Abstract
BACKGROUND:
With increasing rates of autism spectrum disorder (ASD) diagnosed in children, youths, and adults, it is anticipated that growing numbers of these individuals will be in need of transition and vocational rehabilitation (VR) services. Characteristics of ASD that warrant consideration by transition and VR professionals are the heterogeneity of individuals in terms of degree and severity of impairment, the functional domains affected (particularly executive functioning and social communications), the need to take on a lifespan perspective and provide services in an early intervention context, and other conditions that commonly co-occur with ASD. Although research on ASD has focused primarily on employment barriers and less on effective interventions to ameliorate these barriers, preliminary evidence has demonstrated support for the effectiveness of various transition-related interventions.
OBJECTIVE:
The purpose of this article is to explore applications of these interventions to transition planning.
CONCLUSION:
In the first part of this article, we provide an overview of clinical characteristics of ASD. Then we discuss vocational challenges for individuals with ASD. The remainder of the article focuses on transition and VR implications with specific attention paid to (a) interdisciplinary transition planning, (b) postsecondary educational supports and services, and (c) employment supports and services.
Introduction
Autism spectrum disorder (ASD) is a collection of neurodevelopmental disabilities characterized by (a) deficits in social communication and social interactions across multiple contexts and (b) restricted interests or repetitive behaviors (American Psychiatric Association [APA], 2013). Although individuals with ASD represent a heterogeneous group in terms of how ASD affects them in their daily lives, they all will experience impaired social communication skills of some type. In fact, deficits in social communication and social interactions are the defining characteristics of ASD (APA, 2013; Volkmar, Riechow, Westphal, & Mandell, 2014).
Over the past 20 years, the number of individuals identified as having ASD has substantially increased. Once considered a low-incidence disability, occurring in only 4—6 per 10,000 (or 1 in approximately 1,600) live births in the 1960 s (Lotter, 1967), prevalence rates have more recently been estimated at approximately 1 in 68 individuals (Centers for Disease Control and Prevention [CDC], 2014). This new estimate represents a nearly 30% increase from the 1 in 88 reported in 2008 and continues to remind us that ASD is the fastest growing developmental disability in the United States. Additionally, the prevalence of people who have average to above-average intelligence among individuals diagnosed with ASD has been increasing (Wei et al., 2016).
As the population of children, youth, and adults diagnosed with ASD continues to grow, so does the number of individuals who could benefit from transition and vocational rehabilitation (VR) services. In fact, it has been estimated that as many as 50,000 youths with ASD reach adulthood each year (Shattuck et al., 2012). Recent data from the Rehabilitation Services Administration (RSA-911 Database) confirm such estimates, indicating that the number of eligible VR applicants with autism grew from 7,428 in 2009 to 17,753 in 2014, an increase of more than 58% (Roux et al., 2016). Clearly, the number of individuals with ASD who stand to benefit from transition and VR services will continue to increase as the rates of diagnosis at earlier ages demonstrates no signs of decline. With the steady increase in the numbers of individuals being identified with an ASD, it is important to determine the services and supports that will promote successful transitions from secondary to postsecondary settings such as postsecondary education and employment (Wei et al., 2016).
The use of VR services for individuals with ASD has resulted in some positive outcomes. For example, Lawer et al. (2009) reported that 42% of service users with ASD obtained employment when they exited the VR system; this was the highest employment rate among all participants with disabilities in their study. Similarly, Chen et al. (2015) indicated that 66% of individuals with ASD who utilized VR services achieved successful employment. Most recently, Roux et al. (2016) found that 60% of all individuals with ASD who received VR services gained some form of employment for at least 90 days.
Given the evidence that VR services have a positive impact on employment outcomes for individuals with ASD, it stands to reason that if appropriate transition and VR services and supports are provided to such individuals, it could directly contribute to better, long-term outcomes. Therefore, we discuss considerations to keep in mind throughout the VR process when providing services to individuals with ASD. The purpose of this article is to (a) examine the clinical and vocational aspects of ASD and (b) explore implications for ameliorating barriers to education and employment to support individuals with ASD in achieving their self-determined educational and career goals. Specifically, the authors discuss (a) interdisciplinary transition planning, (b) postsecondary educational supports and services and (c) employment supports and services as strategies to improve adult outcomes for individuals with ASD.
Clinical characteristics of ASD
Across the spectrum, characteristics of ASD manifest as a collection of symptoms that vary from one individual to another. At one end of this spectrum are individuals characterized by severe deficits. These individuals require extensive supports in home, school, and work environments (Level 3; APA, 2013). Individuals at this end of the spectrum typically display severe deficits in social communication and/or interactions, extremely limited or unintelligible speech, and inflexible behaviors (i.e., repetitive behaviors such as hand flapping or rocking). Intellectual disabilities also may be present for some individuals at this end of the spectrum. At the other end of the spectrum are those individuals with difficulties in social communication and restricted behaviors/interests who also require supports but not as extensive as those needed by individuals with more severe deficits. (Level 1; APA 2013). These individuals display atypical responses to social interactions (i.e., a long-winded, pedantic communication style), difficulty switching between activities, rare or unique special interests, and problems with planning and organization. Despite the presence of such social/behavioral difficulties, individuals with higher functioning ASD demonstrate no significant delays in the development of language or cognitive abilities.
In general, individuals with ASD have a weakness in understanding nonverbal cues such as facial expressions, gestures, and tone of voice. Such a weakness makes it difficult to decipher thoughts, feelings, intentions, and perspectives of others. Furthermore, it is unlikely that individuals with ASD will engage in expected nonverbal behaviors when communicating. That is, they may demonstrate poor eye contact (or have a stiff, staring gaze), display awkward or clumsy body posture, limited or inappropriate facial expressions, and/or fail to use gestures while interacting and communicating with others. Individuals with ASD also express limited social and emotional reciprocity. Often unresponsive to auditory cues (e.g., their name being called, requests from another person), some individuals appear to be unaware of the people and circumstances surrounding them. These individuals may prefer to engage in solitary activities or take part in activities from the periphery, rather than actively participating in activities with others (APA, 2013; Volkmar et al., 2014). Moreover, they may not share feelings of enjoyment about interests, activities, or accomplishments.
