Practice-based Evidence from Comparative Effectiveness Research to Inform Evidence-based Practice

Kuhn TS . The Structure of Scientific Revolutions. University of Chicago Press; 1962.

Hathaway RR Long RE Jr . Early cleft management: in search of evidence. Am J Orthod Dentofacial Orthop. 2014;145(2):135-141.

Sackett DL Straus SE Richardson WS , et al. Evidence-based Medicine. How to Practice and Teach EBM. Churchill Livingstone; 2000.

Horn SD Gassaway J . Practice-based evidence study design for comparative effectiveness research. Med Care. 2007;45(10 Supl 2):S50-S57.

Shaw WC Dahl E Asher-McDade C Brattström V Mars M McWilliam J Mølsted K Plint DA Prahl-Andersen B Roberts D , et al. A six-center international study of treatment outcome in patients with clefts of the lip and palate. Cleft Palate Craniofacial J, Parts. 1992;29(1–5):393-418.

Long RE Jr Hathaway RR Daskalogiannakis J , et al. The americleft study: an intercenter study of treatment outcomes for patients with unilateral cleft lip and palate. Part 1 – principles and study design. Cleft Palate-Craniofacial J. 2011;48(3):239-243.

Hathaway RR Daskalogiannakis J Mercado AM , et al. The americleft study: an intercenter study of treatment outcomes for patients with unilateral cleft lip and palate. Part 2 – dental arch relationships. Cleft Palate-Craniofacial J. 2011;48(3):244-251.

Daskalogiannakis J Mercado AM Russell KA , et al. The americleft study: an intercenter study of treatment outcomes for patients with unilateral cleft lip and palate. Part 3 – analysis of craniofacial form. Cleft Palate-Craniofacial J. 2011;48(3):252-258.

Mercado AM Russell KA Hathaway RR , et al. The americleft study: an intercenter study of treatment outcomes for patients with unilateral cleft lip and palate. Part 4 – nasolabial esthetics. Cleft Palate-Craniofacial J. 2011;48(3):259-264.

Russell KA Long RE Jr Hathaway RR , et al. The americleft study: an intercenter study of treatment outcomes for patients with unilateral cleft lip and palate. Part 5 – general discussion and conclusions. Cleft Palate-Craniofacial J. 2011;48(3):265-270.

Kim JB Strike P Cadier MC . A simple assessment method for auditing multi-centre unilateral cleft lip repairs. J Plast Reconstr Aesthet Surg. 2011;64(2):195-200.

World Health Organization: Global strategies towards reducing the health-care burden of craniofacial anomalies. Report of WHO Meetings on International Collaborative Research on Craniofacial Anomalies. WHO Human Genetics Programme; 2002.

Long RE Jr . Standardized diagnostic records in cleft and craniofacial orthodontics. In: Sheyte P Gibson T , eds. Cleft and Craniofacial Orthodontics, Chapter 43. Hoboken, NJ: Wiley Publishing Co;2023:583-592.

A comparative effectiveness study of speech and surgical treatments using Cleft Palate Registry/Research Outcomes Network. https://grantome.com/grant/NIH/R01-DE027493-01

Long RE Jr Hall T Stauffer L , et al. An intercenter comparison of changes in UCLP dental arch relationship before and 10-years after a change in a center’s treatment protocol. In: Transactions of the 14th International Congress on Cleft Lip/Palate and Related Craniofacial Anomalies, Edinburgh, Scotland, 11–15 July 2022.

The Americleft Project (guidebook): https://static1.squarespace.com/static/5a8741a6c027d8435ad214c2/t/5a9dafa624a6949eb20e9e9a/1520283580634/americleft-Workbook.pdf

Russell KA Long RE Jr Daskalogiannakis J , et al. A multi-center study using the SWAG scale to compare secondary alveolar bone graft outcomes for patients with cleft lip and palate. Cleft Palate-Craniofacial J. 2016;53(6):180-186.

Russell KA Long RE Jr Daskalogiannakis J , et al. Reliability of the SWAG – the standardized way to assess grafts method for alveolar bone grafting in patients with cleft lip and palate. Cleft Palate-Craniofacial J. 2017;54(6):680-686.

Long RE Jr Shaw WC Semb G : Eurocleft and Americleft studies: experiments in intercenter and international collaboration. In: Berkowitz S , ed. Cleft Lip and Palate – Diagnosis and Management, 3rd ed. Berlin: Springer-Verlag; 2013:929-945, Chapter 47.

Hathaway RR Long RE Jr Mercado AM , et al. The Americleft project: use of a standardized outcome measure of dental arch relationships (Goslon) to allow international interstudy comparisons. In: Transactions of the 12th International Congress on Cleft Lip/Palate and Related Craniofacial Anomalies, Orlando, FL, 5-10 May 2013.

Dabbagh W Long R Horst M , et al. Long-term changes in CUCLP nasolabial appearance ratings at 5, 8, and 11 years of age without secondary revision surgery. American cleft palate craniofacial association 75th annual meeting abstracts. Cleft Palate Craniofac J. 2018;55(1S):1-123.

Peanchitlertkajorn S Mercado AM Daskalogiannakis J Jr., et al. An inter-center comparison of dental arch relationships and craniofacial form including a center using nasoalveolar molding. Cleft Palate Craniofacial J. 2018;55(6):655-663.

Peanchitlertkajorn S Mercado AM Daskalogiannakis J Jr., et al. An inter-center comparison of nasolabial esthetics including a center using nasoalveolar molding. Cleft Palate Craniofacial J. 2018;55(6):655-663.

