Objectives

To investigate the perspectives of parents on their treatment decisions for the management of their child’s ankyloglossia (tongue-tie).

Method

Ninety-eight parents across Australia responded to an online survey about their perspectives on treatment for their infant’s ankyloglossia. Descriptive statistics were used to analyse quantitative data, and thematic analysis was used to describe qualitative data.

Results

Participants were from all Australian states and territories. Ankyloglossia was most often diagnosed by lactation consultants and midwives within the first week of life, with nearly all cases identified during the first year. While all parents were offered non-surgical treatments, most reported persistent feeding difficulties. Surgical treatment, typically conventional or laser frenotomy, was offered to almost all parents. Surgical intervention was successful for most infants, though spontaneous recovery of feeding difficulties without intervention was also observed. Key reasons for declining surgery included positive experiences with non-surgical treatment, concerns about surgical risks, and conflicting information. Overall, parents were more likely to consent to surgical than non-surgical treatment in the future, though experiences of shared decision-making were rated more positively with non-surgical providers.

Conclusions

Parental involvement and engagement in managing infant ankyloglossia was linked to positive perceptions of outcomes. Surgical treatment showed favourable results, though some infants improved without intervention, underscoring the need for standardised protocols. Findings emphasise the need for clear communication and shared decision-making to support parents and reduce unnecessary treatment.