Another important domain in which individuals with ASD demonstrate impairment is in the ability to consider others’ perspectives and to appreciate the fact that other individuals think, feel, and view the world differently than they do, a concept commonly referred to as Theory of Mind (Baron-Cohen, Tager-Fulsberg, & Cohen, 2000). In individuals with higher functioning ASD, difficulties in Theory of Mind often manifest as a one-sided social approach to others whereby they overly pursue a topic of interest regardless of the other individuals’ interests or reaction (APA, 2013). For example, an individual with ASD may continue to talk about the latest Star Wars movie while seemingly ignoring the listener’s signs of boredom (e.g., rolling of the eyes, looking away) or attempts to leave. This failure may appear as disregard for others’ feelings and may come across as insensitive. However, this is not the individual’s intention. Instead, individuals with ASD have a poor capacity to recognize, relate to, and understand the feelings of others, making it difficult for them to understand why others do not share their same level of passion.
Because individuals with ASD frequently demonstrate limited awareness of how to respond socially, it is not uncommon for them to violate social conventions and engage in socially inappropriate behavior. For example, an individual with ASD may infringe upon another’s personal space (e.g., touching a t-shirt with a logo the individual likes) and may be unable to refrain from asking extremely personal questions (e.g., “Did you take a shower this morning?”) or to keep thoughts and/or opinions to himself or herself (e.g., blurting out “you have really ugly hair”). In addition, these individuals often are confused as to why their behavior(s) may affect others as they do. A lack of understanding of the social world, combined with socially inappropriate behavior(s), often results in numerous social errors. Because of these deficits they may experience rejection, teasing, and bullying from their peers in school settings and their co-workers in employment settings. As a result, they may feel socially isolated, which contributes to the disproportionate rates of depression and anxiety in this population.
Individuals with ASD frequently display behaviors, interests, and activities that are not only restricted and repetitive in nature, but also abnormally intense or focused (APA, 2013). These patterns of behavior, interests, and activities can be separated into two distinct groups, lower level and higher level behaviors (Turner, 1999). Lower level behaviors are characterized by stereotyped motor movements or atypical, involuntary actions (e.g., hand flapping, object spinning). Individuals with these behaviors may engage in rigid motor mannerisms such as spinning, finger flapping, clapping, hand flapping or twisting, pacing, stereotyped walking, and complex whole-body movements (APA, 2013; South, Ozonoff, & McMahon, 2005). Oftentimes, these repetitive movements—frequently referred to as “self-stimulatory” or “self-stimming” behaviors—denote expressions of excitement, happiness, frustration, and/or agitation. These behavioral difficulties are not performed intentionally. Rather, they are due to difficulty in identifying and describing one’s emotions (Fitzgerald & Bellgrove, 2006), as well as the individual’s sense of loss of control or inability to predict outcomes (Koerner & Dugas, 2008; Wigham et al., 2015). That is, lower level behaviors likely occur in highly stressful periods that are difficult to interpret or that evoke anxiety and/or confusion.
Conversely, more advanced, higher level behaviors include insistence on following elaborate routines and focusing on circumscribed interests (e.g., arranging objects by order of color, eating only five Pringles at lunchtime). Individuals with higher level behaviors often display an inflexible adherence to seemingly nonfunctional routines or rituals, desiring sameness, and requiring environmental predictability (APA, 2013). Moreover, change, surprise, chaos, and uncertainty are not easily tolerated, and the lack of predictability or sameness causes feelings of stress and anxiety (Lidstone et al., 2014). Individuals with ASD prefer routine and function best when they can predict what is going to occur within the environment. By engaging in routines or ritualistic behaviors, individuals with ASD attempt to control their environment. Perhaps the most interesting feature of rigid behavior displayed by individuals with higher functioning ASD is their obsessive and, at times, all absorbing interests. These individuals may collect volumes of detailed, factual information and trivia related to a relatively narrow topic. It is not uncommon for interests to change once an individual collects all the information available regarding a specific topic. Regardless of the topic or the frequency by which it may change, individuals with higher functioning ASD tend to focus most of their social advances and conversations on their specific topic of interest (Ozonoff et al., 2002) and talk about it to the point that they annoy others.
Individuals with ASD often respond unusually to sensory stimuli, such as sound, light, touch, texture, taste, smell, pain, and temperature, reacting in either hypersensitive (i.e., oversensitive) or hyposensitive (i.e., undersensitive) ways (Hilton et al., 2010). For example, some individuals with ASD may have a high threshold for withstanding painful bumps or bruises, yet they may be extremely sensitive to clothing touching their skin (e.g., the tag on the back of their shirt) or people touching them (e.g., giving them a hug or a kiss). The most common oversensitivity for these individuals is specific sounds (Tomchek & Dunn, 2007). Many individuals with ASD have a propensity to be overly startled by sudden noises. Moreover, they may perceive sounds of a certain pitch to be unbearable or notice very faint sounds that others might not hear, such as a siren in the distance. Additionally, many individuals with ASD may withdraw from certain stimuli due to overloading the senses.
In contrast, individuals with ASD may demonstrate a lack of sensitivity to various stimuli. This typically occurs when responding to particular sounds, such as their names being called. They also may be unusually able to endure pain and tolerate cold weather. In fact, some sensory stimuli may evoke pleasure, such as cool air coming from an air conditioner or the smell of perfume. Generally, individuals with ASD appear to be confused by and fail to understand why others do not have the same level of sensitivity to stimuli that they themselves do. In addition, the way in which individuals with ASD respond to different sensory stimuli, whether fearful or not, can frequently cause problems in daily living situations (Hilton et al., 2007).