Lowry C Long RE Jr Russell K , et al. The effect of earlier bone grafting, prior to orthodontic treatment, on SWAG ratings of graft outcomes. Cleft Palate-Craniofacial J. 2021;58(2):208-214.

Long RE Jr . The Americleft Project: comparing treatment outcomes for cleft lip and palate to identify evidence-based practices of importance to the orthodontist. Pract Rev Orthod. 2011.

Daskalogiannakis J Long RE Jr Hathaway RR , et al. The Americleft project: lessons learned from intercener outcome assessments. In: Transactions of the 12th International Congress on Cleft Lip/Palate and Related Craniofacial Anomalies, Orlando, FL, 5–10 May 2013.

Russell KA Long RE Jr Daskalogiannakis J , et al. The Americleft Project: Alveolar bone graft outcome assessment: History, challenges, and a method developed to overcome these challenges. In: Transactions of the 12th International Congress on Cleft Lip/Palate and Related Craniofacial Anomalies, Orlando, FL, 5–10 May 2013.

Daskalogiannakis J Russell KA Mercado AM , et al. The Americleft Project: Burden of care of various infant orthopedic protocols for improvement of nasolabial aesthetics in patients with CUCLP. In: Transactions of the 12th International Congress on Cleft Lip/Palate and Related Craniofacial Anomalies, Orlando, FL, 5–10 May 2013.

Long RE Jr Mercado AM Daskalogiannakis J , et al. The Americleft Project: A modification of Asher-McDade method for rating nasolabial esthetics in patients with CUCLP. In: Transactions of the 12th International Congress on Cleft Lip/Palate and Related Craniofacial Anomalies, Orlando, FL, 5–10 May 2013.

Mercado AM Russell KA Daskalogiannakis J , et al. The Americleft project: a proposed expanded nasolabial appearance yardstick of 5-year old patients with CUCLP. In: Transactions of the 12th International Congress on Cleft Lip/Palate and Related Craniofacial Anomalies, Orlando, FL, 5–10 May 2013.

Sitzman TJ Mara CA Long RE Jr , et al. The americleft project: burden of care from secondary surgery in patients with unilateral cleft lip and palate. Plast Reconstr Surg Global Open. 2015;3(7):e442.

Baylis A Chapman K Whitehill T , Americleft Speech Group. Validity and reliability of visual analog scaling for assessment of speech outcomes in children with repaired cleft palate. Cleft Palate-Craniofacial J. 2015;52(6):660-670.

Ruppel JK Long RE Jr Oliver DR , et al. The americleft project: a two-center comparison of short and long-term secondary alveolar bone graft outcomes with the SWAG scale. Cleft Palate-Craniofacial J. 2016;53(5):508-515.

Chapman KL Baylis AL Trost-Cardamone J , et al. The americleft speech project: a training and reliability study. Cleft Palate-Craniofacial J. 2016;53(1):93-108.

Mercado AM Russell KA Daskalogiannakis J , et al. The americleft project: a proposed expanded nasolabial appearance yardstick for 5 year old patients with CUCLP. Cleft Palate-Craniofacial J. 2016;53(1):30-37.

Stoutland A Long RE Jr Mercado A , et al. The americleft project: a modification of asher-McDade method for rating nasolabial esthetics in patients with CUCLP using Q-SORT. J Craniofacial Surg. 2017;28(8):1911-1917.

Long RE Jr Daskalogiannakis J Mercado AM Hathaway RR Fessler J Russell K . The americleft project: plaster dental casts versus digital images for GOSLON yardstick ratings when used in intercenter comparisons. J Craniofacial Surgery. 2017;28(5):1269-1273.

Jones CM Roth B Mercado AM Jr., et al. Comparison of ratings using 2D vs. 3D images for evaluation of nasolabial appearance in patients with CUCLP. J Craniofacial Surgery. 2018;29(1):105-108.

Kornbluth M Daskalogiannakis J Russell KA Jr., et al. The americleft project: a comparison of dental arch relationship among five centers using distinct types of presurgical orthodpedics. Cleft Palate Craniofacial J. 2018;55(5):639-648.

Sitzman TJ Allori AC Matic DB , et al. The americleft task force surgeon subgroup. Reliability of oronasal fistula classification. Cleft Palate Craniofacial J. 2018;55(6):871-875.

Singer E Daskalogiannakis J Russell KA , et al. Burden of care of various infant orthopedic protocols for improvement of nasolabial aesthetics in patients with CUCLP. Cleft Palate Craniofacial J. 2018;55(9):1236-1243.

Doucet JC Russell KA Daskalogiannakis J Jr., et al. Facial growth of patients with complete unilateral cleft lip and palate treated with alveolar bone grafting at 6 years. Cleft Palate-Craniofacial J. 2019;56(5):619-627.

Doucet JC Russell KA Daskalogiannakis J Jr., et al. Early secondary alveolar bone grafting and facial growth of patients with complete unilateral cleft lip and palate. Cleft Palate-Craniofacial J. 2022;59(6):1-8.

Peterman JB Briss D Long RE Jr . A comparison of bone graft ratings using 2D vs 3D images. Submitted for publication, Cleft Palate-Craniofacial J. 2022;59.

Hathaway RR Long RE Jr . The americleft project: a roadmap for audits, quality assurance, and improvement in cleft care through comparative effectiveness research using practice-based evidence. In: Submitted for Publication, Proceedings of 59th Moyers Symposium (2023), Craniofacial Growth Series, Center for Human Growth and Development, The University of Michigan, Ann Arbor, MI.