Abstract
There is growing concern within the global mental health arena that interventions currently being executed to scale up mental health services in Africa will be ineffective unless simultaneous steps are taken to address people’s help-seeking behaviour. Drawing upon two conceptual tools arising from science and technology studies (STS), those of a “classification system” and “the black box,” this paper looks critically at discursive constructions of help-seeking in Africa within mental health research over the last decade. Research in this area can be divided into two dominant traditions: the knowledge-belief-practice survey and indigenous-knowledge-system approaches. Although the content and value-codes between these approaches differ, structurally they are very similar. Both are mediated by the same kind of system of classification, which demarcates the world into homogenous entities and binary oppositions. This system of ordering is one of the most stubborn and powerful forms of classification buried in the “black box” of the modernist/colonial knowledge archive and is fraught with many questionable Eurocentric epistemological assumptions. I consider whether there might be other ways of understanding help-seeking for mental illness in Africa and discuss two studies that illustrate such alternative approaches. In conclusion, I discuss some of the challenges this alternative kind of research faces in gaining more influence within contemporary global mental health discourse and practice.
Introduction
What, then, is the scope for decolonizing methodologies that are so clearly linked to formations of power and knowledge, so deeply shaped by their links to post-colonial and still-imperial forms of governance? . . . In the long run, there is only one way of finding out: by actually trying to contest homogenizing quantitative narratives by developing powerful and convincing counter-hegemonic accounts. (Du Toit, 2005, p. 14)
This paper looks critically at discursive constructions of help-seeking in Africa within mental health research over the last decade. Rather than focusing on the findings of such research, this paper is more interested in epistemological questions regarding the conventions of meaning-making that lie behind the knowledge that is produced, disentangling the power dynamics at play. In order to approach this task, I draw upon two conceptual tools arising from science and technology studies (STS), a broad theoretical corpus concerned with how health, bodies, and disease are politically and discursively produced in medical science and practice (Latour, 1999; Law, 2008). In particular, I utilize Geoffrey Bowker and Susan Star’s (1999) idea of “classification systems” and Bruno Latour’s concept of “the black box” (1987, 1999).
Classification, according to Bowker and Star (1999), is an essential and unavoidable part of our ability to navigate and decode the challenges of our lives. As defined by these scholars, a classification system is “a spatial, temporal, or spatio-temporal segmentation of the world . . . a set of boxes (metaphorical or literal) into which things can be put to then do some kind of work” (Bowker & Star, 1999, p. 10). Classifications thus create boxes, and it is the design of these boxes that mediates what can be put into them. Bringing to the surface the design plans that propel classification can be difficult because they may be as invisible as they are powerful. As Bowker and Star (1999, p. 286) stress, “Many scholars see categories and classification as coming from an absent sense of ‘mind,’ little anchored in the exigencies of work or politics.” Thus, what are concealed within classifications are the shared properties, which appear so natural and intrinsic, but which are in fact constructed ways of seeing and acting in the world. These are deeply buried in what Bruno Latour calls “the black box.”
According to Latour (1987) the black box holds all the common sense assumptions that a culture shares and which turn questions, priorities, and interests into facts. As Latour (1987, p. 206) puts it, the box is “well sealed” and people generally do not “live in a world of fiction, representation, symbol, approximation and convention: they are simply right.” In other words, the coded principles of classification become so taken for granted that their underlying scaffolding disappears. According to Latour (1999, p. 304) in later work, this concealment enables a focus on “inputs and outputs” and not on the complex processes that produce these effects. The complex processes to which Latour refers are all of the interests, values, and politics that shape how we see and think in the world. These dictate the design and limit the options of classifications. And this process is normalized and archived in such a way as to be inherited and accepted as common-sense reality.
Drawing on these ideas, this paper seeks to open up the “black box” of the knowledge produced on help-seeking for mental illness in Africa by contemporary mental health research. It examines how the classifications within this research contribute to producing the knowledge that they are supposedly designed simply to organize. The design plan of classification is multifaceted, involving complex cross-currents of interests and consequences. As Bowker and Star (1999, p. 21) discovered regarding the classification of illnesses, there is “a panoply of tangled and crisscrossing classification schemes held together by an increasingly harassed and sprawling international public health bureaucracy.” This paper therefore aims to unravel the tangle of power and interrelated knowledge assumptions that are embedded in classifications of help-seeking, making their hidden ties visible.
Research in this area can be divided into two dominant traditions, which I term the knowledge-belief-practice survey and indigenous-knowledge-system approaches. Although the content and value-codes between them may differ, I show how these two traditions are in fact structurally very similar. They are both mediated by the same kind of dominant system of classification, which demarcates the world into homogenous entities and binary oppositions. This system is one of the most powerful and stubborn forms of classification buried in the “black box” of the modernist/colonial inherited archive (Latour, 1991; Said, 1978).
This paper asks whether there might be other ways of understanding help-seeking for mental illness in Africa which are not necessarily informed by a modernist/colonial form of consciousness. In other words, it considers how we might classify help-seeking behaviour without reinventing dominant forms of Eurocentric power and privilege. If classification creates codes for meaning-making that are potentially harmful, the question is how we might “design classification systems that do not foreclose on rearrangements suggested by new forms of social and natural knowledge” (Haraway, 1991, p. 321). I highlight how two particular studies, which fall outside of the dominant research approaches, might offer a potentially fruitful terrain for engagement.
