for the construct.
Develop an initial pool of survey items tapping each dimension of the construct. Ensure the language used and reading level is appropriate for the intended population (‘readability’ not exceeding the sixth 31 to eighth 32 grade levels is usually recommended; readability scores can be automatically calculated by word processing programs such as Microsoft Word). 33 Consider the characteristics of the population you wish to survey and the variation that will be present with regard to their perceptions of questions and concepts – are there any concepts which may be understood in multiple ways that may vary across cultures or communities, or sensitive topics in your pool of items? Have you considered social norms around sharing personal information or discussing certain topics in developing your item pool?
Consider the response choices you will provide for any close-ended questions. These should be consistent across survey items, for example, always going from least to most satisfied. Switching up the order across survey items can be confusing to participants and is likely to yield missing or error-laden data. Also ensure that the response options make sense given the question item, and are mutually exclusive and exhaustive. Likert scales, which allow a participant to indicate their preferences or extent of agreement with a statement or statements on a unidimensional scale (e.g. a five-point scale ranging from ‘Strongly agree’ to ‘Strongly disagree’), are often used. 34 Each level on such a scale is assigned a numeric value or coding (e.g. 1 for ‘Strongly agree’, 2 for ‘Agree’, 3 for ‘Neither agree nor disagree’, and so on), although it must be noted that these data are ordinal (in that the response categories have a rank order), not continuous, and should be analysed as such. 34 Labelling either all the response options, or at least the extremes and ‘middle’ response option when using a scale with an odd number of items (e.g. 1, 3 and 5 on a 5-point Likert scale) will help respondents to understand what each category means and also enhance the clarity of the results reported. The researcher should also consider whether having a ‘middle’ response option is useful to their study. Although theoretically a mid-point response should represent ambivalent or ‘neutral’ attitudes, research suggests some participants will select this option when it is available rather than reporting their actual opinion. 35 This may occur for a number of reasons, such as social desirability bias (responding in a manner that presents a favourable image of themselves, e.g. as the ‘good patient’). 36 Removing a mid-point response and using a scale with an even number of items may thus increase the likelihood that the participant will report their actual opinion; however, the downside of this is that it does not accommodate the participant with ambivalent or truly neutral attitudes.
At this point it is worth considering the length of the draft survey and the likely impact of this on participant propensity to complete it in full and thoughtfully. Many novice researchers devise surveys that are overly long, especially when considering the characteristics of the population of interest. In the field of telehealth, where we often survey patients with health conditions and clinicians providing care, the added participant burden and fatigue of a too-long survey may lead to lower response rates 37 and poorer quality data. 38 In contrast, surveys that are too short will be unable to capture participant views of the construct of interest fully, and may yield little variability in the data that could be explored. Whilst the ‘ideal’ length of a survey will vary depending on the topic, population and context, a positive impact on survey completion rates have been found both for the general population and among physicians of surveys of shorter length (one or two pages).37,39
Conduct a pilot study to assess the face validity and usefulness of the survey items. Use feedback from a representative sample of respondents to delete poor performing items (i.e. items that respondents report to be ambiguous, unclear or open to different interpretations) and to ensure that all relevant elements of a construct are assessed. Ideally, conduct a second pilot study to ensure the final version of the survey works effectively. It is worth considering at this point, if this has not been done previously, the desired method of administration of the survey (more on this later), as piloting the method of administration of the survey as well as the content may be useful.
Conduct a validation study using a large representative sample to examine and report the reliability and psychometric properties of the scale. One method to establish the construct validity of a new instrument30,40 is to examine whether the survey measure behaves as hypothesized in relation to other variables within the nomological network. 41 Analyses can be conducted comparing the new instrument with other validated instruments to provide evidence of the convergent and discriminant validity of the scale. To establish criterion validity, survey responses from participants (e.g. providers and patients) can be compared with expert ratings and evaluations of the telehealth service, or other objective indicators of telehealth outcomes. The content validity of the scale can be further assessed by examining participant responses to open-ended survey questions designed to elicit the key indicators of the construct.
As evidenced by the process described above, the rigorous development and validation of a new survey instruments takes considerable time and investment. Establishing construct validity of a new instrument is an ongoing process, and future researchers adopting a scale can strengthen the assessment of the scale’s validity by reporting on its psychometric properties and links to actual telehealth outcomes.
