Community practitioner involvement in collaborative research

Abstract

This paper focuses on the benefits and limitations of collaborative research in community-based service settings explored through the implementation of a psychosocial intervention. The study aimed to establish the effectiveness of working with dementia dyads (person with dementia and family caregiver) in the early stages of dementia and to recruit and train an existing practitioner workforce to deliver a psychosocial intervention designed to assist dementia dyads to manage the consequences of dementia. Seven intervention staff participated in post-intervention semi-structured interviews. Whilst staff recruitment and retention proved challenging the degree to which staff demonstrated the required communication skills and competence was an important component in dyad acceptability of the intervention. Participatory factors, collaborative development, selective recruitment, focused training and ongoing specialist support, can assist the implementation of practice-based research. However, intervention staff participation and therefore intervention delivery can be hampered by workplace culture and workforce demands.

Keywords

community dementia early intervention nurses training

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References

Access Economics (2010) The future of aged care in Australia: Report for National Seniors Australia, Brisbane: National Seniors Australia (N. S. Australia o. Document Number).

Access Economics (2011) Dementia across Australia: 2011–2050, Australian Capital Territory: Alzheimer's Australia.

Andrén

Elmståhl

(2008) Psychosocial intervention for family caregivers of people with dementia reduces caregiver’s burden: Development and effect after 6 and 12 months. Scandinavian Journal of Caring Science 22: 98–109.

Beattie

Cheek

Gibson

(1996) The politics of collaboration as viewed through the lens of a collaborative nursing research project. Journal of Advanced Nursing 24: 682–687.

Braun

Clarke

(2006) Using thematic analysis in psychology. Qualitative Research in Psychology 3: 77–101.

Canadian Institutes of Health Research. (2008). Knowledge to action: A knowledge translation casebook (No. 978-1-100-11539-9). Ottawa: Canadian Institutes of Health Researcho. Document Number).

Cantley

Wilson

R. C.

(2002) ‘Put yourself in my place’: Designing and managing care homes for people with dementia, Bristol, UK: The Policy Press.

Creswell

J. W.

Plano Clark

V. L.

Gutmann

M. L.

Hanson

W. E.

(2003) Advanced mixed methods research designs. In: Tashakkori

Teddlie

(eds) Handbook of mixed methods in social and behavioural research, Thousand Oaks, CA: Sage, pp. 209–240.

Fillit

Knopman

Cummings

Appel

(1999) Opportunities for improving managed care for individuals with dementia: Part 2—A framework for care. The American Journal of Managed Care 5: 317–324.

10.

Harrop

J. P.

Nelson

D. E.

Kuratani

D. G.

Mullen

P. D.

Paskett

E. D.

(2012) Translating cancer prevention and control research into the community setting: Workforce implications. Journal of Cancer Education 27: 157–164.

11.

Howse

Ebrahim

Gooberman-Hill

(2005) Help-avoidance: Why older people do not always seek help. Reviews in Clinical Gerontology 14: 63–70.

12.

Judge, K. S., Bass, D. M., Snow, A. L., Wilson, N. L., Morgan, R., Looman, W. J.,… et al. (2011). Partners in Dementia Care: A Care Coordination Intervention for Individuals With Dementia and their Family Caregivers. The Gerontologist, 51(2), 261–272.

13.

Judge

K. S.

Yarry

S. J.

Orsulic-Jeras

(2010) Acceptability and feasibility results of a strength-based skills training program for dementia caregiving dyads. The Gerontologist 50: 408–417.

14.

King, D., Mavromaras, K., Wei, Z., He, B., Healy, J., Macaitis, K.,… Smith, L. (2012). The aged care workforce 2012. Retrieved from http://www.health.gov.au/internet/main/Publishing.nsf/Content/ageing-nat-agedcare-workforce-census-survey.

15.

Kitson

A. L.

(2009) The need for systems change: reflections on knowledge translation and organizational change. Journal of Advanced Nursing 65: 217–228.

16.

Koch

(1994) Establishing rigor in qualitative research: The decision trail. Journal of Advanced Nursing 19: 976–986.

17.

Krueger

R. A.

Casey

M. A.

(2000) Focus groups: A practical guide for applied research, 3rd ed. Thousand Oaks: Sage.

18.

Mittelman

M. S.

(2008) Editorial: Psychosocial intervention research: Challenges, strategies and measurement issues. Aging & Mental Health 12: 1–4.

