Conducting Meaningful Participatory Autism Research in Latin America: An Example of Contextual Challenges Identified and Lessons Learned from the Indigenous Support Network In Brazil

Araujo A. G. R. Silva M. A. D. Zanon R. B. (2024). Autism, neurodiversity and stigma: Political and inclusive perspectives. Psicologia Escolar e Educacional, 27, Article e247367. https://doi.org/10.1007/s43076-024-00398-9

Autistas Brasil. (2025, September 8). A Pesquisa sobre Autismo deve Servir à Comunidade Autista [Research about autism should serve the autistic community]. https://autistas.org.br/a-pesquisa-sobre-autismo-deve-servir-a-comunidade-autista/

Fletcher-Watson S. Adams J. Brook K. Charman T. Crane L. Cusack J. Leekam S Milton D Parr J. R. Pellicano E. (2019). Making the future together: Shaping autism research through meaningful participation. Autism, 23(4), 943–953. https://doi.org/10.1177/1362361318786721

Genovesi E. Grant S. Kifle T. H. Li J. Shand A. J. Hoekstra R. A. (2025). Community involvement in PhD students’ autism research projects: Challenges and opportunities. Autism, 29(1), 3–7.

Godoy P. B. G. Shephard E. (2025, May 28). Implementation and effectiveness study of a parent-mediated intervention for autistic children in the Brazilian Health System. https://doi.org/10.17605/OSF.IO/EC6S4

Gonçalves L. K. Rasia Lira P. G. Silva Guimarães D. (2025). Indigenous contributions to psychological reflections and practices: A case study in the context of an academic network. In Tuli M. Chaudhary N. (Eds.), Reframing developmental psychology (1st ed.; pp. 89–112). Emerald Publishing Limited. https://doi.org/10.1108/978-1-80592-080-920251005

Gowen E. Taylor R. Bleazard T. Greenstein A. Baimbridge P. Poole D. (2019). Guidelines for conducting research studies with the autism community. Autism Policy & Practice, 2(1), 29–45.

Groot S. Le Grice J. Nikora L. W. (2019). Indigenous psychology in New Zealand. In Li W. W. Hodgetts D. Foo K. H. (Eds.), Asia-Pacific perspectives on intercultural psychology (pp. 198–217). Routledge.

Maia R. F. Forechi L. Ribeiro N. G. Baldo T. D. O. F. Andrade J. M. O. Lelis D. D. F. Baldo M. P. (2024). Quality of life among mothers of children with autism spectrum disorder in Brazil: Influence of socioeconomic status. International Journal of Developmental Disabilities. Advance online publication. https://doi.org/10.1080/20473869.2024.2434539

Miranda P. Z. Carvalho M. M. Silva Guimarães D. (2025). Reflections on the path of USP’ Indigenous Support Network, from 2012 to 2023. In Rasia Lira P. Resende B. Paula F. V. Silva Guimarães D. (Eds.), Indigenous support network: Paths, projects and transformations (pp. 18–37). Psychology Institute, University of São Paulo. https://doi.org/10.11606/9786587596730

Paula C. S. Cukier S. Cunha G. R. Irarrázaval M. Montiel-Nava C. Garcia R. Rosoli A. Valdez D. Bordini D. Shih A. Garrido G. Rattazzi A. (2020). Challenges, priorities, barriers to care, and stigma in families of people with autism: Similarities and differences among six Latin American countries. Autism, 24(8), 2228–2242. https://doi.org/10.1177/1362361320940073

Pellicano E. Lawson W. Hall G. Mahony J. Lilley R. Heyworth M. Clapham H. Yudell M. (2022). ‘I knew she’d get it, and get me’: Participants’ perspectives of a participatory autism research project. Autism in Adulthood, 4(2), 120–129. https://doi.org/10.1089/aut.2021.0039

Silva Guimarães D. (2022). Indigenous psychology. In Zumbach J. Bernstein D. Narciss S. Marsico G. (Eds.), International handbook of psychology learning and teaching (pp. 1–22). Springer. https://doi.org/10.1007/978-3-030-26248-8_34-2

Tafla T. L. (2025). Camuflagem em Adultos Brasileiros Autistas / Camouflaging in Brazilian Autistic Adults. https://osf.io/76xwh

Tafla T. L. Viduani A. Arenas D. L. Shephard E. (2026, February 24). Pesquisa participativa e a importância da inclusão de experts por experiência na pesquisa em saúde – Possibilidades e desafios para o contexto brasileiro [Participatory research and the importance of the inclusion of experts by experience in health research - possibilities and challenges for the Brazilian context]. https://osf.io/preprints/psyarxiv/zqhwv_v1