Parenting a Child with a Cleft: The Father's Perspective

Ahmann E. Supporting fathers' involvement in children's health care. Pediatr Nurs. 2006; 32: 88–90.

Baker S.R. , Owens J. , Stern M. , Willmot D. Coping strategies and social support in the family impact of cleft lip and palate and parents' adjustment and psychological distress. Cleft Palate Craniofac J. 2009; 46: 229–236.

Bellew R. The role of the family. In: Rumsey N. , Harcourt D. , eds. Oxford Handbook of the Psychology of Appearance. Oxford, U.K.: Oxford University Press; 2012.

Berger Z.E. , Dalton L.J. Coping with a cleft. II: factors associated with psychosocial adjustment of adolescents with a cleft lip and palate and their parents. Cleft Palate Craniofac J. 2011; 48: 82–90.

Billaud Feragen K. , Kvalem I.L. , Rumsey N. , Borge A.I.H. Adolescents with and without a facial difference: the role of friendships and social acceptance in perceptions of appearance and emotional resilience. Body Image. 2010; 7: 271–279.

Billaud Feragen K. , Stock N.M. , Rumsey N. Towards a reconsideration of inclusion and exclusion criteria in cleft lip and palate: implications for psychological research. Cleft Palate Craniofac J. In press. doi: 10.1597/12-326.

Black J.D. , Girotto J.A. , Chapman K.E. , Oppenheimer A.J. When my child was born: cross-cultural reactions to the birth of a child with cleft lip and palate. Cleft Palate Craniofac J. 2009; 46: 545–548.

Braun V. , Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006; 3: 77–101.

British Psychological Society. Code of Ethics and Conduct. Leicester: Guidance by the Ethics Committee of the British Psychological Society; 2009.

Brown B. , Moss T. , McGrouther D. , Bayat A. Skin scar preconceptions must be challenged: importance of self-perception in skin scarring. J Plast Reconstr Aesthet Surg. 2010; 63: 1022–1029.

Chuacharoen R. , Ritthagol W. , Hunsrisakhun J. , Nilmanat K. Felt needs of parents who have a 0- to 3-month-old child with a cleft lip and palate. Cleft Palate Craniofac J. 2009; 46: 252–257.

Clarke A. , Thompson A. , Jenkinson E. , Rumsey N. , Newell R. CBT for Appearance Anxiety: Psychosocial Interventions for Anxiety Due to Visible Difference. Chichester: Wiley Blackwell; 2013.

Coffey J.S. Parenting a child with chronic illness: a metasynthesis. Pediatr Nurs. 2006; 32: 51–59.

Cohen S. , McKay G. Social support, stress and the buffering hypothesis: a theoretical analysis. In: Baum A. , Taylor S.E. , Singer J.E. , eds. Handbook of Psychology and Health. Hillsdale, NJ: Erlbaum; 1984.

Collett B.R. , Speltz M.L. Social-emotional development of infants and young children with orofacial clefts. Infant Young Child. 2006; 19: 262–291.

Costigan C.L. , Cox M.J. Fathers' participation in family research: is there a self-selection bias? J Fam Psychol. 2001; 15: 706–720.

Danino A. , Gradell J. , Malka G. , Moutel G. , Herve C. , Rosilio C. Social adjustment in French adults who had undergone standardised treatment of complete unilateral cleft lip and palate [in French]. Ann Chir Plast Esthet. 2005; 50: 202–205.

Deeney K. , Lohan M. , Parkes J. , Spence D. Experiences of fathers of babies in intensive care. Pediatr Nurs. 2009; 21: 45–47.

Egan K. , Harcourt D. , Rumsey N. The Appearance Research Collaboration. A qualitative study of the experiences of people who identified themselves as having adjusted positively to a visible difference. J Health Psychol. 2011; 16: 739–749.

Eiserman W. Unique outcomes and positive contributions associated with facial difference: expanding research and practice. Cleft Palate Craniofac J. 2001; 38: 236–244.

Featherstone B. Fathers matter: a research review. Child Soc. 2004; 18: 312–319.

Fishman D.B. The Case for Pragmatic Psychology. New York: NYU Press; 1999.

Fox F.E. , Rumsey N. , Morris M. “Ur skin is the thing that everyone sees and you can't change it!” Exploring the appearance-related concerns of young people with psoriasis. Dev Neurorehabil. 2007; 10: 133–141.

Harcourt D. , Frith H. Women's experiences of an altered appearance during chemotherapy: an indication of cancer status. J Health Psychol. 2008; 13: 597–606.

Hodgkinson P.D. , Brown S. , Duncan D. , Grant C. , McNaughton A. , Thomas P. , Mattick C.R. Management of children with cleft lip and palate: a review describing the application of multidisciplinary team working in this condition based upon the experiences of a regional cleft lip and palate centre in the United Kingdom. Fetal Matern Med Rev. 2005; 16: 1–27.

Howitt D. , Cramer D. Introduction to Research Methods in Psychology. 3rd ed. Essex: Pearson Education Limited; 2011.

Knapke S.C. , Bender P. , Prows C. , Schultz J.R. , Saal H.M. Parental perspectives of children born with cleft lip and/or palate: a qualitative assessment of suggestions for healthcare improvements and interventions. Cleft Palate Craniofac J. 2010; 47: 143–150.

Kramer F.J. , Gruber R. , Fialka F. , Sinikovic B. , Schliephake H. Quality of life and family functioning in children with nonsyndromic orofacial clefts at preschool ages. J Craniofac Surg. 2008; 19: 580–587.

Kvalevaag A.L. , Ramchandani P.G. , Hove O. , Assmus J. , Eberhard-Gran M. , Biringer E. Paternal mental health and socioemotional and behavioral development in their children. Pediatr. 2013; 131: 463–469.

