‘Put the illness in a box’: a longitudinal interpretative phenomenological analysis of changes in a sufferer’s pictorial representations of pain following participation in a pain management programme
Restricted accessResearch articleFirst published online August, 2018
‘Put the illness in a box’: a longitudinal interpretative phenomenological analysis of changes in a sufferer’s pictorial representations of pain following participation in a pain management programme
Combining participant drawings with interviews can stimulate deep reflection and allow the inexpressible to be expressed. This case study uses visual methods to illustrate the 9-month self-management journey of a female chronic pain sufferer. The participant drew a picture of her pain at each of three interviews, and the drawings were used to discuss the changing impact pain was having on her life. Drawings and transcripts were jointly analysed longitudinally using interpretative phenomenological analysis, revealing how, as control is regained, a sufferer’s relationship with their chronic pain can visibly change and how the drawings, when reviewed retrospectively, enable insight and ownership of progress.
BreivikHEisenbergEO’BrienT. The individual and societal burden of chronic pain in Europe: the case for strategic prioritisation and action to improve knowledge and availability of appropriate care. BMC Public Health2013; 13: 1229.
2.
KalsoE. Opioids in chronic non-malignant pain. ABC Pain2012; 218: 103.
3.
CoxF. Editorial. Br J Pain2015; 9: 8.
4.
ToyeF. ‘Not everything that can be counted counts and not everything that counts can be counted’ (attributed to Albert Einstein). Br J Pain2015; 9: 7.
5.
ToyeFSeersKAllcockNet alA meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain. Osteoarthr Cartilage2013; 21: S259–S260.
6.
British Pain Society. Guidelines for pain management programmes for adults. London: British Pain Society, 2013.
7.
Royal College of Anaesthetists. Core standards for pain management services in the UK. London: Royal College of Anaesthetists, 2015.
8.
EcclestonCMorleySJWilliamsAC. Psychological approaches to chronic pain management: evidence and challenges. Br J Anaesth2013; 111: 59–63.
9.
OsbornMRodhamK. Insights into pain: a review of qualitative research. Rev Pain2010; 4: 2–7.
SnelgroveSEdwardsSLiossiC. A longitudinal study of patients’ experiences of chronic low back pain using interpretative phenomenological analysis: changes and consistencies. Psychol Health2013; 28: 121–138.
12.
OsbornMSmithJA. The personal experience of chronic benign lower back pain: an interpretative phenomenological analysis. Br J Pain2015; 9: 65–83.
13.
SmithJAOsbornM. Interpretative phenomenological analysis as a useful methodology for research on the lived experience of pain. Br J Pain2015; 9: 41–42.
14.
RoseG. Visual methodologies: an introduction to researching with visual materials. London: SAGE, 2011.
15.
ReaveyP. Visual methods in psychology: using and interpreting images in qualitative research. New York: Routledge, 2012.
16.
PadfieldD. ‘Representing’ the pain of others. Health: 2011; 15: 241–257.
17.
HenareDHockingCSmytheL. Chronic pain: gaining understanding through the use of art. Br J Occup Ther2003; 66: 511–518.
18.
PhillipsJOgdenJCoplandC. Using drawings of pain-related images to understand the experience of chronic pain: a qualitative study. Br J Occup Ther2015; 78: 404–411.
19.
KirkhamJASmithJAHavsteen-FranklinD. Painting pain: an interpretative phenomenological analysis of representations of living with chronic pain. Health Psychol2015; 34: 398–406.
20.
BagnoliA. Beyond the standard interview: the use of graphic elicitation and arts-based methods. Qual Res2009; 9: 547–570.
GuilleminMWestallC. Gaining insight into women’s knowing of postnatal depression using drawings. In: GuilleminM (ed.) Knowing differently: arts-based and collaborative research methods. Hauppauge, NY: Nova Science Publishers, 2008, pp. 121–139.
23.
ShinebournePSmithJA. Images of addiction and recovery: an interpretative phenomenological analysis of the experience of addiction and recovery as expressed in visual images. Drug: Educ Prev Polic2011; 18: 313–322.
24.
AnghelutaA-MLeeBK. Art therapy for chronic pain: applications and future directions. Can J Couns Psychother/Revue Canadienne De Counseling Et De Psychothérapie2011; 45–2: 112–131.
25.
BodenZEatoughV. Understanding more fully: a multimodal hermeneutic-phenomenological approach. Qual Res Psychol2013; 11: 160–177.
26.
DeckertSKaiserUKopkowCet alA systematic review of the outcomes reported in multimodal pain therapy for chronic pain. Eur J Pain2015; 20: 51–63.
27.
NicholasMK. The pain self-efficacy questionnaire: taking pain into account. Eur J Pain2007; 11: 153–163.
28.
WilliamsAEcclestonCMorleyS. Psychological therapies for the management of chronic pain (excluding headache) in adults. Cochrane Database Systematic Rev2012; 11: CD007407.
29.
WilligC. Introducing qualitative research in psychology. London: McGraw-Hill Education, 2013.
30.
GilliesVHardenAJohnsonKet alPainting pictures of embodied experience: the use of nonverbal data production for the study of embodiment. Qual Res Psychol2005; 2: 199–212.
31.
SmithJA. Evaluating the contribution of interpretative phenomenological analysis. Health Psychol Rev2011; 5: 9–27.
32.
McCrackenLMMorleyS. The psychological flexibility model: a basis for integration and progress in psychological approaches to chronic pain management. J Pain2014; 15: 221–234.
33.
GoubertLTrompetterH. Towards a science and practice of resilience in the face of pain. Eur J Pain2017; 21: 1301–1315.