Many of the critiques made in this paper reflect a long line of thinking within critical health sciences research and theory dating back to the 1980s. I thus conclude this paper by considering why, for the most part, this body of work continues to remain marginalized within contemporary research on help-seeking in Africa.
Method
Several literature searches were undertaken to identify both qualitative and quantitative studies, published over the last decade, which have explored help-seeking for mental illness in Africa. The objective was not to be exhaustive, but to provide a picture of some of the main research approaches in this area. Online searches were undertaken in Medline and PsychInfo databases using the key phrases: “mental disorders,” “mental health,” “Africa” (including the names of all individual countries on the continent), “help seeking behavior,” “health care seeking behavior,” “help seek,*” “seek* help,” “seek* treatment,” “health care access,” “health care utilization,” “service uptake,” “treatment uptake,” and “treatment barriers.” Where applicable, keywords were combined with medical subject headings for the Medline databases and subject headings for the PsycINFO database. The reference lists of all applicable papers were scanned to identify further studies, and the authors of relevant papers were contacted for other potentially related research. In addition, researchers working in the field of global mental health were contacted for relevant references. These searches identified 48 relevant papers emerging from 14 African countries, which provide the basis for the analysis.
Analysis
Research on help-seeking for mental illness in Africa could be characterized by two main approaches, which I term the knowledge-belief-practice survey and indigenous-knowledge-system traditions. The relevant studies are marked and identified as belonging to each category in the references list. The analysis is divided into three sections, with the first two parts dealing separately with the main research approaches, followed by a final section in which I briefly discuss two studies appear to fall outside of the main research traditions.
Category 1: Knowledge-belief-practice survey approach
The most prominent approach to studying help-seeking for mental illness in Africa seeks to understand the pathways people will take to seek help and the potential barriers that prevent or delay people from accessing services, through the administration of large-scale, quantitative surveys. The central focus is on exploring people’s beliefs about the causes and symptoms of, and appropriate forms of treatment for, mental illness. As such, the notion of “belief,” and particularly cultural beliefs, emerges as a fundamental category mediating interpretations within this research tradition.
Indeed, the large majority of studies within this approach assert that people in Africa tend to hold “traditional beliefs” in “magic” and the “supernatural,” and as such, understand mental illnesses as “spiritual illnesses.” For example, in their study amongst people attending primary health clinics in Dar-es-Salaam, Ngoma, Prince, and Mann (2003, p. 353) assert: “In Africa, mental disorders . . . are perceived as a source of misfortune; ancestors and witches are believed to have a crucial role in bringing them about.” Similarly, in a study of students’ beliefs about the causes of mental illness in South Africa, Samouilhan and Seabi (2008, p. 75) note: In African culture, religious and spiritual beliefs inform all other beliefs, behaviours and practices . . . The African worldview subscribes to the idea that mental illness is caused by witchcraft, by a failure to connect spiritually with the ancestors.
These quotations capture dominant sentiments across the majority of studies, with an abundance of statements such as: “the majority of the Ugandan population still harbours cultural beliefs about mental illness” (Ndyanabangi, Basangwa, Lutakome, & Mubiru, 2004, p. 54); “Traditional notions . . . are widespread” (Deribew & Tamirat, 2005, p. 157); and, “The belief system of bewitchment/sorcery is still entrenched in the way of thinking and lifestyle of the African people” (Mkize & Uys, 2004, p. 67). This apparent widespread belief in the supernatural is widely emphasized as the key reason for the pervasive patronage of “traditional” forms of care in Africa. As unequivocally stated by Bekele, Flisher, Alem, and Baheretebeb (2009, p. 481) in their research into the pathways to psychiatric care in Ethiopia: Seeking care from traditional healers for mental illness is a reflection of the prevailing belief among the Ethiopian population that mental illnesses are caused by supernatural forces . . . As such patients usually resort to modern mental health-care services only after receiving traditional treatments.
These kinds of claims are ubiquitous throughout this type of research, with widespread comments such as: “People in Africa consult traditional healers because of cultural beliefs” (Mirza, Okitapoy, & Jenkins, 2006, p. 143); “Due to cultural beliefs about the causes of mental illness the mentally ill will consult a traditional healer first” (Ndyanabangi et al., 2004, p. 55); and, “The cultural background of an individual determines who and where to go for help” (Mkize & Uys, 2004, p. 67).
A very particular understanding of human action, including care-seeking, is embedded in these assertions, one which assumes that people behave in essentially predictable and rational ways, shaped primarily by a set of beliefs held by the care-seeker. Moreover, these propositions are assumed to be determined almost exclusively by supposed traditional African “culture.” What is striking about these quotations is how the notion of African “culture” is conceptualized as a homogenous entity, comprised of clear and unchanging social boundaries. All Ethiopians, all Nigerians, all Senegalese people, all Africans for that matter, are bound together, with the underpinning assumption that they ultimately share the same kinds of beliefs and practices. Not only are African “cultural beliefs” constructed as internally monolithic, they also tend to be represented as being in direct opposition to Western biomedical knowledge. For example, Burns, Jhazbhay, and Emsley (2011, p. 539) in their study of help-seeking in South Africa assert: “While studies in high-income countries show that both psychotic patients and their relatives attribute their illnesses to biological or natural causes, it appears that their counterparts in low- and middle-income countries (LMICs) invoke spiritual and traditional explanations.”
