The role of nurses in recognizing and caring for patients with primary immunodeficiencies

The care of adults and children with primary immunodeficiencies is very much a multi-disciplinary and multi-professional responsibility. Amongst many of the health, and other, professionals whose input can make all the difference to the quality of life of these patients, the nurse stands out as the one person who probably has the most contact with the patients and their families. This chapter looks at the multi-dimensional role of the nurse who is working with these patients and their families. These roles encompass the recognition of PIDs, the physical, psychosocial and emotional care of the patients and families, the prevention of complications, educational, and research. Of particular importance is the nurse's role in fostering, and working within, partnerships – partnerships with other health professionals, with families, and above all, with patients.