Vocational implications of ASD
Adult outcome studies continue to report low employment rates and low wages with a limited number of work hours for those with ASD who are employed. In fact, research findings have demonstrated that young adults with ASD possess the lowest employment rates among people with disabilities (Chen et al., 2015). For instance, Chen et al. (2015) reported that the rate at which individuals with ASD held paid employment during the first 6 years following high school graduation was 55% and was documented to be the lowest rate when compared to their peers with learning disabilities (LD; 94%), intellectual disabilities (ID; 69%), and speech/language impairments (SLI; 86%). Roux et al. (2013) reported that young adults with ASD also earned a significantly lower wage (mean of $8.10/hour) than their peers with other disabilities (emotional disability [ED], $11.90; LD, $11.20; SLI, $12.00). Furthermore, Roux et al. (2013) found that about one fifth of the individuals with ASD in their study worked full-time (>35 hours per week), which was about one half the rate of the ID group (40%) and about one third the rate of the ED (61%), LD (73%), and SLI (63%) groups (Roux et al., 2013).
Another area of concern related to the employment of people with ASD is the low rate of participation in postsecondary education. This low rate of enrollment in colleges and universities is especially troubling because (a) many individuals with ASD have average to above average intelligence along with the cognitive capacity to participate in higher education, and (b) obtaining a college degree is often necessary for securing employment in high demand occupations that pay livable wages. Workers with a Bachelor’s degree earn approximately $570,000.00 more in lifetime earnings (30-year time span) than those who complete only a high school diploma. Those who complete a two-year degree earn $170,000.00 more (U.S. Treasury, 2014). Additionally, there is a 55.5% decrease in the unemployment rate between college graduates and those who earn a high school diploma (Halloran, 2016).
Research has revealed that among individuals with ASD who attended postsecondary education, 46% attended a two-year college only; 11.7% attended a 4-year college only, 23.8% attended both two and four year colleges, and 10.1% attended a vocational/technical school (Roux et al., 2015). Individuals with ASD have been found to rank third lowest (32%) in college enrollment compared to those in 12 other disability categories who were attending two and four year colleges (Shattuck et al., 2012; Wei et al., 2013). Of those diagnosed with average to above average cognitive ability, only one-third attended colleges within eight years of leaving high school (Shattuck et al., 2012).
Because of functional limitations in social communication and social interaction, individuals with ASD may be more than capable of performing the “hard skills” required in their jobs, but they are likely to struggle with the “soft skills” (Autism Speaks, Inc., 2012). Whereas hard skills refer to the technical knowledge and abilities required for a specific position (Che, 2016), soft skills refer to the employee’s interpersonal or people skills and, in most cases, are “unspoken requirements to remain employed or be considered for promotion” (Autism Speaks, Inc., 2012, p. 3). Soft skills that may be particularly challenging for workers with ASD include small talk, flexibility, understanding office politics, working on team projects, providing customer service, managing stress on the job, and understanding the unspoken cultural norms of the organization (Autism Speaks, Inc., 2012; Robles, 2012). Individuals with ASD may also have difficulties working in employment settings wherein there is a lack of clarity in terms of job requirements and performance expectations, and these types of employment settings are becoming increasingly prominent in the contemporary world of work. Changes such as the hiring of new supervisors, introduction of new or revised job requirements, restructuring of departments, and relocation of businesses to new buildings can be particularly stressful for employees with autism because of their preferences for sameness and routine. The stress associated with these changes can lead to declines in job performance. Other functional limitations that those with ASD may experience in the workplace include atypical body movements (e.g., self-stimulating) that may help the employee with ASD to stay calm and focused but may be disruptive to co-workers; time management difficulties that can interfere with meeting deadlines as well as initiating work activities; difficulties concentrating and being easily distracted by clutter in the work environment or common office noises such as fax tones, photocopying, and co-worker small talk; staying organized; prioritizing job tasks; planning and goal setting; multi-tasking; remembering supervisor instructions or other important information; and oversensitivity to touch, sights, sounds, or smells in the workplace that can interfere with focusing on job tasks (Whetzel, 2013).
The unemployment, underemployment, and difficulties that these individuals experience when employed cannot be solely attributed to characteristics of ASD. Environmental factors such as employers’ underestimation of the employment capabilities of individuals with ASD; discrimination in hiring, accommodating, and promoting workers with ASD; and workplace harassment and bullying by co-workers must be addressed to enhance employment outcomes for these individuals (Autism Speaks, 2012).
Transition and vocational rehabilitation considerations
Important considerations for VR professionals as members of transition planning teams include (a) engaging as a member of these teams in a manner that emphasizes the self-determination of individuals with ASD, (b) providing the necessary supports and services that postsecondary students with ASD need to achieve their educational goals and successfully transition to postsecondary education and employment, and (c) implementing employment services and supports that facilitate successful employment outcomes. Transition planning with individuals with ASD is most likely to be effective when it focuses on early intervention, uses established guidelines for structuring transition team meetings and facilitating the transition process, and focuses on family involvement and student self-determination.
Transition team structure and processes
Early detection and treatment of ASD has been associated with improved adult outcomes (e.g., employment, independent living, community engagement, social functioning; Adamou et al., 2013; Gjerven, Torgersen, Nordahl, & Rasmussen, 2012; Wehman et al., 2014). As such, transition services should be provided in an early intervention context. Outreach to schools to identify students with ASD who stand to benefit from transition services that incorporate early and ongoing age-appropriate career development activities is imperative. Consequently, VR professionals should make every effort to engage with school personnel to ensure early transition planning. Also, early planning and preparation for transitioning to adult services can help ease this transition, particularly for those with ASD who have difficulties with handling change. Table 1 summarizes the differences in rights and responsibilities between secondary and postsecondary (adult) service settings and can be a helpful guide for easing some of the anxiety that accompanies this transition.