19.

Moniz-Cook

E. D.

(2006) Cognitive stimulation and dementia. Aging and Mental Health 10: 207–210.

20.

Morris

J. C.

(1997) Clinical dementia rating: A reliable and valid diagnostic and staging measure for dementia of the Alzheimer type. International Psychogeriatrics 9: 173–176.

21.

Morse, J., & Field, P. (1995). Qualitative research methods for health professionals (2nd ed.). California, USA: Thousand Oaks, CA.

22.

Morse

Field

(1996) Nursing research: The application of qualitative methods, London: Chapman and Hall.

23.

Mountain

G. A.

(2006) Self-management for people with early dementia: An exploration of concepts and supporting evidence. Dementia: The International Journal of Social Research and Practice 5: 429–446.

24.

Neuman, L. W. (2006). Social research methods: Qualitative and Quantitative approaches (6th ed). Boston: Pearson/Allyn and Bacon.

25.

O'Connor, C., Small, S.A. & Cooney, S.M. (2007). Program fidelity and adaptation: Meeting local needs without compromising program effectiveness. What Works, Wisconsin Research to Practice Series, 4. Madison, WI: University of Wisconsin–Madison/Extension.

26.

Palinkas

L. A.

Schoenwald

S. K.

Hoagwood

Landsverk

Chorpita

B. F.

Weisz

J. R.

(2008) An ethnographic study of implementation of evidence-based treatments in child mental health: First steps. Psychiatric Services 59: 738–746.

27.

Ploeg, J., Denton, M., Tindale, J., Hutchison, B., Brazil, K., Akhtar-Danesh, N.,… et al. (2010). Older adults' awareness of community health and support services for dementia care. Hamilton: Research Institute for Quantitative Studies in Economics and Population (QSEP) Research Report, McMaster University, No. 441.

28.

Productivity Commission (2011) Caring for older Australians (No. 53), Canberra: Commonwealth of Australia.

29.

Robinson

Clare

Evans

(2005) Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples. Aging & Mental Health 9: 337–347.

30.

Scourfield, P. (2006). ‘What matters is what works’? How discourses of modernization have silenced and limited debate on domiciliary care for older people. Critical Social Policy, 26(1), 5–30.

31.

Steeman

Dierckz de Casterlé

Godderis

Grypdonck

(2006) Living with early-stage dementia: a review of qualitative studies. Journal of Advanced Nursing 54: 722–738.

32.

Struebert Speziale

H. J.

Carpenter

D. R.

(2003) Qualitative research in nursing, 3rd ed. Philadelphia: Lippincott.

33.

Tyson McCrea

Bulanda

J. J.

(2010) Caregiving heuristics: Valuable practitioner knowledge in the context of managing residential care. Qualitative Social Work 9: 343–363.

34.

Verhoef

M. J.

Mulkins

Kania

Findlay-Reece

Mior

(2010) Identifying the barriers to conducting outcomes research in integrative health care clinic settings – A qualitative study. BMC Health Services Research 10: 11–11.

35.

Vernooij-Dassen, M., & Olde Rekkert, M. G. M. (2004). Editorial: Personal disease management in dementia care. International Journal of Geriatric Psychiatry, 19, 715–717.

36.

Vickrey, B. G., Mittman, B. S., Connor, K. I., Pearson, M. L., Della Penna, R. D., Ganiats, T. G., et al. (2006). The Effect of a Disease Management Intervention on Quality and Outcomes of Dementia Care. Annals of Internal Medicine, 145(10), 713–726.

37.

Whitlatch

C. J.

Judge

Zarit

S. H.

Femia

(2006) Dyadic intervention for family caregivers and care receivers in early stage dementia. The Gerontologist 46: 688–694.

38.

Winch, S. (2006). Constructing the morality of caring: Codes and values in Australian carer discourse. Nursing Ethics, 13(1), 5–16.

39.

Witucki Brown

Chen

S.-l.

Mitchell

Province

(2007) Help-seeking by older husbands caring for wives with dementia. Journal of Advanced Nursing 59: 352–360.

40.

Yarry

S. J.

Judge

K. S.

Orsulic-Jeras

(2010) Applying a strengths based intervention for dyads with mild to moderate memory loss: Two case examples. Dementia: The International Journal of Social Research and Practice 9: 549–557.