Similarly, Ngoma et al. (2003, p. 353), mentioned above, claim: “Traditional medicine and biomedicine differ in their concept of the nature and causes of mental illness. In Africa . . . such disorders may be viewed in terms of magical and religious causes, but rarely as diseases within the Western biomedical paradigm.”
Analogous sentiments are expressed by Adewuya and Makanjuola (2009, p. 124) in their research on the treatment for mental illness among Nigerians: “A strong belief in supernatural causation may imply that offering Western medical care would be futile.” In the same vein, Gureje and Lasebikan (2006, p. 48) based on their research in Nigeria conclude: “Belief in the supernatural causation of mental illness . . . is likely to make persons with mental illness unwilling to seek formal services for mental disorders.” Similarly, Samouilhan and Seabi (2008) referred to above proclaim, “A strong belief in traditional ideology could lead to the rejection of formal mental health services,” whilst Coleman, Loppy, and Walraven (2002, p. 381) in their study of epilepsy in rural Gambia conclude, “In most parts of sub-Saharan Africa, notions about epilepsy are rooted not in a medical model but in a spiritual model.”
In this research, a line of demarcation is therefore constructed between Africa and the West, between traditional African healing systems and beliefs and Western biomedical frameworks of knowledge and care. This bifurcation evolves further as it appears to produce a proliferation of negative assumptions about African people and their way of life. Apparent African beliefs and practices are represented as inherently primitive, irrational, and damaging, as opposed to Western biomedical truths which are valorized as essentially sophisticated and modern. For example, Osungbade and Siyanbade (2011, p. 428) conclude in their paper on help-seeking in a rural Nigerian community: “The dominant tendency to use traditional treatment over modern [emphasis added] medicine in many African countries is common and worrisome [emphasis added] as it amounts to denial of prompt and appropriate [emphasis added] treatment.”
In a similar manner, Selassie (2008, p. 1645) in his analysis of the management of epilepsy in sub-Saharan Africa proclaims: The causal link of epilepsy to natural spirits has neither scientific basis [emphasis added] nor allows rational approach [emphasis added] for intervention. To the contrary, it wastes valuable time and the meagre resources of the patients by interfering with a possible link with biomedical care providers until too late.
These assertions are hardly value-free. Apparent traditional cultural beliefs and practices are given an inevitable appearance of primitiveness and inferiority, in stark contrast to supposedly enlightened, Western scientific truths. Indeed, these value-judgements are most pertinently revealed in the kinds of recommendations put forward by many of the studies, where it is explicitly asserted that interventions need to focus on “correcting” false cultural beliefs and behaviours so they are more in line with a biomedical system of knowledge and practice. It is widely emphasized that there is a need for education and awareness-raising campaigns, “aimed at modernizing general population causative models and attitudes” (Ohaeri & Fido, 2001, p. 498). It is asserted that such programmes must “teach people about the real symptoms, causes and treatment of mental health problems” (Deribew & Tamirat, 2005, p. 153); “sensitize residents to Western knowledge” (Sharkawy, Newton, & Hartley, 2006, p. 211); and “encourage utilization of modern treatment” (Osungbade & Siyanbade, 2011, p. 428). This is seen as essential in order to “change irrational perceptions” (Deribew & Tamirat, 2005, p. 153), or else “those in need are likely to continue using the traditional pathways to care in preference to a new alien service” (Eaton & Agomoh, 2008, p. 557). Not only is there a strong emphasis on educating African communities, there are also widespread calls for the training and education of traditional healers. As Bekele et al. (2009, p. 482) argue: It is important to train them [traditional healers] about early detection and timely referral of psychiatric patients . . . This will reduce the risk of disability and economic burden to the individual and country, especially by avoiding undue delay [emphasis added] of treatment and expenditure on non-effective treatments [emphasis added].
Or in the most unambiguous words of Mkize and Uys (2004, p. 68): Health professionals should embark on educating [emphasis added] traditional healers in the concepts of mental illness . . . and the recognition of signs for referral to health professionals, thus shortening the clients’ journey to proper [emphasis added] health.
Pulling these threads together, the knowledge produced by this research tradition is underpinned by a host of interrelated assumptions and meaning-codes about the supposed nature of human action, about culture, and about medical science. These particular assumptions take on a “natural” and self-evident quality with this research, ultimately “black-boxed” within the supposed normalized categories of science, culture, and belief. And yet these categories are far from natural or given, having been the subject of much critique by STS, postcolonial, and anthropological scholarship.
For example, the assumption within this research tradition that human action, including care-seeking, is inherently stable and rational, based upon the beliefs that people hold, has been rigorously disputed. Much critical work has demonstrated how, far from operating in a mechanical, law-like, cause-and-effect manner, human action is profoundly complex and unpredictable, mediated by an array of contextual processes (Law, 2008; Mol, 2008). Indeed, in his analysis of some of the central epistemological presuppositions implicit in what he calls an “empiricist theory of medical language,” Byron Good (1994) highlights how the notion of “belief” has come to function as a key analytical term within medical science discourse. He shows how this concept of “belief,” which is deeply rooted in a rationalist philosophy of science, reduces all of the contingencies and vicissitudes associated with illness and related behaviours to a set of propositions held by individual actors in their minds. According to Good, such reductionism has in turn so often led to misleading accounts of how and why people behave in the ways that they do, and inappropriate forms of medical practice.