Matrix of rights and responsibilities of individual in secondary and postsecondary settings (adapted from Merchant & Dintino, 2011)
Matrix of rights and responsibilities of individual in secondary and postsecondary settings (adapted from Merchant & Dintino, 2011)
To develop effective transition plans, transition team members must first consider their views regarding the educational and vocational potential of individuals with ASD. Because of the multitude of functional domains that this neurodevelopmental disability may affect, team members should be cautious not to underestimate their strengths or prematurely restrict postsecondary and vocational options as they work to identify employment goals. Team members must also keep in mind the heterogeneity of this population in terms of skills, functional limitations, compensatory strategies, interests, and preferences. Additionally, they should consider how functional deficits in settings that do not provide a good person-environment match may be assets in settings that do provide a good person-environment match. In terms of structuring and planning the transition process, Kohler, Gothberg, Fowler, and Coyle (2016) have developed a collaborative framework and service delivery model that can be used as a guide for transition team members (see Table 2).
Collaboration framework and service delivery matrix (adapted from Kohler et al., 2016, p. 7)
Rehabilitation professionals and other transition team members should implement, to the maximum extent possible, carefully developed plans that can be evaluated through data-driven practices (e.g., progress monitoring) to determine if the individual with ASD demonstrates gains in various domains of functioning (Sansosti & Powell-Smith, 2006; Sansosti, Powell-Smith, & Cowan, 2010). By carefully targeting essential skills to be taught, planning specifically when and how the skills will be taught, and determining data collection methods, rehabilitation professionals and transition team members will have effective programs that engage students with ASD (Iovannone, Dunlap, Huber, & Kincaid, 2003) and that are legally defensible (Yell, Katsiyannis, Drasgow, & Herbst, 2003).
In addition to being systematic, a transition plan for an individual with ASD should be employed in a highly structured and predictable environment. This type of environment will enable individuals with ASD to attend to important stimuli in the environment, thereby promoting learning and decreasing the amount of time engaging in nonfunctional stereotypical behavior (Barton & Harn, 2014). In fact, strategies that incorporate visual presentation are considered to be one of the most effective methods for assisting individuals with ASD (National Autism Center [NAC], 2009; Nikopoulos & Nikopoulou-Smyrni, 2008). The use of visual supports utilizes pictures, photographs, lists, or other visual material (e.g., computers; mobile technologies) that prompt the individual with ASD to engage in a particular behavior or prepare them to engage in a particular activity or task (Sansosti & Powell-Smith, 2006). Through the use of visuals, individuals with ASD require less verbal reminders and they increase their level of independence. Without visual aids, some individuals with ASD may engage in stereotypical and/or inappropriate behavior(s), while others may do nothing or spend their time focusing on details of a task, making them forget the task entirely. Visual supports should be used across settings to improve the functional capabilities of individuals with ASD. Teachers can use these in the classroom to facilitate learning; academic coaches can use these with postsecondary students with ASD to facilitate success in coursework and persistence to degree or certificate completion; and job coaches, employment support specialists, and employers can use these to ensure satisfactory job performance.
Because ASD is characterized by functional difficulties in social communication, the interactions of transition team members and students with ASD may be challenging. However, several considerations for improving communication with consumers with ASD can substantially strengthen the partnership and increase the potential for successful outcomes (Aleza Greene, Director of the University of Arkansas Autism Support Program, personal communication, December 13, 2015). For example, because individuals with ASD tend to be fairly concrete and have difficulty with the nuances of language, transition team members should try to avoid sarcasm and use of idioms (e.g., “I’d better hit the road”). Because individuals with ASD can also experience difficulties with expressive and receptive nonverbal social cues, they may not be able to interpret the nonverbal facial expressions and body language of transition team members, and at the same time, their nonverbal expressions may not match what they are thinking and feeling. Therefore, transition team members should be direct and precise, even using visual cues, as previously described, in their communications with students with ASD. They should also clearly explain and periodically review transition goals and task expectations of the student and each transition team member. When students with ASD make social mistakes, it is also important for transition team members to directly (and compassionately) point out these mistakes rather than ignoring them or responding to these mistakes with nonverbal cues. Finally, because a characteristic of ASD is a tendency to obsessively focus on one particular area of interest that often dominates their conversations with others, transition team members should directly address with the student the need to stay on topic and focus on the meeting agenda. Transition team members can then reserve the last five minutes of each meeting to talk about the student’s interest. This technique validates that these interests are important to the transition team but not at the expense of the work that needs to be accomplished during the meeting.
Transition team members should also recognize when the student is demonstrating as “self-stimulatory” or “self-stimming” behaviors. Team members must understand that if these behaviors occur during a meeting, they are not performed intentionally. Rather, they are due to difficulty in identifying and describing one’s emotions (Fitzgerald & Bellgrove, 2006) as well as the individual’s sense of loss of control or inability to predict outcomes (Koerner & Dugas, 2008; Wigham et al., 2015). That is, these behaviors likely occur in highly stressful situations that are difficult to interpret or that evoke anxiety or confusion. Thus, such behaviors may be signals that the transition team meeting is highly stress-provoking for the individual with ASD, and actions (e.g., holding meetings in a place where the student feels secure, inviting the student to bring a friend or advocate to next meeting, providing more structure in future meetings, scheduling shorter meetings) should be taken to avoid overwhelming the student and to reduce the student’s stress. Additionally, transition team members should keep in mind that transitional periods (e.g., from high school to college or work, from college to work) can be stressful times for all youths and young adults, but can be even more stressful for youths with neurodevelopmental disorders. During these times, transition team members should provide students with positive support and encouragement as well as any other services needed to facilitate a less stressful transition.
