The purpose of this study was to explore factors related to parental depressive
symptoms (PDS) and family quality of life (FQOL) in parents of adolescents and young
adults (AYA) with and without a specific chronic health condition (CHC), spina
bifida.
METHODS:
Two hundred and nine parents of AYA (112 with SB; and 97 without) and their AYA (46%
males and 54% females) took part in a multi-site cross-sectional descriptive
correlational study. In telephone interviews parents reported on measures of family
satisfaction, resources, cohesion, stress, demographic and clinical data.
RESULTS:
In the multivariate analyses, 38% of the variance of PDS was explained by family
income, family resources and parent stress. Having a child with SB was not predictive of
PDS. However, having a child with SB, along with family satisfaction, parent stress and
PDS explained 49% of the variance of FQOL. PDS partially mediate the relationship of
family resources and FQOL.
CONCLUSION:
PDS, family stress, and resources should be evaluated routinely, especially for those
with low income. Parents of AYA with SB who have elevated PDS are at increased risk of
having lower reported FQOL.
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