Research into the lives of children with acquired brain injury (ABI) often neglects to incorporate children as participants, preferring to obtain the opinions of the adult carer (e.g. McKinlay et al., 2002). There has been a concerted attempt to move away from this position by those working in children’s research with current etiquette highlighting the inclusion of children and the use of a child-friendly methodology (Chappell, 2000). Children with disabilities can represent a challenge to the qualitative researcher due to the combination of maintaining the child’s attention and the demands placed on them by their disability. The focus of this article is to discuss possible impediments to interviewing children with acquired brain injury (ABI) and provide an insight into how the qualitative researcher may address these.
Anderson, V., Catroppa, C., Rosenfeld, J., Haritou, F. and Morse, S.A. ( 2000) ‘Recovery of memory function following traumatic brain injury in pre-school children’. Brain Injury14: 679-92.
2.
Andrews, T.K., Rose, F.D. and Johnson, D.A. ( 1998) ‘Social and behavioural effects of traumatic brain injury in children’. Brain Injury12(2): 133-8.
3.
Asarnow, R.F., Satz, P., Light, R., Lewis, R. and Neumann, E. ( 1991) ‘Behaviour problems and adaptive functioning in children with mild and severe closed head injury’. Journal of Paediatric Psychology16(5): 543-55.
4.
Banister, E.N. and Booth, G.J. ( 2005) ‘Exploring innovative methodologies for child-centric consumer research’. Qualitative Marketing Research: An International Journal8(2): 157-75.
5.
Barker-Collo, S.L. ( 2007) ‘Behavioural profiles and injury severity following childhood traumatic brain injury’. Brain Impairment8(1): 22-30.
6.
Carnaby, S. ( 1997) ‘"What do you think?": a qualitative approach to evaluating individuals planning services’. Journal of Intellectual Disability Research41: 225-31.
7.
Chappell, A. ( 2000) ‘Emergence of participatory methodology in learning difficulty research: understanding the context’. British Journal of Learning Disabilities28(1): 38-43.
8.
Cowles, K.V. ( 1988) ‘Issues in qualitative research on sensitive topics’ . Western Journal of Nursing Research10(2): 163-79.
9.
Cree, V.E., Kay, H. and Tisdall, K. ( 2002) ‘Research with children: sharing the dilemmas’ . Child and Family Social Work7: 47-56.
10.
Crothers, I.R., Linden, M.A. and Kennedy, N. ( 2007) ‘Attitudes of children towards peers with acquired brain injury (ABI)’. Brain Injury21(1): 47-52.
11.
Epstein, I., Stevens, B., McKeever, P., Baruchel, S. and Jones, H. ( 2008) ‘Using puppetry to elicit children’s talk for research’. Nursing Inquiry15(1): 49-56.
12.
Ewing-Cobbs, L., Levin, H.S., Eisenberg, H.M. and Fletcher, J.M. ( 1987) ‘Language functions following closed-head injury in children and adolescents’. Journal of Clinical and Experimental Neuropsychology9(5): 575-92
13.
Gill, P., Stewart, K., Treasure, E. and Chadwick, B. ( 2008) ‘Conducting qualitative interviews with school children in dental research’. British Dental Journal204(7): 371-4.
14.
Gioia, G.A. and Isquith, P.K. ( 2004) ‘Ecological assessment of executive function in traumatic brain injury’. Developmental Neuropsychology25(1-2): 135-58.
15.
Hall, D.M.B., Jones, S.L.J. and Middleton, J.A. ( 1990) ‘Rehabilitation of head-injured children’ . Archives of Disease in Childhood65: 553-6.
16.
Hawley, C.A., Ward, A.B., Long, J., Owen, D.W. and Magnay, A.R. ( 2003) ‘Prevalence of traumatic brain injury amongst children admitted to hospital in one health district: a population-based study’ . Injury34(4): 256-60.
17.
Hensel, E., Rose, J., Kroese, B.S. and Banks-Smith, J. ( 2002) ‘Subjective judgments of quality of life: a comparison study between people with intellectual disability and those without disability’ . Journal of Intellectual Disability Research46: 95-107.
18.
Hornak, J., Rolls, E.T. and Wade, D. ( 1996) ‘Face and voice expression identification in patients with emotional and behavioural changes following ventral lobe damage’ . Neuropsychologica34(4): 247-61.
19.
Irwin, L.G. and Johnson, J. ( 2005) ‘Interviewing young children: explicating our practices and dilemmas’. Qualitative Health Research15(6): 821-31.
20.
Jantz, P.B. and Coulter, G.A. ( 2007) ‘Child and adolescent traumatic brain injury: academic, behavioural, and social consequences in the classroom’. Support for Learning22(2): 84-9.
21.
Jokinen, P., Lappalainen, M., Merila, P. and Pelkonen, M. ( 2002) ‘Ethical issues in ethnographic nursing research with children and elderly people’. Scandinavian Journal of Caring Sciences16: 165-70.
22.
Kirkwood, M., Janusz, J., Yeates, K.O., Taylor, H.G., Wade, S.L., Stancin, T. and Drotar, D. ( 2000) ‘Prevalence and correlates of depressive symptoms following traumatic brain injuries in children’. Child Neuropsychology6(3): 195-208.
