A structured literature search and thematic analysis of six research articles relating to stress and parenting of a child with an intellectual disability in the United Kingdom identified four key themes: impact upon families, service provision and support networks, coping and transition. The findings identified that parenting a child with an intellectual disability is not always a negative role; it is a role that parents find both rewarding and empowering. However, the findings of the literature review primarily related to mothers of children with an intellectual disability with very little focus on the experiences of fathers.
BakerAJL (2007) Knowledge and attitudes about the parental alienation syndrome: a survey of custody evaluators. American Journal of Family Therapy35(1): 1–19.
2.
BeckAT (1976) Cognitive Therapy and Emotional Disorder. New York, NY: International Universities Press.
3.
BeresfordB (1995) Expert Opinions: A National Survey of Parents Caring for a Severely Disabled Child. Bristol, UK: The Policy Press.
4.
BowenGA (2008) Naturalistic inquiry and the saturation concept: a research note. Qualitative Research8(1): 137–152.
5.
BrannanAMHeflingerCABickmanLB (1997) The Caregiver Strain Questionnaire: Measuring the impact on the family of living with a child with serious emotional disturbance. Journal of Emotional and Behavioural Disorders5(4): 212–222.
6.
BrinkPJWoodMJ (2001) Basic Steps in Planning Nursing Research: From Question to Proposal. Sudbury, MA: Jones and Bartlett.
7.
CarpenterBTowersC (2008) Recognising fathers: the needs of fathers of children with disabilities. Support for Learning23(3): 118–125.
8.
CatherallCIphofenR (2006) Living with disability. Learning Disability Practice9(5): 16–21.
9.
ChamberlainKCamicPMYardleyL (2004) Qualitative analysis of experience: grounded theory and case studies. In: MarksDYardleyL (eds) Research Methods for Clinical and Health Studies. London, UK: Sage, pp. 69–89.
10.
Children Act 2004 (2004) London, UK: Her Majesty’s Stationary Office.
11.
CrickmoreD (2009) Changes across the lifespan. In: GatesBBarrO (eds) Oxford Handbook of Intellectual Disability Nursing. Oxford, UK: Oxford University Press, pp. 109–138.
12.
CroninPRyanFCoughlinM (2008) Undertaking a literature review: a step by step approach. British Journal of Nursing17(1): 38–43.
13.
CuddebackGWilsonEOrmeJGCombes-OrmeT (2004) Methods for detecting and correcting sample bias. Journal of Social Service Research30(3): 19–33.
14.
Department of Health (2001) Family Matters: Counting Families In. London, UK: Department of Health.
15.
DixonAHowiePStarlingJ (2004) Psychopathology in female juvenile offenders. Journal of Child Psychology and Psychiatry and Allied Disciplines45(6): 1150–1158.
16.
ElyCScottI (2007) Essential Study Skills for Nursing. Edinburgh, UK: Mosby Elsevier.
17.
EmersonEHattonC (2008) People with Learning Disabilities in England. Lancaster, UK: Lancaster Centre for Disability Research (CeDR), Lancaster University.
FlynnMRussellP (2005) Adolescents and younger adolescents. In: GrantPGowardPRichardsonMRamcharanP (eds) Learning Disability: A Life Cycle Approach to Valuing People. Maidenhead: Berkshire, UK: Open University Press, pp. 289–305.
20.
FriedrichWNGreenbergMCrnicKA (1983) A short form of the questionnaire on resources and stress. American Journal of Mental Deficiency88(1): 41–48.
21.
FreyKGreenbergMFewellRR (1989) Stress and coping among parents of exceptional children: a multi-dimensional approach. American Journal on Mental Retardation94(3): 240–249.
22.
FulcherJScottJ (2007) Sociology. 5th ed. New York and Oxford: Oxford University Press.
23.
Gavidia-PayneSStonemanZ (2004) Family predictors of maternal and paternal involvement in programmes for young children with disabilities. In: FeldmanME (ed) Early Intervention: The Essential Readings. Oxford, UK: Blackwell, pp. 311–338.
24.
GreenbergJSSeltzerMMGreenleyJR (1993) Ageing parents of adults with disabilities: the gratifications and frustrations of later-life care giving. Gerontologist33(4): 542–550.
25.
HamesA (2008) Siblings’ understanding of learning disability: a longitudinal study. Journal of Applied Research in Intellectual Disabilities21(6): 491–501.
26.
HarvardL (2007) How to conduct an effective and valid literature search. Nursing Times103(45): 32–33.
27.
HassallRRoseJMcDonaldJ (2005) Parenting stress in mothers of children with an intellectual disability: the effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research49(6): 405–418.
28.
HekGLangtonHBlundenG (2000) Systematically searching and reviewing literature. Nurse Researcher7(3): 40–57.
29.
HollowayJWheelerS (2003) Qualitative Research in Nursing. 2nd ed. Oxford, UK: Blackwell Science.
30.
