People strive to make meaning out of the death of their loved ones. People with intellectual disabilities, however, may not be actively involved in death and may therefore experience disenfranchised grief. Bereavement support for this population remains at best inconsistent across the UK. The aim of this article is to further explore a bereavement support model recently developed. A case study is utilized to demonstrate the practicalities inherent in the integrated approach offered. A bereavement support framework can provide a holistic perspective for people with intellectual disabilities when integrated with a systems approach to care delivery. The resultant strategy incorporates practical ideas that address the bereavement needs of people with intellectual disabilities, encapsulating all aspects of current and future care delivery. Finally, core recommendations are offered for consideration.
Doka, K. J. (ed.) (2002) Disenfranchised Grief: New Directions, Challenges and Strategies for Practice. Champaign, IL: Research Press.
11.
Ellershaw, J. & Wilkinson, S. (2003) Care of the Dying: A Pathway to Excellence. Oxford: Oxford University Press.
12.
Elliott, D. (1995) `Helping People with Learning Disabilities to Handle Grief', Nursing Times91 (43): 27—9.
13.
Elliott, D. (2004) `Loss and Bereavement', in M. Jukes & M. Bollard (eds) Contemporary Learning Disability Practice. Salisbury: Quay.
14.
Hollins, S. & Sireling, L. (2004a) When Dad Died, 2nd edn. London: St George's Hospital Medical School.
15.
Hollins, S. & Sireling, L. (2004b) When Mum Died, 2nd edn. London: St George's Hospital Medical School.
16.
Hollins, S., Dowling, S. & Blackman, N. (2003) When Somebody Dies. London: Gaskell & St George's Hospital Medical School.
17.
Jacques, R. (1998) `Families and Disability in Context: A System Framework' , in W. Fraser ET AL. (eds) The Care of People with Intellectual Disabilities. Oxford : Butterworth-Heinemann.
18.
Mcenhill, L. (1999) `Guided Mourning Interventions', in N. Blackman (ed.) Living with Loss: Helping People with Learning Disabilities Cope with Loss and Bereavement. Brighton: Pavilion.
19.
Mcevoy, J. & Smith, E. (2005) `Families' Perceptions of the Grieving Process and Concept of Death in Individuals with Intellectual Disabilities', The British Journal of Developmental Disabilities51 (1): 17—25.
20.
Nagraj, R. & Moddia, B. (1995) Bereavement and Loss in People with Learning Disabilities: An Information and Practical Guide for Families and Care Staff. Oxford: Oxfordshire Learning Disability NHS Trust.
21.
Nice (2004) Improving Supportive and Palliative Care for Adults with Cancer. London: National Institute for Clinical Excellence .
22.
Oliviere, D. & Monroe, B. (eds) (2004) Death, Dying and Social Differences . Oxford: Oxford University Press .
23.
Oswin, M. (2000) Am I Allowed to Cry? 2nd edn. London: Souvenir.
24.
Parkes, C.M. (1993) `Bereavement as a Psychosocial Transition Process of Adaptation to Change', in M . S. Stroebe , W. Stroebe & R. O. Hanson (eds) Handbook of Bereavement: Theory, Research and Interventions, pp. 91—101. New York : Cambridge University Press.
25.
Payne, M. (2004) `Social Class, Poverty and Social Exclusion', in D. Oliviere & B. Monroe (eds) Death, Dying and Social Differences. Oxford: Oxford University Press.
26.
Persaud, S. & Persaud, M. (1997) `Does it Hurt to Die? A Description of Bereavement Work to Help a Group of People Who Have Learning Disabilities Who Have Suffered Multiple, Major Losses', Journal of Learning Disabilities for Health and Social Care1 (4): 171—5.
27.
Raji, O. & Hollins, S. (2003) `How Far Are People with Learning Disabilities Involved in Funeral Rites?', British Journal of Learning Disabilities31: 42—5.
28.
Raphael, B. (1984) The Anatomy of Bereavement: A Handbook for the Caring Professions. London: Routledge .
29.
Read, S. (1998) `Breaking Bad News to People with a Learning Disability' , British Journal of Nursing7 (2): 86—91.
30.
Read, S. (1999) `Creative Ways of Working When Exploring the Bereavement Counselling Process', in N. Blackman (ed.) Living with Loss: Helping People with Learning Disabilities Cope with Loss and Bereavement, pp. 9—13. Brighton: Pavilion.
31.
Read, S. (2003) `Bereavement and Loss', in A. Markwick & A. Parrish (eds) Learning Disabilities:Themes and Perspectives, pp. 81—109. Edinburgh: Butterworth Heinemann.
32.
Read, S. (2005) `Loss, Bereavement and Learning Disabilities: Providing a Continuum of Support', Learning Disability Practice8 (1): 31—7.
33.
Read, S. (in press) A Bereavement Counselling Manual for People with Learning Disabilities. London: Quay.
34.
Read, S. & Elliott, D. (2003) `Death and Learning Disability: A Vulnerability Perspective', Journal of Adult Protection5 (1): 5—14.
35.
Read, S. & Papakosta-Harvey, V. (2004) `Using Workshops on Loss for Adults with Learning Disabilities: A Second Study', Journal of Learning Disabilities8 (2): 191—208.
36.
Read, S., Frost, I., Messenger, N. & Oates, S. (1999) `Bereavement Counselling and Support for People with a Learning Disability: Identifying Issues and Exploring Possibilities' , British Journal of Learning Disabilities27 (3): 99—104.
37.
Read, S., Papakosta-Harvey, V. & Bower, S. (2001) `Using Workshops on Loss for Adults with Learning Disabilities', Groupwork12 (2): 6—26.
38.
Rosenblatt, P.C. (2001) `A Social Constructionist Perspective on Cultural Differences in Grief', in M. S. Stroebe, O. R. Hanson, W. Stroebe & H. Schutt (eds) Handbook of Bereavement Research: Consequences, Coping and Care. Washington, DC: American Psychological Association .
39.
Stroebe, M. S., Stroebe, W. & Hanson, O. R. (eds) (1993) Handbook of Bereavement: Theory, Research and Interventions . New York: Cambridge University Press.
40.
Todd, S. (2004) `Death Counts: The Challenge of Death and Dying in Learning Disability Services', Learning Disability in Practice7 (10): 12—15.
41.
Todd, S. (2005) `Surprised Endings: The Dying of People with Learning Disabilities in Residential Services', International Journal of Palliative Nursing11 (2): 80—2.