23.
Klonoff, H., Clark, C. and Klonoff, P.D. ( 1993) ‘Long-term outcome of head injuries: a 23 year follow up study of children with head injuries’. Journal of Neurology Neurosurgery and Psychiatry56: 410-15.
24.
Kramer, T.L., Phillips, S.D.Hargis, M.B., Miller, T.L., Burns, B.J. and Robbins, J.M. ( 2004) ‘Disagreement between parent and adolescent reports of functional impairment’. Journal of Child Psychology and Psychiatry45(2): 248-59.
25.
Lewis, A. ( 2002) ‘Accessing, through research interviews, the views of children with difficulties in learning’. Support for Learning17(3): 110-16.
26.
Lewis, A. and Porter, J. ( 2004) ‘Interviewing children and young people with learning disabilities: guidelines for researchers and multi-professional practice’ . British Journal of Learning Disabilities32: 191-7.
27.
Masson, J. ( 2000) ‘Researching children’s perspectives: legal issues’, in A. Lewis and G. Lindsay (eds) Researching Children’s Perspectives, pp. 34-45. Buckingham: Open University Press.
28.
Mather, F.J., Tate, R.L. and Hannan, T.J. ( 2003) ‘Post-traumatic stress disorder in children following road traffic accidents: a comparison of those with and without mild traumatic brain injury’. Brain Injury17(12): 1077-87.
29.
Max, J.E., Roberts, M.A., Koele, S.L., Lindgren, S.D., Robin, D.A., Arndt, S., Smith, W.L. and Sato, Y. ( 1999) ‘Cognitive outcome in children and adolescents following severe traumatic brain injury: influence of psychosocial, psychiatric, and injury-related variables’. Journal of the International Neuropsychological Society5: 58-68.
30.
McKinlay, A., Dalrymple-Alford, J.C., Horwood, L.J. and Fergusson, D.M. ( 2002) ‘Long term psychosocial outcomes after mild head injury in early childhood’. Journal of Neurology, Neurosurgery & Psychiatry73: 281-8.
31.
McLaughlin, K., Trew, K. and Muldoon, O. ( 2006) ‘Religion, ethnicity and group identity: Irish adolescents’ views’. Nationalism and Ethnic Politics12(3-4): 599-616.
32.
Middleton, J.A. ( 2001a) ‘Brain injury in children and adolescents’ . Advances in Psychiatric Treatment7: 257-65.
33.
Middleton, J.A. ( 2001b) ‘Practitioner review: psychological sequelae of head injury in children and adolescents’. Journal of Child Psychology and Psychiatry42(2): 165-80.
34.
Morrow, V. and Richards, M. ( 1996) ‘The ethics of social research with children: an overview’. Children and Society10(2): 90-105.
35.
Morse, J.M. and Field, P.A., eds (1995) Qualitative Research Methods for Health Professionals. Thousand Oaks, CA: SAGE.
36.
Nybo, T., Sainio, M. and Muller, K. ( 2004) ‘Stability of vocational outcome in adulthood after moderate to severe preschool brain injury’. Journal of the International Neuropsychological Society10(5): 719-23.
37.
Parslow, R.C., Morris, K.P., Tasker, R.C., Forsyth, R.J. and Hawley, C.A. ( 2005) ‘Epidemiology of traumatic brain injury in children receiving intensive care in the UK’. Archives of Disease in Childhood90: 1182-7.
38.
Patterson, B. and Scott-Findlay, S. ( 2002) ‘Critical issues in interviewing people with traumatic brain injury’. Qualitative Health Research12(3): 399-409.
39.
Punch, S. ( 2002) ‘Research with children: the same or different from research with adults?’ Childhood9(3): 321-41.
40.
Smith, J.A. ( 2005) ‘Semi-structured interviewing and qualitative analysis’ , in Rethinking Methods in Psychology. London: SAGE.
41.
Taylor, G.H., Yeates, K.O., Wade, S.L., Drotar, D. and Stancin, T. ( 2002) ‘A prospective study of short- and long-term outcomes after traumatic brain injury in children: behavior and achievement’ . Neuropsychology16(1): 15-27.
42.
Teasdale, R., Bayona, N., Marshall, S., Cullen, N., Bayley, M. and Chundamala, J. et al. (2007) ‘A systematic review of the rehabilitation of moderate to severe acquired brain injuries’. Brain Injury21(2): 107-12.
43.
Thomas, N. and O’Kane, C. ( 1998) ‘The ethics of participatory research with children’ . Children and Society12: 336-48.
44.
Vaidya, A.A. ( 2002) ‘Issues related to school re-entry following traumatic brain injury’. International Journal of Cognitive Technology7(12): 38-45.
45.
Wade, S.L., Taylor, H.G., Yeates, K.O., Drotar, D., Stancin, T., Minich, N.M. and Schluchter, M.( 2006) ‘Long-term parental and family adaptation following pediatric brain injury’. Journal of Pediatric Psychology31(10): 1072-83.
