Palliative care: Is now the time?

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References

Morrison

Meier

DE.

Clinical practice. Palliative care. N Engl J Med 2004; 350: 2582–2590.

Morrison

Dietrich

Ladwig

et al . Palliative care consultation teams cut hospital costs for Medicaid beneficiaries. Health Aff (Millwood) 2011; 30: 454–463.

Sidebottom

Jorgenson

Richards

et al . Inpatient palliative care for patients with acute heart failure: Outcomes from a randomized trial. J Palliat Med 2015; 18: 134–142.

Brannstrom

Boman

Effects of person-centred and integrated chronic heart failure and palliative home care. PREFER: A randomized controlled study. Eur J Heart Fail 2014; 16: 1142–1151.

Evangelista

Liao

Motie

et al . On-going palliative care enhances perceived control and patient activation and reduces symptom distress in patients with symptomatic heart failure: A pilot study. Eur J Cardiovasc Nurs 2014; 13: 116–123.

Bekelman

Plomondon

Carey

et al . Primary results of the Patient-Centered Disease Management (PCDM) for Heart Failure Study: A randomized clinical trial. JAMA Intern Med 2015; 175: 725–732.

Brumley

Enguidanos

Jamison

et al . Increased satisfaction with care and lower costs: Results of a randomized trial of in-home palliative care. J Am Geriatr Soc 2007; 55: 993–1000.

Kavalieratos

Corbelli

Zhang

et al . Association between palliative care and patient and caregiver outcomes: A systematic review and meta-analysis. JAMA 2016; 316: 2104–2114.

Braun

Grady

Kutner

et al . Palliative care and cardiovascular disease and stroke: A policy statement from the American Heart Association/American Stroke Association. Circulation 2016; 134: e198–e225.

10.

Lindenfeld

Albert

Boehmer

et al . HFSA 2010 comprehensive heart failure practice guideline. J Card Fail 2010; 16: e1–e194.

11.

Yancy

Jessup

Bozkurt

et al . 2013 ACCF/AHA guideline for the management of heart failure: A report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines. Circulation 2013; 128: e240–e327.

12.

Mandawat

Heidenreich

Mandawat

et al . Trends in palliative care use in veterans with severe heart failure using a large national cohort. JAMA Cardiol 2016; 1: 617–619.

13.

Selman

Harding

Beynon

et al . Improving end-of-life care for patients with chronic heart failure: “Let’s hope it’ll get better, when I know in my heart of hearts it won’t”. Heart 2007; 93: 963–967.

14.

Rabow

Schanche

Petersen

et al . Patient perceptions of an outpatient palliative care intervention: “It had been on my mind before, but I did not know how to start talking about death…”. J Pain Symptom Manage 2003; 26: 1010–1015.

15.

Dev

Abernethy

Rogers

et al . Preferences of people with advanced heart failure–a structured narrative literature review to inform decision making in the palliative care setting. Am Heart J 2012; 164: 313–319.e315.

16.

Bekelman

Nowels

Retrum

et al . Giving voice to patients’ and family caregivers’ needs in chronic heart failure: Implications for palliative care programs. J Palliat Med 2011; 14: 1317–1324.

17.

Buck

Zambroski

CH.

Upstreaming palliative care for patients with heart failure. J Cardiovasc Nurs 2012; 27: 147–153.

18.

Jaarsma

Leventhal

End-of-life issues in cardiac patients and their families. Eur J Cardiovasc Nurs 2002; 1: 223–225.

19.

Ohlen

Do inequalities in end of life care matter?

Eur J Cardiovasc Nurs. 2014; 13: 105–107.

20.

Beattie

JM.

Palliative care for heart failure: Challenges and opportunities. Eur J Cardiovasc Nurs 2014; 13: 102–104.

21.

Nordgren

Sorensen

Symptoms experienced in the last six months of life in patients with end-stage heart failure. Eur J Cardiovasc Nurs 2003; 2: 213–217.

22.

Evangelista

Sackett

Dracup

Pain and heart failure: Unrecognized and untreated. Eur J Cardiovasc Nurs 2009; 8: 169–173.

23.

