Family-centred care has been defined as a philosophy of care where families are supported in their decision-making roles in an equal partnership with professionals. The research question was ‘How ‘‘family centred’’ do staff and parents perceive their work with disabled children and young people?’ A questionnaire, the Measure of Processes of Care for Service Providers (MPOC-SP), was used as a basis for designing focus groups and interview questions. Staff and parents took part in these and data were analysed using an editing approach. Staff described how they adapted their service to meet parental needs and empowered and enabled parents despite receiving no specific training in FCC. Parents spoke highly of the staff input and gave varied descriptions of the attributes they most valued, including feeling supported and being in an equal partnership. Investigation of the influence of focused FCC training on parental experiences is warranted.
Appleton P., Boll V., Everett JM, et al. (1997) Beyond child development centres: Care coordination for children with disabilities. Child: Care, Health and Development23: 29-40.
2.
Bjerre I., Larsson M., Franzoni AM, et al. (2004) Measure of Processes of Care (MPOC) applied to measure parents’ perception of the habilitation process in Sweden. Child: Care, Health and Development30: 123-130.
3.
Brewer EJ Jr, McPherson M., Magrab PR, et al. (1989) Family-centred, community-based, coordinated care for children with special health care needs. Pediatrics83: 1055-1060. Medline.
4.
Carter B. ( 2008) Commentary on Shields L, Pratt J, and Hunter J (2006) Family centred care: A review of qualitative studies. Journal of Clinical Nursing5: 1317-1323.
5.
Department of Health (2004) The NHS Knowledge and Skills Framework. Available at: www.dh.gov.uk/en/Publicationsandstatistics
6.
Department of Health (2008) Every Child Matters: Aiming High for Disabled Children: Better Support for Families. Available at: www.dcsf.gov.uk/everychildmatters/healthandwellbeing/ahdc/AHDC/
7.
Department of Health, Department for Education and Skills ( 2004) National Service Framework for Disabled Children and Young People and Maternity Services: Disabled Children and Young People and those with Complex Health Needs. Available at: www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/PublicationsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4089112&chk=0RgaiF
8.
Dyke P., Buttigieg P., Blackmore AM, et al. (2006) Use of the Measure of Process of Care for Families (MPOC-56) and Service Providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child: Care, Health and Development32(2): 167-176.
9.
Hicks C. ( 2004) Research Methods for Clinical Therapists, 4th edn. London: Churchill Livingstone.
10.
King S., King G., and Rosenbaum P. ( 2004) Evaluating health service delivery to children with chronic conditions and their families: Development of a refined Measure of Processes of Care (MPOC-20). Children’s Health Care33(1): 35-57.
11.
King S., Rosenbaum P., and King G. ( 1995) The Measure of the Processes of Care: A means to assess family-centred behaviours of health care providers. McMaster University, Hamilton, Ontario.
12.
Krueger RA, Casey MA ( 2000) Focus Groups: A Practical Guide for Applied Research. Thousand Oaks, CA: Sage Publications.
13.
McConachie H., Logan S. ( 2003) Validation of the measure of the processes of care for use when there is no Child Development Centre. Child: Care, Health and Development29(1): 35-45.
14.
Miles MB, Huberman MA ( 1994) Qualitative Data Analysis: An Expanded Sourcebook, 2nd edn. Thousand Oaks CAa: Sage Publications.
15.
O’Neill ME, Palisano RJ, and Westcott SL ( 2001) Research report: Relationship of therapists’ attitudes, children’s motor ability, and parenting stress to mothers’ perception of therapists’ behaviors during early intervention. Physical Therapy81(8 August): 1412-1424.
16.
Roberts D. ( 2006) Therapy without frontiers, families without tears. Physiotherapy Frontline 19 July: 18-20.
17.
Seale J., Barnard S. ( 1998) Therapy Research Processes and Practicalities. Oxford: Butterworth Heinemann.
18.
Siebes RC, Ketelaar M., Wijnroks L., et al. (2006) Family centred services in the Netherlands: Validating a self report measure for paediatric service providers. Clinical Rehabilitation20(6): 502-512.
19.
Shields L., Pratt J., and Hunter J. ( 2006) Family centred care: A review of qualitative studies. Journal of Clinical Nursing15: 1317-1323.
20.
van Schie P., Siebes R., Ketelaar M., et al. (2004) The Measure of Processes of Care (MPOC) validation of the Dutch translation. Child: Care, Health and Development30: 529-539.
21.
Wales Assembly Government (2004) National Service Framework for Children and Young People and Maternity Services . Cardiff: Welsh Assembly Government .
22.
Woodside JM, Rosenbaum PL, King SM, et al. (2001) Family-centered service: Developing and validating a self-assessment tool for pediatric service providers. Children’s Health Care30(3): 237-252.
