This article reports on a small-scale study where people giving and receiving care were invited to talk about their relationship. It draws on one care dyad of a woman (who has a diagnosis of dementia) and her daughter (who has provided care for her mother). A short series of interviews was conducted with both women, focusing on their biographies and current relationship. This article reports the account given by the mother and how this intersects with the account given by the daughter. The discursive analysis presented centralizes a concern with attending to the accounts of people with dementia. Analysis of the talk of people with dementia can make a valuable contribution to understanding care relationships. Such analysis has the potential for shedding light on difficulties in care relationships. The article ends by outlining some salient issues for professionals and family members involved in dementia care.
Arscott, K.
, Dagenan, D., & Sterfert Krose, B. (1998). Consent to psychological research by people with an intellectual disability. Journal of Applied Research in Intellectual Disability, 11(1), 77–83.
2.
Bamford, C.
, & Bruce, E. (2000). Defining the outcomes of community care: The perspectives of older people with dementia and their carers. Ageing and Society, 20, 543–570.
3.
Barnett, E.
(2000). Including the person with dementia in designing and delivering care. London: Jessica Kingsley.
4.
Burr, V.
(1995). An introduction to social constructionism. London: Routledge.
5.
Coyne, A.C.
, Reichman, W.E., & Berbig, L.J. (1993). The relationship between dementia and elder abuse. American Journal of Psychiatry, 150(4), 643–646.
6.
Edwards, D.
, & Potter, J. (1992). Discursive psychology. London: Sage.
7.
Farran, C.
, Keane Hagerty, E., Salloway, S., Kupferer, S., & Wilken, C. (1991). Finding meaning: An alternative paradigm for Alzheimer’s disease family caregivers. The Gerontologist, 31(4), 483–489.
8.
Finch, J.
(1989). Family obligations and social change. Cambridge: Polity Press.
9.
Friss Feinberg, L.
(2000). Making hard choices: Respecting both voices. http://www.caregiver.org/news_releases/study_000622C.html (accessed 30 January 2002).
10.
Gergen, K.
(1999). An invitation to social construction. London: Sage.
11.
Harding, N.
, & Palfrey, C. (1997). The social construction of dementia. Confused professionals?London: Jessica Kingsley.
12.
Henderson, J.
, & Forbat, L. (2002) Relationship-based social policy: Personal and policy constructions of ‘care’. Critical Social Policy, 22(4): 669–687.
13.
Keady, J.
(1996). The experience of dementia: A review of the literature and implications for nursing practice.Journal of Clinical Nursing, 5, 275–288.
14.
Killick, J.
(1999). Eliciting experiences of people with dementia. Generations, 23(3), 46–50.
15.
Kitwood, T.
(1997). Dementia reconsidered. Buckingham: Open University Press.
16.
Lewis, J.
, & Meredith, B. (1988). Daughters who care. Daughters caring for mothers at home. London: Routledge.
17.
Lloyd, L.
(2000). Caring about carers: Only half the picture?Critical Social Policy, 20(1), 136–149.
18.
Lyman, K.
(1998). Living with Alzheimer’s disease: The creation of meaning among persons with dementia. Journal of Clinical Ethics, 9(4), 49–57.
19.
Makin, T.
(1995). The social model of disability. Counselling, 6(4), 274–274.
20.
McColgan, G.
, Valentine, J., & Downs, M. (2000). Concluding narratives of a career with dementia: Accounts of Iris Murdoch at her death. Ageing and Society, 20, 97–109.
21.
Morris, J.
(1995). Creating a space for absent voices: Disabled women’s experience of receiving assistance with daily living activities. Feminist Review, 51(autumn), 68–93.
22.
Potter, J.
, & Wetherell, M. (1987). Discourse and social psychology. Beyond attitudes and behaviour. London: Sage.
23.
Proctor, G.
(2001). Listening to older women with dementia: Relationships, voices and power. Disability and Society, 16(3), 361–376.
24.
Reid, D.
, Ryan, T., & Enderby, P. (2001). What does it mean to listen to people with dementia?Disability and Society, 16(3), 377–392.
25.
Sabat, S.
(2001). The experience of Alzheimer’s disease. Life through a tangled veil. London: Blackwell.
26.
Sabat, S.
, & Harré, R. (1992). The construction and deconstruction of self in Alzheimer’s disease. Aging and Society, 12, 443–461.
27.
Saunders, P.A.
(1998). ‘My brain’s on strike’. The construction of identity through memory accounts by dementia patients. Research on Aging, 20(1), 65–90.
Shakespeare, P.
(1998). Aspects of confused speech. London: Laurence Erlbaum Associates.
30.
Sinason, V.
(1992). Mental handicap and the human condition. New approaches from the Tavistock. London: Free Association Books.
31.
Twigg, J.
, & Atkin, K. (1994). Carers perceived. Policy and practice in informal care. Buckingham: Open University Press.
32.
van Langenhove, L.
, & Harré, R. (1999). Introducing positioning theory. Positioning theory moral contexts of intentional action. London: Blackwell.
33.
Wetherell, M.
(1998). Positioning and interpretative repertoires: Conversation analysis and post-structuralism in dialogue. Discourse and Society, 9(3), 387–412.
34.
Woods, B.
(1999). The person in dementia care. Generations, 23(3), 35–40.