Brannstrom

Ekman

Norberg

et al . Living with severe chronic heart failure in palliative advanced home care. Eur J Cardiovasc Nurs 2006; 5: 295–302.

24.

Ryan

Farrelly

Living with an unfixable heart: A qualitative study exploring the experience of living with advanced heart failure. Eur J Cardiovasc Nurs 2009; 8: 223–231.

25.

Leeming

Murray

Kendall

The impact of advanced heart failure on social, psychological and existential aspects and personhood. Eur J Cardiovasc Nurs 2014; 13: 162–167.

26.

Nadarajah

Buchholz

Wiegand

et al . The lived experience of individuals in cardiac rehabilitation who have a positive outlook on their cardiac recovery: A phenomenological inquiry. Eur J Cardiovasc Nurs 2017; 16: 230–239.

27.

Jaarsma

Stromberg

De Geest

et al . Heart failure management programmes in Europe. Eur J Cardiovasc Nurs 2006; 5: 197–205.

28.

Brannstrom

Boman

A new model for integrated heart failure and palliative advanced homecare–rationale and design of a prospective randomized study. Eur J Cardiovasc Nurs 2013; 12: 269–275.

29.

Lauck

Garland

Achtem

et al . Integrating a palliative approach in a transcatheter heart valve program: Bridging innovations in the management of severe aortic stenosis and best end-of-life practice. Eur J Cardiovasc Nurs 2014; 13: 177–184.

30.

Strachan

Joy

Costigan

et al . Development of a practice tool for community-based nurses: The Heart Failure Palliative Approach to Care (HeFPAC). Eur J Cardiovasc Nurs 2014; 13: 134–141.

31.

Stewart

Refractory to medical treatment but not to nursing care: Can we do more for patients with chronic angina pectoris?

Eur J Cardiovasc Nurs 2003; 2: 169–170.

32.

Brannstrom

Brulin

Norberg

et al . Being a palliative nurse for persons with severe congestive heart failure in advanced homecare. Eur J Cardiovasc Nurs 2005; 4: 314–323.

33.

Jones

Johnson

What is the role of the coronary care nurse? A review of the literature. Eur J Cardiovasc Nurs 2008; 7: 163–170.

34.

Johnson

Maccallum

Butler

et al . Heart failure specialist nurses’ use of palliative care services: A comparison of surveys across England in 2005 and 2010. Eur J Cardiovasc Nurs 2012; 11: 190–196.

35.

Hjelmfors

Stromberg

Friedrichsen

et al . Communicating prognosis and end-of-life care to heart failure patients: A survey of heart failure nurses’ perspectives. Eur J Cardiovasc Nurs 2014; 13: 152–161.

36.

Kim

Hwang

WJ.

Palliative care for those with heart failure: nurses’ knowledge, attitude, and preparedness to practice. Eur J Cardiovasc Nurs 2014; 13: 124–133.

37.

Doherty

Fitzsimons

McIlfatrick

SJ.

Carers’ needs in advanced heart failure: A systematic narrative review. Eur J Cardiovasc Nurs 2016; 15: 203–212.

38.

Hill

McIlfatrick

Taylor

et al . Implantable cardioverter defibrillator (ICD) deactivation discussions: Reality versus recommendations. Eur J Cardiovasc Nurs 2016; 15: 20–29.

39.

Fitzsimons

Strachan

PH.

Overcoming the challenges of conducting research with people who have advanced heart failure and palliative care needs. Eur J Cardiovasc Nurs 2012; 11: 248–254.

40.

Kavalieratos

Rollman

Arnold

RM.

Homeward bound, not hospital rebound: How transitional palliative care can reduce readmission. Heart 2016; 102: 1079–1080.

41.

Quill

Abernethy

AP.

Generalist plus specialist palliative care–creating a more sustainable model. N Engl J Med 2013; 368: 1173–1175.

42.

Schenker

Arnold

The next era of palliative care. JAMA 2015; 314: 1565–1566.

43.

Kim

Shin

et al . A context-oriented communication algorithm for advance care planning: A model to assist palliative care in heart failure. J Cardiovasc Nurs. Epub ahead of print 28 February 2017. DOI: 10.1097/JCN.0000000000000396.