Cognitive symptoms and other functional limitations associated with multiple sclerosis (MS) have a significant negative impact on employment status. Work accommodations positively impact the ability of a person with MS to obtain and retain employment, however, current understanding of the role of accommodations in the careers of adults with MS is limited.
OBJECTIVE:
To analyze the percentage of American workers with MS who utilize workplace accommodations as per Title I of the ADA, the types of accommodations most frequently required, and differences in disease variables, job-related factors, and quality of life between workers using and not using work accommodations.
METHODS:
Data from 746 employed adult members of the National MS Society surveyed about career concerns were analyzed. Descriptive and inferential statistics were used as appropriate to address the research questions.
RESULTS:
Approximately 25% reported having requested accommodations, and 87.7% reported receiving the requested accommodation. Participants with progressive MS, cognitive impairment, higher number of MS symptoms and greater symptom severity were more likely to use work accommodations. Participants with accommodations reported poorer job match and career optimism than those using no accommodations.
CONCLUSION:
This large-scale analysis addresses several outstanding questions concerning work accommodations among workers with MS. Cognitive symptoms and disease severity are strongly associated with need for accommodations, however accommodations do not appear to promote job satisfaction or longevity. The accommodation request process and the impact of accommodations on employment retention remain important research foci.
AbrahamSScheinbergLCSmithCRLaRoccaNG1997Neurologic impairment and disability status in outpatients with multiple sclerosis reporting dysphagia symptomatologyJournal of NeuroRehabilitation11713
2.
AmatoMPZipoliVPortaccioE2006Multiple sclerosis-related cognitive changes: A review of cross-sectional and longitudinal studiesJournal of the Neurological Sciences2451-24146
3.
AntaoLShawLOllsonKReenKToFBossusACooperL2013Chronic pain in episodic illness and its influence on work occupationsWork4411136
4.
BuchananRJChakravortyBJTyryTHatcherWVollmerT2009Age-related comparisons of people with multiple sclerosis: Demographic, disease, and treatment characteristicsNeuroRehabilitation254271278
5.
ChiaravallotiNDDeLucaJ2008Cognitive impairment in multiple sclerosisLancet Neurology711391151
6.
DeLucaJNocentiniU2011Neurological, medical, and rehabilitative management in persons with multiple sclerosisNeuroRehabilitation29197219
7.
DooganCPlayfordED2014Supporting work for people with multiple sclerosisMultiple Sclerosis Journal20664665010.1177/1352458514523499
8.
EdgleyKSullivanMDebouxE1991A survey of multiple sclerosis, part 2: Determinants of employment statusCanadian Journal of Rehabilitation43127132
9.
FalvoDR2014Medical and psychosocial aspects of chronic illness and disability5th edBurlington, MAJones and Bartlett Publishers, LLC
10.
FinlaysonMShevilEChoCC2009Perceptions of cognitive symptoms among people aging with multiple sclerosis and their caregiversAmerican Journal of Occupational Therapy63151159
11.
HarrisonTStuifbergenAAdachiEBeckerH2004Marriage, impairment, and acceptance in persons with multiple sclerosisWestern Journal of Nursing Research263266285
KalbR2012Multiple sclerosis: The questions you have, the answers you needNew York, NYDemos Medical Publishing
14.
Kiecolt-GlaserJKNewtonTL2001Marriage and health: His and hersPsychological Bulletin1274472503
15.
LincolnNDentAHardingJWeymanNNichollCBlumhardtLD2002Evaluation of cognitive assessment and cognitive intervention for people with people with MSJournal of Neurology, Neurosurgery & Psychiatry729398
16.
MarrieRAGoldmanM2007Validity of performance scales for disability assessment in multiple sclerosisMultiple Sclerosis1311761182
17.
MarrieRAHorwitzRCutterGTyryTCampagnoloDVollmerT2008Comorbidity, socioeconomic status and multiple sclerosisMultiple Sclerosis1410911098
18.
McPhetersJKSandbergJG2010The relationship among couple relationship quality, physical functioning, and depression in multiple sclerosis patients and partnersFamilies, Systems, & Health281486810.1037/a0018818
National Multiple Sclerosis Society1997Project Alliance final report. Funded by the Rehabilitation Services AdministrationWashington, D.C.U.S. Department of Education, grant PR #HH
21.
