Journal of Family Nursing

Growing up in a family with a recessive genetic condition can trigger questions about progeny effect. This study explored perceptions of family hardiness and information sharing by 18- to 21-year-olds about genetic risk. Semistructured interviews, the Family Hardiness Index (FHI), and a Family Information Sharing Analog Scale (FISAS) were used. Participants included 11 youths who had relatives with hemophilia and 4 with sickle cell anemia. Findings revealed seven themes: assimilating premature knowledge; caring for others, denying self; cautioning during development; experiencing continual sickness; feeling less than; magnifying transition experiences; and sustaining by faith. There was no significant correlation between total FHI and FISAS. However, there was a statistically significant difference in FISAS between genetic condition variance. Specifically, higher hardiness was found and information sharing correlated among college youths in families with hemophilia. Additional research can lead to nursing interventions to provide genetic information to youths in families for illness variance.

The goal of this interpretive phenomenological study is to describe and understand significant habits and practices developed by families bereaved from the sudden and unexpected loss of their children. Data were primarily collected through the interviewing of 15 family members in seven families. At least four interviews were conducted with each family. Family members were interviewed both together and separately. The analysis of the data illuminated the development of significant and meaningful family practices. These practices acknowledged the death of the children, integrated their loss into the everyday lives of these families, allowed for continuing connection, and were of utter importance as they contributed to family healing.

As the science progresses related to families participating in the process of withdrawal of life-sustaining therapy (LST), it is important to assess research accomplishments, identify gaps in the knowledge and ways to build on the science, and suggest new directions for future research. Research-based articles related to families participating in the process of withdrawal of LST were obtained by conducting computer-assisted searches and analyzing references lists. A grid was developed that included key variables from each of the studies. A second grid was developed and included the subthemes that evolved from the analysis. Eleven studies were reviewed and analyzed. Themes that evolved include illness context, family context, and family and health care provider interactions. Important information has been discovered about the family decision-making process and helpful health care provider interactions. Additional research focused on withdrawal of LST is needed to understand important concepts, develop instruments, and test interventions.

Increasing drug use among rural African American women and its effect on children warrants investigation. This article describes drug-use locations of rural African American women who use cocaine and construct their lives to conceal it from children. During 4 years, a 30-respondent ethnography was conducted. Data from in-depth interviews and field notes were analyzed for recurrent themes and patterns of drug-use location using NVivo. Most respondents with children used most often outside their households. One third (n = 10) used within their households when children were away or in designated spaces off limits to children. More respondents (n = 11) without children at home used in non-designated spaces; in contrast, few respondents (n = 2) with children at home used in non-designated spaces within the household. Most respondents thought they were successful at concealing their cocaine use. Implications for choice of space and place of drug use for themselves and their children are discussed.

Over 10 years, a number of nurse educators at the Waikato Institute of Technology (WINTEC) have worked collaboratively across primary health, cultural safety, and child and family health domains of the nursing curriculum. They share a common philosophy underpinned by notions of diversity and health equity. The philosophy informs their theoretical inquiry, practice and research interests, and pedagogical concerns. This article outlines some key aspects of their practice as nurse educators and researchers committed to the needs of their specific region in the central North Island of Aotearoa New Zealand. They begin by situating themselves within the region, its people, and influences before moving into a consideration of the wider political and policy environment. They consider the destabilizing effects of cultural safety education and the tension between biculturalism and multiculturalism in their context. Finally, they reflect on how these ideas inform their work with postgraduate child and family nurses.