Survey conduct and reporting
A number of decisions must be made in planning and conducting a survey study alongside the choice of constructs and survey tools. The choice of sampling frame and strategy, 42 desired sample size, method of administration of a survey, 43 strategies employed to enhance response rates, 4 data management procedures, and analytic decisions, alongside others, will influence the usefulness of the reported results, and a number of resources are available to assist in the making of these decisions.44,45 Although it is beyond the scope of this paper to delve too deeply into each potential issue, we detail here some advice for a few concerns that commonly arise.
Firstly, it is essential that the telehealth researcher obtain ethical clearance (or a waiver if appropriate) from an institutional review board (or equivalent; outside the US these may be known by other names, e.g. ‘ethics committee’) for their survey study prior to study commencement. Many telehealth surveys are completed online using survey software (more on that later), which allow participants (a perception of) anonymity, and there appears to be a misperception among some quarters that this kind of research is not subject to the same ethical oversight as are other research studies. Regardless of whether surveys are completed online or using pen and paper, whether they are completed anonymously or if participants are fully identifiable, appropriate ethical clearance must be sought, and documentation kept. This is essential to protect the study participant, the researcher and their institution, and increasingly, journals will not publish research findings if ethical clearance was not obtained.
One consideration for the survey researcher with ethical implications is whether to offer incentives for participation. Incentives may increase response rates for patient and clinician surveys, although the evidence for this is mixed.4,46 Incentives also have costs; higher than expected response rates could work out unexpectedly costly, and care must be taken to ensure the research budget could withstand this. The extent to which incentives influence data quality should be considered (if, for example, someone participates only to achieve the incentive, and gives little thought to their responses), although the evidence for this is again inconclusive.47,48 Another consideration is that for research to be ethical, the value of any incentive, including non-monetary incentives such as gift vouchers or entry in a prize draw, must allow the potential participant to make a truly voluntary decision to participate – high-value ‘incentives’ may be viewed as coercive, if they persuade individuals to accept risks that they would not otherwise accept. 49 What value an incentive would need to take to be considered coercive varies by context; something of trivial value to a person of higher socioeconomic status may be viewed very differently to someone with very limited financial resources.
The method of administration of the survey should also be considered. Asking participants to complete surveys online is becoming increasingly common in many fields, not least technology-savvy areas such as telehealth. As always, care must be taken to consider the population of interest and context in which the study is being conducted. If your population of interest has fast, reliable, private internet access and is comfortable with this technology, then online surveys may be appropriate; in contrast, if your population lives in an area with unreliable internet, or it is most commonly available in shared spaces that do not offer the privacy a participant might require, then this modality may be a poorer choice. Whilst this delivery mode has advantages in terms of scalability, speed of data collection and cost, it does not prevent – and indeed may contribute to – sampling and other representational errors, such that the sample does not represent the population of interest. 50
Regardless of the method of administration of a survey, care should be given to the language used to recruit study participants and explain how the survey data will be reported. As with all research, potential participants should be provided enough information to make an informed decision as to whether or not to participate in your survey; typical information needed will include the topics to be discussed, approximately how long it will take to complete, the risks and benefits of participation, the manner in which data will be collected and how it will be used, and how their confidentiality will be maintained. Very little research is truly anonymous, even if names are not requested, as other demographic or clinical information (e.g. sex, race, location) may together potentially identify them, so rather than assuring participants of anonymity, it may be more correct to describe the methods that will be taken to preserve participant confidentiality, such as storing survey data (whether in paper form or electronically) securely with limited access only to essential research staff, and only reporting pooled data.
Questions to ask when reviewing telehealth research using survey measures.
Reporting of survey research is often inadequate in providing the reader the ability to judge the quality of the research. Box 1 lists eight simple questions that readers of telehealth survey research papers can ask when reading such studies. This framework can also be used by authors to structure the reporting of their survey research.
Conclusion
Surveys are a common method for assessing patient-reported outcomes and clinician views of technology appropriateness, but inadequacies in both the conduct and reporting of survey studies are common. 1 Improving the quality and reporting of this research is essential to improve our understanding of which telehealth-supported models of care improve outcomes for which patient groups.
Footnotes
Acknowledgement
We thank Monica Taylor for her assistance with the literature search for validated surveys relevant to telehealth.
Declaration of conflicting interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This review was conducted with the support of the Centre of Research Excellence in Telehealth funded by Australia’s National Health and Medical Research Council (NHMRC; APP1061183). D. Langbecker is supported by a NHMRC Early Career Research Fellowship (APP1072061). The contents of the published material are solely the responsibility of the individual authors and do not reflect the views of NHMRC or other funding agencies.