Because individuals with ASD often have co-occurring psychiatric disabilities, it is crucial that transition team members are alert to the possibility of these comorbidities and make appropriate referrals for evaluation and treatment. Additionally, team members must be aware of the ways in which co-occurring psychiatric conditions may present themselves. Characteristics of these conditions may include a worsening in behavior, inattention, social withdrawal, overreliance on obsessions and compulsions, hyperactivity, aggressive or oppositional behavior, agitation, and/or changes in eating and sleeping (Eussen et al., 2013). Finally, schools have an obligation under the Individuals with Disabilities Education Act to ensure that school environmental barriers do not preclude students with disabilities from participating in their Individualized Education Plan (IEP). Because students with ASD are at an increased risk of being bullied, and bullying can interfere with both academic performance and attendance, immediate actions must be taken to cease the bullying when transition team members are made aware of the situation (Koch & Rumrill, 2017). Increasingly, schools are developing no tolerance policies for bullying, educating witnesses of bullying about how to intervene, and developing remediation plans that involve both the bully and the bully’s target.
A critical consideration in transition planning is how to actively engage individuals with ASD and their family members in all phases of the transition planning process. In separate focus groups with professionals and parents that explored these participants’ perceptions of the educational and vocational support needs of children and youths with ASD, both professionals and parents underscored that parents (or guardians) are the best experts on their children and should be treated as such by transition team members (Baker, Koch, Higgins, & Greene, 2012). The family members of children, adolescents, and young adults with ASD most often have the greatest insight into their children’s needs, styles, strengths, and interests. Parental input offers a unique and critical viewpoint that can provide insight into the student’s developmental history and interpretation of abilities, along with information about services and interventions provided to the individual in the past as well as the effectiveness of these services (Sansosti, Powell-Smith, & Cowan, 2010).
Family and parent engagement increases the frequency of learning opportunities for the student with ASD and can help to maintain and generalize skill sets learned across settings (e.g., school, home, community, work (Barton & Harn, 2014). Research also has shown that challenging behaviors may decrease and engagement with tasks may increase when parents are included in the execution of interventions (Lequia, Machalicek, & Lyons, 2013). Given these findings, transition team members should view and treat families as essential and equal partners in the planning and delivery of transition supports and services.
Transition team members should continue to offer expertise, but encourage members of the family (as well as the individual, when appropriate) to offer their expertise—knowledge of their child! A partnership is a reciprocal relationship that involves listening and sharing, not telling a family what to do. It is equally important that transition team members recognize that family members may not know how to participate in the transition team process. They may be hindered by their own experiences, or lack of experiences, collaborating with professionals, or, more likely, feel ineffective and/or alienated (especially those from cultural or linguistic backgrounds that differ from the backgrounds of the transition team members). Concerted efforts should be made to ensure that family members understand to purpose of transitional planning and that transition team members understand the particular family dynamics that may influence availability and/or involvement. Issues such as work schedules, transportation issues, family characteristics, lack of childcare, and other stressors influence the ability of families to be consistently involved (Crosland & Dunlap, 2012; Iovannone, Dunlap, Huber, & Kincaid, 2003). Transition team members should respond to such dynamics in a non-judgmental manner and make appropriate accommodations to account for each family’s unique circumstances. Furthermore, they should be aware that, in general, parent involvement tends to decrease as children get older, but the need for parental involvement for individuals with ASD may increase as the child ages. As such, the transition team should do their best to consider methods for offering families assistance during the complex time of adolescent development/young adulthood. Once such considerations are accounted for, efforts to create a more collaborative partnership between home and community should be of primary focus. A caveat to keep in mind is that if the individual is a legal adult, he or she must first be consulted about the involvement of family members, specific members to be included in meetings, and the degree and type of family involvement desired.
Relatedly, as children with ASD become adolescents and young adults, their role in identifying transition goals, services, and desired outcomes should take precedence in the process; and their active involvement should increase. However, researchers have noted that students often take a passive role because they find it difficult to reveal private information and assert themselves to authoritative figures (e.g., transition team members; Walker & Gowen, 2011). Likewise, they may lack the self-determination skills necessary to become active participants. To address this issue, researchers at the Rehabilitation Research and Training Center for Pathways to Positive Futures developed an approach called Achieve My Plan! (AMP; Walker & Gowen, 2011). This approach applies to all educational and service provision teams involving youth with disabilities and focuses on increasing their control of the transition planning process. A key feature of AMP is the provision of AMP coaches who meet individually with students to prepare them to take ownership of the team process. AMP coaches instruct students in how to identify and assert their opinions and preferences and how to handle conflicts or disagreements that may arise. AMP coaches also meet with transition team members to advise them on how to encourage student self-determination and active involvement in transition planning. Although AMP was originally developed as an approach for working with youth with psychiatric disabilities, it certainly has application to transition planning with youth with ASD. However, research is needed to implement and evaluate this approach.
Transition services
Consideration of each student’s uniqueness must be at the forefront in planning for transition services. Also, when designing/implementing individualized supports and services for individuals with ASD, transition team members should strive to create as many opportunities for these consumers to exert greater control through choice making—the process of allowing an individual to select an activity among several alternatives (Koch & Rumrill, 2017). However, especially if they are younger with more severe functional limitations, these individuals may have had limited experiences with decision-making and may need self-determination training. In these cases, decision-making may need to involve the presentation of options. For example, an individual with ASD may be given the choice of whether to complete one of two work-required tasks before the other. The expectation remains that the individual will complete both activities, but the individual with ASD directs the order regarding which to do first. Related to the importance of choice making, rehabilitation professionals should also incorporate the individual’s preferences—those objects, tasks, and/or activities most appealing and naturally rewarding—into all aspects of the transition planning processes. When choice making and preference can be incorporated into these processes, individuals with ASD may exert more control over their lives, thereby decreasing problematic behaviors and increasing time engaged in social contexts (Powell-Smith & Vaughn, 2006).