The inherent assumption embedded within the knowledge-belief-practice tradition of research that “culture” is a monolithic and distinct entity, comprised of tidy and unchanging social boundaries, has also been widely destabilized. For example, it has been argued that identities, cultures, and structures of knowledge, including those on the African continent, are neither homogenous nor static. Rather, these are complex and disjointed social constructs which are constantly in flux, having assimilated and mutated over centuries (Comaroff & Comaroff, 2012). As critical social anthropologist Lesley Green (2008, p. 148) argues: “To suggest that ‘culture’ has existed without internal differences of opinion, innovation, or contact with new ideas throughout human history is demonstrably false . . . The idea that ‘a knowledge’ can be wholly ‘indigenous’ to ‘a people’ . . . is just not a complete picture.”
The work of sociologist of knowledge Arun Agrawal (1995, 2002) is particularly illuminating in this regard. He demonstrates how the demarcation between Africa and the West, between traditional “African” systems of knowledge and “Western” knowledge frameworks, is unsubstantiated. Providing diverse examples, he shows how over the last several centuries, “African” and “Western” forms of knowledge have experienced much contact, exchange, and transformation, leading to extensive overlap between them. Agrawal (1995) unpacks in great detail three major themes that presumably separate “African” systems of knowledge and “Western” knowledge frameworks: substantive differences, methodological and epistemological differences, and differences related to context. Drawing on a diverse range of theoretical traditions he shows how none of these claims have substantial grounds: “attempts to draw a strict line between Western and African knowledges on the basis of method, epistemology, context-dependence, or content . . . are ultimately untenable” (Agrawal, 2002, p. 293). Ultimately, he shows how in conceiving “culture” as a homogenous and distinct entity, all the multiplicity and dynamism of identities and systems of knowledge and practice are made invisible and erased.
Furthermore, the assumption deeply embedded within this research tradition that supposed “traditional” African cultural beliefs and practices are inherently primitive and irrational, whilst Western biomedical truths are intrinsically rational and superior has been the subject of much critique by various STS and postcolonial researchers (e.g., Comaroff & Comaroff, 2012; Connell, 2007; Latour, 1991). According to such scholars, our identifications of “rational” and “superior” forms of knowledge and practices are never given or self-evident, but rest upon all kinds of values and assumptions around what “the modern” comprises. For example, in his book We Have Never Been Modern (1991, p. 76), Bruno Latour argues that things are never inherently “modern” or “premodern”; only by means of a “harsh disciplining” and the “work of sorting out, cleaning up and dividing up” are certain entities compelled to become modern, and others designated as archaic or irrational. For Latour, then, in constructing the modern we have been caught up in a process of classification and reclassification and, as such, if we change the “classification principle,” we can get a “different temporality on the basis of the same events” (Latour, 1991, p. 75).
Research on help-seeking within this tradition thus appears to be underpinned by a host of questionable and Eurocentric assumptions. These assumptions coalesce around a very particular way of classifying the social world, one which tends to demarcate the world into homogenous entities and binary oppositions: “cultural beliefs” versus “biomedical truths”; “Africa” versus “the West”; “traditional” versus “modern”; “primitive” versus “civilized.” This system of ordering is indeed one of the most powerful and stubborn forms of classification buried in the “black box” of the modernist/colonial inherited archive, including colonial medicine (Connell, 2007; Green, 2012; Said, 1978). As most pertinently demonstrated by Edward Said (1978) in his Orientalism, through the metalanguage of colonialism and modernity, imaginary lines were drawn and homogenous identities were constructed. In legitimizing tropes of otherness and polarizations of difference, these binaries served to unambiguously distinguish Europe from other societies, and validate its supposed “positional superiority” (Said, 1978, p. 7).
Colonial medicine was indeed intimately entangled with this kind of thinking, characterized at least in part by the struggle between supposed “rational” Western science and “primitive” “traditional” therapeutics (Comaroff, 1993; Vaughan, 1991). In its imaginary, “Western” medical science embodied the highest form of rationality and modernity, in contrast to the supposed backward and superstitious nature of “indigenous” cultural beliefs and practices. Put bluntly, medical modernization of African populations entailed attempting to drive out supposed “primitive” traditional therapeutics, and promoting forms of care which were based solely on medico-scientific theories and practices.
Category 2: Indigenous-knowledge-system approach
I term the second dominant body of research which seeks to understand help-seeking for mental illness in Africa, the indigenous-knowledge-system approach. This approach draws heavily on the “new cross-cultural psychiatry” tradition, and in particular Arthur Kleinman’s (1980, 1988) “explanatory model” framework. In the late 1970s and 1980s, Kleinman and colleagues criticized the tendency of epidemiological research worldwide to assume that Western psychiatric models and taxonomies are universally applicable. Heavily influenced by medical anthropology and sociology, these scholars condemned psychiatric research for assuming the inevitable superiority of Western biomedical frameworks and classification systems. Advocating a conceptual distinction between disease and illness, such scholars asserted that “disease” is the malfunctioning of the body, whereas “illness” comprises the lived experience of suffering (Kleinman, 1980, 1988). And this subjective understanding of disease, according to such scholars, is mediated by people’s “explanatory models,” which are “shaped by cultural factors governing perception, labelling, explanation, and valuation” and which play a fundamental role in determining how people understand and respond to disease (Kleinman, Eisenberg, & Good, 1978, p. 252). For these scholars then, different cultures will have unique explanatory models that are distinct from, but equally legitimate to, Western psychiatric nosology.
