The aim of this population-based study was to examine how parents of Icelandic children with physical disability view the services of physical, occupational, and speech therapists and how family centered those services are. A secondary aim was to compare the differences of parental perceptions of therapy services based on age, residence, and disabilities. Parents of 88 (46%) children aged 2–18 answered the Measure of Processes of Care–20 (MPOC-20), and six parents participated in a focus group interview. Descriptive data were used to explore central tendency and variability, and comparisons were made using analysis of variance. Overall, the parents found the therapy services respectful, supportive, and coordinated; they felt enabled in their parent role and worked mostly in partnership with the professionals. Nevertheless, parents perceived they received insufficient information from therapists. Parents reported a wish for more cooperation, teamwork, and a key worker. Findings indicate that the MPOC is reliable and easy to use within the Icelandic context.
BammELRosenbaumP (2008) Family-centered theory: Origins, development, barriers, and supports to implementation in rehabilitation medicine. Archives of Physical and Medical Rehabilitation89: 1618–1624.
2.
BjerreIMLarssonMFranzonA-M. (2004) Measure of processes of care (MPOC( applied to measure parent’s perception of the habilitation process in Sweden. Child: Care, Health and Development30(2): 123–130.
3.
BogdanRCBiklenSK (1998) Qualitative Research for Education: An Introduction to Theory and Methods (3rd edn). Needham Heights, MA: Allyn & Bacon.
DavisKGravidia-PayneS (2009) The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual & Developmental Disability34(2): 153–162.
6.
DempseyIKeenD (2008) A review of processes and outcomes in family-centered services for children with a disability. Topics in Early Childhood Special Education28(1): 42–52.
7.
DykePButtigiegPBlackmoreAM. (2006) Use of the Measure of Processes of Care for families (MPOC-56( and service providers (MPOC-SP( to evaluate family-centered services in a paediatric disability setting. Child: Care, Health and Development32(2): 167–176.
8.
EgilsonST (2011) Parent perspectives of therapy services for their children with physical disabilities. Scandinavian Journal of Caring Sciences25: 277–284.
9.
EliassonACKrumlinde-SundholmLRösbladB. (2005) Manual ability classification system for children with cerebral palsy 4-18 years. Available at: http://www.macs.nu/files/MACS_English_2010.pdf.
10.
GranatTLaganderBBörjessonM-C (2002) Parental participation in the habilitation process – evaluation from a user perspective. Child: Care, Health and Development28: 459–467.
11.
HalldorsdottirHBirgisdottirNB (2006) Family-centred service to children with disability and their families: A research plan. [Fjölskyldumiðuð þjónusta við fötluð börn og fjölskyldur þeirra: Rannsóknaráætlun]. Unpublished BS Thesis, University of Akureyri. Available at: http://hdl.handle.net/1946/194.
12.
KingGKingSRosenbaumP (1996) Interpersonal aspects of care-giving and client outcomes: A review of the literature. Ambulatory Child Health2: 151–160.
13.
KingSKingGRosenbaumP (2004a) Evaluating health service delivery to children with chronic conditions and their families: Development of a refined measure of processes of care (MPOC-20). Children’s Health Care33: 35–57.
14.
KingSRosenbaumPKingG (1995) The Measure of Processes of Care (MPOC(: A Means to Assess Family-Centred Behaviours of Health Care Providers. Hamilton, Ontario: McMaster University.
15.
KingSTeplickyRKingG. (2004b) Family-centered service for children with cerebral palsy and their families: A review of the literature. Seminars in Pediatric Neurology11(1): 78–86.
16.
KingGTuckerMABaldwinP. (2002) A life needs model of pediatric service delivery: Services to support community participation and quality of life for children and youth with disabilities. Physical and Occupational Therapy in Pediatrics22(2): 53–77.
17.
McConachieHLoganS (2003) Validation of the measure of processes of care for use when there is no child developmental centre. Child: Care, Health and Development29: 35–45.
18.
MacKeanGLThurstoneWEScottSM (2005) Bridging the divide between families and health professional’s perspectives on family-centred care. Health Expectations8: 74–85.
PickeringDBusseM (2010) Disabled children’s services: How do we measure family-centred care?Journal of Child Health Care14(2): 200–207.
22.
RaghavendraPMurclandSBentelyM. (2007) Parents’ and service providers’ perceptions of family-centered practice in a community-based, paediatric disability service in Australia. Child: Care, Health and Development33: 586–592.
23.
RosenbaumPKingSLawM. (1998) Family-centered service: A conceptual framework and research review. Physical and Occupational Therapy in Pediatrics18(1): 1–20.
24.
RosenbaumPLPalisanoRJBartlettDL. (2008) Development of the gross motor function classification system for cerebral palsy. Developmental Medicine and Child Neurology50(4): 249–253.
25.
RosenbaumPStewartD (2004) The World Health Organization international classification of functioning, disability and health: A model to guide clinical thinking, practice and research in the field of cerebral palsy. Seminars in Pediatric Neurology11(1): 5–10.
26.
SloperPGrecoVBeechamJ. (2006) Key worker services for disabled children: What characteristics of services lead to better outcomes for children and families?Child: Care, Health and Development32: 147–157.
TruteBHiebert-MurphyD (2007) The implications of “working alliance” for the measurement and evaluation of family-centered practice in childhood disability services. Infants & Young Children20(2): 109–119.
31.
TruteBHiebert-MurphyDWrightA (2008) Family-centred service coordination in childhood health and disability services: The search for meaningful service outcome measures. Child: Care, Health and Development34: 367–372.
WhittonCWilliamsCWrightB. (2008) The role of evaluation in the development of a service for children with life-limiting conditions in the community. Child: Care, Health and Development34: 576–583.
34.
World Health Organization (WHO( (2002) Towards a Common Language for Functioning, Disability and Health. Geneva: World Health Organization.
