Living with Moebius Syndrome: Adjustment,Social Competence,and Satisfaction with Life

American Psychiatric Association: Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision. Washington, DC: American Psychiatric Association, 2000.

Arrindell W.A. , van Nieuwenhuizen C. , Luteijn F. . Chronic psychiatric status and satisfaction with life. Pers Indiv Differ. 2001; 31: 145-155.

Bandim J.M. , Ventura L.O. , Miller M.T. , Almeida H.C. , Costa A.E. . Autism and Mobius sequence: an exploratory study of children in northeastern Brazil. Arq Neuro-Psiquiat. 2003; 61: 181-185.

Bjelland I. , Dahl A.A. , Haug T.T. , Neckelmann D. . The validity of the Hospital Anxiety and Depression Scale: An updated literature review. J Psychosom Res. 2002; 52: 69-77.

Bogart K.R. , Matsumoto D. . Facial mimicry is not necessary to recognize emotion: Facial expression recognition in people with Moebius syndrome. Soc Neurosci. In press.

Briegel W. . Neuropsychiatric findings of Möbius sequence: a review. Clin Genet. 2006; 70: 91-97.

Briegel W. . Psychopathology and personality aspects of adults with Möbius sequence. Clin Genet. 2007; 71: 376-377.

Calder A.J. , Keane J. , Cole J. , Campbell R. , Young A.W. . Facial expression recognition by people with Möbius syndrome. Cognitive Neuropsych. 2000; 17: 73-87.

Campbell S.B. , Colin J.F. . Prevalence and correlates of postpartum depression in first-time mothers. J Abnorm Psychol. 1991; 100: 594-599.

Cole J. . The Invisible Smile: Living Without Facial Expression. Oxford: Oxford University Press; 2009: 12, 200.

Coulson S.E. , O'Dwyer N. , Adams R. , Croxson G.R. . Expression of emotion and quality of life following facial nerve paralysis. Otol Neurotol. 2004; 25: 1014-1019.

Cronemberger M.F. , de Castro Moreira J.B. , Brunoni D. , Mendonca T.S. , Alvarenga E.H. , Rizzo A.M. , Diogo S.M. . Ocular and clinical manifestations of Möbius' syndrome. J Pediatr Ophthalmol Strabismus. 2001; 38: 156-162.

Darwin C. . The Expression of Emotion in Man and Animals. New York: Oxford University Press; 1872/1998.

Diener E. , Emmons R.A. , Larsen R.J. , Griffin S. . The Satisfaction With Life Scale. J Pers Assess. 1985; 49: 71-75.

Derogatis L.R. . SCL-90-R: Administration, scoring and procedures manual-I for the R(evised) version. Baltimore: Johns Hopkins University School of Medicine; 1977.

Ekman P. . Facial expressions of emotion: an old controversy and new findings. Philos T Roy Soc B. 1992; 335: 63-69.

Ekman P. . Psychosocial aspects of facial paralysis. In: May M. , ed. The Facial Nerve. New York: Thieme; 1986.

Ekman P. , Friesen W.V. . Constants across cultures in the face and emotion. J Pers Soc Psychol. 1971; 17: 124-129.

Ekman P. , Friesen W.V. . A new pan-cultural facial expression of emotion. Motiv Emotion. 1986; 10: 159-168.

Ekman P. , Sorenson E.R. , Friesen W.V. . Pan-cultural elements in facial displays of emotion. Science. 1969; 164: 86-88.

Elfenbein H.A. , Ambady N. . On the universality and cultural specificity of emotion recognition: a meta-analysis. Psychol Bull. 2002; 128: 203-235.

Fahrenberg J. , Hampel R. , Selg H. . FPI-R: Das Freiburger Personlichkeit-sinventar. 7th ed. Gottingen: Hogrefe; 2001.

Ghabrial R. , Versace P. , Kourt G. , Lipson A. , Martin F. . Möbius syndrome: features and aetiology. J Pediatr Ophthalmol Strabismus. 1998; 35: 304-311.

Gillberg C. , Steffenburg S. . Autistic behaviour in Moebius syndrome. Acta Paediatr Scand. 1989; 78: 314-316.

Goldblatt D. , Williams D. . “I am smiling”: Möbius' syndrome inside and out. J Child Neurol. 1986; 1: 71-78.

Grant J.R. , Cash T.F. . Cognitive-behavioral body image therapy: comparative efficacy of group and modest-contact treatments. Behav Ther. 1995: 69-84.

Hatfield E. , Cacioppo J.T. , Rapson R.L. . Emotional Contagion. New York: Cambridge University Press; 1994.

Helmreich R. , Aronson E. , LeFan J. . To err is humanizing sometimes: effects of self-esteem, competence, and a pratfall on interpersonal attraction. J Pers Soc Psychol. 1970; 16: 259-264.

Helmreich R. , Stapp J. . Short forms of the Texas Social Behavior Inventory (TSBI), an objective measure of self-esteem. Bull Psychonomic Soc. 1974; 4: 473-475.

Johansson M. , Wentz E. , Fernell E. , Stromland K. , Miller M.T. , Gillberg C. . Autistic spectrum disorders in Mobius sequence: a comprehensive study of 25 individuals. Dev Med Child Neurol. 2001; 43: 338-345.

Kremer H. , Kuyt L.P. , van den Helm B. , van Reen M. , Leunissen J.A. , Hamel B.C. , Jansen C. , Mariman E.C. , Frants R.R. , Padberg G.W. . Localization of a gene for Mobius syndrome to chromosome 3q by linkage analysis in a Dutch family. Hum Mol Genet. 1996; 5: 1367-1371.