Drawing on this “explanatory model” framework, and most commonly using qualitative methodologies, the second dominant research tradition focuses on exploring local people’s explanatory models, and how these shape their help-seeking behaviours. In line with the “explanatory model” framework, it is commonly asserted within this body of research that African people have their own explanatory models, and own forms of healing, which are inherently different from Western views. For example, Crawford and Lipsedge (2004, p. 143) conclude from their research amongst Zulu-speaking South Africans: “Models of Western psychiatry tend to locate the source of psychological disturbance within the individual. In stark contrast, the Zulu tradition locates both the source of individual psychological distress and responsibility for its treatment firmly within the community.”
Relatedly, based on their research on the “explanatory models” of mental illness in Ethiopia, Teferra and Shibre (2012, p. 1) assert: “There is a dichotomous belief regarding what causes severe mental disturbance: people living in western countries tend to focus on biological and psychosocial factors; whereas in non-western countries the focus is mainly on supernatural and religious factors.”
In a similar fashion, Okello and Musisi (2006, p. 70) conclude from their research amongst Bagandan Ugandans, “Although the symptoms of depression were seen as constituting an illness, its conceptualization, name, causation and treatment were not deemed to fit into conventional western biomedical psychiatry.” By the same token, Mosotho, Louw, and Calitz (2011, p. 447) and Mbanga et al. (2002, p. 69) emphasize respectively that an important finding from their research in South Africa “is the marked variation in manifestation of the symptoms of the anxiety among Sesotho speakers in comparison with Westerners” and that “Attitudes towards and beliefs about schizophrenia . . . differ substantially from those described in previous work in the West.”
What tends to emerge within this research is that these local explanatory models are not only distinct from, but are also just as valid as those arising in the West, or as Okello and Musisi (2006, p. 61) put it, are of “equal value to western biomedical psychiatry.” Such assertions of equality are most pertinently revealed in the recommendations put forward by many of the studies. Rather than stressing the need to educate people and modify their beliefs, as was characteristic of the previous research tradition, it is widely asserted that the onus lies on service providers, who need to better appreciate local explanatory models. As Johnson, Mayanja, Bangirana, and Kizito (2009, p. 276), drawing from their research on depression in Uganda, argue: “It is neither appropriate nor effective to simply transport Western-based methods of conceptualizing and treating mental illness to African countries … professionals in Uganda and elsewhere should be educated about cultural conceptions.”
Similarly, Mosotho et al. (2011, p. 447) in their study of anxiety among Sesotho-speaking South Africans proclaim: “There should be no room for cultural arrogance, as Africans are neither Americans nor Europeans. African people should be treated within the framework of their culture and belief systems.”
Thus, traditional beliefs are categorized as entities that should be recognized and celebrated, rather than disparaged and modified. Supposed “traditional” healing practices are classified in a similar light. Many scholars within this research tradition praise the work of traditional healers, portraying them as competent care-providers. For example, Mosotho et al. (2011, p. 446), quoted above, assert: “Spiritual and/or traditional healers have played a significant role in combating a range of diseases that have affected African people for centuries . . . they therefore deserve a place next to mental health professionals trained in the western tradition.”
Similarly, Crawford and Lipsedge (2004, p. 143) argue: “Traditional healers are highly respected members of the community and provide great stability… [They] have a deep understanding and knowledge of the Zulu peoples’ historical, religious and cultural beliefs.”
According to the large majority of studies within the indigenous-knowledge-system approach then, there may be ways of understanding and responding to mental illness that are different from biomedical frameworks, but which are not necessarily inferior. Research within this approach thus seems to complicate the content of what falls under “the modern” and “the premodern,” refusing to place “African” cultural beliefs and healing systems in one column and “Western” biomedical knowledge and practices in the other. And yet the knowledge produced within this approach is in fact structurally very similar to the previous tradition. Although the values have changed, the logic has not.
Once again, help-seeking behaviour is understood to be determined first and foremost by people’s cultural beliefs. Like the first research tradition, human action is thus assumed to be essentially predictable and rational, determined primarily by cultural beliefs. And once again, this notion of “cultural belief” tends to be construed in monolithic terms. Essentialist claims are widely made within the studies, with common phrases such as: “the African people” (Mosotho et al., 2011, p. 447); “the Zulu peoples’ cultural beliefs” (Crawford & Lipsedge, 2004, p. 143); “African people should be treated within the framework of their culture and belief systems” (Mosotho et al., 2011, p. 447); or as Okello and Musisi (2006, p. 61) explicitly state, “People from different cultural contexts and traditions define and experience reality in very different ways, including their views about mental disorders.” Thus, as with the previous research tradition, “Africa” tends to be classified as a homogenous entity, with the subjectivities and systems of knowledge prevailing on the continent bound seamlessly together.