The extant literature provides many evidence-based approaches that facilitate effective programming for individuals with ASD (e.g., Crosland & Dunlap, 2012; Iovannone, Dunlap, Huber, & Kincaid, 2003; Lee & Carter, 2012). Specifically, it is important that transition plans and specified services include each of the following: (a) individualized instruction that incorporates choice and preference; (b) functional programming (i.e., viewing challenging behavior(s) as instructional needs and developing instructional priorities that emanate from the environment); (c) systemic instruction provided within a structured environment; and (d) collaboration with families, school personnel, and other service providers. Such programming should steadily expose individuals with ASD to cues, prompts, and interesting and motivating stimuli, as well as employ consistent feedback and repeated exposure in order to be most effective. The incorporation of these characteristics in social skill, behavioral, and even academic and employment plans not only will permit transition team members to support the needs of individuals with ASD, but also promote positive outcomes.
Research endorses the idea that interventions for individuals with ASD should include personalized elements in order to increase motivation and engagement when learning new skill sets (e.g., Koegel, Shirotova, & Koegel, 2009; Lanou, Hough, & Powell, 2012; Wehman et al., 2014). The incorporation of supports that align with the interests and strengths of the individual promotes higher levels of engagement, which may be a predictor of positive outcomes during, and in some cases, after a treatment, education, transition, or employment plan (Logan, Bakeman, & Keefe, 1997). Evidence-based practices can include individualized elements such as specific hand gestures as a response cue that the individual finds engaging (i.e., high-five), using a favorite character to teach a skill, or even incorporating a particular strength in circumscribed interests (e.g., plumbing fixtures, insects). Regardless of the approach, transition services should be custom designed in order to cater to individual needs and skill levels. To be optimally supportive, transition plans for individuals with ASD should incorporate opportunities for the development of social skills; life skills including money management, hygiene, housekeeping, maintenance of health, personal organization, and using public transportation or driving; personal behavioral skills, including sex education; pre-vocational activities including soft skills training; career exploration; job seeking skills training; volunteer or internship experiences; supported first-job experiences; plans and supports for post-high school education (college, technical education, apprenticeships); and supported employment (Geller & Greenberg, 2010).
As emphasized throughout this article, services that will increase employability, capacity to live independently in their communities, and ability to achieve other desired adult outcomes should begin early in the education of children with ASD. Wehman et al. (2014) reported that children and youths with ASD receive most of their education in special education settings, report low rates of participation in their own transition planning, and have a curriculum that includes primarily non-academic/non-vocational courses, despite the fact that they have remarkably high grade point averages in comparison to their peers with other disabilities. These inadequate school experiences leave youths with ASD unprepared to successfully transition into adult roles. To remediate this problem, Wehman et al. (2014) provided several recommendations for transition services and school experiences targeted at improving adult outcomes. Foremost among these recommendations is the need to increase inclusion of these students in general education classes rather than special education and vocational classes. Also, there is a substantial need to include training in self-determination in high school curricula to better prepare students for making important life decisions (e.g., career choices, choices about postsecondary degree options, decisions about whether or not to disclose information about their disability to prospective employers).
Wehman et al. (2014) also pointed out that many youths with ASD leave high school unprepared for adulthood with respect to employment, postsecondary education, and community living. They may lack the autonomy or independence to effectively transition into adult roles, and as a consequence may continue to rely on family members for basic needs, financial support, housing, supervision, and companionship. As such, transition services should incorporate age-appropriate career development activities. In particular, transition teams should diligently work with students with ASD to establish goals that include postsecondary education in technical and vocational training programs, community colleges, and four-year colleges and universities. These students should also be provided with opportunities to dually enroll in postsecondary classes, receiving educational coaching if necessary, while they are still receiving special education services in high school. Paid employment with intensive job coaching and support before they leave high school is also imperative. “Such experience will allow these students to demonstrate their capacities and to engage supervisors and co-workers in ways that point to their high value in competitive employment” (Wehman et al., 2014, p.7).
Positive systematic instruction should be used to increase functional literacy, self-care, life skills, independence, and self-determination (Wehman et al., 2014). Systematic instruction involves the process of carefully planning for all aspects of a given transition plan. When a transition plan is designed systematically it will: (a) identify the overall goals for a given transition plan/intervention (e.g., increase the number of social initiations); (b) detail the instructional procedures (e.g., use of a computer-assisted social skills lesson); (c) outline the implementation procedures (e.g., provide direct lessons three times per week, supplemented by computer-assisted Social Stories three times per week for a period of eight weeks); (d) identify activities to ensure skill maintenance and generalization; and (e) specify the procedures for data collection and evaluation (e.g., behavior will be rated each day; data will be reviewed each week). In essence, transition plans that are systematic are those that have clear, purposeful objectives that focus on detailed aspects of interventions implemented with students and use meaningful data to monitor outcomes.
Additional services on individualized transition plans can include peer mentoring along with structured social skills training that emphasizes real-world applications such as engagement in extracurricular activities and work experiences. Services such as mental health counseling and psychiatric interventions may be needed for individuals with co-occurring psychiatric disabilities. Finally, Wehman (2014) pointed out the need to increase access to professional speech and behavioral therapies that focus on functional adaptation in natural community settings and work environments.
Postsecondary supports and services
The authors have noted throughout this article that students with ASD should be encouraged, whenever feasible, to attend postsecondary technical and vocational schools, community colleges, and four year colleges and universities to improve their prospects in securing high-demand jobs that pay livable wages. However, to achieve academic success, these students are likely to need supports and services beyond what are typically provided in postsecondary settings. Functional limitations associated with ASD that may negatively impact academic performance include but are not limited to deficits in executive functioning (e.g., inattentiveness, difficulties with organizational skills); difficulties with time management; and challenges in the areas of communication, social interactions, and developing social relationships (Roux, Shattuck, Rast, Rava, Edwards, Wei, McCracken, & Yu, 2015).