Lamb M.E. The role of the father in child development. 5th ed. Hoboken, NJ: John Wiley & Sons; 2010.

Lansdown R. , Rumsey N. , Bradbury E. , Carr T. , Partridge J. Visibly Different: Coping With Disfigurement. London: Hodder Arnold; 1997.

Linley P.A. , Joseph S. Positive change following trauma and adversity: a review. J Trauma Stress. 2004; 17: 11–21.

Locker D. , Jokovic A. , Stephens M. , Kenny D. , Tompson B. , Guyatt G. Family impact of child oral and oro-facial conditions. Community Dent Oral Epidemiol. 2005; 30: 438–448.

May J. Fathers: the forgotten parent. Pediatr Nurs. 1996; 22: 243–246.

McCorkell G. , McCarron C. , Blair S. , Coates V. Parental experiences of cleft lip and palate services. Community Pract. 2012; 85: 24–27.

Morse J.M. , Richards L. Read Me First for a User's Guide to Qualitative Methods. London: Sage; 2002.

Moss T.P. The relationship between objective and subjective ratings of disfigurement severity and psychological adjustment. Body Image. 2005; 2: 151–159.

Nelson P. , Glenny A-M , Kirk S. , Caress A-L . Parents' experiences of caring for a child with a cleft lip and/or palate: a review of the literature. Child Care Health Dev. 2012; 38: 6–20.

Nelson P. , Kirk S. , Caress A-L , Glenny A-M . Parents' emotional and social experiences of caring for a child through cleft treatment. Qual Health Res. 2011; 22: 346–359.

Nelson P. , O'Leary C. , Weinman J. Causal attributions in parents of babies with a cleft lip and/or palate and their association with psychological well-being. Cleft Palate Craniofac J. 2009; 46: 425–434.

O'Hanlon K. , Camic P.M. , Shearer J. Factors associated with parental adaptation to having a child with a cleft lip and/or palate: the impact of parental diagnosis. Cleft Palate Craniofac J. 2012; 49: 718–729.

Ong J. , Clarke A. , White P. , Johnson M. , Withey S. , Butler P.E.M. Does severity predict distress? The relationship between subjective and objective measures of appearance and psychological adjustment during treatment for facial lipoatrophy. Body Image. 2007; 4: 239–248.

Oosterkamp B.C.M. , Dijkstra P.U. , Remmelink H.J. , van Oort R.P. , Goorhuls-Brouwer S.M. , Sandham A. , de Bont L.G.M. Satisfaction with treatment outcome in bilateral cleft lip and palate patients. Int J Oral Maxillofac Surg. 2007; 36: 890–895.

Peel E. , Parry O. , Douglas M. , Lawton J. “It's no skin off my nose”: Why people take part in qualitative research. Qual Health Res. 2006; 16: 1335–1349.

Persson M. Gaining insights from population studies. In: Rumsey N. , Harcourt D. , eds. Oxford Handbook of the Psychology of Appearance. Oxford: Oxford University Press; 2012.

Phares V. , Lopez E. , Fields S. , Kamboukos D. , Duhig A.M. Are fathers involved in pediatric psychology research and treatment? J Pediatr Psychol. 2005; 30: 631–643.

Phillips C. , Rumsey N. Considerations for the provision of psychosocial services for families following paediatric burn injury: a quantitative study. Burns. 2008; 34: 56–62.

Reichman N.E. , Corman H. , Noonan K. Impact of child disability on the family. Matern Child Health J. 2008; 12: 679–683.

Robbins J.M. , Damiano P. , Druschel C.M. , Hobbs C.A. , Romitti P.A. , Austin A.A. , Tyler M. , Reading A. , Burnett W. Prenatal diagnosis of orofacial clefts: association with maternal satisfaction, team care and treatment outcomes. Cleft Palate Craniofac J. 2010; 47: 476–481.

Rumsey N. , Harcourt D. The Oxford Handbook of the Psychology of Appearance. Oxford: Oxford University Press; 2012.

Rumsey N. , Harcourt D. The Psychology of Appearance. Berkshire: Open University Press; 2005.

Rumsey N. , Stock N.M. Living with a cleft: psychological challenges, support and intervention. In: Berkowitz S. , ed. Cleft Lip and Palate: Diagnosis and Management. 3rd ed. Berlin: Springer-Verlag; 2013.

Sharpe D. , Rossiter L. Siblings of children with a chronic illness: a meta-analysis. J Pediatr Psychol. 2002; 27: 699–710.

Söderström K. , Skårderud F. The good, the bad, and the invisible father: a phenomenological study of fatherhood in men with substance use disorder. Fathering. 2013; 11: 31–51.

Stock N.M. , Whale K. , Jenkinson E. , Rumsey N. , Fox F. Young people's perceptions of visible difference. Divers Equal Health Care. 2013; 10: 41–51.

Vanz A.P. , Ribeiro N.R.R. Listening to the mothers of individuals with oral fissures. Rev Esc Enferm USP. 2011; 45: 595–601.

Waylen A. , Stewart-Brown S. Factors influencing parenting in early childhood: a prospective longitudinal study focusing on change. Child Care Health Dev. 2009; 36: 198–207.

Williams L. , Dures E. , Waylen A. , Ireland T. , Rumsey N. , Sandy J. Approaching parents to take part in a cleft gene bank: a qualitative pilot study. Cleft Palate Craniofac J. 2012; 49: 425–436.

Yardley L. Dilemmas in qualitative health research. Psychol Health. 2000; 15: 215–228.

Yttri J.E. , Christensen K. , Knudsen L.B. , Bille C. Reproductive patterns among Danish women with oral clefts. Cleft Palate Craniofac J. 2011; 48: 601–607.