Moreover, rigid polarizations and binary oppositions similar to those found in the knowledge-belief-practice survey research approach appear to be strongly retained. Once again, strong lines of demarcation are constructed between supposed Western biomedical models and apparent indigenous African healing and belief systems. There is ubiquitous talk in the studies about “models of Western psychiatry . . . in stark contrast to the Zulu tradition” (Crawford & Lipsedge, 2004, p. 143), or assertions that “Traditional beliefs should be given equal value to western biomedical psychiatry,” and “Western-based methods of conceptualizing and treating mental illness” should not be “transported to African countries” (Johnson et al., 2009, p. 276). Indeed, the primary focus of research within this tradition is to distinguish apparent African traditional understandings and healing systems from those which supposedly reside in the West, in an attempt to legitimize and celebrate the former.
At the same time, the explanatory model approach upon which these studies are based is structured by an inherent distinction between disease and illness. That is, at the core of this approach is the assumption that “real” and objective disease is distinguishable from the “subjective” experience and meaning of illness. This dualism of objective disease and subjective experience of illness has been the subject of much critique by critical STS and anthropological scholars (Craffert, 1997; Good, 1994; Mol, 2008). According to such scholars, this binary, now at the heart of most subspecialities of medicine, is deeply rooted in the shifts that occurred in medical science during the 18th century and the rise of the “medical gaze.” More specifically, with the discovery of autopsy and the rise of modern pathology, it became possible for the physician to identify disease in a way totally independent of the patient’s experience of it. From this point on, disease was increasingly seen as autonomous from patients’ experienced sense of affliction, and the patient’s capacity for self-knowledge and interpretation were isolated from the functioning of the body. As such, disease entities were conceptualized as resident in the physical body, whether grossly evident, as the widely reproducing cells in cancer, or more subtly evident through their effects, as in the disordered thoughts and feelings of schizophrenia or major depression. Put differently, disease was assumed to be biological, universal, and ultimately transcending social and cultural context. Although the experience and understandings of illness may vary by social and ecological context, real disease or pathology does not.
And yet this dualism has frequently been found to be incongruous with what critical STS and anthropological researchers observe in the field (Craffert, 1997; Good, 1994; Mol, 2008). Such research reveals that people do not just represent and make meanings of disease through sociocultural processes. Rather, the very nature of disease, and associated signs, symptoms, and definitions are constituted by the complex socialcultural milieu in which people live. As such, disease and illness are essentially intermingled, at once biological, moral, spiritual, emotional, social, cultural, and political. Ultimately, as revealed by such researchers, abstracting of the world of physical objects and physiological processes from social and meaningful phenomena has frequently led to distorted forms of medical understanding and practice.
In sum, although the second research approach attempts to destabilize many of the Eurocentric assumptions of the first tradition, in retaining the same form of classification, one which is based on essentialized categories and rigid binary oppositions, it ends up reproducing the very epistemological frameworks it seeks to contest. This in turn ultimately limits the possibility of an effective subversion of the modernist/colonial epistemological order and its many questionable assumptions. As Green (2012, p. 4) most pertinently articulates, “In uncritically accepting the conceptual structure of modernity, the capacity to offer different thought is curtailed.” To use her analogy, “transposing the colours on the chess board does not change the frame.”
An alternative approach?
The question then is, can we find other ways of understanding help-seeking for mental distress in Africa based on alternative kinds of systems of classification which are neither Eurocentric nor Afrocentric? Might we be able to change the frame, rather than just the content, of conversations on help-seeking? And could this transform the ways in which we understand how people seek support for mental illness in Africa?
Two particular studies, grounded in more critical and constructive perspectives and employing in-depth ethnographic methodologies, may offer a potentially fruitful terrain for engagement. First, Ursula Read (2012; Read, Adiibokah, & Nyame, 2009) conducted 14 months of ethnographic research amongst people with mental illness and their families living in rural communities in Kintampo, Ghana, which included inter alia an exploration of help-seeking behaviour. She found that people with mental illness drew upon and experimented with a kaleidoscopic range of healing modalities and therapeutic resources in diverse but fundamentally pragmatic ways. In particular, her research revealed that a preference for one form of treatment over another was driven less by beliefs about the nature of illness and its causation, than by a practical attempt to restore well-being and attain positions in which valued forms of subjectivity could be exerted. Importantly, these subjectivities emerged as multiple, frequently based upon potentially conflicting rationalities and deeply entangled with socially meaningful processes.
For example, Read found that many people discontinued antidepressant or psychotropic medications not because they did not know about the potential benefits, but because such treatments frequently led to adverse effects that disrupted their ability to work, created dependencies, and contributed to all kinds of family conflicts. Similarly, the widespread patronage of traditional healers was often less about “cultural beliefs,” than the manner in which the treatment provided by such healers incorporated some fundamental and irreducible aspects of wellness and healing for many people. Ultimately, Read’s research suggested that a focus on “beliefs,” defined in generic terms, tends to obscure the many crucial aspects of wellbeing and recovery that are important to patients and their families and which shape the therapeutic choices they make.