Another important consideration is how the transition team can proactively assist the student in obtaining postsecondary classroom accommodations. Prior to transitioning to postsecondary educational settings, transition team members can educate students about their rights and responsibilities in the areas of disability disclosure to receive classroom accommodations, appropriate documentation required to be eligible for classroom accommodations, and how to apply for and request accommodations from campus-based disability service providers (Peterson, Van Dycke, Roberson, & Sedaghat, 2013; Merchant & Dintino, 2011; Merchant & Gajar, 1997). Classroom accommodations may include extended time on tests, reduced course load, note-takers, readers, recording devices, screen-readers, voice recognition, and other adaptive software or hardware for computers (U.S. Department of Education, Office of Civil Rights, 2011). Although not required by law, there are other supports and services that can be helpful including tutoring, coaching in time management skills, assistance with exam preparation, and instruction in strategies for reading college level textbooks.
Growing numbers of colleges and universities across the U.S. have established programs for students with ASD that are specifically designed to provide services above and beyond what most campus-based disability service providers are required to offer (Aleza Greene, Director of the University of Arkansas Autism Support Program, personal communication, December 13, 2015; Autism Speaks, Inc., 2016). These programs range from summer transition programs for incoming college students with ASD to services and supports provided throughout students’ academic enrollment. Although each program is unique, they often share similarities in terms of how they are structured and services that are provided. These programs emphasize individualized planning for university-based supports and services that is based on each student’s unique needs and preferences. Academic coaches are employed by programs to assist these students to enhance their skills in the area of executive functioning (e.g., organization, time management, study skills, stress management). Academic coaches may also help facilitate the process of accessing classroom accommodations. Relatedly, they can help to facilitate meetings with professors about how to implement accommodations in the classroom and how to best support students to successfully complete specific courses and course assignments without giving them an unfair advantage over their peers. Academic coaches may also facilitate meetings with other service providers (e.g., career counselors, campus-based mental health counselors, writing center tutors, student affairs personnel) to address additional academic support and service needs of the student. Peer mentors (typically undergraduate students who receive training from program staff) provide coaching to facilitate social integration into the postsecondary setting. Peer mentors work with students to develop social skills and friendships and encourage students to join campus-based clubs, go to sporting events, and engage in other social activities sponsored by the college or university they are attending.
These programs may also provide career development services such as arranging on-campus and community internships for students to gain work experience; learn appropriate work skills (especially soft skills that are transferable across occupations); learn the “unspoken rules” of workplace cultures; and receive corrective feedback from a job coach, employment support specialist, or academic coach. Oftentimes, these programs offer psychoeducational groups that focus on the development of specific skills (e.g., social skills, study skills, time management, stress management). They may also offer peer support groups and work with residence hall directors and related personnel to create inclusive living-learning environments in residence halls.
Students in these programs typically meet with peer and academic advisors on a weekly basis or more frequently during stressful times such as initial enrollment and midterm and final exam periods. A downside of these programs is that they typically cost a fee (between $2,000 and $6,000 a semester) in addition to tuition. However, some programs do offer scholarships. Furthermore, research is needed to examine outcomes of these programs (e.g., first- to- second- year persistence, persistence to degree completion, employment, student satisfaction with programs).
Employment supports and services
One of the first considerations regarding employment is how age-appropriate career development activities can be incorporated into the IEPs of children with ASD long before a formalized transition plan is implemented. For children, these activities include participation in chores at home and in school; social skills training and opportunities to practice these skills in real world contexts; participation in school clubs and athletics; and adult and peer mentors. These activities will enable children and youths to explore their interests, develop pre-vocational skills, and, perhaps most importantly, begin to envision themselves as future employees. VR professionals working for agencies and programs that provide services to children and youths with disabilities can be instrumental members of IEP teams and ensure that career development experiences are incorporated into the IEP plans of children and youths of all ages.
Another important consideration in terms of employment preparation is how characteristics of ASD that may be deficits in some employment settings may actually be assets in others. In fact, in recognition of the unique assets that these individuals bring to the workplace, a growing number of companies are creating initiatives to hire and retain workers with ASD (Che, 2016). Among these companies are Microsoft; SAP, a German software company; CAI, an information technology company; Oliver Wyman, a consulting firm, and Wills Towers Watson, a risk management and human resources firm. Noted ASD characteristics that are valued by employers include “the ability to find patterns and anomalies in data and to focus and perform high-quality repetitive work” (Che, 2016, para.9). These attributes are valuable assets in occupations such as data analysis, informational technology, software design, and multimedia. In team projects, employees with ASD are noted by these employers to foster creativity and innovation. A word of caution—VR professionals and transition team members must avoid occupational stereotyping and only targeting employment in these arenas because of the heterogeneity of individuals with ASD; however, employers are increasingly considering how ASD characteristics lend themselves to occupational success in a variety of positions (e.g., graphic design, finance, administration, marketing, retail) in addition to those listed above (Che, 2016).
Moving along to the actual job search, transition team members must keep in mind that, although conducting a job search is stressful for all individuals, it is likely to be even more stressful for individuals with ASD (Koch & Rumrill, 2017). Therefore, extensive support may be needed during this process that includes encouragement and positive reinforcement as well as assistance in conducting the job search, completing job applications, and interviewing for jobs. Job development and placement specialists can use role-plays with these consumers to practice interviewing for jobs and provide them with specific corrective feedback. In some cases, the prospective employee may want a job placement professional to attend job interviews to assist in effectively communicating his or her qualifications to employers.
Training in soft skills is a critical service to provide to individuals with ASD (Autism Speaks, Inc., 2012) and should occur across all phases of the job development, placement, and retention process. Individuals with ASD will need these skills to successfully complete job interviews, receive job offers, and work effectively with co-workers and supervisors. Indeed, researchers have discovered that as much as 85% of employment success is due to soft skills as opposed to hard skills, and people are more likely to be fired from their positions because of deficits in soft skills as opposed to deficits in hard skills (Robles, 2012). Job coaches or employment support specialists can be instrumental in helping these employees to develop soft skills (e.g., small talk, respect for co-workers’ personal space, understanding idioms and slang, emotional reciprocity, deciphering unspoken cultural norms so that they do not unintentionally violate them).