PhillipsLJStuifbergenAK2006Predicting continued employment in persons with multiple sclerosisJournal of Rehabilitation723543
22.
PolmanCThompsonAMurrayTBowlingANoseworthyJ2006Multiple Sclerosis: The guide to treatment and managementNew York, NYDemos Medical Publishing
23.
RaoSMLeoGJEllingtonLNauertzTBernardinLUnverzagtF1991Cognitive dysfunction in multiple sclerosis: Impact on employment and social functioningNeurology41692696
24.
RoesslerRRumrillP1995The relationship of perceived worksite barriers to job mastery and job satisfaction for employed people with multiple sclerosisRehabilitation Counseling Bulletin391214
25.
RoesslerRRumrillPFitzgeraldS2004Predictors of employment status for people with multiple sclerosisRehabilitation Counseling Bulletin47297103
26.
RoesslerRTRumrillPDHennesseyMLVierstraCPugsleyEPittmanA2003Perceived strengths and weaknesses in employment policies and services among people with multiple sclerosis: Results of a national surveyWork: Journal of Prevention, Assessment & Rehabilitation2112536
27.
RoesslerRTRumrillPDLiJLeslieMJ2015Predictors of differential employment statuses of adults with multiple sclerosisJournal of Vocational Rehabilitation42214115210.3233/JVR-150731
28.
RubinSERoesslerRTRumrillPD2015Foundations of the vocational rehabilitation process7th edAustin, TXPro Ed
29.
RumrillPFraserRJohnsonK2013Employment and workplace accommodation outcomes among participants in a vocational consultation service for people with multiple sclerosisJournal of Vocational Rehabilitation398590
30.
RumrillPHennesseyML2001Multiple sclerosis: A guide for rehabilitation and health care professionalsCharles C ThomasSpringfield, IL
31.
RumrillPHennesseyMNissenS2008Employment issues and multiple sclerosis2nd EdDemosNew York
32.
Rumrill, P., Roessler, R., Li, J., Daly, K., & Leslie, M. (in press). Surveying the employment concerns of Americans with multiple sclerosis using a participatory action research approach: Results from a national stratified random sample. Work: A Journal of Prevention, Assessment, and Rehabilitation.
33.
RumrillPDRoesslerRTMcMahonBTFitzgeraldSM2005Multiple sclerosis and workplace discrimination: The national EEOC ADA research projectJournal of Vocational Rehabilitation233179187
34.
SchartzHAHendricksDJBlanckP2006Workplace accommodations: Evidence based outcomesWork274345354
35.
SchererMJ2012Assistive technologies and other supports for people with brain impairmentNew YorkSpringer Publishing Company, LLC
36.
SchiavolinSLeonardiMGiovannettiAMAntozziCBrambillaLConfalonieriPRaggiA2013Factors related to difficulties with employment in patients with multiple sclerosis: A review of literatureInternational Journal of Rehabilitation Research36210511110.1097/MRR.0b013e32835c79ea
37.
SchwartzCEVollmerTLeeH1999North American Research Consortium on Multiple Sclerosis Outcomes Study GrouReliability and validity of two self-report measures of impairment and disability for MSNeurology6370
38.
SumnerG1997Project Alliance: A job retention program for employees with chronic illnesses and their employersNew YorkNational Multiple Sclerosis Society
39.
SweetlandJHowseEPlayfordED2012A systematic review of research undertaken in vocational rehabilitation for people with multiple sclerosisDisability & Rehabilitation34242031203810.3109/09638288.2012.669019
40.
SweetlandJRiaziACanoSJPlayfordED2007Vocational rehabilitation services for people with multiple sclerosis: What patients want from clinicians and employersMultiple Sclerosis (13524585)131911831189
41.
TintoreMTurC2014Understanding the role of gender and hormones in multiple sclerosisMultiple Sclerosis Journal20551851910.1177/1352458514528266
42.
UngerDRumrillPDJrRoesslerRTStacklinR2004A comparative analysis of employment discrimination complaints filed by people with multiple sclerosis and individuals with other disabilitiesJournal of Vocational Rehabilitation203165170
VarekampIVerbeekJMvan DijkFH2006How can we help employees with chronic diseases to stay at work? A review of interventions aimed at job retention and based on an empowerment perspectiveInternational Archives of Occupational & Environmental Health802879710.1007/s00420-006-0112-9