In a similar manner, René Devisch, Dimomfu, Le Roy, and Crossman (2001) explored the dynamics surrounding help-seeking practices, including those related to mental health, of residents living in Kinshasa, Congo. They found that help-seeking was inherently idiosyncratic and fragmentary, consistently shifting between a plurality of therapeutic settings. Service users and their families tended to visit and consistently move between both biomedical treatments and indigenous healing practices. Both of these healing systems were seen to provide partial and transitory solutions, functioning as sources of both constraint and opportunity; comfort and discomfort. Through the choices made, the health-seeker attempted to find solutions that “fit” with his or her identities and moral landscapes. Importantly, such subjectivities and value hierarchies were intimately shaped by local conceptualizations of community and personhood, understandings which were, in turn, deeply embedded in the spiritual, the corporeal, and the social community. Ultimately, Devisch and colleagues argue that without a complex understanding of how relatedness and intersubjectivity shape conceptualizations of “wellness” and “recovery,” it is hard to grasp the logic behind the therapeutic itineraries that people follow.
These two studies employed careful ethnographic methods to build up a detailed familiarity with the social life and practices of those studied. Rather than focusing solely on “cultural beliefs,” these scholars attempted to tap into the tremendously complex political, social, and structural environments in which help-seeking arise. Moreover, rather than assuming a kind of homogeneity and distinctiveness of entities which can be captured through rigid categories, such research was premised on the assumption that identities and actions are fluid and interdependent. People were understood to move between multiple healing modalities, to hold diverse beliefs and values, and to possess an assortment of needs and priorities, none of which could be fully understood or spelled out in rational terms. Understandings and behaviours thus materialized as multiple and circumstantial matters that were difficult to pin down and generalize precisely because they were interdependent and involved sociopolitical questions about multifaceted individuals in complex social milieus. Similarly, all healing practices surfaced as partial and limited, as diverse entities with both gaps and contradictions. No one mode of healing was assumed to be inevitably superior to another, but all healing systems were understood as ultimately incomplete and indeterminate.
As such, this research resisted bounded and totalizing accounts of how people seek support for mental illness. No simple explanations and definitive solutions were provided. Rather, what emerged most strongly through this research was the need for in-depth and provisional understandings of local circumstances and conceptualizations of wellbeing and recovery, for more partial forms of categorizing, and ultimately more nuanced kinds of recommendations. Accounts such as these therefore have crucial implications for the prospects of building understandings of help-seeking for mental illness that are more robust, more localized, and are indeed more connected to local histories and relationships. In changing the ways in which sociocultural influences were categorized, this research begins to shift the grounds on which questions about the nature of help-seeking may be posed and explored. Ultimately, such research holds great potential for articulating help-seeking for mental illness in postcolonial Africa through more appropriate configurations and possibly along new epistemic lines.
Conclusion
This paper has opened-up the “black box” of knowledge on help-seeking for mental illness within contemporary empirical research, arguing that contemporary research in this area can be understood as dominated by two main research traditions: the knowledge-belief-practice survey and indigenous-knowledge-system approaches. While there are obvious differences between them, both approaches are structured by the same kind of system of classification, which is deeply embedded in the knowledge tradition of modernity and colonialism. Both research approaches have a single, monolithic benchmark by which to judge and value the world; they share a view of identities, cultures, and knowledges that denies change, complexity, and multiplicity, as well as the movement of people and things in more than one direction; they both possess a rationalist understanding of human behaviour as mechanical and based upon law-like principles of cause and effect; and they are both premised on Africa’s distinctiveness and essential difference.
The dominance of this particular system of ordering has worrying implications. For example, the first research tradition’s widespread calls for education programmes which correct people’s “irrational” beliefs and behaviours and teach traditional healers “proper” modes of caring tend to reproduce old forms of oppressive power and medical elitism. This in turn risks subjugating, rather than empowering both mental health service users and providers (Kirmayer, 2012; Levine, 2012). Indeed, these particular proposals are part of the growing calls within global mental health discourse for greater “mental health literacy” amongst service users and the general population (Ganasen et al., 2008; Petersen et al., 2011). The concept of mental health literacy ultimately translates into being literate in a medico-scientific system of knowledge (White & Sashidharan, 2014). These kinds of proposals also share much with the growing effort to bring traditional healers “in line” with biomedical science by testing the efficiency of their practices through the principles and methods of science. This has been described as resulting in a kind of “Randomized Controlled Crime,” as “alternative” healing systems are tolerated only so long as they can be shown to have a scientific basis (Adams, 2002, p. 679; also Levine, 2012).
At the same time, the recommendations made by the knowledge-belief-practice survey research tradition may fail to achieve their anticipated effects because they are based on knowledge that insufficiently captures how and why people actually seek help for mental illness. Is it possible that the current underutilization of services in Africa is less related to people’s supposed erroneous beliefs, than to a potential disconnection between how research understands people’s needs and behaviours and the actual ways of life and forms of meaning-making that prevail within the community? Could the high levels of usage of “traditional” healers in Africa occur not because people are “ignorant,” but because the care provided by such healers is valuable to those who access them?
The indigenous-knowledge-system research tradition attempts to understand and validate alternative ways of knowing and being which may lie outside of medico-scientific metaphysical realities. However, the proposals put forward by this research tend to romanticize and valorize all that goes under the name of “traditional medicine” or “traditional beliefs,” whilst delegitimizing Western biomedical forms of treatment. This could have potentially dangerous consequences, as the case of HIV/AIDS in South Africa suggests. Here, “African medicine” was advocated as the antithesis of “Western science,” a polarization undergirding the state’s policy to deny HIV-positive people antiretrovirals, which cost millions of South Africans their lives (Green, 2012). The idea that biomedical treatments are irrelevant and inappropriate for people with mental health problems in Africa, as the second research tradition sometimes seems to suggest, could indeed have similar dire repercussions. People may be refused psychotropic medications, treatments which have been shown to have real and significant benefits for many people with mental illness in Africa, particularly those with illnesses of a more severe nature (Patel & Thornicroft, 2009).