Once a job is secured, supported employment is arguably the single most influential practice that results in sustained job retention for youth with ASD (Schall et al., 2012). Specifically, supported employment assists people with significant disabilities through customized, intensive, and ongoing support (Chen et al., 2015). The focus of employment supports will most likely be on the development of soft skills as opposed to hard skills. Particularly during the initial stages of employment, services targeted at soft skills development are likely to be intensive, and, as the employee becomes more effective at implementing these skills, the job coach or employment specialist gradually fades out services until the employee is able to independently use these skills or rely on a co-worker (natural support) to assist them with these skills. During stressful periods such as changing jobs or career advancement, job supports may be resumed to facilitate the individual’s career success.
Business partnerships are a collaborative effort to increase the employment of individuals with disabilities. This form of supported employment is utilized to assist workers in specialized business (e.g., Walgreens, Bank of America, Marriot Bridges, etc.) until the employee is independent (Schall et al., 2012). Customized employment is another model of supported employment that allows a person with ASD to negotiate a personalized job independently or through a job negotiator. The job negotiator meets with the employer and arranges a job for the individual. In an example provided by Schall and colleagues (2012), the job negotiator met with the owner of a sandwich shop and arranged for the individual to prepare vegetables for sandwiches, stock the drink cooler, and deliver orders within a 4-block radius of the store. These tasks served the needs of the business and the employment needs of the individual with ASD (Schall et al., 2012). Although a large body of research provides evidence of the effectiveness of supported employment interventions for individuals with other severe disabilities, less research has examined the outcomes of supported employment for individuals with ASD.
Accommodation planning is another key employment service that will facilitate employee success. In an investigation of workplace discrimination and ASD, Van Wieren, Reid, and McMahon (2008) found that an extremely low number of ASD discrimination complaints were received by the EEOC and speculated that this could indicate a particular need to educate individuals with ASD about their rights and options to file discrimination complaints. These authors also suggested that individuals with ASD might not recognize discrimination when it occurs or know what actions to take if they do recognize it. Thus, educating these individuals about their rights and responsibilities under the Americans with Disabilities Act Amendments Act (ADAAA) is often the first step in accommodation planning.
Identifying functional limitations, essential job functions, and potential accommodations is the next step in the process. VR professionals can initiate this step with consumers by exploring functional difficulties and corresponding accommodations they have used in secondary and postsecondary classrooms or previous employment to determine if any of these can be applied to new positions. These accommodations can then be supplemented by additional accommodations collaboratively identified by the individual with ASD and the VR professional (i.e. job development and placement specialist or VR counselor). Whetzel (2013) offered numerous accommodation ideas for workers with ASD that can be retrieved from the Job Accommodation Network (JAN) website. To address communication difficulties, the author recommended ideas such as providing advance notice of topics to be addressed at meetings or allowing employees to provide written, instead of oral, responses at meetings. Examples of accommodations for atypical body movements include allowing employees to use items such as squeeze balls for self- stimulation and providing structured breaks for physical activity. To accommodate sensory issues, accommodation ideas include changing the lighting for individuals with fluorescent light sensitivity, moving individuals with noise sensitivity to quieter offices or workstations, and (to accommodate fragrance sensitivities) institute fragrance-free office policies or allow telework. To accommodate stress management difficulties, ideas include providing praise and positive reinforcement and the use of a support animal.
Because of the communication difficulties associated with ASD, requesting accommodations may be a particularly daunting prospect for individuals with this condition. Pre-interview practice with scripts and role-plays can be useful in these cases. One of the most effective approaches is for placement or employment support specialists to partner directly with the employee and employer to identify, implement, and evaluate reasonable accommodations. Another service that VR professionals can provide to facilitate career success is to educate employers and co-workers about the advantages of hiring and accommodating workers with ASD, unique characteristics of ASD that may be assets in particular work environments, and strategies for effectively communicating with workers with ASD. They can also assist employers to develop and implement inclusive workplace policies that prohibit and sanction any form of interpersonal mistreatment.
Conclusion
In this article, the authors have summarized data demonstrating that the rates of ASD diagnoses have substantially increased in recent years. Given these data, it is anticipated that growing numbers of these youths will be in need of transition and vocational rehabilitation services. Characteristics of ASD that warrant specific attention in the transition and VR planning processes include the heterogeneity of individuals with ASD, the degree and severity of impairment, the functional domains affected (particularly executive functioning and social communications), the need to take on a lifespan perspective and provide services in an early intervention context, and other conditions that commonly co-occur with ASD.
Although research on ASD has focused primarily on employment barriers and less on effective interventions to ameliorate these barriers, preliminary evidence has demonstrated support for the effectiveness of various transition-related service delivery models and interventions. Before examining specific applications of these interventions, the authors provided an overview of clinical characteristics of ASD, with the defining characteristics being deficits in social communication and interpersonal skills. Then we discussed vocational challenges for individuals with ASD, which primarily present as deficits in soft skills. The remainder of the article examined elements of interdisciplinary transition planning that focus on the unique needs and characteristics of each student with autism and treat the family and student as expert members of the transition team.
We joined with others in advocating for more students with ASD to be supported in pursuing postsecondary education and identified the classroom accommodation and service needs of these students. We then examined employment services and supports, emphasizing the need for career development services and experiences to be implemented long before formalized transition planning begins. We examined specific accommodations and employment-related services (e.g., supported employment) that facilitate employment success. It is our hope that this article will serve as a useful resource for transition and VR specialists who can anticipate providing services to growing numbers of individuals in this emerging disability population.
Conflict of interest
None to report.
