Journal of Child Health Care

In Australia, Community Child Health Services (CCHS) is the primary health care service which seeks to strengthen and support families, prevent illness and manage risks. Several nursing models of care exist within CCHS, and limited research has investigated which is the best way to provide child health surveillance and parenting support during the early years. This study qualitatively explored the everyday lived experience of parents and child health nurses involved with an open-access (appointment-free, parent-led) group child health surveillance clinic. Findings showed that participants considered the open-access clinic provided a helpful and supportive way of delivering child health surveillance and parental support to families with infants aged 0–18months, without identified risk factors. The perspectives of multiple parents, nurses and other health workers found it effective, flexible and parent-directed, which may be in contrast to some traditional individual appointment child health surveillance methods.

A representative sample of 58 preschoolers (aged 4 and 5) and 78 school-age children (aged 8 and 9) from methamphetamine-producing (MP) and non-producing (NP) homes was drawn from a rural county in Tennessee, for two separate studies. The researchers assessed the psychological functioning of the children using age appropriate Behavior Assessment System for Children (BASC) forms, and compared the scores of children with NP status with population-based data. The results indicate that in this rural sample, the prevalence of internalizing and externalizing disorders in children from NP homes was higher than in population-based norms. Specifically, the preschoolers showed a higher rate of depression, and the school-age children had higher rates of anxiety, depression, and atypical behaviors than their population-based peers. The results are interpreted in terms of low SES and accessibility to mental health services in rural communities. The authors suggest nurse practitioners include brief psychological screenings in their assessment protocols for this population.

The aim of this systematic review was to critically examine the research that quantifies and describes the daily patterns of time use by parents of children with complex needs. Four electronic databases were searched. A total of 32 studies (30 peer-reviewed journal articles and two theses) met the inclusion criteria. Three key findings emerged from the review: (a) Parents of children with complex needs carry a significant caregiving burden that often does not reduce as the age of the child increases, (b) supervision or ‘vigilance’ is a category of childcare that carries a particular time requirement for these parents and (c) parents of children with complex needs spend (sometimes considerable) time undertaking health care–related tasks outside the ‘normal’ parenting role. The time demands placed on parents caring for a child or children with complex needs at home should be considered when health professionals are negotiating essential and/or additional therapies or treatments to be included in a child’s home care regime.

In interviews with parents for the evaluation of a cardiac ward programme in a children’s hospital, a number of parents mentioned the role of the Heart Beads Program in including siblings in the hospitalisation of the child with congenital heart condition (CHD). Inclusion of siblings in the events surrounding the child with the cardiac condition was of two kinds: (a) touching and explaining about the beads and the child’s condition and (b) involvement in collecting and threading the beads. Discussion of the needs of siblings suggests that inclusion of siblings in activities related to the care and understanding of the CHD child as well as the creation and shaping of the family narrative is important. These cases illustrate the different ways in which siblings are involved and acknowledged and how involvement can be facilitated by a programme like Heart Beads.

The aim of this population-based study was to examine how parents of Icelandic children with physical disability view the services of physical, occupational, and speech therapists and how family centered those services are. A secondary aim was to compare the differences of parental perceptions of therapy services based on age, residence, and disabilities. Parents of 88 (46%) children aged 2–18 answered the Measure of Processes of Care–20 (MPOC-20), and six parents participated in a focus group interview. Descriptive data were used to explore central tendency and variability, and comparisons were made using analysis of variance. Overall, the parents found the therapy services respectful, supportive, and coordinated; they felt enabled in their parent role and worked mostly in partnership with the professionals. Nevertheless, parents perceived they received insufficient information from therapists. Parents reported a wish for more cooperation, teamwork, and a key worker. Findings indicate that the MPOC is reliable and easy to use within the Icelandic context.

The aim of this study was to explore parents’ attributions for their children’s behaviour and their beliefs about treatment efficacy, and to investigate the specific topics and strategies parents believe would be most beneficial in a parenting intervention. A survey of 165 parents and qualitative interviews with 13 parents were conducted, assessing child behaviour, parental attributions and intervention characteristics. The findings indicated that parents were confident in their ability to manage the challenges of asthma, and in general, believed that five key asthma treatment recommendations were at least moderately helpful in managing their child’s asthma. Many parents believed that asthma medications were related to behavioural difficulties including hyperactivity, disruptiveness, and disobedience. Nearly half of the parents were concerned about how to best manage their child’s asthma, and a number of themes were identified as important intervention elements. The implications of these findings for intervention development are discussed.

In the past decade there has been both an increase in the number of children who receive nursing care in their communities rather than in hospitals, and an increasing willingness to listen to children. This qualitative study used Clark’s Mosaic approach to elicit children’s views of community children’s nursing. Twenty-one children took part in total, with seven children making up a core group who participated in a number of activities for over a year. A non-core group of 14 children were observed receiving care from six community children’s nurses. The children had diverse medical conditions, were aged from 11 months to 17 years old and came from diverse social, ethnic and cultural backgrounds. Some children expressed a positive regard for nurses and nursing. Some children a negative regard, others were ambiguous. From these data it is proposed that there is a continuum of regard for nurses. How children regarded nurses did not seem to be related to the nurse’s actions, but to the child’s understanding of their illness and their involvement in care. Further study is required to clarify the concept and should focus on what effect children’s regard for nurses and nursing has on health outcomes.