Kuklik M. . Poland-Mobius syndrome and disruption spectrum affecting the face and extremities: a review paper and presentation of five cases. Acta Chir Plast. 2000; 42: 95-103.

Laird J.D. . Self-attribution of emotion: the effects of expressive behavior on the quality of emotional experience. J Pers Soc Psychol. 1974; 29: 475-486.

Lucas R.E. , Diener E. , Larsen R.J. , Lopez S.J. , Snyder C.R. . Measuring positive emotions. In: Positive Psychological Assessment: A Handbook of Models and Measures. Washington, DC: American Psychological Association; 2003: 201-218.

MacDermot K.D. , Winter R.M. , Taylor D. , Baraitser M. . Oculofacialbulbar palsy in mother and son: review of 26 reports of familial transmission within the 'Mobius spectrum of defects.' J Med Genet. 1991; 28: 18-26.

Macgregor F. . After Plastic Surgery: Adaptation and Adjustment. New York: Praeger; 1979.

Matsumoto D. , Willingham B. . Spontaneous facial expressions of emotion of congenitally blind and noncongenitally blind individuals. J Pers Soc Psychol. 2009; 96: 1-10.

Meyerson M.D. . Resiliency and success in adults with Moebius syndrome. Cleft Palate Craniofac J. 2001; 38: 231-235.

Meyerson M.D. , Foushee D.R. . Speech, language and hearing in Moebius syndrome: a study of 22 patients. Dev Med Child Neurol. 1978; 20: 357-365.

Möbius P.J. . Ueber angeborene doppelseitige Abducens-Facialis-Lahmung. Münchener med Wochenschr. 1888; 35: 91-94.

Oliver J.M. , Simmons M.E. . Depression as measured by the DSM-III and the Beck depression inventory in an unselected adult population. J Consult Clin Psychol. 1984; 52: 892-898.

Richards R.N. . The Mobius syndrome. J Bone Joint Surg Am. 1953; 35: 437-444.

Riggio R.E. . The Social Skills Inventory (SSI): measuring nonverbal and social skills. In: Manusov V.L. , ed. The Sourcebook of Nonverbal Measures. Mahwah, NJ: Lawrence Erlbaum Associates; 2005: 25-33.

Robinson E. , Rumsey N. , Partridge J. . An evaluation of social interaction skills training for facially disfigured people. Br J Plast Surg. 1996; 49: 281-289.

Rosenthal R. , DePaulo B.M. , Hall J.A. . The PONS Test Manual: Profile of Nonverbal Sensitivity. Baltimore: Johns Hopkins University Press; 1979.

Rumsey N. , Clarke A. , White P. , Wyn-Williams M. , Garlick W. . Altered body image: appearance-related concerns of people with visible disfigurement. J Adv Nurs. 2004; 48: 443-453.

Shrout P.E. , Fiske D.W. . Nonverbal behaviors and social evaluation. J Pers. 1981; 49: 115-128.

Slee J.J. , Smart R.D. , Viljoen D.L. . Deletion of chromosome 13 in Moebius syndrome. J Med Genet. 1991; 28: 413-414.

Stromland K. , Sjogreen L. , Miller M. , Gillberg C. , Wentz E. , Johansson M. , Nylen O. , Danielsson A. , Jacobson C. , Andersson J. . Mobius sequence—a Swedish multidiscipline study. Eur J Paediatr Neurol. 2002; 6: 35-45.

Tickle-Degnen L. . Nonverbal behavior and its functions in the ecosystem of rapport. In: Manusov V. , Patterson M.L. , eds. The Sage Handbook of Nonverbal Behavior. Thousand Oaks, CA: Sage Publications; 2006: 381-402.

Tomkins S.S. . Affect, Imagery, Consciousness: Vol. I. The Positive Affects. Oxford: Springer; 1962.

VanSwearingen J.M. , Cohn J.F. , Bajaj-Luthra A. . Specific impairment of smiling increases the severity of depressive symptoms in patients with facial neuromuscular disorders. Aesthet Plast Surg. 1999; 23: 416-423.

VanSwearingen J.M. , Cohn J.F. , Turnbull J. , Mrzai T. , Johnson P. . Psychological distress: linking impairment with disability in facial neuromotor disorders. Otolaryngol Head Neck Surg. 1998; 118: 790-796.

Verzijl H.T. , van den Helm B. , Veldman B. , Hamel B.C. , Kuyt L.P. , Padberg G.W. , Kremer H. . A second gene for autosomal dominant Mobius syndrome is localized to chromosome 10q, in a Dutch family. Am J Hum Genet. 1999; 65: 752-756.

Verzijl H.T. , van der Zwaag B. , Cruysberg J.R. , Padberg G.W. . Mobius syndrome redefined: a syndrome of rhombencephalic maldevelopment. Neurology. 2003; 61: 327-333.

Verzijl H.T. , van Es N. , Berger H.J. , Padberg G.W. , van Spaendonck K.P.M. . Cognitive evaluation in adult patients with Möbius syndrome. J Neurol. 2005; 128: 1728-1736.

Ware J.E. , Sherbourne C.D. . The MOS 36-item short-form health survey (SF-36). Med Care. 1992; 30: 473-483.

Zigmond A.S. , Snaith R.P. . The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand. 1983; 67: 361-37.