HornbyG (1994) Effects of children with disabilities on fathers, a review and analysis of the literature. International Journal of Disability, Development and Education41(3): 171–184.
31.
Howie-DaviesRMcKenzieK (2007) Diagnosis, information and stress in parents of children with a learning disability. Learning Disability Practice10(8): 28–33.
JohnsonRFO’ReillyMVostanisP (2006) Caring for children with learning disabilities who present problem behaviours: a maternal perspective. Journal of Child Health Care10(3): 188–198.
34.
KennedyP (2003) A Multi-centre Randomised Controlled Trial Assessing the Costs and Benefits of using Structured Information and Analysis of Women References in the Management of Menorrhagia – HTA Report. Southampton, UK: National Coordinating Centre for Health Technology Assessment (NCCHTA).
35.
KennyKMcGillowayS (2007) Caring for children with learning disabilities: an exploratory study of parental strain and coping. British Journal of Learning Disabilities35(4): 221–228.
36.
KiernanCQureshiH (1993) Challenging behaviour. In: KiernanC (ed) Research to Practice? Implications of Research on Challenging Behaviour of People with a Learning Disability. Kent, UK: British Institute for Learning Disabilities, pp. 53–65.
37.
KingGKertoyMLawM. (2003) A measure of parents’ and service providers’ beliefs about participation in family-centred services. Children’s Healthcare32(3): 191–214.
38.
KnottFLewisCWilliamsT (2007) Sibling interaction of children with autism: development over 12 months. Journal of Autism and Developmental Disorders37(10): 1987–1995.
39.
Leino-KilpiHLireLSuominenT. (1993) Client and information: a literature review. Journal of Clinical Nursing2(6): 331–340.
40.
LevinsonDJ (1996) The Seasons of a Woman’s Life. New York, NY: Ballantine Books.
41.
MansellIWilsonC (2010) ‘It terrifies me, the thought of the future’: listening to current concerns of informal carers or people with a learning disability. Journal of Intellectual Disabilities14(1): 21–31.
42.
MathiesonA (2005) The weakest link. Learning Disability Practice8(3): 6–7.
43.
McConkeyRTruesdaleMConliffeC (2004) The features of short-break residential services valued by families who have children with multiple disabilities. Journal of Social Work4(1): 61–75.
44.
McConkeyRTruesdale-KennedyMChangMY. (2006) The impact on mothers of bringing up a child with intellectual disabilities: a cross cultural study. International Journal of Nursing Studies4(1): 61–75.
45.
PadencheriSRussellP (2002) Challenging behaviours among children with intellectual disability; the hope busters?Journal of Learning Disabilities6(3): 253–261.
46.
PattonMQ (2002) Qualitative Evaluation and Research Methods. 3rd ed. Thousand Oaks, CA: Sage Publications.
47.
RandolphJJ (2009) A guide to writing the dissertation literature review. Practical Assessment, Research and Evaluation: A Peer-Reviewed Electronic Journal14(13): 1–13.
48.
SchultzCLKemMMABruceEJ. (1992) Caring for fathers and mothers of children with intellectual disability: a pilot study. Australia and New Zealand Journal of Developmental Disabilities13(3): 109–131.
49.
ShearnJToddS (2000) Maternal employment and family responsibilities. Journal of Applied Research in Intellectual Disabilities13(3): 109–131.
50.
Social Care Institute for Excellence (SCIE) (2005) SCIE: Research Briefing 18: Being a Father to a Child with Disabilities: Issues and What Helps. Available at: http://scie.org.uk/publications/briefings/briefing18/index.asp (accessed 11 January 2013).
51.
StraussACorbinJ (1990) Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Newbury Park, CA: Sage.
TalbotP (2010) Children and adolescents. In: TalbotPAstburyGMasonT (eds) Key Concepts in Learning Disabilities. Oxford, UK: Sage, pp. 39–44.
54.
ToddS (2002) Death does not become us: death and learning disabilities. Journal of Gerontological Social Work38(1–4): 225–223.
55.
ToddSJonesS (2003) Mum's the word: maternal accounts o dealings with the professional world. Journal of Applied Research in Intellectual Disabilities16(3): 229–244.
56.
ToddSJonesS (2005) Looking at the future and seeing the past: the challenge of the middle years of parenting a child with intellectual disabilities. Journal of Intellectual Disability Research49(6): 389–404.
57.
ToddSShearnJ (1996) Struggle with time: the careers of parents of adult sons and daughters with intellectual disabilities. Disability Society11(3): 379–401.
58.
ToddSBromleyJIoannouK. (2010) Using group-based parent training interventions with parents of children with disabilities: a description of process, content and outcomes in clinical practice. Child and Adolescent Mental Health15(3): 171–175.
59.
TowersCSwiftP (2006) Recognising Fathers: Understanding the Issues Face by Fathers of Children with a Learning Disability. London, UK: Foundation for People with Learning Disabilities.