What this critique seems to imply is that there is a need for research on help-seeking in Africa (and elsewhere) to reconceptualize the needs and priorities, forms of meaning-making, and ways of responding to illness that prevail within communities. This requires considering how research might tap into epistemologically diverse sociomoral frames of illness and recovery on their own terms, and within their own metaphysical worlds. Most certainly this is not an easy task, and raises all sorts of slippery epistemological questions around how evidence is produced, evaluated, and legitimized (Levine, 2012). These kinds of questions need to be opened up for further consideration and debate within the global mental health arena.
This paper has suggested that studies that employ careful, in-depth ethnographic methods might offer useful resources in this regard, developing theory-rich knowledge that is deeply entangled with local realities. In the two examples of such studies discussed, the researchers began by thinking critically and reflexively about the larger organizing principles guiding their research. Both studies sought to rethink how aspects of society, social change, human behaviour, agency, culture, and identities relevant to help-seeking might be captured. Ultimately, research like this could help create a more democratic archive of knowledge on service uptake in Africa, one which is based on alternative and more appropriate knowledge codes and classifications.
What is suggested here is not particularly novel, but reflects a long line of thinking within critical health sciences research and theory. Indeed there is a rich legacy of critical debate dating back to the 1980s within medical anthropology (e.g., Good, 1994; Helman, 1984; Singer & Baer, 1995) and what has been termed the “psy-disciplines,” including psychology and psychiatry (e.g., Danziger, 1997; Ingleby, 1981; Swartz, 1998), which has problematized the assumptions of universalism and rationalism underpinning the biomedical system of knowledge and practice. Moreover, this work has destabilized the essentialist undertones of the indigenous knowledge systems approach, and questioned its ability to dismantle the biomedical hegemony. And this work has stressed the need for more nuanced and critical forms of health research which are based on ways of knowing and ordering knowledge alternative to those arising from the modernist/colonial epistemological order.
And yet, despite these calls critical health research is to a large extent still marginalized in the public health arena, relegated to a fairly well-defined circuit of institutions and journals. And as suggested in this paper, contemporary studies on help-seeking for mental illness in Africa appear to be no exception. It is pertinent to ask why this might be so. Paradoxically, many of the problematic features of research on help-seeking in Africa highlighted in this paper are precisely those which make it attractive to governments and donor institutions. The logic of the contemporary global knowledge economy increasingly requires information that is useful for the processes of government and planning, and is thus able to make social and political spaces legible in relatively homogenous and universalizing ways (Du Toit, 2005). Economies of scale in government, in decision making by policy-makers, and in assessments by donor agencies increasingly depend upon uncontroversial, policy-relevant forms of knowledge which are based on replicable methodologies and categorical schemas. These pressures for uniformity have recently been alluded to by key proponents of global mental health, who have argued that complexity and nuance are unlikely to convince governments and attract donors (Patel, 2014; Saraceno et al., 2007). Indeed, as asserted at the 2006 annual conference of the Association of African Psychiatrists & Allied Health Professions: Many donors and policy makers are not convinced that mental health care is worth the investment. It is our task . . . to provide the kind of “hard evidence” . . . to help to persuade donors and policy makers that investing in mental health care is not a “luxury,” but a bare necessity. (Ventevogel, 2006, p. 273)
In the face of this call for hard evidence, it is a challenging task to create a space for more fluid and provisional accounts of help-seeking, which cannot be abstracted from the complexity of local context and cannot easily be transported from one context to another. Yet the costs of failing to open-up this space may be high, as clearly illustrated in James Scott’s (1998) enquiry into why many efforts to better the human condition have gone tragically awry. In his analysis, Scott provides examples of all sorts of social, economic, and health-related projects which ended up wasting considerable amounts of money on inappropriate interventions because they were based on decontextualized and standardized forms of information and schemas. As such, this paper is a plea for mental health researchers to resist the homogenizing demands of the knowledge economy by acknowledging the importance of other ways of knowing how people currently seek help for mental illness in Africa and elsewhere. This, in turn, might go some way towards better understanding and addressing the multilayered processes that deprive so many people the opportunities for mental well-being.
Footnotes
Acknowledgements
I would like to thank Professor Brenda Cooper, Dr Nicki Thorogood, and the London School of Hygiene & Tropical Medicine (LSHTM) Qualitative Research Group for their helpful comments on earlier drafts of this article.
Funding
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This research was funded by three PhD fellowships: Patrick and Margaret Flanagan Scholarship, Rhodes University, South Africa (2011–2013); Doctoral Abroad Scholarship: National Research Foundation, South Africa (Grant No: 74724, 2011–2013); and Oppenheimer Memorial Trust PhD Award, South Africa (Ref: 19512/01, 2011–2014).
References marked with asterisks indicate studies included in the meta-analysis.
*Knowledge-belief-practice survey approach; **Indigenous-knowledge-system approach; ***Alternative approach.
